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Interferon beta-1b
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has anyone been on interferon to treat PV?
Interferon and PV-how long does it take effect?
Interferon and PV-how long does it take effect?
Qwert321
in
MPN Voice
4 years ago
Do you have a contact / support person at your hospital?
Hi, I hope you are all keeping sane and safe at this time. My question is di you have someone at your hospital that you can speak to or emulate etc inbetween appointments for any advice or questions that you may have? I am at hospital this afternoon and it is something I want to bring up. I was give
Hi, I hope you are all keeping sane and safe at this time. My question is di you have someone at your hospital that you can speak to or emulate etc inbetween appointments for any advice or questions that you may have? I am at hospital this afternoon and it is something I want to bring up. I was give
Foss33
in
MPN Voice
4 years ago
New diagnosis update
Hi all. Well I had my phone consultation with haematology department yesterday (10/6). I was expecting a call from the consultant as I was waiting for the results of genetic tests for CALR, MPL and NGS panel. However I was contacted by an advanced clinical practitioner! He was able to tell me the results
Hi all. Well I had my phone consultation with haematology department yesterday (10/6). I was expecting a call from the consultant as I was waiting for the results of genetic tests for CALR, MPL and NGS panel. However I was contacted by an advanced clinical practitioner! He was able to tell me the results
ConniesDad
in
MPN Voice
4 years ago
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Calling for a revolution in the treatment of MPNs?
If you have not seen it already, you might find the following item of interest: https://www.hindawi.com/journals/mi/2015/102476/ The subject is MPNs as inflammatory diseases. If I have understood correctly (a big IF), the authors believe there is now convincing evidence that MPNs are the result of a
If you have not seen it already, you might find the following item of interest: https://www.hindawi.com/journals/mi/2015/102476/ The subject is MPNs as inflammatory diseases. If I have understood correctly (a big IF), the authors believe there is now convincing evidence that MPNs are the result of a
JaK2ET
in
MPN Voice
4 years ago
Hydroxycarbamide or pegylated interferon?
Hi. I'm new to this forum so here goes. I am 60 years old and was diagnosed with PV 4 years ago. At the moment I am on daily Aspirin and venesection about every 2 months when levels are over 45 (usually between 43 and 47), platelets between 575-650). My consultant has said that as I am now 60 she
Hi. I'm new to this forum so here goes. I am 60 years old and was diagnosed with PV 4 years ago. At the moment I am on daily Aspirin and venesection about every 2 months when levels are over 45 (usually between 43 and 47), platelets between 575-650). My consultant has said that as I am now 60 she
Tmg59
in
MPN Voice
4 years ago
Interferon Alfa
Hi all Can anyone tell me if you have had problems with this medication affecting your eyesight. I can’t actually pin point when it started to happen. I started on this medication in November 2019.... coincidently I had an eye test in November. Then in December noticed my left eye was blurry through
Hi all Can anyone tell me if you have had problems with this medication affecting your eyesight. I can’t actually pin point when it started to happen. I started on this medication in November 2019.... coincidently I had an eye test in November. Then in December noticed my left eye was blurry through
Dazakella2010
in
MPN Voice
4 years ago
FDA Accepts Application for Ropeginterferon Alfa-2b for Polycythemia Vera
The FDA has accepted a Biologics License Application (BLA) for ropeginterferon alfa-2b (P1101) for use as a treatment for patients with polycythemia vera (PV) in the absence of symptomatic splenomegaly, according to PharmaEssentia Corporation, the manufacturer of the novel pegylated interferon. https
The FDA has accepted a Biologics License Application (BLA) for ropeginterferon alfa-2b (P1101) for use as a treatment for patients with polycythemia vera (PV) in the absence of symptomatic splenomegaly, according to PharmaEssentia Corporation, the manufacturer of the novel pegylated interferon. https
Manouche
in
MPN Voice
4 years ago
Et calr postive planning for kids so want to shift to interferon.
