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Imbruvica
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A Fib on Imbruvica how common is it
Have had a few bouts of A Fib . Some pretty severe. Is it common with Ibrutinib as a side effect ? Secondly can it result in increased risk of clots. Thanks.
Have had a few bouts of A Fib . Some pretty severe. Is it common with Ibrutinib as a side effect ? Secondly can it result in increased risk of clots. Thanks.
Timree
in
CLL Support
1 year ago
Water intake
I'm taking my
Imbruvica
at 7 PM with my last cup of water for the day.I make certain that I drink 12 cups of water during the day....half of it during the morning and the rest during the early afternoon. I still need to get up about 3 times a night. Is this normal?
I'm taking my
Imbruvica
at 7 PM with my last cup of water for the day.I make certain that I drink 12 cups of water during the day....half of it during the morning and the rest during the early afternoon. I still need to get up about 3 times a night. Is this normal?
Hidden
in
CLL Support
1 year ago
No grant money for CLL
I have been taking
Imbruvica
for CLL for four years with good success, and have been paying the ridiculously steep price for the drug with a combination of my health insurance, out-of-pocket savings and grants from the PAN Foundation, which have recently amounted to about $14,000 per year.
I have been taking
Imbruvica
for CLL for four years with good success, and have been paying the ridiculously steep price for the drug with a combination of my health insurance, out-of-pocket savings and grants from the PAN Foundation, which have recently amounted to about $14,000 per year.
TheTraveler
in
CLL Support
1 year ago
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Imbruvica
Now ill be 85 in October and they want me to start
imbruvica
(pill form) since i refused more IV Rituxan. I wanted to ask anyone that has or is on this pill, what the results are and side effects. Someon said they were on it and it worked for 2 1/2 years and then it stopped.
Now ill be 85 in October and they want me to start
imbruvica
(pill form) since i refused more IV Rituxan. I wanted to ask anyone that has or is on this pill, what the results are and side effects. Someon said they were on it and it worked for 2 1/2 years and then it stopped.
Candy1015
in
CLL Support
1 year ago
Lymphodema
Happy to say I've been off the
Imbruvica
for 9 months. In Remission. YEAH. HOWEVER, have really bad edema, now in both legs and thighs. Just got checked out to be sure I don't have blood clots. Thanks goodness NO to that. But has anyone heard about a "lymphedema clinic"?
Happy to say I've been off the
Imbruvica
for 9 months. In Remission. YEAH. HOWEVER, have really bad edema, now in both legs and thighs. Just got checked out to be sure I don't have blood clots. Thanks goodness NO to that. But has anyone heard about a "lymphedema clinic"?
duffymcgrif
in
CLL Support
1 year ago
CLL relapse
In my country now is available
Imbruvica
(from recently), and the hematologist said probably her next treatment will be with
Imbruvica
.
In my country now is available
Imbruvica
(from recently), and the hematologist said probably her next treatment will be with
Imbruvica
.
Taupe7
in
CLL Support
1 year ago
Starting Obinutuzumab infusions
I have been taking
Imbruvica
for @3years for CLL with good results. I'm going to start the Obinutuzumab infusions in January. I've had very little side effects from the
imbruvica
and am wondering how I might react to the Obinutuzumab. Any advice on what to expect and on diet, etc?
I have been taking
Imbruvica
for @3years for CLL with good results. I'm going to start the Obinutuzumab infusions in January. I've had very little side effects from the
imbruvica
and am wondering how I might react to the Obinutuzumab. Any advice on what to expect and on diet, etc?
BarneyFife
in
CLL Support
1 year ago
Could Vitamin D3 affect hemoglobin levels?
Two years ago they started him on
Imbruvica
420 mg daily but stopped it after 14 months because his neutrophil count was so low. Since June of 2022 he has been getting Eprex injections (40,000 units ) weekly and taking Aclovir 400 mg twice daily.
Two years ago they started him on
Imbruvica
420 mg daily but stopped it after 14 months because his neutrophil count was so low. Since June of 2022 he has been getting Eprex injections (40,000 units ) weekly and taking Aclovir 400 mg twice daily.
Seaperson
in
CLL Support
1 year ago
Stomach Issues
I do take Omeprazole with my
Imbruvica
140mg each day. My Oncologist advised me to take a probiotic and see if that could help. I did that and changed my diet 2 weeks ago and felt great!
I do take Omeprazole with my
Imbruvica
140mg each day. My Oncologist advised me to take a probiotic and see if that could help. I did that and changed my diet 2 weeks ago and felt great!
Cgolen99
in
CLL Support
1 year ago
Imbruvica and other cancers
Anyone have experience with
Imbruvica
wrecking your immune system and making you more vulnerable to other cancers? Just curious.
Anyone have experience with
Imbruvica
wrecking your immune system and making you more vulnerable to other cancers? Just curious.
taffy2020
in
CLL Support
1 year ago
Calquence and flatulence
For a 2017 lymphoma diagnosis, I was on
Imbruvica
for 3 years. The past 2 years I have been on Calquence. The past 4 months or so, I have had increased flatulence. The oncologist said it was likely related to the medication. Has anyone else experienced this?
For a 2017 lymphoma diagnosis, I was on
Imbruvica
for 3 years. The past 2 years I have been on Calquence. The past 4 months or so, I have had increased flatulence. The oncologist said it was likely related to the medication. Has anyone else experienced this?
Agatesup
in
CLL Support
1 year ago
BLOOD PRESSURE PROBLEMS
Does anyone have trouble taking
imbruvica
in relation to high blood pressure.We know that this medication bumps up blood pressure a lot If anyone is suffering from high blood pressure,what do you take to control it. I had no blood pressure until I started taking
imbruvica
.
