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Must manage your own healthcare
Hi everyone! I’m Jennifer. Found my breast cancer because God gave me an itch right on top of my tumor. It was 26mm and not seen on the 3D mammogram. I now tell everyone I know that women cannot rely on mammograms to find breast cancer. Must do regular self exams. Had double mastectomy and found macrometatastisis
Hi everyone! I’m Jennifer. Found my breast cancer because God gave me an itch right on top of my tumor. It was 26mm and not seen on the 3D mammogram. I now tell everyone I know that women cannot rely on mammograms to find breast cancer. Must do regular self exams. Had double mastectomy and found macrometatastisis
B17865
in
SHARE Metastatic Breast Cancer
9 months ago
Kazza
Hi all. Hope your all doing well. In Jan 2023 I had bilateral tumours each being 7mm. Was tested for braca2 came up positive (history of bc in family rife!). Lymph nodes clear. Opted for double mastectomy and oomphaloompha surgery (removal of ovaries and tubes). Its not really called that but close
Hi all. Hope your all doing well. In Jan 2023 I had bilateral tumours each being 7mm. Was tested for braca2 came up positive (history of bc in family rife!). Lymph nodes clear. Opted for double mastectomy and oomphaloompha surgery (removal of ovaries and tubes). Its not really called that but close
Karenborg
in
SHARE Metastatic Breast Cancer
9 months ago
Coming off Pramipexole
I'm a 65 year old female in Norfolk in the UK, with hereditary RLS for which I was prescribed X1 every evening 0.088mg Pramipexole some 10 (possibly?) years ago. A year ago I had a single mastectomy, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along
I'm a 65 year old female in Norfolk in the UK, with hereditary RLS for which I was prescribed X1 every evening 0.088mg Pramipexole some 10 (possibly?) years ago. A year ago I had a single mastectomy, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along
GreyMaus
in
Restless Legs Syndrome
9 months ago
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Methotrexate and Pantoprazole contra indicated
I need these having had a sleeve
gastrectomy
a year ago and I have Barrett’s Oesophagus so it’s really important to keep on top of stomach acid. What is the alternative, if there is one? Thanks!
I need these having had a sleeve
gastrectomy
a year ago and I have Barrett’s Oesophagus so it’s really important to keep on top of stomach acid. What is the alternative, if there is one? Thanks!
Bramble2000
in
PMRGCAuk
1 year ago
My Journey - Breast Cancer
So far - I'm Lucky. On March 8th - my husband found a lump on my right breast. He was so sweet - Honey - when was your last Mamo. July 2023 - Why. And then he showed me what he felt. After a sleepless night - right to the Gyno - no worries about apts. I needed to see them. They got me a Mamo
So far - I'm Lucky. On March 8th - my husband found a lump on my right breast. He was so sweet - Honey - when was your last Mamo. July 2023 - Why. And then he showed me what he felt. After a sleepless night - right to the Gyno - no worries about apts. I needed to see them. They got me a Mamo
lovemydad
in
SHARE Breast Cancer Support
10 months ago
Sore leg muscles
Hi....I had a double mastectomy in Jan 2023 and finished my 4th and final chemo treatment one month ago. Since my 3rd treatment I have experienced extremely sore leg muscles 24/7 with no improvement. Has anyone else had this side effect?
Hi....I had a double mastectomy in Jan 2023 and finished my 4th and final chemo treatment one month ago. Since my 3rd treatment I have experienced extremely sore leg muscles 24/7 with no improvement. Has anyone else had this side effect?
lakeliving22
in
SHARE Breast Cancer Support
10 months ago
Total Gastrectomy
Hi Has anyone had a total
gastrectomy
that is willing to contact me and give me advice etc. I am due to have one in November due to a large adenoma in my stomach which they cannot be 100% sure does not have cancer in. Obviously I am very scared at the prospect of having no stomach.
Hi Has anyone had a total
gastrectomy
that is willing to contact me and give me advice etc. I am due to have one in November due to a large adenoma in my stomach which they cannot be 100% sure does not have cancer in. Obviously I am very scared at the prospect of having no stomach.
