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Experiences with
Intermittent catheterisation
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Neurogenic bladder help!
Hi everyone! Male, looking for some advice on my bladder issues. I've been diagnosed 14 years ago and the last few years my bladder issues have been getting worse. I was on Tadalafil, Alfuzosin and Sildosin. I'm retaining 600CCs before I go and my urologist suggested intermittent catheterization. I've
Hi everyone! Male, looking for some advice on my bladder issues. I've been diagnosed 14 years ago and the last few years my bladder issues have been getting worse. I was on Tadalafil, Alfuzosin and Sildosin. I'm retaining 600CCs before I go and my urologist suggested intermittent catheterization. I've
msstarfish
in
My MSAA Community
1 year ago
Angiogram and Right Cath.
I was in hospital last week for tests to see if I could have a Triclip procedure or open heart as I have severe triscuspid regurgitation. My cardiologist had referred me for these tests and said once they were done, the team of dr’s would discuss the results and give an opinion. I had an angiogram,
I was in hospital last week for tests to see if I could have a Triclip procedure or open heart as I have severe triscuspid regurgitation. My cardiologist had referred me for these tests and said once they were done, the team of dr’s would discuss the results and give an opinion. I had an angiogram,
Jennywren2953
in
Atrial Fibrillation Support
1 year ago
MSA affected by Covid
My husband who is 5 years into this dreadful condition is currently in hospital due to COVID affecting his unstable blood pressure. Yesterday was such an awful day, my husband had several low blood pressure episodes, at one point his pressure was 43/31. He was fine when lying down but as soon as he tried
My husband who is 5 years into this dreadful condition is currently in hospital due to COVID affecting his unstable blood pressure. Yesterday was such an awful day, my husband had several low blood pressure episodes, at one point his pressure was 43/31. He was fine when lying down but as soon as he tried
Jud11
in
Multiple System Atrophy Trust
1 year ago
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Has anyone had cardiac catheterization or heart surgery with GCA or PMR?
Hi everyone, in my last post I told you I was about to have an echocardiogram where they put a camera down your throat to get better pictures of the heart. That went fine except for very sore throat for about a week. Unfortunately they found multiple problems, all of which have appeared in the last year
Hi everyone, in my last post I told you I was about to have an echocardiogram where they put a camera down your throat to get better pictures of the heart. That went fine except for very sore throat for about a week. Unfortunately they found multiple problems, all of which have appeared in the last year
Charkha
in
PMRGCAuk
1 year ago
UTIs , PD And An Anecdotal Report Of A Potential Remedy
People with PD are at increased risk for getting UTIs and the symptoms can often be significantly worse in PwP according to this April 2022 article : https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9108555/#:~:text=PD%20is%20the%20fastest%20growing,organisms%20in%20longterm%20care%20settings. Here are
People with PD are at increased risk for getting UTIs and the symptoms can often be significantly worse in PwP according to this April 2022 article : https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9108555/#:~:text=PD%20is%20the%20fastest%20growing,organisms%20in%20longterm%20care%20settings. Here are
chartist
in
Cure Parkinson's
1 year ago
TURP for prostate cancer patients
It’s more than 6 months since my last post. My dad took Lu-J591 in last August 2022 and I planned to share his experience if the result’s positive. Unfortunately, his PSA did not reduce and now it is 135. From last April, he had suprapubic catheterization because of urine retention. It makes him easily
It’s more than 6 months since my last post. My dad took Lu-J591 in last August 2022 and I planned to share his experience if the result’s positive. Unfortunately, his PSA did not reduce and now it is 135. From last April, he had suprapubic catheterization because of urine retention. It makes him easily
Hidden
in
Advanced Prostate Cancer
1 year ago
Transoesophageal echocardiograms - any experiences?
Hello hearties! Last Wednesday I had a Right Heart Catheterisation to measure the pressures in my heart and lungs, then merrily went off skiing on Saturday (with my consultant's blessing!) hoping to forget about my recently-diagnosed Atrial Septal Defect and looming OHS. The hospital called me while
Hello hearties! Last Wednesday I had a Right Heart Catheterisation to measure the pressures in my heart and lungs, then merrily went off skiing on Saturday (with my consultant's blessing!) hoping to forget about my recently-diagnosed Atrial Septal Defect and looming OHS. The hospital called me while
LadyZ13
in
British Heart Foundation
1 year ago
Can I drive home after an angiogram ?
