Search
Search
About
Log in
Join
Experiences with
Ibrutinib
Posts
Communities
1,965 public posts
Filter results
Ibrutinib
I am 64 years old was diagnosed with CLL on 3rd March and started taking
Ibrutinib
from 3rd June. I continue taking
Ibrutinib
. During March/April/May I developed Lympth Nodes and was constantly tired.
I am 64 years old was diagnosed with CLL on 3rd March and started taking
Ibrutinib
from 3rd June. I continue taking
Ibrutinib
. During March/April/May I developed Lympth Nodes and was constantly tired.
Dym230109
in
CLL Support
4 years ago
Interesting article on venetoclax obinutuzumab and Ibrutinib trial
https://www.cancertherapyadvisor.com/home/cancer-topics/chronic-lymphocytic-leukemia/chronic-leukemia-cll-triple-therapy-phase-2-trial
https://www.cancertherapyadvisor.com/home/cancer-topics/chronic-lymphocytic-leukemia/chronic-leukemia-cll-triple-therapy-phase-2-trial
Research123
in
CLL Support
4 years ago
CAR-T next week
I knew there was a CAR-T trial for CLL opening for those with stable disease on
ibrutinib
so switched to that and was able to screen for the trial after 6 months with that falling in June.
I knew there was a CAR-T trial for CLL opening for those with stable disease on
ibrutinib
so switched to that and was able to screen for the trial after 6 months with that falling in June.
DebinOzinLondon
in
CLL Support
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Plural Effusion with CLL
Started clinical trial at Stanford,
Ibrutinib
and Obinutuzumab about week and half ago. WBC was >300 at start now done to 100 and lymph node size decreased significantly! Problem is CT scan showed large plural effusion at start of trial.
Started clinical trial at Stanford,
Ibrutinib
and Obinutuzumab about week and half ago. WBC was >300 at start now done to 100 and lymph node size decreased significantly! Problem is CT scan showed large plural effusion at start of trial.
kubie
in
CLL Support
4 years ago
Need advice on Acalabrutinib will start treament next month
My oncologist had taken me off of
Ibrutinib
after 10 weeks due to untolerable side everyday. I was advised to rest for one month and will start Acalabrutinib on Oct.
My oncologist had taken me off of
Ibrutinib
after 10 weeks due to untolerable side everyday. I was advised to rest for one month and will start Acalabrutinib on Oct.
zitchie
in
CLL Support
4 years ago
Ibrutinib plus fludarabine, cyclophosphamide, and rituximab as initial treatment for younger patients with CLL
[/i] [i]
Ibrutinib
was given orally for 7 days, then up to six 28-day cycles were administered intravenously of fludarabine, cyclophosphamide and rituximab with continuous oral
ibrutinib
(420 mg/day).
[/i] [i]
Ibrutinib
was given orally for 7 days, then up to six 28-day cycles were administered intravenously of fludarabine, cyclophosphamide and rituximab with continuous oral
ibrutinib
(420 mg/day).
Jm954
Administrator
in
CLL Support
4 years ago
Here we go again, Flu Shot Thoughts
Been on initial treatment
ibrutinib
since May 2020. Labs are good, ANC 4.2, WBC 8, iGG 450, ALC 6.2. Thinking do I get regular dose flu shot, or regular dose flu shot repeated by another regular dose flu shot two weeks afterwards, or high dose flu shot.
Been on initial treatment
ibrutinib
since May 2020. Labs are good, ANC 4.2, WBC 8, iGG 450, ALC 6.2. Thinking do I get regular dose flu shot, or regular dose flu shot repeated by another regular dose flu shot two weeks afterwards, or high dose flu shot.
Davidcara
in
CLL Support
4 years ago
Interesting article on venetoclax, ibrutinib and obinutuzumab combination
https://www.targetedonc.com/view/obinutuzumab-triplet-achieves-deep-remissions-in-chronic-lymphocytic-leukemia Interesting article on venetoclax,
ibrutinib
and obinutuzumab combination which seems to be doing a good job
https://www.targetedonc.com/view/obinutuzumab-triplet-achieves-deep-remissions-in-chronic-lymphocytic-leukemia Interesting article on venetoclax,
ibrutinib
and obinutuzumab combination which seems to be doing a good job
Research123
in
CLL Support
4 years ago
Resistance to Ibrutinib
I'm tp53 mutated and have been on
ibrutinib
7 months, which is not working.I saw my consultant on Thursday and the plan is to continue for another 3 months to see if it starts working. My lymphocytes remain at 300. Has anyone else experienced this problem?Could anyone offer any advice please?
I'm tp53 mutated and have been on
ibrutinib
7 months, which is not working.I saw my consultant on Thursday and the plan is to continue for another 3 months to see if it starts working. My lymphocytes remain at 300. Has anyone else experienced this problem?Could anyone offer any advice please?
Reddg
in
CLL Support
4 years ago
Ibrutinib to acalabrutinib
It's my understanding blood thinners and either
ibrutinib
/acalabrutinib isn't wise. My oncologist is very well known and trains other oncologists about blood cancers and I've had confidence in him but I'm shaken now. I guess I don't even know what I'm looking for in reaching out.
