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Vitamin/mineral deficiencies
Hi. I've had Pbc for 6 yrs now. Recently I've noticed that I am more fatigued than normal. I asked for my blood results over the last 10 yrs . I noticed a progressive decline in my ferritin levels over the last few yes. I had a vitamin b12 level done recently and it was just above the borderline/normal
Hi. I've had Pbc for 6 yrs now. Recently I've noticed that I am more fatigued than normal. I asked for my blood results over the last 10 yrs . I noticed a progressive decline in my ferritin levels over the last few yes. I had a vitamin b12 level done recently and it was just above the borderline/normal
Finn2021
in
PBC Foundation
8 months ago
ADT for almost 2 years
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Paulo1968
in
Advanced Prostate Cancer
10 months ago
1st Recurrence
Hi, we received the results of my mums recent scan last week and it showed that she has lesions on both of her lungs and her liver. They are numerous and all around 1cm in size. It was a shock although not unexpected as her CA125 had been rising over the last 6 months. She is due to start the same
Hi, we received the results of my mums recent scan last week and it showed that she has lesions on both of her lungs and her liver. They are numerous and all around 1cm in size. It was a shock although not unexpected as her CA125 had been rising over the last 6 months. She is due to start the same
Pitchperfec
in
My Ovacome
10 months ago
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Things I Like About ADT
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
32Percenter
in
Advanced Prostate Cancer
10 months ago
My IBS Team Sheet – 2. Haemorrhoids (How I manage)
I think that having experienced having Haemorrhoids about six years ago that led me to be diagnosed with IBS, the relationship between IBS and Haemorrhoids could be a bit of a Red Herring! To be fair, I have experienced having haemorrhoids once since my first diagnosis, but now that I exercise regular
I think that having experienced having Haemorrhoids about six years ago that led me to be diagnosed with IBS, the relationship between IBS and Haemorrhoids could be a bit of a Red Herring! To be fair, I have experienced having haemorrhoids once since my first diagnosis, but now that I exercise regular
MountainHare1
in
IBS Network
8 months ago
FYI: from the VA research information on Veterans
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
MouseAddams
in
Advanced Prostate Cancer
10 months ago
looking for positive stories….
Hi, following on from my last post I wondered if anyones prognosis has been wrong? I am not sure our moderators will allow my post but I am in a sad hole.. My chemo ( 3rd line carbo then cisplatin and Gemcitabine) has been stopped after 3 treatments due to toxicity. I was really unwell on it . Ct shows
Hi, following on from my last post I wondered if anyones prognosis has been wrong? I am not sure our moderators will allow my post but I am in a sad hole.. My chemo ( 3rd line carbo then cisplatin and Gemcitabine) has been stopped after 3 treatments due to toxicity. I was really unwell on it . Ct shows
Laz66
in
My Ovacome
10 months ago
Heterogeneity and genomic evolution of metastatic prostate cancer, bioRxiv Preprint, Posted September 04, 2023.
A fine example of evolutionary principles applied to metastatic PCa with the development of a method (Mscore) for risk assessment based on key gene mutations. (U of Texas and Chinese U collaboration.) * * * [i]
Abstract
[/i] [i]
Background
[/i][i] Metastasis is the primary cause of prostate
A fine example of evolutionary principles applied to metastatic PCa with the development of a method (Mscore) for risk assessment based on key gene mutations. (U of Texas and Chinese U collaboration.) * * * [i]
Abstract
[/i] [i]
Background
[/i][i] Metastasis is the primary cause of prostate
CaptnMojoe
in
Fight Prostate Cancer
10 months ago
Antiinflammatory medications with Jakafi
I've read that there is a moderate risk of bleeding after using ibuprofen with Jakafi. I'd appreciate hearing reactions from people on Jakafi who have taken ibuprofen and other anti-inflammatory medications. Which anti-inflammatory medications would minimize the risk of such interactions? Thanks, Steve
I've read that there is a moderate risk of bleeding after using ibuprofen with Jakafi. I'd appreciate hearing reactions from people on Jakafi who have taken ibuprofen and other anti-inflammatory medications. Which anti-inflammatory medications would minimize the risk of such interactions? Thanks, Steve
sbs_patient
in
MPN Voice
10 months ago
Where do I go from here?
