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Ibrutinib
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Stopping ibrutinib and imaging in CLL
Hi, I stopped
ibrutinib
after almost 8 years. I discuss my thoughts and emotions around saying goodbye to my friend who saved my life: https://cllsociety.org/2020/03/stopping-
ibrutinib
-saying-goodbye-to-my-friend-for-last-7-plus-years/.
Hi, I stopped
ibrutinib
after almost 8 years. I discuss my thoughts and emotions around saying goodbye to my friend who saved my life: https://cllsociety.org/2020/03/stopping-
ibrutinib
-saying-goodbye-to-my-friend-for-last-7-plus-years/.
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Ibrutinib-one year update.
Hi all, just thought I'd check in with an update as I am just over a year on
Ibrutinib
, my previous introductory post is here; https://healthunlocked.com/cllsupport/posts/private/140279688/new-member As I state, I am just over a year on
Ibrutinib
and so far so good.
Hi all, just thought I'd check in with an update as I am just over a year on
Ibrutinib
, my previous introductory post is here; https://healthunlocked.com/cllsupport/posts/private/140279688/new-member As I state, I am just over a year on
Ibrutinib
and so far so good.
Cilldaingin
in
CLL Support
4 years ago
CCL n ibrutinib side effects
My dad was detected with CLL in December 2019..2 chemos of Rituximab and endoxon .He was doing well..bt he was put in
ibrutinib
which is working wonders bringing wbc from 500000 to 150000.But had to stop the medicine after 8 days dur to side effects ..capillary burst and internal bleeding in the legs.Initial
My dad was detected with CLL in December 2019..2 chemos of Rituximab and endoxon .He was doing well..bt he was put in
ibrutinib
which is working wonders bringing wbc from 500000 to 150000.But had to stop the medicine after 8 days dur to side effects ..capillary burst and internal bleeding in the legs.Initial
sweetromeet
in
CLL Support
4 years ago
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CLL and Ibrutinib
My treatment is
Ibrutinib
—420mg a day (forever). What side effects should I expect? Also, is it better to take the
Ibrutinib
first thing in the morning or last thing at night? Advice appreciated
My treatment is
Ibrutinib
—420mg a day (forever). What side effects should I expect? Also, is it better to take the
Ibrutinib
first thing in the morning or last thing at night? Advice appreciated
DylanPxxx
in
Non Hodgkin's Lymphoma Friends
4 years ago
WALDENSTORM'S IBRUTINIB AND FATIGUE
Now am on
Ibrutinib
and I am feeling much better. Been taking for 4 months. Had bad headaches heartburn and nausea. Pretty normal chemo side effects. Lately have been feeling very tired. Wondering if others have the same issues?
Now am on
Ibrutinib
and I am feeling much better. Been taking for 4 months. Had bad headaches heartburn and nausea. Pretty normal chemo side effects. Lately have been feeling very tired. Wondering if others have the same issues?
qgar
in
CLL Support
4 years ago
Off ibrutinib x 2 weeks, a novel ultra low dose triple therapy for CLL and Richter's and CLL Society recognized for its reliable robust info
How about no COVID-19 news in a post: I updated my blog with good news at https://cllsociety.org/…/march-9-2020-more-good-news-2-wee…/ about my latest lab results 2 weeks after stopping
ibrutinib
. • Novel Triple Therapy Combination ( https://cllsociety.org/…/ash-2019-dr-mato-discusses-a-nove…/) shows
How about no COVID-19 news in a post: I updated my blog with good news at https://cllsociety.org/…/march-9-2020-more-good-news-2-wee…/ about my latest lab results 2 weeks after stopping
ibrutinib
. • Novel Triple Therapy Combination ( https://cllsociety.org/…/ash-2019-dr-mato-discusses-a-nove…/) shows
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Good day all,
We chose
Ibrutinib
. Within 15 days my glands went to normal and I was feeling great, tiredness and night sweats were completely gone. I thought it was miraculous. However at the end of December I started to develop Tachycardia and then Arrhythmia, something I had never experienced before.
We chose
Ibrutinib
. Within 15 days my glands went to normal and I was feeling great, tiredness and night sweats were completely gone. I thought it was miraculous. However at the end of December I started to develop Tachycardia and then Arrhythmia, something I had never experienced before.
Hidden
in
CLL Support
4 years ago
Well what next
Anyway, she explained that his WBC went to 300,000 blimey (2 months
ibrutinib
) then went down to 100,000. Does this resonate with anyone?
Anyway, she explained that his WBC went to 300,000 blimey (2 months
ibrutinib
) then went down to 100,000. Does this resonate with anyone?
popys
in
CLL Support
4 years ago
Dr Anthony Mato’s office # NY or NJ
My CLL is at a tipping point & when at Penn-Dr Mato first prescribed my
Ibrutinib
. It was a sad day when we lost him back to NY and much better Chinese food. Appreciate any help - direct office # for either MSKCC or NJ. Thank you. ~ db
My CLL is at a tipping point & when at Penn-Dr Mato first prescribed my
Ibrutinib
. It was a sad day when we lost him back to NY and much better Chinese food. Appreciate any help - direct office # for either MSKCC or NJ. Thank you. ~ db
db601
in
CLL Support
4 years ago
Blurred vision with Ibrutinib
Has anyone experienced blurred vision with
Ibrutinib
?
