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Irlen syndrome
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NEURO LIFE NOW SURVEY UK
To raise awareness of the lack of medical training and the poor treatment of RLS in the UK, it would be very helpful if all UK RLS patients would complete this survey by Neuro Life Now. It's run by the Brain and Spine Foundation and they receive funding for research and treatment. Share it on other platforms
To raise awareness of the lack of medical training and the poor treatment of RLS in the UK, it would be very helpful if all UK RLS patients would complete this survey by Neuro Life Now. It's run by the Brain and Spine Foundation and they receive funding for research and treatment. Share it on other platforms
Joolsg
in
Restless Legs Syndrome
2 years ago
Peaceful legs
I have found peaceful legs taking 4 Madopar 100mg tablets spaced out during the day for Parkinsons and 2 Gabapentin 100mg tablets and 2 Tramadol 50mg tablets 1 hour before bed and found that I have no restless legs during the day and a peaceful night finger crossed and everything else hope this
I have found peaceful legs taking 4 Madopar 100mg tablets spaced out during the day for Parkinsons and 2 Gabapentin 100mg tablets and 2 Tramadol 50mg tablets 1 hour before bed and found that I have no restless legs during the day and a peaceful night finger crossed and everything else hope this
auldreekie18
in
Restless Legs Syndrome
2 years ago
Day 14 without Ropinirole, does it ever get better?
Hi all, Thought I'd leave a bit of an update here for others to see who are going through this. Day 1: The first night and the following day were not as bad as I expected, the RLS was maybe 5 out of 10, plenty enough to stop me from sleeping but it didn't spread to my arms and chest like it had been
Hi all, Thought I'd leave a bit of an update here for others to see who are going through this. Day 1: The first night and the following day were not as bad as I expected, the RLS was maybe 5 out of 10, plenty enough to stop me from sleeping but it didn't spread to my arms and chest like it had been
Hazuki
in
Restless Legs Syndrome
2 years ago
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PGT-A testing with few embryos
Hi all We are in the middle of our five day wait to see if we have any blastocysts. 3 eggs fertilised. I have a question about PGT-A testing but to help me answer it I will just share the most prominent bits of fertility history. We have been TTC 3 years. Experienced one early miscarriage (natural
Hi all We are in the middle of our five day wait to see if we have any blastocysts. 3 eggs fertilised. I have a question about PGT-A testing but to help me answer it I will just share the most prominent bits of fertility history. We have been TTC 3 years. Experienced one early miscarriage (natural
Skittles11
in
Fertility Network UK
2 years ago
Weight gain on methadone?
I finally found a doctor in Sarasota who prescribes methadone. The plan is to stop Tramadol and switch to methadone. Will I gain weight - does it slow metabolism? I've been reading that some people have problems and I tend to gain weight easily. Anyone have experience? Thanks for your comments.
I finally found a doctor in Sarasota who prescribes methadone. The plan is to stop Tramadol and switch to methadone. Will I gain weight - does it slow metabolism? I've been reading that some people have problems and I tend to gain weight easily. Anyone have experience? Thanks for your comments.
Hidden
in
Restless Legs Syndrome
2 years ago
UNCLOG for eyes
hi folks. There is an incredible soul that developed UNCLOG mask with infrared to bathe the eyes Her name is Fifi She was incredibly helpful - referring Blepharitis , dry eye and anything else as an eye nurse who consulted with ophthalmologists for over three decades. company is http://www.unclogmask.com
hi folks. There is an incredible soul that developed UNCLOG mask with infrared to bathe the eyes Her name is Fifi She was incredibly helpful - referring Blepharitis , dry eye and anything else as an eye nurse who consulted with ophthalmologists for over three decades. company is http://www.unclogmask.com
2bear
in
PBC Foundation
2 years ago
Help from those taking Methadone
I need a shoulder replacement and is scheduled soon. I have been taking methadone to control my RLS. When I told my surgeon that I was taking methadone, he told me that he could not manage my pain. He said that anything that he gave me wouldn’t control my pain. He suggested to ask my neurologist or go
I need a shoulder replacement and is scheduled soon. I have been taking methadone to control my RLS. When I told my surgeon that I was taking methadone, he told me that he could not manage my pain. He said that anything that he gave me wouldn’t control my pain. He suggested to ask my neurologist or go
Merny5
in
Restless Legs Syndrome
2 years ago
HRT and RLS
Hello everyone, Just wanted some advice please. I have been able to reduce my dosage of Ropinirole to 1.5mg with the unexpected help of HRT. I would like to reduce further and although I need to up the HRT dose, which may help. I am considering trying Magnesium. Any advice would as always be gratefully
Hello everyone, Just wanted some advice please. I have been able to reduce my dosage of Ropinirole to 1.5mg with the unexpected help of HRT. I would like to reduce further and although I need to up the HRT dose, which may help. I am considering trying Magnesium. Any advice would as always be gratefully
21years
in
Restless Legs Syndrome
2 years ago
RSL and clonazepam
For me the ONLY thing that has worked is Clonazepam 2mg at night. Sometimes I have to take a second one during the night if the RLS is back. This has worked for me for years but I certainly worry about the addictive nature of benzodiazepines. But I’m not giving it up. I’m 73 now and I will take it for
For me the ONLY thing that has worked is Clonazepam 2mg at night. Sometimes I have to take a second one during the night if the RLS is back. This has worked for me for years but I certainly worry about the addictive nature of benzodiazepines. But I’m not giving it up. I’m 73 now and I will take it for
Hidden
in
Restless Legs Syndrome
2 years ago
Antidepressant recommendations
Well, my anxiety and depression just keep getting worse. Nearly unbearable now.What types of antidepressants have any of you had experience/success with during the transition off of the DAs? I have not been able to conclusively blame my symptoms on either the lack of dopamine or the soboxone. For those
Well, my anxiety and depression just keep getting worse. Nearly unbearable now.What types of antidepressants have any of you had experience/success with during the transition off of the DAs? I have not been able to conclusively blame my symptoms on either the lack of dopamine or the soboxone. For those
climber54
in
Restless Legs Syndrome
2 years ago
Ashwaganda?
