Search
Search
About
Log in
Join
Experiences with
Ibrutinib
Posts
Communities
1,966 public posts
Filter results
Leg and arm cramps
I was diagnosed a year ago in July and am waiting on a second opinion to start treatment on either chemo for 6 rounds or
ibrutinib
. I went through the CLL society's free 2nd opinion link. mAny thoughts on either would be helpful I think. Thanks and God bless.
I was diagnosed a year ago in July and am waiting on a second opinion to start treatment on either chemo for 6 rounds or
ibrutinib
. I went through the CLL society's free 2nd opinion link. mAny thoughts on either would be helpful I think. Thanks and God bless.
chief1fan
in
CLL Support
6 years ago
Clinical Trial Ibrutinib Plus Venetoclax Versus Chlorambucil Plus Obinutuzumab Untreated CLL & SLL @EU & UK locations
A Study of the Combination of
Ibrutinib
Plus Venetoclax Versus Chlorambucil Plus Obinutuzumab for the First-line Treatment of Participants With Chronic Lymphocytic Leukemia (CLL)/Small Lymphocytic Lymphoma (SLL) Phase 3- Radomized Open Label https://clinicaltrials.gov/ct2/show/study/NCT03462719?
A Study of the Combination of
Ibrutinib
Plus Venetoclax Versus Chlorambucil Plus Obinutuzumab for the First-line Treatment of Participants With Chronic Lymphocytic Leukemia (CLL)/Small Lymphocytic Lymphoma (SLL) Phase 3- Radomized Open Label https://clinicaltrials.gov/ct2/show/study/NCT03462719?
lankisterguy
Volunteer
in
CLL Support
6 years ago
Juices, Fluid Options
What juices can you drink on
Ibrutinib
? My husband has a problem with 1% milk especially at night. He can drink water and tolerates ginger ale. Thank you so much
What juices can you drink on
Ibrutinib
? My husband has a problem with 1% milk especially at night. He can drink water and tolerates ginger ale. Thank you so much
Zappymom12
in
CLL Support
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Ibrutinib for all
I’d say this was good news to come home from. Well done to all who wrote to their MP in the summer about this.
I’d say this was good news to come home from. Well done to all who wrote to their MP in the summer about this.
MattGGibson
in
CLL Support
6 years ago
Ibrutinib
Any advice on how to best comfort him or make life easier during
Ibrutinib
?
Any advice on how to best comfort him or make life easier during
Ibrutinib
?
Zappymom12
in
CLL Support
6 years ago
Ibrutinib linked to invasive fungal infections
- By Neil Osterweil Publish date: March 7, 2018 Vitals FROM BLOOD https://www.mdedge.com/hematologynews/nhlhub/article/160284/cll/
ibrutinib
-linked-invasive-fungal-infections The tyrosine kinase inhibitor
ibrutinib
(Imbruvica) may be associated with early-onset invasive fungal infections (IFI)
- By Neil Osterweil Publish date: March 7, 2018 Vitals FROM BLOOD https://www.mdedge.com/hematologynews/nhlhub/article/160284/cll/
ibrutinib
-linked-invasive-fungal-infections The tyrosine kinase inhibitor
ibrutinib
(Imbruvica) may be associated with early-onset invasive fungal infections (IFI)
lankisterguy
Volunteer
in
CLL Support
6 years ago
Ibrutinib resistance
Anybody taking
ibrutinib
for over 3 years? It seems that resistance if develop (still unclear how many people do develop resistance) may start approximately at 3 years Thanks
Anybody taking
ibrutinib
for over 3 years? It seems that resistance if develop (still unclear how many people do develop resistance) may start approximately at 3 years Thanks
Hidden
in
CLL Support
6 years ago
Cheap Ibrutinib?
This is an example: https://www.bonhoa.com/mantle-cell-lymphoma-mcl/205-imbruvica-
ibrutinib
-140mg.html Thanks in advance.
This is an example: https://www.bonhoa.com/mantle-cell-lymphoma-mcl/205-imbruvica-
ibrutinib
-140mg.html Thanks in advance.
paula_dae
in
CLL Support
6 years ago
Nail and finger tip protection on Ibrutinib
Omg I have tried it all for my paper thin nails that snag and break to the quick- but this little thing has made a huge difference! This are super comfy silicon, can be cut in length to any size and allow your finger tips to heal yet you can go about your business. Highly recommend if you are having
Omg I have tried it all for my paper thin nails that snag and break to the quick- but this little thing has made a huge difference! This are super comfy silicon, can be cut in length to any size and allow your finger tips to heal yet you can go about your business. Highly recommend if you are having
SunnyCA
in
CLL Support
6 years ago
Newbie
I’m 63, finished FCR in November 2015, just started
ibrutinib
week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol Anyway. Hope symptoms get better after these first couple of weeks. Randy
I’m 63, finished FCR in November 2015, just started
ibrutinib
week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol Anyway. Hope symptoms get better after these first couple of weeks. Randy
gesch83ag
in
CLL Support
6 years ago
Bone Marrow Biopsy and pain
I've been on the
Ibrutinib
/Venetoclax trial for 8 months now and last Friday my blood test came back CLL free. I underwent yesterday my 2nd bone marrow biopsy since I enrolled the trial. My bones are very dense and the first biopsy was nothing else than a torture with excruciating pain.