I will be getting an angiogram next week including cardiac catheterization. The hospital is 50 miles from home with no direct public transport links. If I take my car, would I be fit to drive home afterwards ?
I will be getting an angiogram next week including cardiac catheterization. The hospital is 50 miles from home with no direct public transport links. If I take my car, would I be fit to drive home afterwards ?
bizzy55
in
British Heart Foundation
1 year ago
Mitigating fall risk in hospital, after a traumatic brain injury
Hi folks. My dad has a traumatic brain injury 4 weeks ago and is currently in hospital in Scotland. He's in a rehabilitation ward. Unfortunately, he's unable to walk and is unable to retain information in short-term memory. One of the effects is that he keeps trying to get out of bed, then falling
Hi folks. My dad has a traumatic brain injury 4 weeks ago and is currently in hospital in Scotland. He's in a rehabilitation ward. Unfortunately, he's unable to walk and is unable to retain information in short-term memory. One of the effects is that he keeps trying to get out of bed, then falling
ScottishJD
in
Headway
1 year ago
Hi Im new here id love to chat Clean intermittent catheterisation (still in nappies age 5)
My 5-year-old daughter is still in nappies due to uncontrollable leaks and we use clean intermit catheterisation 2-3 hourly. She's just gone into year one at school and is so emotionally unstable due to being so conscious of her differences. A couple of children have realised she wears nappies and
My 5-year-old daughter is still in nappies due to uncontrollable leaks and we use clean intermit catheterisation 2-3 hourly. She's just gone into year one at school and is so emotionally unstable due to being so conscious of her differences. A couple of children have realised she wears nappies and
RaInBow226
in
ERIC
1 year ago
Don't blame it all on the prednisone! Check things out.👩🏻⚕️ or 👨🏻⚕️
I'm writing to add a soft warning to be mindful. I was diagnosed with GCA in 2019 and finally got down to single digits this summer, I'm taking 5 mg per day plus Actemra. I'm only dropping .5 mg every six weeks. It has been fairly smooth except the fatigue, I did nothing and was [i]so, so tired![/
I'm writing to add a soft warning to be mindful. I was diagnosed with GCA in 2019 and finally got down to single digits this summer, I'm taking 5 mg per day plus Actemra. I'm only dropping .5 mg every six weeks. It has been fairly smooth except the fatigue, I did nothing and was [i]so, so tired![/
Grammy80
in
PMRGCAuk
1 year ago
Grateful Newbie seeking clarity on Natural bypass of 100% total occluded RCA
Hello! Thank you for taking the time to read my message. I inadvertently posted it in my bio/profile. So I won’t take too much of your time. I’m 57 and had my first heart attack at 27. The first one went undiagnosed, or misdiagnosed for five years, and was finally diagnosed by several cardiologist
Hello! Thank you for taking the time to read my message. I inadvertently posted it in my bio/profile. So I won’t take too much of your time. I’m 57 and had my first heart attack at 27. The first one went undiagnosed, or misdiagnosed for five years, and was finally diagnosed by several cardiologist
MyHeartyMo
in
British Heart Foundation
2 years ago
Suddenly Glad....