I just saw someone posting on another site that Ashwaganda has really helped their RLS. Does anyone have any thoughts on this please? I currently take Tramadol but only when desperate as I don't really want to be dependent on any drug if I can avoid it. However I have had to appreciate that I am taking
I just saw someone posting on another site that Ashwaganda has really helped their RLS. Does anyone have any thoughts on this please? I currently take Tramadol but only when desperate as I don't really want to be dependent on any drug if I can avoid it. However I have had to appreciate that I am taking
Seaview20
in
Restless Legs Syndrome
2 years ago
Do you want you doctor to prescribe an opioid instead of DA ?John Hopkins statistics on both.
This may help you when requesting an opioid verses the doctor wishing to prescribe DA https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/treatment.html I am typing this information direct from John hopkins treatment article. An estimated 85%
This may help you when requesting an opioid verses the doctor wishing to prescribe DA https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/treatment.html I am typing this information direct from John hopkins treatment article. An estimated 85%
Shumbah
in
Restless Legs Syndrome
2 years ago
Herbal remedies
Hi All, has anyone had any feedback or tried various natural remedies. A friend of mine recommended Muccuna l dopa capsules and Tumeric root extract capsules to help with rls. Only started taking these for a few weeks so no real progress yet. Just want to come off the prescribed medication. Currently
Hi All, has anyone had any feedback or tried various natural remedies. A friend of mine recommended Muccuna l dopa capsules and Tumeric root extract capsules to help with rls. Only started taking these for a few weeks so no real progress yet. Just want to come off the prescribed medication. Currently
Sailingdude
in
Restless Legs Syndrome
2 years ago
Lining update!
Just a quick update for those of you with lining issues 😆. I've managed to get to 6.6 today on my first scan which is a record for me on the first scan! Just waiting to see whether we will go ahead with an FET or they want to see me again in a few days. I've been taking 4x progynova, 1 x patch every
Just a quick update for those of you with lining issues 😆. I've managed to get to 6.6 today on my first scan which is a record for me on the first scan! Just waiting to see whether we will go ahead with an FET or they want to see me again in a few days. I've been taking 4x progynova, 1 x patch every
Pebbles345
in
Fertility Network UK
2 years ago
Restless Legs using sleeping pill
I have had RLS for years. It started getting irritating in my 40's and continued to get worst. I am now 85 and on Methadone, trying to withdraw from it because it is hard to get in Las Vegas. I am down to .5mg at night. I gave up my noon pill because of constipation.. I was getting very little sleep
I have had RLS for years. It started getting irritating in my 40's and continued to get worst. I am now 85 and on Methadone, trying to withdraw from it because it is hard to get in Las Vegas. I am down to .5mg at night. I gave up my noon pill because of constipation.. I was getting very little sleep
McClintok
in
Restless Legs Syndrome
2 years ago
Sertraline
I think I know what everyone is going to say but does anyone have anything positive to say about sertraline and restless legs? If anybody followed my previous post I have stage 4 breast cancer and need a mild antidepressant to help me cope. Having chatted with my GP we both feel I would benefit more
I think I know what everyone is going to say but does anyone have anything positive to say about sertraline and restless legs? If anybody followed my previous post I have stage 4 breast cancer and need a mild antidepressant to help me cope. Having chatted with my GP we both feel I would benefit more
Pam34
in
Restless Legs Syndrome
2 years ago
Neupro patch stopped working
I have been on a 2mg Neupro patch for the last few years, I have had good success with it and it has given me great relief in the past. In the last few weeks they have stopped working and I now find I have to take an opiate every night to get any sleep I can.I am thinking of trying Buprenorphine ....
I have been on a 2mg Neupro patch for the last few years, I have had good success with it and it has given me great relief in the past. In the last few weeks they have stopped working and I now find I have to take an opiate every night to get any sleep I can.I am thinking of trying Buprenorphine ....
banjololapoppy
in
Restless Legs Syndrome
2 years ago
Quinidine Sulphate
About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot
About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot
LeeLowry1
in
Arrhythmia Alliance
2 years ago
Asking if anyone can recommend a topical Magnesium spray for legs. Thanks!
I get temporary relief from hot epsom salts baths so thought I'd try a topical spray for the in between times . Thanks!
I get temporary relief from hot epsom salts baths so thought I'd try a topical spray for the in between times . Thanks!
Reb0013
in
Restless Legs Syndrome
2 years ago
Great news. Bone biopsy negative. Back to just dealing with GCA which seems a blessing now!
Just wanted to let everyone know that my bone biopsy and bone scan were negative and the lesions visualized on my spine are not malignant. Thank the Lord! Now I can go back to just dealing with the GCA and MS. Seems like a blessing to me! Thank you all for your good thoughts and wishes which meant a
Just wanted to let everyone know that my bone biopsy and bone scan were negative and the lesions visualized on my spine are not malignant. Thank the Lord! Now I can go back to just dealing with the GCA and MS. Seems like a blessing to me! Thank you all for your good thoughts and wishes which meant a
Kt1943
in
PMRGCAuk
2 years ago
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