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Ibrutinib
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NICE Recommends Acalabrutinib for treating CLL for certain groups
The results of an indirect comparison with
ibrutinib
are uncertain. The company assumed that acalabrutinib was as effective as
ibrutinib
in the cost‑minimisation analyses. Despite the uncertainty, acalabrutinib is likely to be cost saving compared with
ibrutinib
.
The results of an indirect comparison with
ibrutinib
are uncertain. The company assumed that acalabrutinib was as effective as
ibrutinib
in the cost‑minimisation analyses. Despite the uncertainty, acalabrutinib is likely to be cost saving compared with
ibrutinib
.
Jm954
Administrator
in
CLL Support
3 years ago
Possible Side-Effect of Ibrutinib
I've been on
Ibrutinib
for a month now - no other side effects and no signs of jaundice, which is my first thought. I was just wondering if anyone else had had this symptom and what happened. Kind Regards, Steve - Zentangle
I've been on
Ibrutinib
for a month now - no other side effects and no signs of jaundice, which is my first thought. I was just wondering if anyone else had had this symptom and what happened. Kind Regards, Steve - Zentangle
zentangle
in
CLL Support
3 years ago
Restarting Venetoclax?
I started on
Ibrutinib
early June 2000 and was then taken off
Ibrutinib
for October/November as there was a concern that the
Ibrutinib
was irritating my lungs. I was put back on
Ibrutinib
in December and then had 5 x 2 night stays in hospital as they ramped up my Venetoclax to 400mg.
I started on
Ibrutinib
early June 2000 and was then taken off
Ibrutinib
for October/November as there was a concern that the
Ibrutinib
was irritating my lungs. I was put back on
Ibrutinib
in December and then had 5 x 2 night stays in hospital as they ramped up my Venetoclax to 400mg.
Dym230109
in
CLL Support
3 years ago
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Serum alkaline phosphatase
I have been on Co-codamol for some painful joints (on
Ibrutinib
as well which causes pain in joints). So is a result of 188 significant, does it signify anything specific? (yet to get an appointment to discuss results). BTW, I do not drink and have a fairly healthy diet. Thanks
I have been on Co-codamol for some painful joints (on
Ibrutinib
as well which causes pain in joints). So is a result of 188 significant, does it signify anything specific? (yet to get an appointment to discuss results). BTW, I do not drink and have a fairly healthy diet. Thanks
RobertCLL
in
CLL Support
3 years ago
Ibrutinib after 6 years update
Schmidt means can't come from
Ibrutinib
, an if it will be in beginning and not after 6 years. My neighbor, has to stop
Ibrutinib
after 4 weeks while having heavy heart problems, he is now on Venetoclax.
Schmidt means can't come from
Ibrutinib
, an if it will be in beginning and not after 6 years. My neighbor, has to stop
Ibrutinib
after 4 weeks while having heavy heart problems, he is now on Venetoclax.
guyhighlander
in
CLL Support
3 years ago
ibrutinib it is expensive?
When CLL people need treatment mostly are taking
ibrutinib
which is good medicine but I am wondering to check its price. We live in Canada and we are immigrants from SE Asia.
When CLL people need treatment mostly are taking
ibrutinib
which is good medicine but I am wondering to check its price. We live in Canada and we are immigrants from SE Asia.
Sagarcanada
in
CLL Support
3 years ago
reaction to Covid vaccination and cll
I take
ibrutinib
. Has anyone else experienced these side effects going on for so long,
I take
ibrutinib
. Has anyone else experienced these side effects going on for so long,
GD-K
in
CLL Support
3 years ago
IBRUTINIB AND HIP PAIN
IBRUTINIB
AND HIP PAIN: First, I want to say that since
Ibrutinib
is such a miraculous drug, many people want to stay on it. The hip pain needs work throughout the day, but can be mitigated or eliminated.
IBRUTINIB
AND HIP PAIN: First, I want to say that since
Ibrutinib
is such a miraculous drug, many people want to stay on it. The hip pain needs work throughout the day, but can be mitigated or eliminated.
reducebloodpressure
in
CLL Support
3 years ago
Help and advice from people in similar position
I have CLL and taking
Ibrutinib
which is a targeted chemo drug and now I have just had a lumpectomy for breast cancer and I was given Letrozole tablets which I need to take for 5 years but had a severe reaction to it and wondered it anyone else with CLL also had breast cancer and has found an alternative
I have CLL and taking
Ibrutinib
which is a targeted chemo drug and now I have just had a lumpectomy for breast cancer and I was given Letrozole tablets which I need to take for 5 years but had a severe reaction to it and wondered it anyone else with CLL also had breast cancer and has found an alternative
CLL67
in
CLL Support
3 years ago
Having to re-sign for the FLIAR trial as Ibrutinib producing high than expected blood pressure
The local FLAIR organiser just phoned say that the FLAIR trial is finding that
Ibrutinib
is giving more people higher blood pressure that predicted (above 10%), and I have to re-sign the FLAIR agreement.
