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Help Please for Niece, 17, Epstein Barr - Esinophils, Erythrocytes
My lovely niece is struggling to manage her severe asthma and fatigue with A Levels lots of sport, and school plays. She has lots of food sensitivties especially to fresh fruit veg/ and has reactions with palms soles of feet to grass/ shower gels etc. Her big brother has anaphylatic shock syndrome and
My lovely niece is struggling to manage her severe asthma and fatigue with A Levels lots of sport, and school plays. She has lots of food sensitivties especially to fresh fruit veg/ and has reactions with palms soles of feet to grass/ shower gels etc. Her big brother has anaphylatic shock syndrome and
sarahstevenson
in
Thyroid UK
11 years ago
Late October - Clinical trial update - B + R and Idelalisib - CAL 101
Hey, Well three days in the Day Care centre last week - first for IVIG and then the fourth round of two day chemo infusions. Both went reasonably well, with the minor frustrations of "red tape & paperwork". Although I was able to drive home after all three visits, I have felt lathargic over the weekend
Hey, Well three days in the Day Care centre last week - first for IVIG and then the fourth round of two day chemo infusions. Both went reasonably well, with the minor frustrations of "red tape & paperwork". Although I was able to drive home after all three visits, I have felt lathargic over the weekend
MartyR
in
CLL Support
11 years ago
Pregnancy and chronic itp
Hi everyone , I was diagnosed with itp at age 21. I am 26 now and pregnant. Baby is perfectly fine thank gd but my counts are not! I am 5 1/2 month now and have a count of 22 thousand. Prednisone 30 Mg a day which only stabilizes my counts. Ivig infusion works brings counts over 150,000 that's what
Hi everyone , I was diagnosed with itp at age 21. I am 26 now and pregnant. Baby is perfectly fine thank gd but my counts are not! I am 5 1/2 month now and have a count of 22 thousand. Prednisone 30 Mg a day which only stabilizes my counts. Ivig infusion works brings counts over 150,000 that's what
Leahgersh
in
ITP Support Association
11 years ago
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Daily Laughter Tuesday
Daily Laughter Tuesday Good happy Tuesday my friends I am off to the Heath Hospital today for my 5th dose of
Immunoglobulin
another where the vein game for the sister Have a great Tuesday Please enjoy them Best wishes Berwick xxxx Kids Jokes - You Quack Me Up!!!
Daily Laughter Tuesday Good happy Tuesday my friends I am off to the Heath Hospital today for my 5th dose of
Immunoglobulin
another where the vein game for the sister Have a great Tuesday Please enjoy them Best wishes Berwick xxxx Kids Jokes - You Quack Me Up!!!
Hidden
in
Lung Conditions Community Forum
11 years ago
Dr Sharman provides an update on an NIH CAR-T trial for relapsed/refractory DBLC
Many of us will remember the excitement a couple of years back when Dr Carl June of the University of Pennsylvania announced Chimeric Antigen Receptor engineered T Lymphocytes (CAR-T) were successfully used to cure at least one CLL patient. As Dr Sharman covers in his latest blog, CAR-T research is
Many of us will remember the excitement a couple of years back when Dr Carl June of the University of Pennsylvania announced Chimeric Antigen Receptor engineered T Lymphocytes (CAR-T) were successfully used to cure at least one CLL patient. As Dr Sharman covers in his latest blog, CAR-T research is
AussieNeil
Administrator
in
CLL Support
11 years ago
To those of you on NPlate, how often is a normal injection, how much and what is the goal set by your doctor as far as count?
My husband was diagnosed in May. Nothing but NPlate raises hiis count. Rituxan, IVIG, platelet transfusions and prednisone were of no real help. I keep reading everyones comments about their count being 20,000 to 50,000 but his Dr keeps giving injections and wants him about 300,000 because about every
My husband was diagnosed in May. Nothing but NPlate raises hiis count. Rituxan, IVIG, platelet transfusions and prednisone were of no real help. I keep reading everyones comments about their count being 20,000 to 50,000 but his Dr keeps giving injections and wants him about 300,000 because about every
rsmonte
in
ITP Support Association
11 years ago
Mental health issues and steroids revisited: Still wondering about the thyroid connection?
