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Update on possible transformation to M f
I particularly wanted the white blood cell count as one reply mentioned that
leukaemia
involves high white counts. Thank you for all the replies and info.
I particularly wanted the white blood cell count as one reply mentioned that
leukaemia
involves high white counts. Thank you for all the replies and info.
lizzziep
in
MPN Voice
2 years ago
Fascinating: Development of Venetoclax
For a few years, I've taken a breather from HU while focusing on full life rather than my CLL. I'm stepping up to post a new podcast from Dana Farber Hospital, which I found fascinating. Particularly for those on Venetoclax, or considering the drug, I couldn't resist sharing it. The Season 2 Trailer
For a few years, I've taken a breather from HU while focusing on full life rather than my CLL. I'm stepping up to post a new podcast from Dana Farber Hospital, which I found fascinating. Particularly for those on Venetoclax, or considering the drug, I couldn't resist sharing it. The Season 2 Trailer
starsafta
in
CLL Support
2 years ago
Genomic testing and clinical decision making in CLL from the (European) ERIC 2022 Meeting
Genomic testing and clinical decision making in CLL- These videos are from European CLL experts intended for medical professionals and presented at or connected with the ERIC 2022 Meeting- using Med-Speak. https://www.vjhemonc.com/feature/the-importance-of-genomic-testing-in-cll/ Advances
Genomic testing and clinical decision making in CLL- These videos are from European CLL experts intended for medical professionals and presented at or connected with the ERIC 2022 Meeting- using Med-Speak. https://www.vjhemonc.com/feature/the-importance-of-genomic-testing-in-cll/ Advances
lankisterguy
Volunteer
in
CLL Support
2 years ago
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Evosheld
Thank you for contacting me about support for people living with
leukaemia
. I recognise that the Covid-19 pandemic has had a significant impact on many people currently living with
Leukaemia
and other conditions.
Thank you for contacting me about support for people living with
leukaemia
. I recognise that the Covid-19 pandemic has had a significant impact on many people currently living with
Leukaemia
and other conditions.
kitchengardener2
in
CLL Support
2 years ago
Have I got Raynauds🤔
I should add that I have CLL (chronic lymphocytic
leukaemia
) but not on any treatment as I'm very early on in my journey with it (4.5 yrs). I presume I have Raynauds, but would this be because my immune system is compromised and so am I more susceptible to it?
I should add that I have CLL (chronic lymphocytic
leukaemia
) but not on any treatment as I'm very early on in my journey with it (4.5 yrs). I presume I have Raynauds, but would this be because my immune system is compromised and so am I more susceptible to it?
sinbad100
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Splenomegaly in Polycythemia Vera: Its Clinical Significance and its Relation to Symptoms
Background: Splenomegaly (SPML) in PV has been considered a diagnostic hallmark, associated with symptoms, affected clinical trial design, and influenced governmental approval of ropeginterferon α-2b. Whether SPML affects myelofibrosis-free and overall survival (MFS and OS) is unknown. Because of uncertainty
Background: Splenomegaly (SPML) in PV has been considered a diagnostic hallmark, associated with symptoms, affected clinical trial design, and influenced governmental approval of ropeginterferon α-2b. Whether SPML affects myelofibrosis-free and overall survival (MFS and OS) is unknown. Because of uncertainty
Manouche
in
MPN Voice
2 years ago
Results on triple combination (A+V+O) for high risk patients -with-chronic-lymphocytic-leukemia-or-small-lymphocytic-lymphoma-cll
The Bottom Line: In this ongoing trial, the triple combination therapy using acalabrutinib, venetoclax, and obinutuzumab is highly active. Thus far this drug combination has produced durable remissions as a frontline treatment in patients with TP53 mutation CLL and has been generally well tolerated,
The Bottom Line: In this ongoing trial, the triple combination therapy using acalabrutinib, venetoclax, and obinutuzumab is highly active. Thus far this drug combination has produced durable remissions as a frontline treatment in patients with TP53 mutation CLL and has been generally well tolerated,
spi3
in
CLL Support
2 years ago
Critical illness cover for ET
The term malignant tumour includes
leukaemia
, sarcoma and lymphoma except cutaneous lymphoma (lymphoma confined to the skin).
The term malignant tumour includes
leukaemia
, sarcoma and lymphoma except cutaneous lymphoma (lymphoma confined to the skin).
Morris941
in
MPN Voice
2 years ago
Interesting article in the news ,NHL diagnosis for military personnel
[i] i thought this was a rather interesting article about the officers working at the Montana nuclear site getting Leukemia . here is a portion of the article ...maybe some of us are more susceptible to the radiation from our xrays and ct scans then others ... ----- "The US military is looking
[i] i thought this was a rather interesting article about the officers working at the Montana nuclear site getting Leukemia . here is a portion of the article ...maybe some of us are more susceptible to the radiation from our xrays and ct scans then others ... ----- "The US military is looking
craterlake
in
CLL Support
2 years ago
Sample from ASH 2022, CALR antibody
Progress on the immune therapy we've discussed: "In a mouse model of essential thrombocythemia, INCA033989 selectively decreased levels of mutant CALR-positive platelets, re-established normal megakaryopoiesis, and selectively targeted mutant CALR disease-initiating clones. " https://www.cancertherapyadvisor.com
Progress on the immune therapy we've discussed: "In a mouse model of essential thrombocythemia, INCA033989 selectively decreased levels of mutant CALR-positive platelets, re-established normal megakaryopoiesis, and selectively targeted mutant CALR disease-initiating clones. " https://www.cancertherapyadvisor.com
EPguy
in
MPN Voice
2 years ago
Astonishing' Results: Skip Salvage Chemo,Go Straight to HSCT
 »NEW ORLEANS — Investigators confessed to being "astonished" by results of a randomized trial showing that patients with acute myeloid leukemia who have a poor response following induction therapy do just as well going on to immediate allogeneic transplant as they would if they had received an intensive
 »NEW ORLEANS — Investigators confessed to being "astonished" by results of a randomized trial showing that patients with acute myeloid leukemia who have a poor response following induction therapy do just as well going on to immediate allogeneic transplant as they would if they had received an intensive
Manouche
in
MPN Voice
2 years ago
White Paper recommends steps to improve the care and support of people with Chronic Lymphocytic Leukemia who face immune challenges
[/i] So, they produced a White Paper titled [i]
"Compromised: Uncovering the immune-related challenges facing people with chronic lymphocytic
" [/i]
which was released this week (15 May 2023).
