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T-cell /Cellular Immune Responses in Patients with CLL from the Pfizer-BioNTech COVID-19 Vaccine (BNT162b mRNA Covid19 Vaccine)
From Dr Tamar Tadmor, Head of the Israeli CLL study group at iwCLL. Patients with CLL suffer from varying degrees of immune deficiency, either due to their treatment or due to the the primary disease These include: 1. functional defects of B and T lymphocytes, NK cells, neutrophils and macrophages, 2
From Dr Tamar Tadmor, Head of the Israeli CLL study group at iwCLL. Patients with CLL suffer from varying degrees of immune deficiency, either due to their treatment or due to the the primary disease These include: 1. functional defects of B and T lymphocytes, NK cells, neutrophils and macrophages, 2
Jm954
Administrator
in
CLL Support
3 years ago
Leukaemia and letting up lockdown - the webinar.
leukaemia
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leukaemia
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MeNotDavid
in
Leukaemia Support
3 years ago
Clinical Trials explained
Most of us have heard conflicting comments about Clinical Trials, the good, the bad and the just plain ugly. But where can you find expert help and information before you sign on (often a 30 to 60 page document that few can understand - see https://www.fda.gov/patients/clinical-trials-what-patients-need-know
Most of us have heard conflicting comments about Clinical Trials, the good, the bad and the just plain ugly. But where can you find expert help and information before you sign on (often a 30 to 60 page document that few can understand - see https://www.fda.gov/patients/clinical-trials-what-patients-need-know
lankisterguy
Volunteer
in
CLL Support
3 years ago
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Richter’s Transformation - updated
Hi everyone. I would like to update all the data that we all provide and summarize it. Last week I had a meeting with a CLL teacher and we discussed Ricther's behavior. That is what my doctor thinks but I am not satisfied. It is only his hypothesis and without any study. He thinks that as long as
Hi everyone. I would like to update all the data that we all provide and summarize it. Last week I had a meeting with a CLL teacher and we discussed Ricther's behavior. That is what my doctor thinks but I am not satisfied. It is only his hypothesis and without any study. He thinks that as long as
Priss69
in
CLL Support
3 years ago
Azacitidine side effect
I have MF and have been on Jakafi for over 2 years. During this time my spleen has enlarged to fill my stomach. It is not reducing, so my Haematologist recommended a chemo drug named Azacitidine. I have had the first cycle of 7 days and finished just over a week ago. However, I am experiencing Insomnia
I have MF and have been on Jakafi for over 2 years. During this time my spleen has enlarged to fill my stomach. It is not reducing, so my Haematologist recommended a chemo drug named Azacitidine. I have had the first cycle of 7 days and finished just over a week ago. However, I am experiencing Insomnia
billybrock
in
MPN Voice
3 years ago
Not for CLL but…
The FDA will decide on October 1st whether or not to approve a Gilead CAR-T treatment for refractory B-cell precursor Acute Lymphoblastic Leukemia. If nothing else, this would help to promote facilities capable of offering CAR-T and that can benefit some with CLL. I am also reposting this article that
The FDA will decide on October 1st whether or not to approve a Gilead CAR-T treatment for refractory B-cell precursor Acute Lymphoblastic Leukemia. If nothing else, this would help to promote facilities capable of offering CAR-T and that can benefit some with CLL. I am also reposting this article that
Luap001
in
CLL Support
3 years ago
Side effects of JAKAFI
After severe side effects of HU I was lucky enough to be prescribed JAKAFI.. I was so delighted I thought it was going to be the answer to my problems. Sadly no. I started it in May taking 20mg per day. Within a week I had dizziness Which started about an hour of taking it. It's so bad I tripped and
After severe side effects of HU I was lucky enough to be prescribed JAKAFI.. I was so delighted I thought it was going to be the answer to my problems. Sadly no. I started it in May taking 20mg per day. Within a week I had dizziness Which started about an hour of taking it. It's so bad I tripped and
Heather270240
in
MPN Voice
3 years ago
Any IL-6 inhibitor or IL6 receptor inhibitor situation and Liver total protein issue
I would like to ask whether there are such patients with myelofibrosis. Even if they take Ruxolitinib, and take interferon at the same time. The total protein in the biochemistry of the liver continues to decline slowly. This decline is continuous and may be the trend of slow decline for several years
I would like to ask whether there are such patients with myelofibrosis. Even if they take Ruxolitinib, and take interferon at the same time. The total protein in the biochemistry of the liver continues to decline slowly. This decline is continuous and may be the trend of slow decline for several years
merlisa
in
MPN Voice
3 years ago
THE THIRD SHOT
Updated-JCVI-guidance-for-vaccinating-immunosuppressed-individuals-with-third-primary-dose.pdf According to the guidelines issued by JCVI, I should be given a third dose as someone "under follow up for chronic lymphoproliferative disorders including haematological malignancies such as indolent lymphoma, chronic lymphoid
leukaemia
Updated-JCVI-guidance-for-vaccinating-immunosuppressed-individuals-with-third-primary-dose.pdf According to the guidelines issued by JCVI, I should be given a third dose as someone "under follow up for chronic lymphoproliferative disorders including haematological malignancies such as indolent lymphoma, chronic lymphoid
leukaemia
bennevisplace
in
CLL Support
3 years ago
Different IGHV mutation tests?