She was treated by Neurology with
immunoglobulin
transfusions and almost immediately the psychosis and other symptoms cleared. Only 1000 cases reported worldwide in last 6 years (for info see, "My Brain on FIre: my month of madness" by Susanne Callahan).
She was treated by Neurology with
immunoglobulin
transfusions and almost immediately the psychosis and other symptoms cleared. Only 1000 cases reported worldwide in last 6 years (for info see, "My Brain on FIre: my month of madness" by Susanne Callahan).
Ploggy123
in
Thyroid UK
11 years ago
Mental health issues and steroids revisited: Still wondering about the thyroid connection?
She was treated by Neurology with
immunoglobulin
transfusions and almost immediately the psychosis and other symptoms cleared. Only 1000 cases reported worldwide in last 6 years (for info see, "My Brain on FIre: my month of madness" by Susanne Callahan).
She was treated by Neurology with
immunoglobulin
transfusions and almost immediately the psychosis and other symptoms cleared. Only 1000 cases reported worldwide in last 6 years (for info see, "My Brain on FIre: my month of madness" by Susanne Callahan).
Ploggy123
in
Thyroid UK
11 years ago
September - Clinical trial update - B + R and Idelalisib - CAL 101
Hi CLLers, Well into my third round of B + R chemo treatment yesterday and today - and all seems to be going well! My IVIG Infusions have now caught up with my delayed Chemo treatment - so three session in the Day Care Unit - this week! After my last Doctor's examination & blood tests he now strongly
Hi CLLers, Well into my third round of B + R chemo treatment yesterday and today - and all seems to be going well! My IVIG Infusions have now caught up with my delayed Chemo treatment - so three session in the Day Care Unit - this week! After my last Doctor's examination & blood tests he now strongly
MartyR
in
CLL Support
11 years ago
I have been undergoing tests for ms and they have been negative, but i have been having transient ischemic attacks and all the symptoms of
Ms as well as having 2 mildly positive blood tests for IgM cardiolipin, which when googled suggests aps, I also have a history of pulmonary embolism and have had one child at 34 weeks and waters broke at 20 weeks with another pregnancy, i do also have elhers danlos syndrome, i have been referred to a
Ms as well as having 2 mildly positive blood tests for IgM cardiolipin, which when googled suggests aps, I also have a history of pulmonary embolism and have had one child at 34 weeks and waters broke at 20 weeks with another pregnancy, i do also have elhers danlos syndrome, i have been referred to a
Karrie62
in
Hughes Syndrome APS Forum
11 years ago
Sleeping
I really need some advice Since starting my
Immunoglobulin
Replacement Therapy (Transfusion of antibodies) Now My body has went into sleep mode.
I really need some advice Since starting my
Immunoglobulin
Replacement Therapy (Transfusion of antibodies) Now My body has went into sleep mode.
Hidden
in
Lung Conditions Community Forum
11 years ago
Immunoglobulin Replacement.
Hi Everybody, Now back home. Three bottles of antibodies ( PS Made in Spain) administered. Good nurse got it in one. 4 hours + to do 3 bottles. No complaints apart from this dam infection. Look on the brightside greame in 12 months infections may be cut down. I am looking forward to that day. Hope
Hi Everybody, Now back home. Three bottles of antibodies ( PS Made in Spain) administered. Good nurse got it in one. 4 hours + to do 3 bottles. No complaints apart from this dam infection. Look on the brightside greame in 12 months infections may be cut down. I am looking forward to that day. Hope
Hidden
in
Lung Conditions Community Forum
11 years ago
Blood draws, what are your tips for a relatively painless experience?
I've just had my regular blood tests done, which prompted this post. (My routine is to go to a pathology collection centre for the blood draw, then two days later pick up my results from my GP after he has checked them. I schedule the test prior to my haematology appointment so I'm prepared with questions
I've just had my regular blood tests done, which prompted this post. (My routine is to go to a pathology collection centre for the blood draw, then two days later pick up my results from my GP after he has checked them. I schedule the test prior to my haematology appointment so I'm prepared with questions
AussieNeil
Administrator
in
CLL Support
11 years ago
CLL - a Cancer of the Immune System
Make sure you get your immunity levels checked (simple blood test to check neutrophil and
immunoglobulin
levels) if you suspect you are getting infections more frequently and/or infections are taking you longer to overcome.
