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Heparin
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'Funny Turns' and Hughes Syndrome
Consequences: looking like a blackberry due to the bruising of effect of the injections and, I understand, long term
Heparin
use causes osteoporosis.
Consequences: looking like a blackberry due to the bruising of effect of the injections and, I understand, long term
Heparin
use causes osteoporosis.
Manofmendip
in
Hughes Syndrome APS Forum
12 years ago
I'm wondering how soon into pregnancy should I start on heparin injections?
I have not had any miscarriages and the last two pregnancies I was started on
heparin
and aspirin as soon as I found out. I have since moved areas and feel that doctors and midwives are not treating me as 'high risk' and just wondered if I need to demand to see a consultant.
I have not had any miscarriages and the last two pregnancies I was started on
heparin
and aspirin as soon as I found out. I have since moved areas and feel that doctors and midwives are not treating me as 'high risk' and just wondered if I need to demand to see a consultant.
bones34
in
Hughes Syndrome APS Forum
12 years ago
Does your INR level affect the way you feel?
I have had APLS for several years, picked up after several miscarriages so was on aspirin and
heparin
for my last pregnancy and for 6 weeks after. After that just aspirin, plaquenil and other bits and pieces.
I have had APLS for several years, picked up after several miscarriages so was on aspirin and
heparin
for my last pregnancy and for 6 weeks after. After that just aspirin, plaquenil and other bits and pieces.
tassie
in
Hughes Syndrome APS Forum
12 years ago
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INRS up and down, weekly tests since April!
I had been taking Aspirin up until op in March and then I just had
Heparin
, and I still suffered from TIA - since having the operation I have just felt so bad all the time, like funny heads etc, whereas before even though I had a low platelet count, I took Aspirin and I had occasional head problem but
I had been taking Aspirin up until op in March and then I just had
Heparin
, and I still suffered from TIA - since having the operation I have just felt so bad all the time, like funny heads etc, whereas before even though I had a low platelet count, I took Aspirin and I had occasional head problem but
daisy11
in
Hughes Syndrome APS Forum
12 years ago
Suffering at the moment!!
muscles wakes me up - then i get burning pins and needles on the side i sleep on, last time this hapened i wentto hospital and they seemed to think it was a thrombotic episode - yet did nothing with me i just stayed til it subsided - the last episode lasted 16wks, and ive seen mild improvement with
heparin
muscles wakes me up - then i get burning pins and needles on the side i sleep on, last time this hapened i wentto hospital and they seemed to think it was a thrombotic episode - yet did nothing with me i just stayed til it subsided - the last episode lasted 16wks, and ive seen mild improvement with
heparin
emmaj
in
Hughes Syndrome APS Forum
12 years ago
Multiple DVT/Stroke Survivor
He also found out I am allergic to
heparin
!! So no more Lovenox or Fragmin shots for me, I have to take an alternative called Erixtra. There's always something new it seems. Didn't mean to run on forever!
He also found out I am allergic to
heparin
!! So no more Lovenox or Fragmin shots for me, I have to take an alternative called Erixtra. There's always something new it seems. Didn't mean to run on forever!
SheilaSparkles
in
Hughes Syndrome APS Forum
13 years ago
My blog
My consultant at the time then decided we should try
heparin
and I self injected for my third pregnancy resulting in the birth of my son in 1983 and another in 1986.
My consultant at the time then decided we should try
heparin
and I self injected for my third pregnancy resulting in the birth of my son in 1983 and another in 1986.
Stella
in
Hughes Syndrome APS Forum
13 years ago
Pregnancy related APS
I have been recommended to take low dose asprin and then
heparin
once pregnant. The nurse consultant seemed a little vague and referred me to the internet. I still feel a little in the dark. I was wondering if anyone had been through a pregnancy on these meds and what experiences did you have?
I have been recommended to take low dose asprin and then
heparin
once pregnant. The nurse consultant seemed a little vague and referred me to the internet. I still feel a little in the dark. I was wondering if anyone had been through a pregnancy on these meds and what experiences did you have?
Rbpw
in
Hughes Syndrome APS Forum
13 years ago
Confused and worried
I recently went on a long haul flight and was advised to inject with
heparin
as a precaution. I'm new to this site, sorry about all the questions just hoping someone might be able to help. Anyone know of any support groups in Berkshire? Thanks HWickers
I recently went on a long haul flight and was advised to inject with
heparin
as a precaution. I'm new to this site, sorry about all the questions just hoping someone might be able to help. Anyone know of any support groups in Berkshire? Thanks HWickers
HWickers
in
Hughes Syndrome APS Forum
13 years ago
LOW INR - ON WARFARIN AND CLOPIDIGREL - FUNNY TURNS, FACE FEELS WARM
I was on low
heparin
shots during the 3 week stay in hospital and for a further 3 months, and not on Aspirin as told not to take it until I saw Haematology, I was worried because my mum had a bad stroke due to APS and I kept relaying my thoughts but nothing getting through, and then in April I suffered
I was on low
heparin
shots during the 3 week stay in hospital and for a further 3 months, and not on Aspirin as told not to take it until I saw Haematology, I was worried because my mum had a bad stroke due to APS and I kept relaying my thoughts but nothing getting through, and then in April I suffered
daisy11
in
Hughes Syndrome APS Forum
13 years ago
HIGH INR - nosebleeds, dizziness,
Before I was on Aspirin for about 10 years and then when I went to have operation in March was told to stop, and then I was put on low dose
heparin
. Having the small TIA I was just put on Clopidogrel and then Warfarin a couple months later and as said problems started..