[/i] So, they produced a White Paper titled [i]
"Compromised: Uncovering the immune-related challenges facing people with chronic lymphocytic
" [/i]
which was released this week (15 May 2023).
CLLerinOz
Administrator
in
CLL Support
1 year ago
Lymphoma & CLL Highlights Virtual Workshop Jan 19, 2023 03:00 PM in London
Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop Time Jan 19, 2023 03:00 PM in London 10:00–13:00 EST/ 15:00–18:00 GMT/ 16:00–19:00 CET The Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop will feature a series of short presentations on lymphoma and chronic lymphocytic leukemia (CLL
Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop Time Jan 19, 2023 03:00 PM in London 10:00–13:00 EST/ 15:00–18:00 GMT/ 16:00–19:00 CET The Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop will feature a series of short presentations on lymphoma and chronic lymphocytic leukemia (CLL
lankisterguy
Volunteer
in
CLL Support
2 years ago
Answers Now: Should I Still Watch and Wait?Wednesday, January 25th, 2023 at 3:00pm ET/12:00pm PT
Answers Now: Should I Still Watch and Wait? Wednesday, January 25th, 2023 at 3:00pm ET/12:00pm PT Register here: https://www.patientpower.info/events/answers-now-should-i-still-watch-and-wait Join us Wednesday, January 25, 2023 at 3:00pm ET/12:00pm PT for a live, virtual, chronic lymphocytic leukemia
Answers Now: Should I Still Watch and Wait? Wednesday, January 25th, 2023 at 3:00pm ET/12:00pm PT Register here: https://www.patientpower.info/events/answers-now-should-i-still-watch-and-wait Join us Wednesday, January 25, 2023 at 3:00pm ET/12:00pm PT for a live, virtual, chronic lymphocytic leukemia
lankisterguy
Volunteer
in
CLL Support
2 years ago
ASH 2022 | Key highlights in CLL: clinical trial updates combination therapies novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
lankisterguy
Volunteer
in
CLL Support
2 years ago
Day +99
Hello friends, Well I am almost at 100 days post transplant and feeling surprisingly well under the circumstances. My check ups have been reduced to once a week and my blood counts are slowly improving. Hb currently at 89 and platelets at 46 so my donor cells are working hard and I haven't needed a
Hello friends, Well I am almost at 100 days post transplant and feeling surprisingly well under the circumstances. My check ups have been reduced to once a week and my blood counts are slowly improving. Hb currently at 89 and platelets at 46 so my donor cells are working hard and I haven't needed a
Otterfield
in
MPN Voice
2 years ago
EXTREME bone pain with Neupogen injections, advise welcome!
Has anyone experienced extreme pain with Neupogen GCSF injections? My husband has received 2 out of 4 injections and is in agonizing bone pain. His specialist recommended a hot bath, Claritin, and Tylenol. I also have a heating pad on his back. Just wondering how long this will last and how he is going
Has anyone experienced extreme pain with Neupogen GCSF injections? My husband has received 2 out of 4 injections and is in agonizing bone pain. His specialist recommended a hot bath, Claritin, and Tylenol. I also have a heating pad on his back. Just wondering how long this will last and how he is going
lisakc1
in
CLL Support
2 years ago
CAR-T for CLL Hits Goal of Mid-Stage Trial - All patients had progressed on BTK inhibitors & most had failed venetoclax - MedPageToday, 6/12
[/i] * * * Here are links to the [i]
Lancet
[/i] paper (full access) and [i]
TRANSCEND CLL 004
[/i] trial: [i]
Lisocabtagene maraleucel in chronic lymphocytic
and small lymphocytic lymphoma (TRANSCEND CLL 004): a multicentre, open-label, single-arm, phase 1–2 study, The Lancet
[/i] * * * Here are links to the [i]
Lancet
[/i] paper (full access) and [i]
TRANSCEND CLL 004
[/i] trial: [i]
Lisocabtagene maraleucel in chronic lymphocytic
and small lymphocytic lymphoma (TRANSCEND CLL 004): a multicentre, open-label, single-arm, phase 1–2 study, The Lancet
cujoe
in
CLL Support
1 year ago
ALC is still going up
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Moonmyst
in
CLL Support
2 years ago
Off patent drug possibility for Covid. Ursodeoxycholic acid (UDCA), an approved liver disease drug, reduces ACE2 levels on lab-grown cells
There seems to be a deal of excitement in certain media areas about research involving UK, European and US researchers on a covid treatment drug. The one in question is an off patent drug ursodeoxycholic acid currently used to treat liver damage so a re-purposing rather than development of a new drug
There seems to be a deal of excitement in certain media areas about research involving UK, European and US researchers on a covid treatment drug. The one in question is an off patent drug ursodeoxycholic acid currently used to treat liver damage so a re-purposing rather than development of a new drug
Eucalyptus22
in
CLL Support
2 years ago
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