Search
Search
About
Log in
Join
Experiences with
Ibrance
Posts
Communities
2,169 public posts
Filter results
Ibrance and letroizle treatment
I am on
Ibrance
and letrooizle and zometa.since Sept 2018..kind new ..hadctscan today ..hope i get good results. Had low blood counts 2 times already. Was having a lot off pain in my right lung and stomach.
I am on
Ibrance
and letrooizle and zometa.since Sept 2018..kind new ..hadctscan today ..hope i get good results. Had low blood counts 2 times already. Was having a lot off pain in my right lung and stomach.
Nananewf54
in
SHARE Metastatic Breast Cancer
5 years ago
Scan Results
Had good results on CT scan after starting
Ibrance
and Letrozole in May. I was diagnosed in January left breast ducal carcinoma with spread to left armpit lymph node, lung and hilar lymph node. All areas of spread are reduced in size by half or more - some gone completely in right lung.
Had good results on CT scan after starting
Ibrance
and Letrozole in May. I was diagnosed in January left breast ducal carcinoma with spread to left armpit lymph node, lung and hilar lymph node. All areas of spread are reduced in size by half or more - some gone completely in right lung.
Tam-56
in
SHARE Metastatic Breast Cancer
5 years ago
Has anyone had the Foundation One DNA testing for matching tumor to drugs ?
It showed that 2 drugs worked on the receptor of my tumor cells,
Ibrance
, which my blood count just wouldn't take and my mets spread and grew on the Verzenio. The second drug is Affinitor and my tumor was strong in this receptor. I am going to start this week.
It showed that 2 drugs worked on the receptor of my tumor cells,
Ibrance
, which my blood count just wouldn't take and my mets spread and grew on the Verzenio. The second drug is Affinitor and my tumor was strong in this receptor. I am going to start this week.
Burgerde
in
SHARE Metastatic Breast Cancer
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Trip of my dreams
Getting my monthly injection today and starting next cycle of
Ibrance
(#18). Now it’s time to start planning my next adventure! I will continue to fight this disease and live life to the fullest as long as I’m able. Stay strong and fight fight fight everyone!
Getting my monthly injection today and starting next cycle of
Ibrance
(#18). Now it’s time to start planning my next adventure! I will continue to fight this disease and live life to the fullest as long as I’m able. Stay strong and fight fight fight everyone!
gerisplace
in
SHARE Metastatic Breast Cancer
5 years ago
Grateful
I was taking Letrizole and
Ibrance
when I first got up in the morning. Someone on this forum mentioned taking the meds at night instead. Well the past two days I switched to taking them before bed. The results are amazing.
I was taking Letrizole and
Ibrance
when I first got up in the morning. Someone on this forum mentioned taking the meds at night instead. Well the past two days I switched to taking them before bed. The results are amazing.
Gram10
in
SHARE Metastatic Breast Cancer
5 years ago
Question about CT scan
I started taking
Ibrance
and Letrozole (+ Zoladex and Zometa) in June. I also drastically changed my diet (NO SUGAR, no dairy and no glutten). My CA 153 went down to normal levels within the first 3 months. I had my scan in October and all cancer has gone from my bones, liver and lymph node!!
I started taking
Ibrance
and Letrozole (+ Zoladex and Zometa) in June. I also drastically changed my diet (NO SUGAR, no dairy and no glutten). My CA 153 went down to normal levels within the first 3 months. I had my scan in October and all cancer has gone from my bones, liver and lymph node!!
Evaf
in
SHARE Metastatic Breast Cancer
5 years ago
Under Reporting on Side Effects
Then, in 2016, I was on
Ibrance
for almost ten cycles and developed breathing problems that were diagnosed as Interstitial Lung Disease, which has not lessened in the two years I've been off
Ibrance
, and which makes me get out of breath easily and especially in the kind of humid weather we had this summer
Then, in 2016, I was on
Ibrance
for almost ten cycles and developed breathing problems that were diagnosed as Interstitial Lung Disease, which has not lessened in the two years I've been off
Ibrance
, and which makes me get out of breath easily and especially in the kind of humid weather we had this summer
PJBinMI
in
SHARE Metastatic Breast Cancer
5 years ago
disappointed
I was hoping to get a longer time with the
Ibrance
as side effects are minimal. Colleen
I was hoping to get a longer time with the
Ibrance
as side effects are minimal. Colleen
Cshipley123
in
SHARE Metastatic Breast Cancer
5 years ago
New to group
I had tried a couple different medications but am currently on
Ibrance
and Letrazole. They have stopped my cancer growth for 4 yrs now. I am very thankful to be here watching my son grow up. My husband has Early Onset Parkinson's Disease.
I had tried a couple different medications but am currently on
Ibrance
and Letrazole. They have stopped my cancer growth for 4 yrs now. I am very thankful to be here watching my son grow up. My husband has Early Onset Parkinson's Disease.
AngelicAmy
in
SHARE Metastatic Breast Cancer
5 years ago
Magestrol acetate
I was just switched to it as the
Ibrance
/ faslodex stopped working ( over the year it had shrunk all 8 tumors) yet now have 3 new tumors in spine. Also started radiation again( SABRT) it’s very targeted and strong so only get zapped 3 days a week so body can recover before next zap.
I was just switched to it as the
Ibrance
/ faslodex stopped working ( over the year it had shrunk all 8 tumors) yet now have 3 new tumors in spine. Also started radiation again( SABRT) it’s very targeted and strong so only get zapped 3 days a week so body can recover before next zap.
