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Leflunomide
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Leflunomide
Leflunomide
did not work for me and I spent about a year with no relief from RA. I am now on biologics, Imraldi. This is only partially working so a short course of steroids has been added. I feel so much better I am beginning to get my life back. I am hoping it continues when the steroids finish.
Leflunomide
did not work for me and I spent about a year with no relief from RA. I am now on biologics, Imraldi. This is only partially working so a short course of steroids has been added. I feel so much better I am beginning to get my life back. I am hoping it continues when the steroids finish.
meadow-mogs
in
NRAS
2 years ago
Leflunomide next drug doctor wants me to try
ðŸ˜She has now prescribed
Leflunomide
( which apparently I have to get government permission for in Spain) What is this drug? Does it work with PMR ? I feel like I am just taking the next thing to appease the doctors. Any help appreciated.
ðŸ˜She has now prescribed
Leflunomide
( which apparently I have to get government permission for in Spain) What is this drug? Does it work with PMR ? I feel like I am just taking the next thing to appease the doctors. Any help appreciated.
Pawscat11
in
PMRGCAuk
2 years ago
Leflunomide
How are people on this drug managing with it? Any side effects?
How are people on this drug managing with it? Any side effects?
Caloo650
in
PMRGCAuk
2 years ago
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Not a flare, but RA of the hands
Her suggestion was to keep a VERY slow taper, and if it happened again to contact her and they would double my
leflunomide
to 20mg, keeping the pred. at the same dose. My normal-sized fingers are crossed that I don't have that again, it is most upsetting and unpleasant.
Her suggestion was to keep a VERY slow taper, and if it happened again to contact her and they would double my
leflunomide
to 20mg, keeping the pred. at the same dose. My normal-sized fingers are crossed that I don't have that again, it is most upsetting and unpleasant.
HelenDaisy
in
PMRGCAuk
1 year ago
Leflunomide and tapering prednisolone for GCA, advice please
I am not keen to take the
Leflunomide
because it means taking another powerful drug with worrying side effects and asked to continue with a higher dose of prednisolone. He would not agree with this and has sent me a prescription for
Leflunomide
.
I am not keen to take the
Leflunomide
because it means taking another powerful drug with worrying side effects and asked to continue with a higher dose of prednisolone. He would not agree with this and has sent me a prescription for
Leflunomide
.
Raga72
in
PMRGCAuk
1 year ago
Leflumanide
I'm now into week of 7 of 10mg daily of
Leflunomide
and have decided after daily diarrhoea and increased blood pressure to give it a miss as a sparing agent and battle on myself.I'm almost down to 4.5 Pred and I know it will be a struggle but even though they are the only side affects I worry about
I'm now into week of 7 of 10mg daily of
Leflunomide
and have decided after daily diarrhoea and increased blood pressure to give it a miss as a sparing agent and battle on myself.I'm almost down to 4.5 Pred and I know it will be a struggle but even though they are the only side affects I worry about
Caloo650
in
PMRGCAuk
2 years ago
Leflunomide - has anyone had success on this?
Hi I’ve just started
Leflunomide
I really hope it works for me as I’ve failed methotrexate and Sulfasalazine due to bad side effects. Has
Leflunomide
been successful for anyone else? 🙂
Hi I’ve just started
Leflunomide
I really hope it works for me as I’ve failed methotrexate and Sulfasalazine due to bad side effects. Has
Leflunomide
been successful for anyone else? 🙂
mistygrey
in
NRAS
2 years ago
GCA, now PMR & Rheumatoid Arthritis as well
I am being prescribed
Leflunomide
for RA and was told to stay on 12 for the time being. Problem is I’m in a great deal of pain, upper arms, shoulders and upper back particularly and I’m wondering whether I should increase the Pred?
I am being prescribed
Leflunomide
for RA and was told to stay on 12 for the time being. Problem is I’m in a great deal of pain, upper arms, shoulders and upper back particularly and I’m wondering whether I should increase the Pred?
Hidden
in
PMRGCAuk
2 years ago
quick follow up after my appointment yesterday
Met with my Consultant and am now going to give
leflunomide
a go ! 10mg once a day - just keeping everything crossed it helps and I avoid the nausea I experienced on previous medication 😩 ! Was a bit concerned when he said if this doesn’t work then we’re stuck !!
Met with my Consultant and am now going to give
leflunomide
a go ! 10mg once a day - just keeping everything crossed it helps and I avoid the nausea I experienced on previous medication 😩 ! Was a bit concerned when he said if this doesn’t work then we’re stuck !!
Geordieland
in
NRAS
2 years ago
at a loss to know what’s what
findings would appear other than PMR but I wonder if that’s the case why do I still have all symptoms of PMR deadly fatigue, hip pain arm pain unable to dress myself at times hand & back spasms…… He suggests I reduce pred by 1 mg a month and refers back to GP for blood tests to check CRP and thinks
leflunomide
findings would appear other than PMR but I wonder if that’s the case why do I still have all symptoms of PMR deadly fatigue, hip pain arm pain unable to dress myself at times hand & back spasms…… He suggests I reduce pred by 1 mg a month and refers back to GP for blood tests to check CRP and thinks
leflunomide
Visby
in
PMRGCAuk
2 years ago
Advice on taking Leflunomide
My consultant is now wanting to start me on
Leflunomide
. Having done my research I am reluctant to want to take it and wondered if anyone else is taking this medication and offer and advice.