In my first post to the community, I was wondering if I should get an ablation or not, based on the advice of a somewhat snarky cardiologist. Since then, I have had a second opinion from both a new cardiologist and a new electrophysiologist. BOTH said they saw no reason to rush into this. The cardiologist
In my first post to the community, I was wondering if I should get an ablation or not, based on the advice of a somewhat snarky cardiologist. Since then, I have had a second opinion from both a new cardiologist and a new electrophysiologist. BOTH said they saw no reason to rush into this. The cardiologist
Elsie1955
in
Atrial Fibrillation Support
2 years ago
Got the Second Opinion
And I am SO glad I did! In a prior post, I had told about events leading up to a cardiologist getting snippy with me because I questioned the need for an ablation. The more research I did the more convinced I became that my gut feeling was right and I set up an appt. with a different doctor. Monday
And I am SO glad I did! In a prior post, I had told about events leading up to a cardiologist getting snippy with me because I questioned the need for an ablation. The more research I did the more convinced I became that my gut feeling was right and I set up an appt. with a different doctor. Monday
Elsie1955
in
Atrial Fibrillation Support
2 years ago
Nighttime Urination
Does anyione have a good suggestion for a supplement to help me sleep through the night without having to urinate at 5:00 A.M.? I have been using a supplement from Botanic Ckhoice called Pro Advanced Urinary Formula. This was working well but lately has been less effective. I catheterize just before
Does anyione have a good suggestion for a supplement to help me sleep through the night without having to urinate at 5:00 A.M.? I have been using a supplement from Botanic Ckhoice called Pro Advanced Urinary Formula. This was working well but lately has been less effective. I catheterize just before
whwiechm
in
My MSAA Community
2 years ago
Retaining so much urine
my husband has been retaining 3 litres of urine for the last 6 days and feeling so nauseous he has to self catheterise , morning noon night, and each time it’s one litre at each go, in between this he’s still going to urinate normal flow every hour, through day and night, to be honest he’s really worried
my husband has been retaining 3 litres of urine for the last 6 days and feeling so nauseous he has to self catheterise , morning noon night, and each time it’s one litre at each go, in between this he’s still going to urinate normal flow every hour, through day and night, to be honest he’s really worried
Eternity6
in
Advanced Prostate Cancer
2 years ago
retaining urine
my husband has an enlarged prostrate, psa of 6.1, he’s been put on tamusolin a week ago and he’s retaining so much urine, having to self catheterise twice daily and collecting today just under two litres of urine, he is a 59 year old smoker, diabetes type 2, in remission. Has just had a date 9 th of
my husband has an enlarged prostrate, psa of 6.1, he’s been put on tamusolin a week ago and he’s retaining so much urine, having to self catheterise twice daily and collecting today just under two litres of urine, he is a 59 year old smoker, diabetes type 2, in remission. Has just had a date 9 th of
Eternity6
in
Advanced Prostate Cancer
2 years ago
Need Alcohol gel wipes for Catherterisation
I catherterize once every week and often get an infection and need to use tablets to clear it. Does anyone know the best alcohol wipes to clean the penis before catheterizing so i can further reduce the risk of UTI occurring. I'm in the UK and use Amazon mostly. Many thanks.
I catherterize once every week and often get an infection and need to use tablets to clear it. Does anyone know the best alcohol wipes to clean the penis before catheterizing so i can further reduce the risk of UTI occurring. I'm in the UK and use Amazon mostly. Many thanks.
omits
in
Men's Health Forum
2 years ago
How do you travel / fly overseas with the potential of hematuria and urine blockage resulting from radiation cystitis?
A few weeks ago I was in the emergency room at my local hospital because I could not urinate anything but a few blood clots. The pain was unbearable until they could catheterize me with the out being red urine and many large blood clots. The only trigger I could think of was straining for a difficult
A few weeks ago I was in the emergency room at my local hospital because I could not urinate anything but a few blood clots. The pain was unbearable until they could catheterize me with the out being red urine and many large blood clots. The only trigger I could think of was straining for a difficult
Teddy28
in
Advanced Prostate Cancer
2 years ago
Catheterized for last 7 months !
I am 69 and my last PSA test was 1.8 came down from 4.9 4 months ago when I had a urinary retention episode after having missed 9 nights sleep with constipation problem. Have an enlarged prostate and have been catheterized for 7 months. Refused a Biopsy and could not stand MRI should I consider having
I am 69 and my last PSA test was 1.8 came down from 4.9 4 months ago when I had a urinary retention episode after having missed 9 nights sleep with constipation problem. Have an enlarged prostate and have been catheterized for 7 months. Refused a Biopsy and could not stand MRI should I consider having
PhoenixHull
in
Advanced Prostate Cancer
2 years ago
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