Kabe
in
SHARE Metastatic Breast Cancer
5 years ago
Hi - I'm new here. Diagnosed with Lobular MBC -- mets to abdomen
I also have thinning hair from the
Ibrance
. Overall, I'm blessed with a wonderful husband and a tremendous health plan to cover these crazy expensive meds. My work and class mates are super supportive too. Just wanted to say Hi!
I also have thinning hair from the
Ibrance
. Overall, I'm blessed with a wonderful husband and a tremendous health plan to cover these crazy expensive meds. My work and class mates are super supportive too. Just wanted to say Hi!
tab78FN
in
SHARE Metastatic Breast Cancer
5 years ago
MDAnderson recomendation
They want to change me to
ibrance
/faslodex. Am not happy with my current onco at DF and want to go For second opinion to MD Anderson. Any recommendations for breast cancer onco / neuro oncologist at MDAnderson. ? Thank you !
They want to change me to
ibrance
/faslodex. Am not happy with my current onco at DF and want to go For second opinion to MD Anderson. Any recommendations for breast cancer onco / neuro oncologist at MDAnderson. ? Thank you !
Joey1965
in
SHARE Metastatic Breast Cancer
5 years ago
Lowering Ibrance dosage
I have been on
Ibrance
100 mg for about a year and a half. I take it for 21 days and get 14 days off so my blood counts can somewhat recover. The doctor said he was considering giving me 3 weeks off because the counts are still low.
I have been on
Ibrance
100 mg for about a year and a half. I take it for 21 days and get 14 days off so my blood counts can somewhat recover. The doctor said he was considering giving me 3 weeks off because the counts are still low.
PODLESNY
in
SHARE Metastatic Breast Cancer
5 years ago
Ulcerative colitis
So far no diarrhea on
Ibrance
, but occasionally loose stools. Just wondering if there is anyone out there with ulcerative colitis on
Ibrance
and what your experience has been.
So far no diarrhea on
Ibrance
, but occasionally loose stools. Just wondering if there is anyone out there with ulcerative colitis on
Ibrance
and what your experience has been.
Purple60
in
SHARE Metastatic Breast Cancer
6 years ago
Faslodex/Ibrance ...last PET/CT scan
My last scan in August showed new activity in T4 and a possible (probable-new tumor in T3. ) I had been treated with
Ibrance
/Letrozole which worked for about 20 months.
My last scan in August showed new activity in T4 and a possible (probable-new tumor in T3. ) I had been treated with
Ibrance
/Letrozole which worked for about 20 months.
DinNorCal
in
SHARE Metastatic Breast Cancer
5 years ago
Ibrance expensive
How do you guys pay for
Ibrance
? I start Medicare in january and phizer won’t give discounts to Medicare pts. They are upping my monthly drug prescription part D to 1000.00 per month because of this drug.
How do you guys pay for
Ibrance
? I start Medicare in january and phizer won’t give discounts to Medicare pts. They are upping my monthly drug prescription part D to 1000.00 per month because of this drug.
worldtravel75
in
SHARE Metastatic Breast Cancer
6 years ago
Rash on chest on Ibrance-Letrozole
I have a light, dry rash on my chest that is quite sore and burns (vs itching). My oncologist doesn’t seem concerned. I haven’t read of this specific location as a side effect. Does anyone else have such a rash?
I have a light, dry rash on my chest that is quite sore and burns (vs itching). My oncologist doesn’t seem concerned. I haven’t read of this specific location as a side effect. Does anyone else have such a rash?
Buffwright
in
SHARE Metastatic Breast Cancer
5 years ago
How long have you been on ibrance? If you care to share other details, like type of Mets, side effects, tolerancec etc I’m moving to California in June & think I’m going to either Stanford univ or UCLA (both “Comprehensive Cancer Care” centers. Right now I’m @ MGH (Massachusetts General Hospital) & DANA FARBER CANCER INSTITUTE. Any advice on California docs is welcome-I’ll be living in San Luis Obispo (Central Calif.)😍 Also any advice on teenagers I have 17 yo boy who is a senior with the typical issues of that age plus my do & moving to Calif.? Thx all!!
Share your story ask questions?
Share your story ask questions?
Bailey3266
in
SHARE Metastatic Breast Cancer
5 years ago
My story & place for others to share experiences!
Currently on my 16th cycle
Ibrance
/letraziole; ct Scans every 3 mos.
Currently on my 16th cycle
Ibrance
/letraziole; ct Scans every 3 mos.
Bailey3266
in
SHARE Metastatic Breast Cancer
5 years ago
THAT HAIR ISSUE AGAIN!
Hello, MBC friends taking
Ibrance
. I’ve been on the
Ibrance
/Letrozole combo for almost a year and would guess my hair has thinned about 50%. For those of you on same protocol for longer period (2 years? 3 years? 4 years? More?) is there any end in sight? Does it ever stop?
Hello, MBC friends taking
Ibrance
. I’ve been on the
Ibrance
/Letrozole combo for almost a year and would guess my hair has thinned about 50%. For those of you on same protocol for longer period (2 years? 3 years? 4 years? More?) is there any end in sight? Does it ever stop?
SeattleMom
in
SHARE Metastatic Breast Cancer
6 years ago
1
...
88
89
90
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
SHARE Metastatic Breast Cancer
2108 results
SHARE Breast Cancer Support
21 results
My Breast Cancer Community
15 results
View top 10 communities
Sort by
Most Relevant
Newest