From last six months we are on hydab now planning for pregnancy want to shift to interferon . 2. We are from india so we need to buy interferon which is costly. After using interferon can we go back to hydab since we can't efford interferon life long. 3. Why wife age is 32 till now we don't have kids
From last six months we are on hydab now planning for pregnancy want to shift to interferon . 2. We are from india so we need to buy interferon which is costly. After using interferon can we go back to hydab since we can't efford interferon life long. 3. Why wife age is 32 till now we don't have kids
Aruntez
in
MPN Voice
4 years ago
Interferon
I am JAK2 positive ET, 68 years old and am currently taking 1000mg hydrea and asprin, diagnosed 6 months ago. Apart from ET I am reasonably fit and healthy, but I do experience fatigue, itching, pain in my bones, and at the moment mouth ulcers. I am trying to live as normally as possible but obviously
I am JAK2 positive ET, 68 years old and am currently taking 1000mg hydrea and asprin, diagnosed 6 months ago. Apart from ET I am reasonably fit and healthy, but I do experience fatigue, itching, pain in my bones, and at the moment mouth ulcers. I am trying to live as normally as possible but obviously
JP1952
in
MPN Voice
4 years ago
Shielding, update
I'm JAK2+ PV under control... I got my letter 5 weeks ago and have been staying in besides walking my dog in remote fields etc, keeping well away from humans. This morning I decided to write to my consultant asking for confirmation re shielding, this was his reply.. "No, according to our Departmental
I'm JAK2+ PV under control... I got my letter 5 weeks ago and have been staying in besides walking my dog in remote fields etc, keeping well away from humans. This morning I decided to write to my consultant asking for confirmation re shielding, this was his reply.. "No, according to our Departmental
shiftzz
in
MPN Voice
4 years ago
Treatment with interferon-α2b speeds up recovery of COVID-19 patients in exploratory study.
Treatment with antivirals such as interferons may significantly improve virus clearance and reduce levels of inflammatory proteins in COVID-19 patients, according to a new study in Frontiers in Immunology. Researchers conducting an exploratory study on a cohort of confirmed COVID-19 cases in Wuhan found
Treatment with antivirals such as interferons may significantly improve virus clearance and reduce levels of inflammatory proteins in COVID-19 patients, according to a new study in Frontiers in Immunology. Researchers conducting an exploratory study on a cohort of confirmed COVID-19 cases in Wuhan found
2greys
in
Lung Conditions Community Forum
4 years ago
Post 643 Time 11 May 2020
Good mourningly much loved Sisters and Brothers. I hope as always that “YOU” are well, oh much loved Sisters and Brothers is “YOU” in case that was not obvious. Yes, I do love “YOU” all, some more than others but that is because I know them better. Rest assured “YOU” are still loved either way.
Good mourningly much loved Sisters and Brothers. I hope as always that “YOU” are well, oh much loved Sisters and Brothers is “YOU” in case that was not obvious. Yes, I do love “YOU” all, some more than others but that is because I know them better. Rest assured “YOU” are still loved either way.