I've been on the
Ibrutinib
/Venetoclax trial for 8 months now and last Friday my blood test came back CLL free. I underwent yesterday my 2nd bone marrow biopsy since I enrolled the trial. My bones are very dense and the first biopsy was nothing else than a torture with excruciating pain.
lamboman
in
CLL Support
6 years ago
UPDATE: Mom's CLL transformed to PLL
And
Ibrutinib
treatment only does not seem to be an option. I dont want to put her through chemo. I am devasted. I didnt tell her she needs to do the bone marrow because I know she will be so scared. She lost her memory during an anesthesia and I know she wont accept another one.
And
Ibrutinib
treatment only does not seem to be an option. I dont want to put her through chemo. I am devasted. I didnt tell her she needs to do the bone marrow because I know she will be so scared. She lost her memory during an anesthesia and I know she wont accept another one.
paula_dae
in
CLL Support
6 years ago
I start Ibrutinib n Venetoclax on the Flair Trial tomorrow... after over two years w&w ... will I lose my hair ??
Hair Loss
Hair Loss
Hidden
in
CLL Support
6 years ago
Sinus bradycardia
Hi ,due to start
ibrutinib
on Tuesday, had ecg today and now have sinus bradycardia ( slow heartbeat) will this prevent my treatment? Thanks for your help Martin
Hi ,due to start
ibrutinib
on Tuesday, had ecg today and now have sinus bradycardia ( slow heartbeat) will this prevent my treatment? Thanks for your help Martin
Stacky66
in
CLL Support
6 years ago
Ibrutinib bruising
Hello, My partner has been on
Ibrutinib
for almost a year now and is doing incredibly well on it. We have noticed one thing though. If he bumps himself, he gets the biggest almighty bruises. He had a small one on his backside and it has definitely got bigger.
Hello, My partner has been on
Ibrutinib
for almost a year now and is doing incredibly well on it. We have noticed one thing though. If he bumps himself, he gets the biggest almighty bruises. He had a small one on his backside and it has definitely got bigger.
pollyg2016
in
Non Hodgkin's Lymphoma Friends
6 years ago
Newbie on Ibrutinib
Started on
Ibrutinib
capsules (3 per day) in June 2017 and with the exception of shifting bone pain, more frequent bowel movements and itchy bumps/minor rashes, the results have been very good. Wish that I could have skipped the chemo and gone directly to
Ibrutinib
but then again.....who knew?
Started on
Ibrutinib
capsules (3 per day) in June 2017 and with the exception of shifting bone pain, more frequent bowel movements and itchy bumps/minor rashes, the results have been very good. Wish that I could have skipped the chemo and gone directly to
Ibrutinib
but then again.....who knew?
kirkdr
in
CLL Support
6 years ago
Immune exhaustion in CLL and boosting antibody response with Imbruvica (ibrutinib)
https://youtu.be/01N07hZOWu0 https://youtu.be/Tsai_VsWEO8 ERIC, Barcelona, 2018
https://youtu.be/01N07hZOWu0 https://youtu.be/Tsai_VsWEO8 ERIC, Barcelona, 2018
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
Best front-line treatment(non-chemo) for CLL with no 17p deleton/TP53?
Anyone doing well on therapies as Ventoclax/
Ibrutinib
etc? Thank you! Regards.
Anyone doing well on therapies as Ventoclax/
Ibrutinib
etc? Thank you! Regards.
paula_dae
in
CLL Support
6 years ago
Venetoclax and ibrutinib trial
Hello, I’m on month 19 of a 26 month trial taking Venetoclax &
ibrutinib
plus aciclovir, co-trimoxazole, lansoprazole & allopurinol to counteract side effects caused by the Venetoclax &
ibrutinib
. My last consultation shows no evidence of CLL anywhere.
Hello, I’m on month 19 of a 26 month trial taking Venetoclax &
ibrutinib
plus aciclovir, co-trimoxazole, lansoprazole & allopurinol to counteract side effects caused by the Venetoclax &
ibrutinib
. My last consultation shows no evidence of CLL anywhere.
Mick5329
in
CLL Support
6 years ago
Pins and needles
Has anybody else on
Ibrutinib
had this sort of experience?
Has anybody else on
Ibrutinib
had this sort of experience?
Finzi
in
CLL Support
6 years ago
1
...
59
60
61
...
99
Next page
20
30
40
50
60
70
80
90
Filter results
Clear filters
Posted in
All communities
CLL Support
1878 results
Non Hodgkin's Lymphoma Friends
29 results
CLL America Support
28 results
View top 10 communities
Sort by
Most Relevant
Newest