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Interferon beta-1a
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Best time of day for meds??
Is there a best time of the day to take aspirin, HU or an interferon shot?? Just wondering if anyone has found a best time of the day for these, as to be most effective with our circadian body clock. I use to take my aspirin in the evening but I find first thing in the morning, upon waking seems to work
Is there a best time of the day to take aspirin, HU or an interferon shot?? Just wondering if anyone has found a best time of the day for these, as to be most effective with our circadian body clock. I use to take my aspirin in the evening but I find first thing in the morning, upon waking seems to work
MAP44
in
MPN Voice
3 years ago
Enlarged spleen
Enlarged spleen. Does any one heard about different effect of h.u and peg interferon on spleen?since I started to use peg my spleen got bigger from 15-16 to 18 cm
Enlarged spleen. Does any one heard about different effect of h.u and peg interferon on spleen?since I started to use peg my spleen got bigger from 15-16 to 18 cm
eladhil
in
MPN Voice
3 years ago
10 facts MPN patients need to know about FDA approval of Ropegylated interferon alpha2b (Besremi).
Ruben Mesa, MD, FACP, executive director of Mays Cancer Center, home to UT Health San Antonio MD Anderson Cancer Center, and MPN expert and investigator, discusses the top 10 facts that patients with myeloproliferative neoplasms (especially those with polycythemia vera) need to know about the FDA approval
Ruben Mesa, MD, FACP, executive director of Mays Cancer Center, home to UT Health San Antonio MD Anderson Cancer Center, and MPN expert and investigator, discusses the top 10 facts that patients with myeloproliferative neoplasms (especially those with polycythemia vera) need to know about the FDA approval
Manouche
in
MPN Voice
3 years ago
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FDA Approves Ropeginterferon Alfa-2b-njft for Polycythemia Vera
The FDA has approved ropeginterferon alfa-2b-njft (Besremi) for use as a treatment in patients with polycythemia vera.1 The regulatory decision was based on safety from the PEGINVERA and PROUD/ CONTINUATION-PV studies and efficacy findings from the PEGINVERA clinical study program. Results showed
The FDA has approved ropeginterferon alfa-2b-njft (Besremi) for use as a treatment in patients with polycythemia vera.1 The regulatory decision was based on safety from the PEGINVERA and PROUD/ CONTINUATION-PV studies and efficacy findings from the PEGINVERA clinical study program. Results showed
JT_Marlin
in
MPN Voice
3 years ago
Some good news...
Some good news... Call from my haematology consultant, she is very pleased with my results, she is stopping my chemotherapy today, she said my JAK2 gene count is down to 2% and if the numbers etc remain the same she will stop my weekly injection of interferon, she said I was in remission, she doesn't
Some good news... Call from my haematology consultant, she is very pleased with my results, she is stopping my chemotherapy today, she said my JAK2 gene count is down to 2% and if the numbers etc remain the same she will stop my weekly injection of interferon, she said I was in remission, she doesn't
shiftzz
in
MPN Voice
3 years ago
Pegasys not working as well with Calr
At one of the recent webinars from the US, a haematologist mentioned that interferon doesn't work well with Calr mutation. Can anyone shed any light? Sadly that seems to be my experience, but I think my haematologist might not know about that research. Thanks Jo
At one of the recent webinars from the US, a haematologist mentioned that interferon doesn't work well with Calr mutation. Can anyone shed any light? Sadly that seems to be my experience, but I think my haematologist might not know about that research. Thanks Jo
Joetcalr
in
MPN Voice
3 years ago
Possible side effects of interferon?
Hi all, I am 34 with ET. I started Pegasys at 45mcg per week about 2 months ago and for the most part I haven’t noticed obvious side effects. However in the last few weeks I’ve noticed pain in my hips, I think it’s muscular rather than in the actual joint. It tends to hurt sharply upon certain movements
Hi all, I am 34 with ET. I started Pegasys at 45mcg per week about 2 months ago and for the most part I haven’t noticed obvious side effects. However in the last few weeks I’ve noticed pain in my hips, I think it’s muscular rather than in the actual joint. It tends to hurt sharply upon certain movements
AlexWheek
in
MPN Voice
3 years ago
Combo therapy for PV trial
Hi there, Does anyone has treated with this combo Ruxolitinib and Interferon...? Could you share your experince please..? https://www.haematologica.org/article/view/9851
Hi there, Does anyone has treated with this combo Ruxolitinib and Interferon...? Could you share your experince please..? https://www.haematologica.org/article/view/9851
william-Indo
in
MPN Voice
3 years ago
Mithridate Trial
This trial is Ruxolitnib versus hydroxycarbamide or interferon as first line therapy in high risk PV. I am 69 female diagnosed ET 2 years ago but diagnosis changed to PV 1 year ago. My worse symptom was pruritus which I had been plagued with since 2015. I was prescribed hydrea and ever increasing
This trial is Ruxolitnib versus hydroxycarbamide or interferon as first line therapy in high risk PV. I am 69 female diagnosed ET 2 years ago but diagnosis changed to PV 1 year ago. My worse symptom was pruritus which I had been plagued with since 2015. I was prescribed hydrea and ever increasing
JP1952
in
MPN Voice
3 years ago
Allele burden 26%
MPL Et just seen BM result which says MPL allele burden 26% not quite sure if this is high or low or not important been offered HU or peg interferon trying to research. Thanks
MPL Et just seen BM result which says MPL allele burden 26% not quite sure if this is high or low or not important been offered HU or peg interferon trying to research. Thanks
Sprat19
in
MPN Voice
3 years ago
Is this just happening to me ?
