Hi. I was diagnosed approx. 2 yr ago with ET, J... - MPN Voice

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Hi. I was diagnosed approx. 2 yr ago with ET, Jak2.

johnnyjumpups profile image
8 Replies

No bone marrow biopsy, started on HU immediately. Would I be considered too old to start an interferon drug?

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johnnyjumpups
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8 Replies
hunter5582 profile image
hunter5582

You are not too old to be considered for an IFN to treat ET. I am also on an IFN (Besremi) to treat PV and also age 69. The IFNs are considered a preferred (first line) treatment for ET and PV. Besremi only has a FDA indication for PV and it is very expensive. It ia difficult to access off label to treat ET. HU and PEG are also off-label for ET. HU cost = $25/month. PEG cost = $4,200/month. Not surprisingly, it is easier to get HU approved; however, you almost certainly can access PEG if you prefer it. It just may take more work.

johnnyjumpups profile image
johnnyjumpups in reply tohunter5582

Thank you Hunter.

Peterwi profile image
Peterwi

I started at 74, two years ago, and I was told that I wasn’t too old to start Pegasys

johnnyjumpups profile image
johnnyjumpups in reply toPeterwi

Thank you Peterwi. I keep seeing they say it's for the long haul. Your reply helps.

Scarlett500 profile image
Scarlett500

I wouldnt think so. Just might be harder to get as you are in the US and it will need to be approved. Thankful to be in the UK and have a good consultant.

johnnyjumpups profile image
johnnyjumpups in reply toScarlett500

Thank you Scarlett500.

KLCTJC profile image
KLCTJC

I agree. I wouldn’t think so. I think you should be able to try it.

johnnyjumpups profile image
johnnyjumpups in reply toKLCTJC

Thank you KLCTJC.

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