Search
Search
About
Log in
Join
Experiences with
Fulvestrant
Posts
Communities
231 public posts
Filter results
Good news
I've now been on
Fulvestrant
( with ibrance, after three and a half years on ibrance and letrozole ) for three months and in the last month my tumour markers have reduced, one from 179 to 142 and 4.5 to 2.4. I thought that was good news so now await next week's scan.
I've now been on
Fulvestrant
( with ibrance, after three and a half years on ibrance and letrozole ) for three months and in the last month my tumour markers have reduced, one from 179 to 142 and 4.5 to 2.4. I thought that was good news so now await next week's scan.
Beryl71
in
SHARE Metastatic Breast Cancer
10 months ago
Has somebody "steped back" to a former drug?
She steps back from Enhertu to "
Fulvestrant
+ Ibrance", because with that drugs everything else was " fine" (only the liver ist the problem). 2. She ist planning a TACE (isolated chemo only for the liver) again. Last time it worked. 3. She starts an off label-Treatment with 150MHz. .... 5.
She steps back from Enhertu to "
Fulvestrant
+ Ibrance", because with that drugs everything else was " fine" (only the liver ist the problem). 2. She ist planning a TACE (isolated chemo only for the liver) again. Last time it worked. 3. She starts an off label-Treatment with 150MHz. .... 5.
deHans
in
SHARE Metastatic Breast Cancer
11 months ago
Ibrance and supplements
I am 69 years old and use Ibrance 100 +
fulvestrant
monthly and zometa every 3 months. I think I should be taking some nutritional supplements. I'm interested in what you use? Which form of vitamin C do you think is best? Thanks in advance on your answers.
I am 69 years old and use Ibrance 100 +
fulvestrant
monthly and zometa every 3 months. I think I should be taking some nutritional supplements. I'm interested in what you use? Which form of vitamin C do you think is best? Thanks in advance on your answers.
hopehope67
in
SHARE Metastatic Breast Cancer
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Update: post-radiation and New meds
I have enjoyed an interval of no chemo meds while undergoing radiation and this washout period is actually getting me ready for the next step in meds...In my previous post I had written that I was choosing Xeloda because I feared the
fulvestrant
shots and blood sugar impact from Piqray.
I have enjoyed an interval of no chemo meds while undergoing radiation and this washout period is actually getting me ready for the next step in meds...In my previous post I had written that I was choosing Xeloda because I feared the
fulvestrant
shots and blood sugar impact from Piqray.
Dragonfly2
in
SHARE Metastatic Breast Cancer
9 months ago
Piqray fail-only Fulvestrant now?
As a follow up to my original post, I finally got an answer today from my oncologist that because of my Piqray fail due to the extreme hyperglycemia and multiple adverse AEs, they are going to administer
Fulvestrant
only along with quarterly Zometa injections.
As a follow up to my original post, I finally got an answer today from my oncologist that because of my Piqray fail due to the extreme hyperglycemia and multiple adverse AEs, they are going to administer
Fulvestrant
only along with quarterly Zometa injections.
Saltandlight
in
SHARE Metastatic Breast Cancer
1 year ago
starting fulvestrant after over two years of Ibrance working well.
My Mom is starting on a trial and
fulvestrant
after over two years on Ibrance and NED. She now has solitary liver met. No symptoms.
My Mom is starting on a trial and
fulvestrant
after over two years on Ibrance and NED. She now has solitary liver met. No symptoms.
Pups2Cute
in
SHARE Metastatic Breast Cancer
1 year ago
Anyone been on Fulvestrant 9 yrs?
Having bizarre symptoms that put me in the hospital twice in June, no CA found anywhere!Vision and balance off, toes numb(never had neuropathy),vertigo, N/V wt loss 20+, missed tx June now having hot flushes.Seeing Dizziness ENT next week and Balance Disorder testing.
Having bizarre symptoms that put me in the hospital twice in June, no CA found anywhere!Vision and balance off, toes numb(never had neuropathy),vertigo, N/V wt loss 20+, missed tx June now having hot flushes.Seeing Dizziness ENT next week and Balance Disorder testing.
fancydog
in
SHARE Metastatic Breast Cancer
1 year ago
At a crossroads
My earlier first line of treatment, Ibrance
Fulvestrant
failed after about 8 months. I am now comparing Xeloda with Afinitor and wondering if you all have any information to share about side effects from these medicines. Any ideas are welcome!
My earlier first line of treatment, Ibrance
Fulvestrant
failed after about 8 months. I am now comparing Xeloda with Afinitor and wondering if you all have any information to share about side effects from these medicines. Any ideas are welcome!
Garlicgrower
in
SHARE Metastatic Breast Cancer
1 year ago
HER2 low treatment
I have been on Ibrance and
Fulvestrant
for 3 cycles. Prior to my mbc dx I was an Anastrozole for 15 months. My mbc is HER2 low and from reading I've been doing I'm wondering if an anti-HER treatment would be reasonable.
I have been on Ibrance and
Fulvestrant
for 3 cycles. Prior to my mbc dx I was an Anastrozole for 15 months. My mbc is HER2 low and from reading I've been doing I'm wondering if an anti-HER treatment would be reasonable.
kiwi67
in
SHARE Metastatic Breast Cancer
1 year ago
What after Xeloda
Therapies until now: letrozole, tamoxifen,
fulvestrant
+ibrance, paklitaksel; now Xeloda. What could be the next therapies? We live in Europe (Croatia), so some newer treatments are not available (for example orserdu).
Therapies until now: letrozole, tamoxifen,
fulvestrant
+ibrance, paklitaksel; now Xeloda. What could be the next therapies? We live in Europe (Croatia), so some newer treatments are not available (for example orserdu).
