Experiences with

Fondaparinux

The last surgery I had, I used fondaparinux as I am opposed to animal products when I can reasonably avoid them. I live in a different part of the country now, where this mind set is not as common, and there is a lot of head scratching with the doctors on this request.

I was diagnosed as low positive 14 years ago by a Dr from the lupus centre at Tommies and have been treated with warfarin and was changed to fondaparinux 2 years ago by haematology at Tommies. Had tias, 3 early miscarriages, fibromyalgia type pain and fatigue brain fog, absences. speech problems.

Individuals receiving direct oral anticoagulant (apixaban, dabigatran, edoxaban & rivaroxaban) or warfarin in therapeutic INR range, on full dose heparin or fondaparinux injections or antiplatelet medications such as aspirin and clopidogrel can all receive the COVID-19 vaccination.

I have Primary APS (on Clopidogrel and Fondaparinux) but am also immunosuppressed following a transplant (on steroids and Mycophenolate ) Thanks Debbie

Pharmacological thromboprophylaxis should be given to all immobilised and severely ill patients with COVID-19 patients unless otherwise contraindicated For CrCl > 30: Give LMWH or s.c. according to license For CrCl < 30 or AKI: Unfractionated heparin 5000

One of my strong beliefs is, where possible, the use of a finger-prick self-testing machine (used in collaboration with the patient's anti-coagulation clinic).[7] New oral anti-coagulation The past decade has seen the introduction of a series of novel oral anti-coagulants such as edoxaban, fondaparinux

So he said I had choices, Warfarin, but given my stomach problems, probably not a good idea, Fondaparinux (Arixtra) injection, or as he preferred, remain on Heparin for another 3 months, then see about transitioning to Arixtra injections, he is suggesting the latter as there is even lesser a risk with

They changed it to fondaparinux injections instead. I am now becoming allergic to these too. Has anybody else experienced this. Getting worried now .

and i can see a light shine in .which has made me happy . but the doctors are having trouble getting my inr within my range of 3-4 .. i have been taking 10 mgs of warfarin a day now for 3weeks and my inr today is only 1.6 it keeps on dropping at a fast rate ..would it help if the doctors stopped my fondaparinux

Hi I was just wondering if anyone else was using fondaparinux injections ...as I am injecting myself twice a day with 7.5mg is there any time limit on how long I can inject myself ....

I have a rare blood disorder and I inject Arixtra(Fondaparinux) at this time. Heparin and Agatraban both had the opposite effect on me. Due to the expense, my doctor has recommended possibly switching to Rivaroxaban. I am a little nervous to change what I know is working. Camie

I have been taken off fondaparinux as it is on the red list of medicines and have been given Rivaroxaban. has anyone been given this med and how have you reacted to it. Thanks

Saw Prof Beverly Hunt last week who is keen for me to switch to Fondaparinux as it doesn't lead to bone-loss (I'm already osteopenic) Is anyone else on it - I understand it's quite expensive ( ..but then "I'm worth it" LOL!) - and has anyone else done a similar switch?

I've been switched from Tinzaparin to fondaparinux due to osteoporosis, but only at 5mg per day which I think is too little for my weight (70k) - leaflet says this is correct dose for 50Kg or less. Lovely thought it would be to lose 20kg in the next few weeks, I'm thinking it's not likely!