RoyceNewton
in
My MSAA Community
4 years ago
Peg interferon
Hi, just looking for information.Today had my bloods done, pick meds up, been informed today that interferon 2a has been discontinued, so the consultant has put me on peg interferon, my bloods etc have been stable, worried things might change. I know peg stays in the blood stream for longer, so only
Hi, just looking for information.Today had my bloods done, pick meds up, been informed today that interferon 2a has been discontinued, so the consultant has put me on peg interferon, my bloods etc have been stable, worried things might change. I know peg stays in the blood stream for longer, so only
Jbut
in
MPN Voice
4 years ago
Peg interferon
Hello everyone , today i had my bloods done at the hospital, and waited for my medication, the interferon 2a has been discontinued, so from today am on peg interferon. Just wanted to know if any others have changed to peg, and has there been any difference. Thank you for reading x
Hello everyone , today i had my bloods done at the hospital, and waited for my medication, the interferon 2a has been discontinued, so from today am on peg interferon. Just wanted to know if any others have changed to peg, and has there been any difference. Thank you for reading x
Jbut
in
MPN Voice
4 years ago
Aches and pains
Evening All Hope you are all staying safe Just a question I want to throw out there I am a fit 47 year old who exercises regularly and have done many big events like the London marathon, prudential 100 cycle and serpentine 2 mile swim after being diagnosed. I have had ET for over 9 1/2 years now
Evening All Hope you are all staying safe Just a question I want to throw out there I am a fit 47 year old who exercises regularly and have done many big events like the London marathon, prudential 100 cycle and serpentine 2 mile swim after being diagnosed. I have had ET for over 9 1/2 years now
Gunner73
in
MPN Voice
4 years ago
Hydroxyurea vs interferon for younger patients
My 18yr old son has JAK2+ ET. Right now he only takes daily 81 aspirin. During my discussion with the hematologist, their drug of choice, if needed, is hydroxyurea. Everything I’ve read and have seen on this board is that interferon (peg) is preferred for the younger ET patients. She said HU is better
My 18yr old son has JAK2+ ET. Right now he only takes daily 81 aspirin. During my discussion with the hematologist, their drug of choice, if needed, is hydroxyurea. Everything I’ve read and have seen on this board is that interferon (peg) is preferred for the younger ET patients. She said HU is better
Nmom
in
MPN Voice
4 years ago
Prostate Cancer dormancy – recent Australian study. “Prostate cancer cell‐intrinsic interferon signaling regulates dormancy and metastatic
You need more molecular cell biology than I have to follow the detail of this long complex research study. A significant element for me was that they tested their mouse study findings against actual Pca patient samples. Hopefully this study will lead to clinical trials. “Abstract. The latency associated
You need more molecular cell biology than I have to follow the detail of this long complex research study. A significant element for me was that they tested their mouse study findings against actual Pca patient samples. Hopefully this study will lead to clinical trials. “Abstract. The latency associated
Bjry
in
Advanced Prostate Cancer
4 years ago
Need input on ADT, Brachytherapy, etc.
Hi folks. I have a diagnosis of 3+4 with PSA of 21. I am on the fence and cannot decide which treatment to get. My doctor wants me to get the ADT (hormone therapy) to shrink the prostate so we can then do Brachy "seeds'. My family wants me to get it out with surgery. I have locally spoken to 3-4 men
Hi folks. I have a diagnosis of 3+4 with PSA of 21. I am on the fence and cannot decide which treatment to get. My doctor wants me to get the ADT (hormone therapy) to shrink the prostate so we can then do Brachy "seeds'. My family wants me to get it out with surgery. I have locally spoken to 3-4 men
CarrotBoy
in
Advanced Prostate Cancer
4 years ago
ET calr type 2 on hydab can we get pregnancy
Hii my wife is Et calr type 2 postive, 6 months ago and her age is 31 years.we are on asprin + hydab(12 tablets per week) and we want kids but if we stop hydab her platelets are crossing 13 lakhs. Doctor told to wait for 6 months,I heard about interferon if any one is using interferon plz guide us.
Hii my wife is Et calr type 2 postive, 6 months ago and her age is 31 years.we are on asprin + hydab(12 tablets per week) and we want kids but if we stop hydab her platelets are crossing 13 lakhs. Doctor told to wait for 6 months,I heard about interferon if any one is using interferon plz guide us.
Aruntez
in
MPN Voice
4 years ago
Sudden loss of smell as a possible symptom of COVID-19, coagulopathy and antiphospholipid antibodies in patients with COVID-19
APRIL 9, 2020 Sudden loss of smell as a possible symptom of COVID-19, coagulopathy and antiphospholipid antibodies in patients with COVID-19, and characteristics of patients with fatal COVID-19 By Denise Baez NEW YORK -- April 9, 2020 -- In today’s DG Alert, we cover sudden olfactory loss function as
APRIL 9, 2020 Sudden loss of smell as a possible symptom of COVID-19, coagulopathy and antiphospholipid antibodies in patients with COVID-19, and characteristics of patients with fatal COVID-19 By Denise Baez NEW YORK -- April 9, 2020 -- In today’s DG Alert, we cover sudden olfactory loss function as
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
4 years ago
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