Goga156
in
SHARE Metastatic Breast Cancer
6 months ago
Newbie MBS in bones. Has anyone tried Reishi or Cordyceps?
Have been put on letrozol 6 months ago and with the bone lesions on Verzenio 150 g and
Fulvestrant
once a month. Have very bad fatigue and occasional diarrea and wanted to know if anyone had tried Reishi or Cordyceps to improve tiredness? Thanks and all my best to all
Have been put on letrozol 6 months ago and with the bone lesions on Verzenio 150 g and
Fulvestrant
once a month. Have very bad fatigue and occasional diarrea and wanted to know if anyone had tried Reishi or Cordyceps to improve tiredness? Thanks and all my best to all
Tanyateresa
in
SHARE Metastatic Breast Cancer
9 months ago
Anyone tried Ibrance again after a vacay?
Ibrance was easy for me and made me NEAD (along with
fulvestrant
-- probably more the
fulvestrant
) for a couple of years. I would like to retry Ibrance, after 2 years off it. Has anyone done this? Did it work for you? What made your oncologist try this? Because they were at Dana Farber?
Ibrance was easy for me and made me NEAD (along with
fulvestrant
-- probably more the
fulvestrant
) for a couple of years. I would like to retry Ibrance, after 2 years off it. Has anyone done this? Did it work for you? What made your oncologist try this? Because they were at Dana Farber?
TammyCross
in
SHARE Metastatic Breast Cancer
1 year ago
Feeling scared
I was on ibrance and
fulvestrant
for almost a year and a half. I had to switch after progression to Everolimus and Exemestane. It’s been almost 2 months and my tumor markers have continued to rise.
I was on ibrance and
fulvestrant
for almost a year and a half. I had to switch after progression to Everolimus and Exemestane. It’s been almost 2 months and my tumor markers have continued to rise.
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
giredestrant with Everolimus trial
Ibrance and
Fulvestrant
stopped working. 😢oncologist wants me to do this trial. Has anybody had any experience with this trial or either drug?? Thanks for your help. Carla
Ibrance and
Fulvestrant
stopped working. 😢oncologist wants me to do this trial. Has anybody had any experience with this trial or either drug?? Thanks for your help. Carla
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
Taxol For MBC
After taking Ibrance w/
Fulvestrant
for 8 mos., it stopped working 2 mos. ago. The next plan is Piqray w/
Fulvestrant
, but the side effect were too much - especially to my one remaining eye (the mucous membrane).
After taking Ibrance w/
Fulvestrant
for 8 mos., it stopped working 2 mos. ago. The next plan is Piqray w/
Fulvestrant
, but the side effect were too much - especially to my one remaining eye (the mucous membrane).
macspow
in
SHARE Metastatic Breast Cancer
1 year ago
Coming off Ibrance and fulvestrant. Not feeling great.
So I am changing meds since I had a progression while on Ibrance and
Fulvestrant
. I am currently on a med break. I guess to get everything out of my system. It’s been a week since last dose of ibrance and a month since my last shot of
Fulvestrant
.
So I am changing meds since I had a progression while on Ibrance and
Fulvestrant
. I am currently on a med break. I guess to get everything out of my system. It’s been a week since last dose of ibrance and a month since my last shot of
Fulvestrant
.
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
Lumps from fulvestrant shots
I still have lumps from the past 4 months. How do I get them to go away? It is getting harder for the nurse to find a spot to inject and it is painful when she does. Thank you.
I still have lumps from the past 4 months. How do I get them to go away? It is getting harder for the nurse to find a spot to inject and it is painful when she does. Thank you.
JoeyCallie
in
SHARE Metastatic Breast Cancer
1 year ago
Long Story then Question: Ibrance or Pikray?
I know that Pikray is bad for the liver but it seems to go with
Fulvestrant
which is what I am on and what has finally become ineffective. Ibrance seems to go with Letrozol. Letrozol therapy did not help me but gave me lasting side effects. ADVICE and INFO is asked for, here.
I know that Pikray is bad for the liver but it seems to go with
Fulvestrant
which is what I am on and what has finally become ineffective. Ibrance seems to go with Letrozol. Letrozol therapy did not help me but gave me lasting side effects. ADVICE and INFO is asked for, here.
jersey-jazz
in
SHARE Metastatic Breast Cancer
1 year ago
Are Watery Eyes A Side Effect??
Hi all - I've been on
fulvestrant
for + 1.5 years and Verzenio for 9 months. About 4 months ago my eyes became very watery. The slightest wind or cold temperature and I'm crying. Sometimes I cry in my car, sitting on the couch, etc. This has been pretty consistent and in both eyes.
Hi all - I've been on
fulvestrant
for + 1.5 years and Verzenio for 9 months. About 4 months ago my eyes became very watery. The slightest wind or cold temperature and I'm crying. Sometimes I cry in my car, sitting on the couch, etc. This has been pretty consistent and in both eyes.
Nuff
in
SHARE Metastatic Breast Cancer
1 year ago
Fulvestrant side effects
Just curious whether anyone on
fulvestrant
has had these or similar side effects, and for over 2 weeks? Thanks! (2 covid tests were negative by the way) Peggy
Just curious whether anyone on
fulvestrant
has had these or similar side effects, and for over 2 weeks? Thanks! (2 covid tests were negative by the way) Peggy
valentinecalico
in
SHARE Metastatic Breast Cancer
1 year ago
1
2
3
4
...
12
Next page
10
Filter results
Clear filters
Posted in
All communities
SHARE Metastatic Breast Cancer
215 results
Breast Cancer India
6 results
My Breast Cancer Community
3 results
View top 10 communities
Sort by
Most Relevant
Newest