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Heparin
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What is likely to happen to me? Please, any advice is needed.
I am really terrified, I am being tested for APS and other things, but only the APS test is going to show anything up, because I had to be given
Heparin
injections before there was time to take bloods. Please tell me, I have no idea - what is this going to do to my life?
I am really terrified, I am being tested for APS and other things, but only the APS test is going to show anything up, because I had to be given
Heparin
injections before there was time to take bloods. Please tell me, I have no idea - what is this going to do to my life?
anniesensi
in
Hughes Syndrome APS Forum
12 years ago
LIVERPOOL WOMEN'S HOSPITAL 5 STAR TREATMENT
They started me on
heparin
injection on that day just to be on the safe side. After taking the injection for about 8 weeks I got terrible rash over my thighs, knees and belly where I was injecting myself.
They started me on
heparin
injection on that day just to be on the safe side. After taking the injection for about 8 weeks I got terrible rash over my thighs, knees and belly where I was injecting myself.
Julieanne
in
Hughes Syndrome APS Forum
12 years ago
HEPARIN
i AM ON
HEPARIN
FOR INR BELOW 3. OF LATE BEEN GIVING IT EVERY DAY AND I SEEM TO GET BRUISES ON TUMMY - DOES ANYONE ELSE HAVE THIS. YET WHEN IN HOSPITAL HARDLY A BRUISE ANY TIPS. IAM ALSO ON WARFARIN, STATIN AND PLAQUNIL.
i AM ON
HEPARIN
FOR INR BELOW 3. OF LATE BEEN GIVING IT EVERY DAY AND I SEEM TO GET BRUISES ON TUMMY - DOES ANYONE ELSE HAVE THIS. YET WHEN IN HOSPITAL HARDLY A BRUISE ANY TIPS. IAM ALSO ON WARFARIN, STATIN AND PLAQUNIL.
daisy11
in
Hughes Syndrome APS Forum
12 years ago
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Bridging therapy when you have a procedure
My brother, who has an artificial heart valve, had to go in earlier this year and they completely messed it up so that he was left with no "cover" his INR was 0.6 for three days until I said that if they did not put him back on
heparin
he would probably have a stroke. That worked!
My brother, who has an artificial heart valve, had to go in earlier this year and they completely messed it up so that he was left with no "cover" his INR was 0.6 for three days until I said that if they did not put him back on
heparin
he would probably have a stroke. That worked!
AFman
in
Anticoagulation Support
12 years ago
Any suggestions for how to prepare for first appointment with haematologist?
Had no follow-up after I had my daughter, apart from Consultant Obstetrician putting me on
heparin
for a further month, and thought nothing of it. I always have mentioned it to any health provider, including oncologists when I had breast cancer 3 years ago.
Had no follow-up after I had my daughter, apart from Consultant Obstetrician putting me on
heparin
for a further month, and thought nothing of it. I always have mentioned it to any health provider, including oncologists when I had breast cancer 3 years ago.
aliceblue
in
Hughes Syndrome APS Forum
12 years ago
Worried Mum and new to site.
Was given
heparin
and warfarin which they said needed to be continued for 6 months. She then had symptoms of a stroke but they could find nothing on MRI and say it was an atypical migraine ( she does suffer from several different types of migraine).
Was given
heparin
and warfarin which they said needed to be continued for 6 months. She then had symptoms of a stroke but they could find nothing on MRI and say it was an atypical migraine ( she does suffer from several different types of migraine).
JennyD
in
Hughes Syndrome APS Forum
12 years ago
APS only causes late miscarriages?
He said I don't need to be on
Heparin
and told me to stop taking it. He took blood so he could run the tests again in his lab. I only had a couple injections left and when I ran out of
heparin
all 3 of my Dr's overseeing my pregnancy stood together.
He said I don't need to be on
Heparin
and told me to stop taking it. He took blood so he could run the tests again in his lab. I only had a couple injections left and when I ran out of
heparin
all 3 of my Dr's overseeing my pregnancy stood together.
SassyOne
in
Hughes Syndrome APS Forum
12 years ago
My journey
A specialist started me on
heparin
and an asprin I went fullterm and had a baby girl. My kids are now 13 and 10 and my preemie baby is now 5 ft 9 " and an honor roll student.
A specialist started me on
heparin
and an asprin I went fullterm and had a baby girl. My kids are now 13 and 10 and my preemie baby is now 5 ft 9 " and an honor roll student.
Maizey
in
Hughes Syndrome APS Forum
12 years ago
Saw hematologist, eek!, am not sure......
She agrees I can't take any meds (warfarin or
heparin
) because I am also a hemophiliac (bleeder)..... and she does say this is probably lucky for me. However, this 118 count still sounds very high. Any of you out there get very high IgM counts?????
She agrees I can't take any meds (warfarin or
heparin
) because I am also a hemophiliac (bleeder)..... and she does say this is probably lucky for me. However, this 118 count still sounds very high. Any of you out there get very high IgM counts?????
Leigha
in
Hughes Syndrome APS Forum
12 years ago
Anyone else have Low Factor VIII Levels???
Because my Factor VIII Levels are low (which is hemophilia) I was not a candidate for warfarin and
heparin
did not agree with me either. In other words, I have both the sticky blood of APS and the inability of the blood to clot with Low Factor VIII. Talk about opposites!
Because my Factor VIII Levels are low (which is hemophilia) I was not a candidate for warfarin and
heparin
did not agree with me either. In other words, I have both the sticky blood of APS and the inability of the blood to clot with Low Factor VIII. Talk about opposites!