Molly100
in
Hughes Syndrome APS Forum
2 years ago
BC metastasizes to dermis
Hi everyone, I would love to hear if any of your diagnosis’ are a local recurrence presenting itself as a lesion in your dermis as metastatic disease. As I have shared, I have been diagnosed with BC 3 times. First was triple negative at 44 with a lumpectomy, chemo and radiation. I was cancer free for
Hi everyone, I would love to hear if any of your diagnosis’ are a local recurrence presenting itself as a lesion in your dermis as metastatic disease. As I have shared, I have been diagnosed with BC 3 times. First was triple negative at 44 with a lumpectomy, chemo and radiation. I was cancer free for
CalGal56
in
SHARE Metastatic Breast Cancer
11 months ago
Afinitor side effects
I have been in treatment for breast cancer since 2006 and have done the drill - lumpectomy, lymph nodes removal, chemo, radiation, herceptin, Arimidex for six years… then in 2019 a mastectomy, more hormone blockers, and three years of various combinations with Ibrance, which has sadly stopped working
I have been in treatment for breast cancer since 2006 and have done the drill - lumpectomy, lymph nodes removal, chemo, radiation, herceptin, Arimidex for six years… then in 2019 a mastectomy, more hormone blockers, and three years of various combinations with Ibrance, which has sadly stopped working
Whitaker
in
SHARE Metastatic Breast Cancer
11 months ago
Sex and rls
Hi I'm new here and suffering with rls. I saw on one post a mention of masterbation helping rsl I'm wondering if having sex would have a similar outcome?also a mention of gabapentine? I already take this daily for nerve damage to my back after mastectomy and reconstruction.Thank you
Hi I'm new here and suffering with rls. I saw on one post a mention of masterbation helping rsl I'm wondering if having sex would have a similar outcome?also a mention of gabapentine? I already take this daily for nerve damage to my back after mastectomy and reconstruction.Thank you
Ceramicist
in
Restless Legs Syndrome
1 year ago
never adjusted
I had a mastectomy three years ago and I've never gotten over this deep seated shock as to how it looks. Don't bother writing if all you can think to say is I'm lucky the cancer is gone.
I had a mastectomy three years ago and I've never gotten over this deep seated shock as to how it looks. Don't bother writing if all you can think to say is I'm lucky the cancer is gone.
fdale
in
SHARE Breast Cancer Support
1 year ago
mastectomy
Well my surgery went well,Only problem was as I expected low oxygen levels after the anesthetic. so glad I opted for Mastectomy-would never have coped with further operations and up to 18 months of treatment if I had opted for reconstruction..Only appts now are with a district nurse to check dressings
Well my surgery went well,Only problem was as I expected low oxygen levels after the anesthetic. so glad I opted for Mastectomy-would never have coped with further operations and up to 18 months of treatment if I had opted for reconstruction..Only appts now are with a district nurse to check dressings
Hidden
in
My Breast Cancer Community
1 year ago
Breast cancer - mastectomy or not
Hi allI was diagnosed with Stage 4a high grade serous OC in September 2022 and I've just had my last post-surgery chemo (for the time being at least)😊. I'm BRCA2 and aged 60 and the hospital genetics team have been telling me about the risk of getting breast cancer (as if ovarian cancer wasn't enough
Hi allI was diagnosed with Stage 4a high grade serous OC in September 2022 and I've just had my last post-surgery chemo (for the time being at least)😊. I'm BRCA2 and aged 60 and the hospital genetics team have been telling me about the risk of getting breast cancer (as if ovarian cancer wasn't enough
Demelzatheseagull
in
My Ovacome
1 year ago
off Pramipexole
It took me 6 months to come off Pramipexole very slowly! Breast cancer interrupted things and I paused my reduction programme whilst I had a mastectomy. After surgery I had some respite from my restless legs as my ferretin levels increased which is normal after surgery. They are dropping back now.
It took me 6 months to come off Pramipexole very slowly! Breast cancer interrupted things and I paused my reduction programme whilst I had a mastectomy. After surgery I had some respite from my restless legs as my ferretin levels increased which is normal after surgery. They are dropping back now.
