Search
Search
About
Log in
Join
Experiences with
Ibrutinib
Posts
Communities
1,999 public posts
Filter results
Food!
, I’m not very clear on what I can and can’t eat on
ibrutinib
,I’m told no cream cheese ,sorry to sound dim but I call Brie soft cheese (not cream cheese) are these one of the same ?also no pate’ so does this mean no liver ?
, I’m not very clear on what I can and can’t eat on
ibrutinib
,I’m told no cream cheese ,sorry to sound dim but I call Brie soft cheese (not cream cheese) are these one of the same ?also no pate’ so does this mean no liver ?
Workers
in
CLL Support
6 years ago
Lesions in liver?
I was diagnosed with CLL 10 years ago and started on
Ibrutinib
only 5 month ago. Best Regards
I was diagnosed with CLL 10 years ago and started on
Ibrutinib
only 5 month ago. Best Regards
Durachok
in
CLL Support
6 years ago
Follow ups when on Ibrutinib
What is the follow up regiment when starting
Ibrutinib
? How to see if any changes in abdominal lymphoma mass?
What is the follow up regiment when starting
Ibrutinib
? How to see if any changes in abdominal lymphoma mass?
VLAD11
in
CLL Support
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
I'm tired
Back on W&W after I developed serious side effects with
Ibrutinib
. Seriously disappointed as it worked like a treat and within 4 months all bloods were back within normal range. But that was 3+ months ago. Last hospital appt showed that I was still within normal ranges/s.
Back on W&W after I developed serious side effects with
Ibrutinib
. Seriously disappointed as it worked like a treat and within 4 months all bloods were back within normal range. But that was 3+ months ago. Last hospital appt showed that I was still within normal ranges/s.
UKfulloflife
in
CLL Support
6 years ago
Ibrutinib and dental work
Can anyone tell me how long before I have a tooth filled I need to stop with
Ibrutinib
?
Can anyone tell me how long before I have a tooth filled I need to stop with
Ibrutinib
?
Mayor44
in
CLL Support
6 years ago
MCL
My father is being treated with
ibrutinib
for mantle cell lymphoma. His platelets are very low and don’t pick up after transfusion. They have stopped his 4 tablets/day of
ibrutinib
as he now has an infection. Has anyone else experienced this?
My father is being treated with
ibrutinib
for mantle cell lymphoma. His platelets are very low and don’t pick up after transfusion. They have stopped his 4 tablets/day of
ibrutinib
as he now has an infection. Has anyone else experienced this?
Ibrut
in
Lymphoma Canada
6 years ago
Ibrutinib for a year... then obinutuzumab improves MRD- response rates
Ibrutinib
and Obinutuzumab in CLL: Improved MRD Response Rates with Substantially Enhanced MRD Depletion for Patients with >1 Year Prior
Ibrutinib
Exposure https://ash.confex.com/ash/2018/webprogram/Paper112936.html Conclusions: The results suggest that the addition of obinutuzumab to
ibrutinib
may
Ibrutinib
and Obinutuzumab in CLL: Improved MRD Response Rates with Substantially Enhanced MRD Depletion for Patients with >1 Year Prior
Ibrutinib
Exposure https://ash.confex.com/ash/2018/webprogram/Paper112936.html Conclusions: The results suggest that the addition of obinutuzumab to
ibrutinib
may
avzuclav
in
CLL Support
6 years ago
Neutropenia with Ibrutinib
Husband becoming neutropenic after 2 years on
Ibrutinib
. Maybe he will be forced to quit treatment if he can’t take it anymore because of that. Is there any other options?
Husband becoming neutropenic after 2 years on
Ibrutinib
. Maybe he will be forced to quit treatment if he can’t take it anymore because of that. Is there any other options?
marlapoi
in
CLL Support
6 years ago
Alcohol with Ibrutinib
Does anyone knows if alcohol interferes with the
Ibrutinib
treatment? I was told not to eat oranges but not a word about the "good stuff"
Does anyone knows if alcohol interferes with the
Ibrutinib
treatment? I was told not to eat oranges but not a word about the "good stuff"
Durachok
in
CLL Support
6 years ago
CLL or SMZL differentiation or relation
But currently treatments so far not working (rituxmab or
ibrutinib
).
But currently treatments so far not working (rituxmab or
ibrutinib
).
lukidude
in
CLL Support
6 years ago
Anemia on Ibrutinib
Posting for a friend who started
ibrutinib
very recently. This is her first treatment. "After two weeks on
ibrutinib
, my hemoglobin level is 7.6 so I need a transfusion. It wasn’t something I was expecting.
Posting for a friend who started
ibrutinib
very recently. This is her first treatment. "After two weeks on
ibrutinib
, my hemoglobin level is 7.6 so I need a transfusion. It wasn’t something I was expecting.