Leigha
in
Hughes Syndrome APS Forum
12 years ago
Have met a couple of consultants recently who have a gobsmackingly different opinion of Hughes syndrome!
Long story but subseqently put on Warfarin with an ever increasing target (up to 3.5) and although I always respond better to
Heparin
(have injections to hand in case I fall too low), I've struggled with the INR regime for 2 years now.
Long story but subseqently put on Warfarin with an ever increasing target (up to 3.5) and although I always respond better to
Heparin
(have injections to hand in case I fall too low), I've struggled with the INR regime for 2 years now.
Eagle
in
Hughes Syndrome APS Forum
12 years ago
My APS experience - hopefully I'm not alone!
I was then put on daily injections of
heparin
for 2 weeks as a precaution given my positive antibodies test.
I was then put on daily injections of
heparin
for 2 weeks as a precaution given my positive antibodies test.
APSmum
in
Hughes Syndrome APS Forum
12 years ago
Maybe the hematologist thinks I'm crazy? Appointment did not go well.
I recently found out I am pregnant again and my GP had put me on
heparin
(same dose as my last pregnancy). Hemo said to discontinue the
heparin
until after birth. My GP seems to trust him.
I recently found out I am pregnant again and my GP had put me on
heparin
(same dose as my last pregnancy). Hemo said to discontinue the
heparin
until after birth. My GP seems to trust him.
SassyOne
in
Hughes Syndrome APS Forum
12 years ago
Is there a link between APS & having a baby born with a heart condition?
With my son I was on
heparin
& baby aspirin. I am in the process of finding out if this elevation of antibodies is APS/Hughes. Does anyone know if congenital heart defects are associated with Hughes?
With my son I was on
heparin
& baby aspirin. I am in the process of finding out if this elevation of antibodies is APS/Hughes. Does anyone know if congenital heart defects are associated with Hughes?
Nccarolina
in
Hughes Syndrome APS Forum
12 years ago
OMG!!! So freaking frustrating. Does anyone in all of Canada have a clue??? GRRRRRR..
(Even after using
Heparin
and aspirin to carry to term; the latest hematologist said it was a 'fluke' and had nothing to do with the
Heparin
) This hematologist did the required blood test and *surprise* the antibody didn't show up.
(Even after using
Heparin
and aspirin to carry to term; the latest hematologist said it was a 'fluke' and had nothing to do with the
Heparin
) This hematologist did the required blood test and *surprise* the antibody didn't show up.
siveinvan
in
Hughes Syndrome APS Forum
12 years ago
Looking for successful pregnancy stories! after APS diagnosis
I have had recurrent early miscarriages and was diagnosed with APS after my wonderful gynaecologist agreed to 'investigate me' I am now 27 weeks pregnant, I am taking aspirin and
heparin
daily and the baby is doing well. I have been advised to give up my part time job and REST!
I have had recurrent early miscarriages and was diagnosed with APS after my wonderful gynaecologist agreed to 'investigate me' I am now 27 weeks pregnant, I am taking aspirin and
heparin
daily and the baby is doing well. I have been advised to give up my part time job and REST!
hpwellsy
in
Hughes Syndrome APS Forum
12 years ago
Only in my head?! Really?! OMG so frustrated. Has anyone been to St. Thomas and what are the costs?
(Even after using
Heparin
and aspirin to carry to term; the latest hematologist said it was a 'fluke' and had nothing to do with the
Heparin
) I've dealt with the fatigue for years, and all the other associated auto-immune symptoms: lymphocytic colitis, tinnitus, tingling skin, migraines and now, the
(Even after using
Heparin
and aspirin to carry to term; the latest hematologist said it was a 'fluke' and had nothing to do with the
Heparin
) I've dealt with the fatigue for years, and all the other associated auto-immune symptoms: lymphocytic colitis, tinnitus, tingling skin, migraines and now, the
siveinvan
in
Hughes Syndrome APS Forum
12 years ago
Do APS sufferers bruise easily?
I went onto
Heparin
whilst pregnant with my second son and had a brilliant pregnancy. I still feel rather uninformed about APS and have turned into a hypercrondriac wondering whether every ache in my leg is a clot etc.
I went onto
Heparin
whilst pregnant with my second son and had a brilliant pregnancy. I still feel rather uninformed about APS and have turned into a hypercrondriac wondering whether every ache in my leg is a clot etc.
Sathawes
in
Hughes Syndrome APS Forum
12 years ago
Could anyone help with my puzzle please? I've been on Septrin Forte 960mg 3 per week, since January 2007 when WG was diagnosed.
The last meeting I had with my Rheum. Consultant suggested I'd be on it for life. My Nephrologist, 2 weeks later suggested it be stopped as he thought it was causing my extreme fatigue but said He'd discuss with my Rheumatologist! He also told me that my red blood cells were very large and he reckoned
The last meeting I had with my Rheum. Consultant suggested I'd be on it for life. My Nephrologist, 2 weeks later suggested it be stopped as he thought it was causing my extreme fatigue but said He'd discuss with my Rheumatologist! He also told me that my red blood cells were very large and he reckoned
braindamage
in
Vasculitis UK
12 years ago
Multiple DVT/Stroke Survivor
He also found out I am allergic to
heparin
!! So no more Lovenox or Fragmin shots for me, I have to take an alternative called Erixtra. There's always something new it seems. Didn't mean to run on forever!
He also found out I am allergic to
heparin
!! So no more Lovenox or Fragmin shots for me, I have to take an alternative called Erixtra. There's always something new it seems. Didn't mean to run on forever!
SheilaSparkles
in
Hughes Syndrome APS Forum
13 years ago
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