RestlessMe
in
Restless Legs Syndrome
1 year ago
Hurts breathing in on left side/lung...
Hi, I'm wondering if anyone might have experienced this or some thoughts. Sorry this is so long a post. This morning I woke up and my left lung/back/shoulder hurt, much more so with breathing in. I thought it might be I'd slept oddly and/or my arthritis as other parts of me ached and back and spine
Hi, I'm wondering if anyone might have experienced this or some thoughts. Sorry this is so long a post. This morning I woke up and my left lung/back/shoulder hurt, much more so with breathing in. I thought it might be I'd slept oddly and/or my arthritis as other parts of me ached and back and spine
Yess1e
in
Lung Conditions Community Forum
1 year ago
why do some MBC get mastectomies?
Hi All, Why do some MBC’ers get a mastectomy ? Even some that are not Oglio’s? Do you think there is a benefit? I know they say there isn’t but I’m seeing those who had it done seem to have longevity. If you had a mastectomy how long have you had MBC? If you have not please share your thoughts and
Hi All, Why do some MBC’ers get a mastectomy ? Even some that are not Oglio’s? Do you think there is a benefit? I know they say there isn’t but I’m seeing those who had it done seem to have longevity. If you had a mastectomy how long have you had MBC? If you have not please share your thoughts and
DDIL1
in
SHARE Metastatic Breast Cancer
1 year ago
Hey Y'all
Just stumbled across this site. I'm a MBC Thriver!! In July 2017 it was confirmed that I in fact had HR+ HER2- BC after years of mammograms and ultrasounds. I always knew it was cancer that was causing my issues. At 39 most OB/GYN play it off as hormone changes. What was the final straw was I lost my
Just stumbled across this site. I'm a MBC Thriver!! In July 2017 it was confirmed that I in fact had HR+ HER2- BC after years of mammograms and ultrasounds. I always knew it was cancer that was causing my issues. At 39 most OB/GYN play it off as hormone changes. What was the final straw was I lost my
tamtam425
in
SHARE Metastatic Breast Cancer
1 year ago
Burning pain to side of scapular post several breast ops - anyone have this too?
Dear all Hope you are doing as well as can be. I am really struggling with very bad, deep burning in the area of my upper left back, in-between the shoulder blade and my spine and wondered if anyone else has had this issue post surgery/ies? I have a lot of lumps and spasmed areas anyway, all over
Dear all Hope you are doing as well as can be. I am really struggling with very bad, deep burning in the area of my upper left back, in-between the shoulder blade and my spine and wondered if anyone else has had this issue post surgery/ies? I have a lot of lumps and spasmed areas anyway, all over
DJK99
in
SHARE Breast Cancer Support
1 year ago
CA 27.29 Blood Testing
Hi All, It's been about 3 years(2020) since I was diagnosed with HER2 + breast cancer. I had undergone a double mastectomy and a full year of chemo. During my twice a year check-ups (every 6 months) I was always given a Cancer Antigen( CA 27.29) blood test, but with this visit this test was not done
Hi All, It's been about 3 years(2020) since I was diagnosed with HER2 + breast cancer. I had undergone a double mastectomy and a full year of chemo. During my twice a year check-ups (every 6 months) I was always given a Cancer Antigen( CA 27.29) blood test, but with this visit this test was not done
Karina66
in
SHARE Breast Cancer Support
1 year ago
Hi ….from a newly dx’d comrade from the UK
I’m 56 and I’ve recently been dx’d with lobular ER+ breast cancer (2cm), go back to see consultant on Monday for MRI results. I have a lumpectomy & sentinel lymph node removal scheduled for the 28th March. Drs Initial plan was for removal, tamoxifen & chemo….but that may have changed since MRI
I’m 56 and I’ve recently been dx’d with lobular ER+ breast cancer (2cm), go back to see consultant on Monday for MRI results. I have a lumpectomy & sentinel lymph node removal scheduled for the 28th March. Drs Initial plan was for removal, tamoxifen & chemo….but that may have changed since MRI
Mistydeb01
in
My Breast Cancer Community
1 year ago
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