Eagle5327
in
CLL Support
6 years ago
Cll specialists
I’ve lived with CLL for 10 years, doing fine so far with
Ibrutinib
. I get my CLL checks and care in Spain, from an experienced, knowledgeable and caring hematologist. He’s not a CLL specialist. What does it take for a hematologist to become a CLL specialist?
I’ve lived with CLL for 10 years, doing fine so far with
Ibrutinib
. I get my CLL checks and care in Spain, from an experienced, knowledgeable and caring hematologist. He’s not a CLL specialist. What does it take for a hematologist to become a CLL specialist?
EJM52545
in
CLL Support
6 years ago
Safety Analysis of Four Randomized Controlled Studies of Ibrutinib in Patients With Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma
The prevalence of common grade 3/4 AEs with
ibrutinib
generally decreased over time, with the exception of hypertension. - Conclusion These results from an integrated analysis support a favorable benefit/risk profile of
ibrutinib
in patients with CLL/SLL and MCL. - Len
The prevalence of common grade 3/4 AEs with
ibrutinib
generally decreased over time, with the exception of hypertension. - Conclusion These results from an integrated analysis support a favorable benefit/risk profile of
ibrutinib
in patients with CLL/SLL and MCL. - Len
lankisterguy
Volunteer
in
CLL Support
6 years ago
Ibrutinib and arm pain
On
Ibrutinib
for nearly 6 months.
On
Ibrutinib
for nearly 6 months.
Mlftw
in
CLL Support
6 years ago
Octagam reaction???
Hello here i’m again... looks like i’m having a type of reaction in my body, started in the legs and going up into the all body..... i’m still
ibrutinib
and octagam once a month!!!! May it be some kind of reaction on Octagam?? Anyone else?? Thanks for your opinions!!!
Hello here i’m again... looks like i’m having a type of reaction in my body, started in the legs and going up into the all body..... i’m still
ibrutinib
and octagam once a month!!!! May it be some kind of reaction on Octagam?? Anyone else?? Thanks for your opinions!!!
Deta1961
in
CLL Support
6 years ago
Ibrutinib and Hematomas
Has anyone had issues with developing hematomas while on
Ibrutinib
? I started the med on August 28th and almost immediately started bruising from even the tiniest bump...nasty bruises with hard knots in the middle of each bruise.
Has anyone had issues with developing hematomas while on
Ibrutinib
? I started the med on August 28th and almost immediately started bruising from even the tiniest bump...nasty bruises with hard knots in the middle of each bruise.
Lisa-1959
in
CLL Support
6 years ago
Constipation
Anyone suffered horrible constipation and also Diarrhea on
Ibrutinib
? What helped.
Anyone suffered horrible constipation and also Diarrhea on
Ibrutinib
? What helped.
Zappymom12
in
Non Hodgkin's Lymphoma Friends
6 years ago
Narrow angles diagnosed in my eyes
I have been on
Ibrutinib
for 8 months now with just mild reactions such as heartburn, nails. What I was wondering if the
Ibrutinib
could've contributed to this build up of pressure in my eyes and if anyone else has had their eyes change while on
Ibrutinib
.
I have been on
Ibrutinib
for 8 months now with just mild reactions such as heartburn, nails. What I was wondering if the
Ibrutinib
could've contributed to this build up of pressure in my eyes and if anyone else has had their eyes change while on
Ibrutinib
.
rcusher
in
CLL Support
6 years ago
Is short treatment an option?
Her hematologist has agreed to start her on
Ibrutinib
in January since she doesn’t want to do chemo and I see in this forum that her nodes might shrink within a month Ma question is : How about stopping treatment when her nodes are back to normal and if it takes another 4 years to grow back ,she could
Her hematologist has agreed to start her on
Ibrutinib
in January since she doesn’t want to do chemo and I see in this forum that her nodes might shrink within a month Ma question is : How about stopping treatment when her nodes are back to normal and if it takes another 4 years to grow back ,she could
Sergi
in
CLL Support
6 years ago
beginning with Ibrutinib
Next week i will begin with
Ibrutinib
, as told i am igvh and p53 mutated .RC , platelels are good . Inmunoglobulins down the normal , but no infections. Some large Lynph nodes in my abdomen that may risk organs and higher creatinine and uric acid than normal are the reason to begin treatment.
Next week i will begin with
Ibrutinib
, as told i am igvh and p53 mutated .RC , platelels are good . Inmunoglobulins down the normal , but no infections. Some large Lynph nodes in my abdomen that may risk organs and higher creatinine and uric acid than normal are the reason to begin treatment.
antonb
in
CLL Support
6 years ago
1
...
59
60
61
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1909 results
CLL America Support
29 results
Non Hodgkin's Lymphoma Friends
29 results
View top 10 communities
Sort by
Most Relevant
Newest