Are there different tests for IGHV mutation? PCR? Sanger? NGS? My PCR test report says no mutations detected. Should I retest with other methods? Also, is IGHV mutation status innate or developed during the lifetime? If it’s innate and genetic, since I’m unmutated, should I get my children tested for
Are there different tests for IGHV mutation? PCR? Sanger? NGS? My PCR test report says no mutations detected. Should I retest with other methods? Also, is IGHV mutation status innate or developed during the lifetime? If it’s innate and genetic, since I’m unmutated, should I get my children tested for
nuji
in
CLL Support
3 years ago
Not diagnosed, but suspected
Edit: letter from haematologist- BCR/ABL and JAK2 are negative m, awaiting rarer test results, but he thinks could be related to infection / endocrine issues. Relieved, but puzzled! Thank you everyone for replying, I guess I was premature in posting!! Hi. I’m just struggling today as I’m in that waiting
Edit: letter from haematologist- BCR/ABL and JAK2 are negative m, awaiting rarer test results, but he thinks could be related to infection / endocrine issues. Relieved, but puzzled! Thank you everyone for replying, I guess I was premature in posting!! Hi. I’m just struggling today as I’m in that waiting
KayS68
in
MPN Voice
3 years ago
Oh dear
Well last night I decided to go to the beach again on my quad sit on beach for an hour . Unfortunately things didn't turn out that way ! Going down the beach road and wasn't concentrating mind not on what I was doing anything I had a seizure and lost control of the quad it went one way upside down my
Well last night I decided to go to the beach again on my quad sit on beach for an hour . Unfortunately things didn't turn out that way ! Going down the beach road and wasn't concentrating mind not on what I was doing anything I had a seizure and lost control of the quad it went one way upside down my
Hidden
in
Lung Conditions Community Forum
3 years ago
Any Knowledge of CLL in the eyes?
A biopsy confirmed a diagnosis of CLL in both lower eyelids. This is a rare event. Neither my hematologist-oncologist or CLL Specialist have ever had a patient with it. They tell me that acalabrutinib, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable
A biopsy confirmed a diagnosis of CLL in both lower eyelids. This is a rare event. Neither my hematologist-oncologist or CLL Specialist have ever had a patient with it. They tell me that acalabrutinib, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable
cll2013
in
CLL Support
3 years ago
Understanding High Iron
Hi everyone. For those diagnosed with Leukemia, can you tell me what your Iron and Ferritin levels are? These are typically elevated in Leukemia patients. I have a follow-up and consultation with my doctor coming in a few weeks but am gathering a bit of information (aside from google searches) on my
Hi everyone. For those diagnosed with Leukemia, can you tell me what your Iron and Ferritin levels are? These are typically elevated in Leukemia patients. I have a follow-up and consultation with my doctor coming in a few weeks but am gathering a bit of information (aside from google searches) on my
UhOhCKD
in
Leukaemia Support
3 years ago
Side Effects of Bendamustine?
I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.
I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.
KevinCLLITP
in
CLL Support
3 years ago
immunohistochemistry need help understanding
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
kp58ny
in
CLL Support
3 years ago
Cost for treatment
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Rubymom
in
CLL Support
3 years ago
Possible role of melatonin in CLL
Requires Authentication Pre-published online by De Gruyter August 5, 2021 Potential role of melatonin in prevention and treatment of
leukaemia
Ming Guan Ng, Khuen Yen Ng, Rhun Yian Koh and Soi Moi Chye From the journal Hormone Molecular Biology and Clinical Investigation https://doi.org/10.1515/hmbci
Requires Authentication Pre-published online by De Gruyter August 5, 2021 Potential role of melatonin in prevention and treatment of
leukaemia
Ming Guan Ng, Khuen Yen Ng, Rhun Yian Koh and Soi Moi Chye From the journal Hormone Molecular Biology and Clinical Investigation https://doi.org/10.1515/hmbci
nuji
in
CLL Support
3 years ago
Just joined
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Mtk1
in
CLL Support
3 years ago
Red painful Feet
I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis
I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis
Marchmouse
in
CLL Support
3 years ago
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