Before I was on Aspirin for about 10 years and then when I went to have operation in March was told to stop, and then I was put on low dose
heparin
. Having the small TIA I was just put on Clopidogrel and then Warfarin a couple months later and as said problems started..
daisy11
in
Hughes Syndrome APS Forum
13 years ago
Switching from Tinzaparin to Fondaparinux
injecting LMW
heparin
in the form of Tinzaparin twice daily for 10 years.
injecting LMW
heparin
in the form of Tinzaparin twice daily for 10 years.
Womanfriday
in
Hughes Syndrome APS Forum
13 years ago
Constant back and leg pain - a symptom of APS?
My INR fluctuates and is difficult to manage and I have regular daily injections of
heparin
(on another course at the moment for the last 4 weeks and INR level not budging!)
My INR fluctuates and is difficult to manage and I have regular daily injections of
heparin
(on another course at the moment for the last 4 weeks and INR level not budging!)
Karen_Probyn
in
Hughes Syndrome APS Forum
13 years ago
Antibiotics
Hi I am arrlergic to a lot of antibiotics and the only group I know i can take is cefalexins. When i went to my GP on friday it was a new one who I hadnt seen before and when she asked me why i was on cefalex (im recovering fron pneumonia) she was aghast that i was on these. She said that they can cause
Hi I am arrlergic to a lot of antibiotics and the only group I know i can take is cefalexins. When i went to my GP on friday it was a new one who I hadnt seen before and when she asked me why i was on cefalex (im recovering fron pneumonia) she was aghast that i was on these. She said that they can cause
margaretjo
in
Hughes Syndrome APS Forum
12 years ago
Professor Hughes' blog October 2011
A three week trial of
heparin
helped to improve the headaches. She was ultimately started, in 2010, on warfarin, keeping the INR high at 3.5-4. Six months later, she was a ‘changed person’. Not only had the headaches gone but, interestingly, the blotchy livedo skin had improved.
A three week trial of
heparin
helped to improve the headaches. She was ultimately started, in 2010, on warfarin, keeping the INR high at 3.5-4. Six months later, she was a ‘changed person’. Not only had the headaches gone but, interestingly, the blotchy livedo skin had improved.
Hidden
in
Hughes Syndrome APS Forum
12 years ago
Anaemia or not. Seen a haematologist today.
Basically went to see haemo today because I wanted to alter from warfarin back to
heparin
and the GP said he was out of his depth. His words. Well, never seen one before because I was diagnosed by a prof Hughes..
Basically went to see haemo today because I wanted to alter from warfarin back to
heparin
and the GP said he was out of his depth. His words. Well, never seen one before because I was diagnosed by a prof Hughes..
Jade
in
Hughes Syndrome APS Forum
12 years ago
Paleo Diet
People take one thing for pain, another for GERD, something else for neurological issues, and of course, Coumadin and/or
Heparin
. Now I am not against medicine. I take my Coumadin religiously and have my INR checked.
People take one thing for pain, another for GERD, something else for neurological issues, and of course, Coumadin and/or
Heparin
. Now I am not against medicine. I take my Coumadin religiously and have my INR checked.
TheKid
in
Hughes Syndrome APS Forum
13 years ago
Can someone help me with symptoms? Is is possible to be on Heparin and Warfarin and still experience awful symptoms? Help please.
I am now injecting
heparin
and have upped my Coumadin dosage.These symptoms come and go, it seems. Is this normal for APS? Or should I be looking at other causes? I mean, I thought once your INR was in range, you shouldn't have problems.
I am now injecting
heparin
and have upped my Coumadin dosage.These symptoms come and go, it seems. Is this normal for APS? Or should I be looking at other causes? I mean, I thought once your INR was in range, you shouldn't have problems.
TheKid
in
Hughes Syndrome APS Forum
13 years ago
package insert contains a warning of the inaccuracy of the machine for patients with Antiphospholipid Antibody Syndrome
This test should not be used to monitor persons on
heparin
therapy. In vitro studies showed the CoaguChek Systems Tests are sensitive to levels of
heparin
over 0.15 U/mL. When a patient is on intravenous infusion therapy, do not collect sample from arm receiving infusion line.
This test should not be used to monitor persons on
heparin
therapy. In vitro studies showed the CoaguChek Systems Tests are sensitive to levels of
heparin
over 0.15 U/mL. When a patient is on intravenous infusion therapy, do not collect sample from arm receiving infusion line.
Hidden
in
Hughes Syndrome APS Forum
12 years ago
Not the whole truth because I've forgotten most of it!
After 1 more pregnacy loss using
heparin
therapy I had my 2nd child (using
heparin
) in 2006. I had her by c/section which was a very long process (30 mins of trying to get her out using forceps) and I had a nasty allergic reaction to the dressings they used on my wounds.
After 1 more pregnacy loss using
heparin
therapy I had my 2nd child (using
heparin
) in 2006. I had her by c/section which was a very long process (30 mins of trying to get her out using forceps) and I had a nasty allergic reaction to the dressings they used on my wounds.
SharontheSheep
in
Hughes Syndrome APS Forum
13 years ago
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