Does anyone have trouble taking
imbruvica
in relation to high blood pressure.We know that this medication bumps up blood pressure a lot If anyone is suffering from high blood pressure,what do you take to control it. I had no blood pressure until I started taking
imbruvica
.
studi
in
CLL Support
1 year ago
Diverticulitis treatment and CLL
The pharmacist will call my heme/oncology doctor to ask if I should adjust the
imbruvica
dose while on Cipro but I wonder if I should take Cipro at all. I'm not aware of any allergies to meds. And yes I am anxious to start the meds!
The pharmacist will call my heme/oncology doctor to ask if I should adjust the
imbruvica
dose while on Cipro but I wonder if I should take Cipro at all. I'm not aware of any allergies to meds. And yes I am anxious to start the meds!
sheilamarie
in
CLL Support
2 years ago
Stopping Imbruvica before going to the dentist
Why shall I stop
Imbruvica
before going to the dentist to clean the gum? Is it for fear of bleeding?For how long before going? Why it is also recommended to stop it after treatment for few days? Thanks much!
Why shall I stop
Imbruvica
before going to the dentist to clean the gum? Is it for fear of bleeding?For how long before going? Why it is also recommended to stop it after treatment for few days? Thanks much!
AshGS
in
CLL Support
1 year ago
Finishing 2 years of Rituxan and Venetoclax
He was treated with the following: - FCR (4 year remission) -
Imbruvica
(worked for 5 years but caused A-fib) - And since 2020, 6 cycles of Rituxan and 2 years of Venetoclax CBCs are okay except for Platelets just below normal (around 120-130 K).
He was treated with the following: - FCR (4 year remission) -
Imbruvica
(worked for 5 years but caused A-fib) - And since 2020, 6 cycles of Rituxan and 2 years of Venetoclax CBCs are okay except for Platelets just below normal (around 120-130 K).
Carolinaj
in
CLL Support
2 years ago
Bad numbness n tingling with feet - cll - imbruvica cause ?
When I mention it to the internist and the oncologist they really have no answers for me except don’t wear heels or tight shoes or closed tie shoes n keep feet warm - I have cll and have been on
imbruvica
for many years now 3 per day - Is cll or
imbruvica
the cause?
When I mention it to the internist and the oncologist they really have no answers for me except don’t wear heels or tight shoes or closed tie shoes n keep feet warm - I have cll and have been on
imbruvica
for many years now 3 per day - Is cll or
imbruvica
the cause?
Dmdtennis
in
CLL Support
2 years ago
Imbruvica
I was on
Imbruvica
for a few years with very little side effects, fatigue and headaches. I had them and they were hardly noticed. I have been off the
Imbruvica
over a year and now my headaches are back and they are painful. Is there anything that help relieve the headaches??
I was on
Imbruvica
for a few years with very little side effects, fatigue and headaches. I had them and they were hardly noticed. I have been off the
Imbruvica
over a year and now my headaches are back and they are painful. Is there anything that help relieve the headaches??
suncity18
in
CLL Support
2 years ago
COVID: Staying Safe As The Virus Evolves - LLS Podcast / CLL Society’s COVID-19 Update December 5th, 2022 / Dec 15 2022 end Antibody Study
These include: • Bruton tyrosine kinase (BTK) inhibitors, such as
Imbruvica
® (ibrutinib), Brukinsa® (zanubrutinib) and Calquence® (acalabrutinib) • Anti-CD20 antibody treatments, such as Rituxan® (rituximab) and Gazyva® (obinutuzumab) • CD-19 targeting CAR T-therapy (Breyanzi®, Kymriah®, Tecartus™
These include: • Bruton tyrosine kinase (BTK) inhibitors, such as
Imbruvica
® (ibrutinib), Brukinsa® (zanubrutinib) and Calquence® (acalabrutinib) • Anti-CD20 antibody treatments, such as Rituxan® (rituximab) and Gazyva® (obinutuzumab) • CD-19 targeting CAR T-therapy (Breyanzi®, Kymriah®, Tecartus™
lankisterguy
Volunteer
in
CLL Support
1 year ago
COVID update: Who remains at higher risk? by LLS.org
These include: • Bruton tyrosine kinase (BTK) inhibitors, such as
Imbruvica
® (ibrutinib), Brukinsa® (zanubrutinib) and Calquence® (acalabrutinib) • Anti-CD20 antibody treatments, such as Rituxan® (rituximab) and Gazyva® (obinutuzumab) • CD-19 targeting CAR T-therapy (Breyanzi®, Kymriah®, Tecartus™
These include: • Bruton tyrosine kinase (BTK) inhibitors, such as
Imbruvica
® (ibrutinib), Brukinsa® (zanubrutinib) and Calquence® (acalabrutinib) • Anti-CD20 antibody treatments, such as Rituxan® (rituximab) and Gazyva® (obinutuzumab) • CD-19 targeting CAR T-therapy (Breyanzi®, Kymriah®, Tecartus™
lankisterguy
Volunteer
in
CLL Support
1 year ago
cold virus and CLL
I have just finished my first month taking
Imbruvica
. It has been a bit bumpy, but I am okay. My husband has been away for a week and is coming home today. He just let me know that he has caught a pretty bad cold.
I have just finished my first month taking
Imbruvica
. It has been a bit bumpy, but I am okay. My husband has been away for a week and is coming home today. He just let me know that he has caught a pretty bad cold.
DogmomLM
in
CLL Support
2 years ago
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