I've struggled with anxiety and panic attacks and depression since I was 4 years old. I thought I was doing better and then this week I started having unprovoked panic attacks again. I lost my ability to speak for 24 hours. It was terrifying. Should I look into IOP or PHP? Is outpatient just not enough
I've struggled with anxiety and panic attacks and depression since I was 4 years old. I thought I was doing better and then this week I started having unprovoked panic attacks again. I lost my ability to speak for 24 hours. It was terrifying. Should I look into IOP or PHP? Is outpatient just not enough
ChaoticEmu
in
Anxiety and Depression Support
6 months ago
restricted urinary flow
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
kainasar
in
Fight Prostate Cancer
8 months ago
Hello. Low grade Serous
Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have been clear, which is the best news. I haven’t really reached out to many support groups but feel I need to as I feel pretty isolated with my experience
Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have been clear, which is the best news. I haven’t really reached out to many support groups but feel I need to as I feel pretty isolated with my experience
GoldieH
in
My Ovacome
10 months ago
Symptoms
HiMy son has been told his symptoms are that of IBS after being tested for Crohns and Colitis three years ago which was negative. His symptoms consist of the following Normal poo then followed by what he has described as Constipation Poo that is wet and soggy and white fluffy mucus which I have also
HiMy son has been told his symptoms are that of IBS after being tested for Crohns and Colitis three years ago which was negative. His symptoms consist of the following Normal poo then followed by what he has described as Constipation Poo that is wet and soggy and white fluffy mucus which I have also
Bowels1
in
IBS Network
8 months ago
set back
my mind is going in overdrive with worry and anxiety. I’ve told someone about a couple of my anxiety triggers that I’ve never told anyone before. The thing is they’re so pathetic and small that I feel so ashamed and embarrassed and wished I’d never let the cat out of the bag so to speak. I was under
my mind is going in overdrive with worry and anxiety. I’ve told someone about a couple of my anxiety triggers that I’ve never told anyone before. The thing is they’re so pathetic and small that I feel so ashamed and embarrassed and wished I’d never let the cat out of the bag so to speak. I was under
Junkjournal1
in
Anxiety and Depression Support
6 months ago
New member - Post ET MF (Australia)
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
Hatchie
in
MPN Voice
3 months ago
Update
Hi ladies. I haven’t posted or even looked at this site for a few weeks now, as I defaulted to my usual stance of avoidance. If I don’t talk about it or read about it, it will go away. I’m in a better head space now and want to share the update, in the hope of some positive stories from anyone with
Hi ladies. I haven’t posted or even looked at this site for a few weeks now, as I defaulted to my usual stance of avoidance. If I don’t talk about it or read about it, it will go away. I’m in a better head space now and want to share the update, in the hope of some positive stories from anyone with
Beaver54
in
My Ovacome
9 months ago
Stem cell transplant (SCT) 15 months on
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
Scaredy_cat
in
MPN Voice
3 months ago
Please check!
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
High BP, meds don't work
I am 67, female, moderately overweight, 5,8, 165# . Moderate hypertension for many years, well controlled with Losartan. Losartan stopped working, placed on Valsartan, which is basically Losartan with a water pill. Several months ago developed high BP, averaging 180/105 upon awakening, dropping
I am 67, female, moderately overweight, 5,8, 165# . Moderate hypertension for many years, well controlled with Losartan. Losartan stopped working, placed on Valsartan, which is basically Losartan with a water pill. Several months ago developed high BP, averaging 180/105 upon awakening, dropping
phebamom
in
High Blood Pressure Support
2 years ago
Hello all I've had crohns and stomas since 1976 I now have short bowel and an Ileostomy
I've had crohns since 1976 and my first resection june 1977 colostomy formed I spent six weeks in hospital because I couldn't accept mt colostomy at first I wouldn't touch it or change the bag, then after five weeks I thought I've got to accept it and get on with my life, after 46 years I've had five
I've had crohns since 1976 and my first resection june 1977 colostomy formed I spent six weeks in hospital because I couldn't accept mt colostomy at first I wouldn't touch it or change the bag, then after five weeks I thought I've got to accept it and get on with my life, after 46 years I've had five
SoFedUp2023
in
Crohn's and Colitis Support
8 months ago
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