The local FLAIR organiser just phoned say that the FLAIR trial is finding that
Ibrutinib
is giving more people higher blood pressure that predicted (above 10%), and I have to re-sign the FLAIR agreement.
zaax
in
CLL Support
3 years ago
RLS and CLL
I am currently in a clinical trial for CLL, taking
Ibrutinib
and Obinutuzumab, and I am wondering if anyone else in this community shares my situation dealing with RLS (an incurable syndrome) and the drugs treat and mistreat it. I apologize for not putting my earlier request in context.
I am currently in a clinical trial for CLL, taking
Ibrutinib
and Obinutuzumab, and I am wondering if anyone else in this community shares my situation dealing with RLS (an incurable syndrome) and the drugs treat and mistreat it. I apologize for not putting my earlier request in context.
loflash
in
CLL Support
3 years ago
IBRUTINIB AND HIP PAIN Continued-as I left out a few points (see first part IBRUTINIB AND HIP PAIN
IBRUTINIB
AND HIP PAIN Continued-as I left out a few points (see first part
IBRUTINIB
AND HIP PAIN: As for stretching - besides stretching for as many times as needed during the day always stretch in one direction without bouncing and release the stretch slowly.
IBRUTINIB
AND HIP PAIN Continued-as I left out a few points (see first part
IBRUTINIB
AND HIP PAIN: As for stretching - besides stretching for as many times as needed during the day always stretch in one direction without bouncing and release the stretch slowly.
reducebloodpressure
in
CLL Support
3 years ago
Ibrutinib is an immunosuppressive
I seem to be reading that amongst other things
Ibrutinib
is an immunosuppressive, is this right?
I seem to be reading that amongst other things
Ibrutinib
is an immunosuppressive, is this right?
zaax
in
CLL Support
3 years ago
Ibrutinib and blood pressure
Is there any correlation with
Ibrutinib
use and elevated blood pressure? Input is much appreciated.
Is there any correlation with
Ibrutinib
use and elevated blood pressure? Input is much appreciated.
desti
in
CLL Support
3 years ago
Ibrutinib/Imbruvia and low antibody
The NYTimes article cited Imbruvica and low antibody reading, but it's information was sparse. Does Imbruvica reduce response or do people who need Imbruvica have lower responses? Does anyone know?
The NYTimes article cited Imbruvica and low antibody reading, but it's information was sparse. Does Imbruvica reduce response or do people who need Imbruvica have lower responses? Does anyone know?
prichman
in
CLL Support
3 years ago
ibrutinib and increased WBC
On
ibrutinib
for 5 months with great results until last blood work. WBC stopped going down and in fact went up slightly. Any one have this happen? What is the significance, if any?
On
ibrutinib
for 5 months with great results until last blood work. WBC stopped going down and in fact went up slightly. Any one have this happen? What is the significance, if any?
mobirdy
in
CLL Support
3 years ago
Update for UK FLAIR CLL Study Participants who have come to the end of 6 years of Ibrutininb treatment.
These patients coming from FLAIR who have been taking
ibrutinib
for 6 years will have the option of any of the following:
1) Enter STATIC
and be randomised to continuous
ibrutinib
or intermittent
ibrutinib
(note this is not stopping
ibrutinib
permanently but pausing
ibrutinib
- patients will re-start
These patients coming from FLAIR who have been taking
ibrutinib
for 6 years will have the option of any of the following:
1) Enter STATIC
and be randomised to continuous
ibrutinib
or intermittent
ibrutinib
(note this is not stopping
ibrutinib
permanently but pausing
ibrutinib
- patients will re-start
Jm954
in
Leukaemia CARE
3 years ago
Update for UK FLAIR Study Participants who have come to the end of 6 years of Ibrutininb treatment.
These patients coming from FLAIR who have been taking
ibrutinib
for 6 years will have the option of any of the following:[/i]
[i]1) Enter STATIC[/i]
[i] and be randomised to continuous
ibrutinib
or intermittent
ibrutinib
(note this is not stopping
ibrutinib
permanently but pausing
ibrutinib
-
These patients coming from FLAIR who have been taking
ibrutinib
for 6 years will have the option of any of the following:[/i]
[i]1) Enter STATIC[/i]
[i] and be randomised to continuous
ibrutinib
or intermittent
ibrutinib
(note this is not stopping
ibrutinib
permanently but pausing
ibrutinib
-
Jm954
Administrator
in
CLL Support
3 years ago
Unbalancedness
Does anyone have problems with unbalancedness using
ibrutinib
& venetaclax?
Does anyone have problems with unbalancedness using
ibrutinib
& venetaclax?
Kiddlette
in
CLL Support
3 years ago
BRUIN Study: phase 1/2 study of Pirtobrutinib (formerly Loxo 305) in relapsed or refractory B-cell malignancies
This is an important new BTKi for those that have developed resistance to
Ibrutinib
, particularly those with the BTK C481 mutation and offers a potential alternative to Venetoclax as a next treatment. The trial is ongoing and we look forward to seeing more data in the future.
This is an important new BTKi for those that have developed resistance to
Ibrutinib
, particularly those with the BTK C481 mutation and offers a potential alternative to Venetoclax as a next treatment. The trial is ongoing and we look forward to seeing more data in the future.
Jm954
Administrator
in
CLL Support
3 years ago
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