Has anyone experienced blurred vision with
Ibrutinib
?
harley2018
in
CLL America Support
4 years ago
Traveling to New York on Monday for 2 weeks
Any advice or reassurance Steele Ps been on the flair trial
ibrutinib
2 years had no issues at all , touch wood all working really well
Any advice or reassurance Steele Ps been on the flair trial
ibrutinib
2 years had no issues at all , touch wood all working really well
stewie
in
CLL Support
4 years ago
Cll
From today he started
ibrutinib
420 ,he is having severe backache ,headache and also little feverish.are these side effects? He is 80 yrs old.Now his count is 290000
From today he started
ibrutinib
420 ,he is having severe backache ,headache and also little feverish.are these side effects? He is 80 yrs old.Now his count is 290000
sweetromeet
in
CLL Support
4 years ago
Acalabrutinib — Penetration to the Spine
A spinal MRI showed a lesion on the spine and a lumbar puncture showed that cancer cells had entered the spinal fluid My doctor is considering putting me on
Ibrutinib
because he ordered a lumbar puncture and there was evidence of cancer cells in the spinal fluid and Research shows that
Ibrutinib
has
A spinal MRI showed a lesion on the spine and a lumbar puncture showed that cancer cells had entered the spinal fluid My doctor is considering putting me on
Ibrutinib
because he ordered a lumbar puncture and there was evidence of cancer cells in the spinal fluid and Research shows that
Ibrutinib
has
DylanPxxx
in
CLL Support
4 years ago
Bay Bay Sashimi, brie and feta with Ibrutinib
Does anybody tried or know about raw fish, brie and feta with
ibrutinib
(or acalabrutinib)?
Does anybody tried or know about raw fish, brie and feta with
ibrutinib
(or acalabrutinib)?
Mik_
in
CLL Support
4 years ago
Comparative analysis of targeted novel therapies (ibrutinib vs. venetoclax) in relapsed, refractory CLL (Feb 2020)
"In conclusion, venetoclax and
ibrutinib
-based therapy as NA1 provide comparable OS outcomes in R/R CLL patients treated outside of trials.
"In conclusion, venetoclax and
ibrutinib
-based therapy as NA1 provide comparable OS outcomes in R/R CLL patients treated outside of trials.
avzuclav
in
CLL Support
4 years ago
Ibrutinib (acalabrutinib)
Acalabrutiunib/
ibrutinib
Can anybody share if you manage to work as "normal" and if your job requires to travel? how long it takes adaptation to pills? what do you use for minor skin cuts to stop bleeding?
Acalabrutiunib/
ibrutinib
Can anybody share if you manage to work as "normal" and if your job requires to travel? how long it takes adaptation to pills? what do you use for minor skin cuts to stop bleeding?
Mik_
in
CLL Support
4 years ago
Ibrutinib
I have been on
Ibrutinib
for 1 month. Already have improved well being, blood tests are good. No fibrillation. Hurray!
I have been on
Ibrutinib
for 1 month. Already have improved well being, blood tests are good. No fibrillation. Hurray!
Bigarch
in
CLL Support
4 years ago
Acalabrutinib plus Obinutuzumab in Treatment-Naïve and Relapsed/Refractory CLL
Toxicities that generally led to discontinuation of
ibrutinib
, such as atrial fibrillation and arthralgias, did not lead to acalabrutinib discontinuation in this study.
Toxicities that generally led to discontinuation of
ibrutinib
, such as atrial fibrillation and arthralgias, did not lead to acalabrutinib discontinuation in this study.
Jm954
Administrator
in
CLL Support
4 years ago
New form of cancer
Hubby has CLL which has been brought under control with
Ibrutinib
. He has just been diagnosed with small bowel Cancer and awaiting discussions over treatment. Can anyone advise, as I'm feeling somewhat emotional? He is 72.
Hubby has CLL which has been brought under control with
Ibrutinib
. He has just been diagnosed with small bowel Cancer and awaiting discussions over treatment. Can anyone advise, as I'm feeling somewhat emotional? He is 72.
fussybritches
in
CLL Support
4 years ago
LOXO 305 and a Series of Videos from CURE Magazine
Brown shared the exciting first in human trial data for LOXO 305 that has a new way to block BTK that is different than
ibrutinib
or acalabrutinib. See: https://cllsociety.org/2020/02/ash-2019-dr-jennifer-brown-on-loxo-305-for-chronic-lymphocytic-leukemia-cll/ Stay strong.
Brown shared the exciting first in human trial data for LOXO 305 that has a new way to block BTK that is different than
ibrutinib
or acalabrutinib. See: https://cllsociety.org/2020/02/ash-2019-dr-jennifer-brown-on-loxo-305-for-chronic-lymphocytic-leukemia-cll/ Stay strong.
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
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