Make sure you get your immunity levels checked (simple blood test to check neutrophil and
immunoglobulin
levels) if you suspect you are getting infections more frequently and/or infections are taking you longer to overcome.
AussieNeil
Administrator
in
CLL Support
11 years ago
Daily Laughter Friday
Between my
Immunoglobulin
replacement and the heat, has taken it's toll and I am really feeling unwell Sorry to let you all down. It breaks my heart. Take care my friends hopefully I will be back say Monday. Berwick xx
Between my
Immunoglobulin
replacement and the heat, has taken it's toll and I am really feeling unwell Sorry to let you all down. It breaks my heart. Take care my friends hopefully I will be back say Monday. Berwick xx
Hidden
in
Lung Conditions Community Forum
11 years ago
Neutropenic sepsis
I recently posted an article referring you to a short video on this subject. Last week my husband had sepsis again. We were away on holiday, he suddenly became very tired, went to sleep for 3 hours (most unusual during the day) I woke him up, his eyes were rolling up into his eyelids, his speech slurred
I recently posted an article referring you to a short video on this subject. Last week my husband had sepsis again. We were away on holiday, he suddenly became very tired, went to sleep for 3 hours (most unusual during the day) I woke him up, his eyes were rolling up into his eyelids, his speech slurred
lartington
in
CLL Support
11 years ago
Blood Tranfusion
First the good news everything went welll Now the bad news, I still never seen a pint of the red stuff, I had maybe one third of a pint of
immunoglobulin
clear white liquid that to 5 hours to go through the system Whilst I thought that this was going on for only a year, the Staff Nurse had told
First the good news everything went welll Now the bad news, I still never seen a pint of the red stuff, I had maybe one third of a pint of
immunoglobulin
clear white liquid that to 5 hours to go through the system Whilst I thought that this was going on for only a year, the Staff Nurse had told
Hidden
in
Lung Conditions Community Forum
11 years ago
Do you think I could have Aps?
Hi everyone, I'll try and keep this as brief as possible. At the age of 17-19(roughly) I suffered severe headaches/migraines along with flashing lights at the sides of my eyes. Since then I'm now 31, I suffer from extreme fatigue, terrible memory- I have been unable to study, learn to drive, read
Hi everyone, I'll try and keep this as brief as possible. At the age of 17-19(roughly) I suffered severe headaches/migraines along with flashing lights at the sides of my eyes. Since then I'm now 31, I suffer from extreme fatigue, terrible memory- I have been unable to study, learn to drive, read
EllaRuby
in
Hughes Syndrome APS Forum
11 years ago
IVIG & Clinical Trial with B + R -- Idelalisib (GS-1101) OR CAL 101 Study (III)
So yesterday - Monday 29th - 11 days after my first chemo B + R - I had an infusion of IVIG to help my deficient immune system. I did not appear to suffer any side effects - besides generally these are stated as being "mild, transient & self-limiting." For those who are interested in facts, the Hospital
So yesterday - Monday 29th - 11 days after my first chemo B + R - I had an infusion of IVIG to help my deficient immune system. I did not appear to suffer any side effects - besides generally these are stated as being "mild, transient & self-limiting." For those who are interested in facts, the Hospital
MartyR
in
CLL Support
11 years ago
A cause of elevated serum thyroid-stimulating hormone (TSH) concentration
[Epub ahead of print]
An
G complexed form of thyroid-stimulating hormone (macro thyroid-stimulating hormone) is a cause of elevated serum thyroid-stimulating hormone concentration.
[Epub ahead of print]
An
G complexed form of thyroid-stimulating hormone (macro thyroid-stimulating hormone) is a cause of elevated serum thyroid-stimulating hormone concentration.
helvella
Thyroid UK
in
Thyroid UK
11 years ago
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