My consultant is now wanting to start me on
Leflunomide
. Having done my research I am reluctant to want to take it and wondered if anyone else is taking this medication and offer and advice.
Hidden
in
PMRGCAuk
2 years ago
R/A and fibromyalgia
hi all I’ve not posted for a while but for the last month or so I’ve been sweating excessively on my head and neck an have a tingling sensation in my feet to my knees and in my hands I am also very thirsty All the time I also feel very weak and tired I’m currently on
leflunomide
20mg naproxen 500mg
hi all I’ve not posted for a while but for the last month or so I’ve been sweating excessively on my head and neck an have a tingling sensation in my feet to my knees and in my hands I am also very thirsty All the time I also feel very weak and tired I’m currently on
leflunomide
20mg naproxen 500mg
Fortune7
in
NRAS
2 years ago
RA and Fibromyalgia
I am wondering if anyone else has had this situation that no RA meds seem to work have been through some biologics, methotrexate, hydroxychloroquine,
leflunomide
, sulfasalazine, steroids which to start did work then didn't now on tacrolimus.
I am wondering if anyone else has had this situation that no RA meds seem to work have been through some biologics, methotrexate, hydroxychloroquine,
leflunomide
, sulfasalazine, steroids which to start did work then didn't now on tacrolimus.
Alicepirate
in
NRAS
2 years ago
Hip pain from sitting
I'm currently on 10mg
leflunomide
every other day, and 2.5 mg prednisolone every other day. Do any of you in the PMR community have a similar issue? Thank you for your feedback!
I'm currently on 10mg
leflunomide
every other day, and 2.5 mg prednisolone every other day. Do any of you in the PMR community have a similar issue? Thank you for your feedback!
DaleTravis
in
PMRGCAuk
2 years ago
GCA, now PMR as well?
I suspect she will suggest
Leflunomide
as she has mentioned it before. I’m not keen to take another drug but what do you think, would it be helpful? Thank you so much for all your wise words, sorry you all have problems too but it’s lovely to know I’m not alone with this rubbish disease.
I suspect she will suggest
Leflunomide
as she has mentioned it before. I’m not keen to take another drug but what do you think, would it be helpful? Thank you so much for all your wise words, sorry you all have problems too but it’s lovely to know I’m not alone with this rubbish disease.
Hidden
in
PMRGCAuk
2 years ago
shoulder replacement surgery while on prednisone
My rheumatologist wants me to take
Leflunomide
to help taper. I took methotrexate for 4 months got down to 10 1/2 mg and had to go back up to 14 mg. I have had several returns of pain while tapering. I am reluctant to have the surgery but am weary of constant pain 24/7 interfering with daily life .
My rheumatologist wants me to take
Leflunomide
to help taper. I took methotrexate for 4 months got down to 10 1/2 mg and had to go back up to 14 mg. I have had several returns of pain while tapering. I am reluctant to have the surgery but am weary of constant pain 24/7 interfering with daily life .
Darkchocolate1
in
PMRGCAuk
2 years ago
Leflunomide and alcohol
I'm in a transitioning stage between Tociluzumab and
Leflunomide
to help with PMR and GCA while very gradually tapering my Pred and trying to avoid any more flares. I'm using the last few TCZ doses every 2 weeks and taking 10mg LFM daily. I've been on it for 4 weeks now.
I'm in a transitioning stage between Tociluzumab and
Leflunomide
to help with PMR and GCA while very gradually tapering my Pred and trying to avoid any more flares. I'm using the last few TCZ doses every 2 weeks and taking 10mg LFM daily. I've been on it for 4 weeks now.
PastelsinArt
in
PMRGCAuk
2 years ago
Wrist Fusion
Hello Everybody I have had RA for over twenty years now, although initially it seemed to be held in control with the use of DMARDS, including Methotrexate, Sulfasalazine,
Leflunomide
and Etanercept, all of these had to be discontinued because of side effects i.e, infections and low platelets/thrombocytopenia
Hello Everybody I have had RA for over twenty years now, although initially it seemed to be held in control with the use of DMARDS, including Methotrexate, Sulfasalazine,
Leflunomide
and Etanercept, all of these had to be discontinued because of side effects i.e, infections and low platelets/thrombocytopenia
Collywithra
in
NRAS
2 years ago
Yet another update
Unfortunately the PHN (post herpetic neuralgia) is not getting any better and the nerve pain around my right eye and forehead is doing my head in at times😫 The rheumatology department suggested to my GP that I trial
leflunomide
, they obviously didn’t check their records as they would have seen I had
Unfortunately the PHN (post herpetic neuralgia) is not getting any better and the nerve pain around my right eye and forehead is doing my head in at times😫 The rheumatology department suggested to my GP that I trial
leflunomide
, they obviously didn’t check their records as they would have seen I had
Griggser
in
PMRGCAuk
2 years ago
An early warning sign for the presence of giant cell arteritis in patients with polymyalgia rheumatica
The same group is doing a study on
leflunomide
in PMR. It looks hopeful for a better identification of patients presenting with PMR but actually with LVV and GCA - and given the large proportion of PMR patients they say have LVV/GCA it may well improve diagnosis of PMR too.
The same group is doing a study on
leflunomide
in PMR. It looks hopeful for a better identification of patients presenting with PMR but actually with LVV and GCA - and given the large proportion of PMR patients they say have LVV/GCA it may well improve diagnosis of PMR too.
PMRpro
Ambassador
in
PMRGCAuk
2 years ago
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