Hi everyone, sorry if this is A little gory, but wondering if anyone else has been experiencing the same. On 29th sept while I was out I had dioreah pour from me, no warning, and not feeling unwell at all. Got home cleaned up :-( next day feeling unwell, can’t eat, woozy/giddy slept all day, the thing
Hi everyone, sorry if this is A little gory, but wondering if anyone else has been experiencing the same. On 29th sept while I was out I had dioreah pour from me, no warning, and not feeling unwell at all. Got home cleaned up :-( next day feeling unwell, can’t eat, woozy/giddy slept all day, the thing
Yvette49
in
MPN Voice
3 years ago
Jury summons.
So I’ve just been asked to do jury service. I live in north west London and it would be at courts in south east London which are over an hour away on the tube. I’ve not been on public transport for 18 months, apart from a few times. I don’t think I even went on the tube in rush hour pre pandemic so
So I’ve just been asked to do jury service. I live in north west London and it would be at courts in south east London which are over an hour away on the tube. I’ve not been on public transport for 18 months, apart from a few times. I don’t think I even went on the tube in rush hour pre pandemic so
Jonnymitts
in
MPN Voice
3 years ago
What are your thoughts about Interferon Vs. Hydroxurea?
I’ve been reading different studies about this and most of them says Interferon is advisable for younger patients and for pregnancy but current practice is using Hydrea as a first line of defense instead of Interferon? I would love to hear your experience about this. I’m still on a low-dose aspirin
I’ve been reading different studies about this and most of them says Interferon is advisable for younger patients and for pregnancy but current practice is using Hydrea as a first line of defense instead of Interferon? I would love to hear your experience about this. I’m still on a low-dose aspirin
livelovelaugh1992
in
MPN Voice
3 years ago
ET and PV
Hi all I was diagnosed with ET last month after a positive JAK2 and various symptoms (of which I thought I was aneamic) so came as a shock. I have been on Interferon for 4 weeks and went back today and got told my red blood cell count is high and PV got mentioned! Can you have both or is it one or the
Hi all I was diagnosed with ET last month after a positive JAK2 and various symptoms (of which I thought I was aneamic) so came as a shock. I have been on Interferon for 4 weeks and went back today and got told my red blood cell count is high and PV got mentioned! Can you have both or is it one or the
sweetiecake
in
MPN Voice
3 years ago
Night Sweats
Hi everyone, I am looking for some feedback on night sweats. 42 years old (live in Ireland), diagnosed with ET in 2017, progressed to MF in 2020. Been having horrendous night sweats since February 2018. Under the care of Haematologist I have tried Jakafi, HU, and Interferon, none of which had any impact
Hi everyone, I am looking for some feedback on night sweats. 42 years old (live in Ireland), diagnosed with ET in 2017, progressed to MF in 2020. Been having horrendous night sweats since February 2018. Under the care of Haematologist I have tried Jakafi, HU, and Interferon, none of which had any impact
Navy12
in
MPN Voice
3 years ago
Video of the MPN Voice ‘Virtual’ Patients’ Forum – Liverpool/Chester/N Wales, now available to view
Held on Friday 15th October 2021 The video of the forum is now available to view on the MPN Voice YouTube channel. Click on the link below to view the video.
FORUM VIDEO
https://www.youtube.com/watch?v=pGpK-UeEhzs This MPN Voice online patients’ forum was hosted by Dr Nauman Butt and Dr Rachel
Held on Friday 15th October 2021 The video of the forum is now available to view on the MPN Voice YouTube channel. Click on the link below to view the video.
FORUM VIDEO
https://www.youtube.com/watch?v=pGpK-UeEhzs This MPN Voice online patients’ forum was hosted by Dr Nauman Butt and Dr Rachel
Mazcd
MPNVoice
in
MPN Voice
3 years ago
Stubborn platelets
I have been taking 45 mps interferon for Et for 3 months and my platelet count has started to rise haemo wants to increase this to 90 not too happy as I am struggling with mood swings, itching, no libedo. Does any one take 60 mls?
I have been taking 45 mps interferon for Et for 3 months and my platelet count has started to rise haemo wants to increase this to 90 not too happy as I am struggling with mood swings, itching, no libedo. Does any one take 60 mls?
ciye
in
MPN Voice
3 years ago
Flu shot while taking Pegasus interferon?
Is it OK to have flu shot while taking Pegasus? I had 2 covid shot of Pfizer. Thanks
Is it OK to have flu shot while taking Pegasus? I had 2 covid shot of Pfizer. Thanks
Sam2022
in
MPN Voice
3 years ago
Peg interferon (cold) transportable storage
Hi Please could anyone advise me on the most efficient way to transport your peg interferon while travelling,to keep it cold. Thankyou
Hi Please could anyone advise me on the most efficient way to transport your peg interferon while travelling,to keep it cold. Thankyou
Bobadog
in
MPN Voice
3 years ago
Jack 2 medicine?
Hello. Diagnosis with p. V for 5years. Take peg interferon. My hematologist told there are several research to find medicine for the jak2. Is any one no something about it or send me to studies on the subject. Thank you
Hello. Diagnosis with p. V for 5years. Take peg interferon. My hematologist told there are several research to find medicine for the jak2. Is any one no something about it or send me to studies on the subject. Thank you
eladhil
in
MPN Voice
3 years ago
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