It's my understanding blood thinners and either
ibrutinib
/acalabrutinib isn't wise. My oncologist is very well known and trains other oncologists about blood cancers and I've had confidence in him but I'm shaken now. I guess I don't even know what I'm looking for in reaching out.
Reneelj51
in
CLL Support
4 years ago
Pain Meds and Ibrutinib
Wondering if anyone knows of safe non opioid pain medication while on
ibrutinib
. Especially an anti-inflammatory
Wondering if anyone knows of safe non opioid pain medication while on
ibrutinib
. Especially an anti-inflammatory
Davidcara
in
CLL Support
4 years ago
Different appointment ( Covid 19 )
& he said that isn’t anything to do with my Cll or not side affects from
Ibrutinib
treatment!! But in past have been told it is feeling very confused and anxious!!! Sorry for rant
& he said that isn’t anything to do with my Cll or not side affects from
Ibrutinib
treatment!! But in past have been told it is feeling very confused and anxious!!! Sorry for rant
Duder
in
CLL Support
4 years ago
Diuretics and BTK Inhibitors
Wondering if anyone is on diuretics/water pill such as lasix or aldactone, while taking
ibrutinib
/ BTK inhibitors. Wondering how this affects hydration. Confused if we drink lots of water to flush out bad cells, or to stay hydrated.
Wondering if anyone is on diuretics/water pill such as lasix or aldactone, while taking
ibrutinib
/ BTK inhibitors. Wondering how this affects hydration. Confused if we drink lots of water to flush out bad cells, or to stay hydrated.
Davidcara
in
CLL Support
4 years ago
Second-Generation BTK Inhibitors Hit the Treatment Bullseye With Fewer Off-Target Effects
Tam noted that most AEs happen with zanubrutinib during the first year on treatment, before their incidence plateaus, whereas prolonged treatment with
ibrutinib
has a greater chance of inflicting cumulative damage to the vascular system.
Tam noted that most AEs happen with zanubrutinib during the first year on treatment, before their incidence plateaus, whereas prolonged treatment with
ibrutinib
has a greater chance of inflicting cumulative damage to the vascular system.
Jm954
Administrator
in
CLL Support
4 years ago
Ibrutinib and Probiotics
Wondering if anyone knows if it is safe to take probiotics while on
ibrutinib
. Specifically wondering about a kefir that’s has added probiotics after pasteurization
Wondering if anyone knows if it is safe to take probiotics while on
ibrutinib
. Specifically wondering about a kefir that’s has added probiotics after pasteurization
Davidcara
in
CLL Support
4 years ago
Ibrutinib and LDH
On
ibrutinib
for 6 months. LDH at before treatment was 170, LDH 3 months ago 150, and now 200. Thoughts are appreciated
On
ibrutinib
for 6 months. LDH at before treatment was 170, LDH 3 months ago 150, and now 200. Thoughts are appreciated
Davidcara
in
CLL America Support
4 years ago
(Imbruvica), Ibrutinib, To live or to die
Hi, I have a 50-years old friend who has had CLL since 2013. He had a relapse in early 2020. When he was close to death, he was hospitalized to a private hospital in Turkey and was prescribed Imbruvica from Janssen company. Since he does not have insurance, he bought the medicine himself and spent almost
Hi, I have a 50-years old friend who has had CLL since 2013. He had a relapse in early 2020. When he was close to death, he was hospitalized to a private hospital in Turkey and was prescribed Imbruvica from Janssen company. Since he does not have insurance, he bought the medicine himself and spent almost
Green202
in
CLL Support
4 years ago
Ibrutinib side effects
I am on
Ibrutinib
for 1.5 month now. I lost 17kg so far; is this considered a side effect of the treatment?
I am on
Ibrutinib
for 1.5 month now. I lost 17kg so far; is this considered a side effect of the treatment?
AshGS
in
CLL Support
4 years ago
On ibrutinib, great numbers but FATIGUE
I’m 47, on
Ibrutinib
for 17 months (initially with Rituxan) and was incredibly fortunate to have my numbers back in totally normal range within a few months. I only missed ~2 months work despite being diagnosed Stage IV. Very few/minor/easily resolved side effects. Count my blessings daily.
I’m 47, on
Ibrutinib
for 17 months (initially with Rituxan) and was incredibly fortunate to have my numbers back in totally normal range within a few months. I only missed ~2 months work despite being diagnosed Stage IV. Very few/minor/easily resolved side effects. Count my blessings daily.
Jcalichi
in
CLL Support
4 years ago
ibrutinib. the white cells rise again.
I have been taking
ibrutinib
for 6 months. no side effects. leukocytes returned to normal. But now they are rising a little again. This is normal? how stable are your white cells? and my platelets are dropping all the time (.
I have been taking
ibrutinib
for 6 months. no side effects. leukocytes returned to normal. But now they are rising a little again. This is normal? how stable are your white cells? and my platelets are dropping all the time (.
Ricotta
in
CLL Support
4 years ago
1
...
31
32
33
...
99
Next page
10
20
30
40
50
60
70
80
90
Filter results
Clear filters
Posted in
All communities
CLL Support
1877 results
Non Hodgkin's Lymphoma Friends
29 results
CLL America Support
28 results
View top 10 communities
Sort by
Most Relevant
Newest