Search
Search
About
Log in
Join
Experiences with
Firmagon
Posts
Communities
687 public posts
Filter results
Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
I’m on
Firmagon
monthly, Zytiga with Prednisone, Metformin and Skyrizi for both plaque Psoriasis and a recent bout with colitis after discovering an h pylori infection since July 2023 I had a Davinci radical prostatectomy with pelvic lymph node removal, last March 2023 Gleason 8/9 Oligo metastatic
I’m on
Firmagon
monthly, Zytiga with Prednisone, Metformin and Skyrizi for both plaque Psoriasis and a recent bout with colitis after discovering an h pylori infection since July 2023 I had a Davinci radical prostatectomy with pelvic lymph node removal, last March 2023 Gleason 8/9 Oligo metastatic
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
PSA & T is up
Doctor also wondered if the Lupron just isn’t working and we should switch back to
Firmagon
. His oncologist told us that he may be eligible for Pluvicto but in his experience it stops working once you are done finished with the treatments.
Doctor also wondered if the Lupron just isn’t working and we should switch back to
Firmagon
. His oncologist told us that he may be eligible for Pluvicto but in his experience it stops working once you are done finished with the treatments.
Izzygirl1
in
Advanced Prostate Cancer
6 months ago
Erleada side effects
Would like to hear from those with personal experience that have added Erleada to ADT ( Lupron,
Firmagon
, Orgovyx). What additional side effects did you experience ( fatigue, cognitive, lab test changes, rash, etc). Not looking for studies or drug mfg info, I'm able to look at that.
Would like to hear from those with personal experience that have added Erleada to ADT ( Lupron,
Firmagon
, Orgovyx). What additional side effects did you experience ( fatigue, cognitive, lab test changes, rash, etc). Not looking for studies or drug mfg info, I'm able to look at that.
wilcoxsaw
in
Advanced Prostate Cancer
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
PSA testing comparison question
Over the past few months, while getting my monthly
Firmagon
injections, my Urologist would do blood work. My blook was always drawn first thing in the morning and processed by the same lab. Each month that passed, my results were lower.
Over the past few months, while getting my monthly
Firmagon
injections, my Urologist would do blood work. My blook was always drawn first thing in the morning and processed by the same lab. Each month that passed, my results were lower.
LongevityAT
in
Advanced Prostate Cancer
7 months ago
Eligard and Muscle pain
I am 26 months into my ADT and generally tolerating well.I was first on
firmagon
shots monthly then switched to Lupron Depot 3 monthly but on my last visit 2 weeks ago Nurse gave me Eligard injection .My blood tests came out great PSA still undetectable but I am having severe muscle pain last few days
I am 26 months into my ADT and generally tolerating well.I was first on
firmagon
shots monthly then switched to Lupron Depot 3 monthly but on my last visit 2 weeks ago Nurse gave me Eligard injection .My blood tests came out great PSA still undetectable but I am having severe muscle pain last few days
mynacho
in
Advanced Prostate Cancer
6 months ago
Day After Firmagon Injection
Is it normal to feel like crap the day after a
Firmagon
injection? I had my monthly injection at 11:00, I felt OK all that day, didn't sleep at all that night and feel lousy today.
Is it normal to feel like crap the day after a
Firmagon
injection? I had my monthly injection at 11:00, I felt OK all that day, didn't sleep at all that night and feel lousy today.
epfj3333
in
Advanced Prostate Cancer
9 months ago
Is nmCRPC potentially curable?
I was diagnosed polymetastic but now after 5.5 years I am still on
Firmagon
injections only and my prostate developed a CRPC.
I was diagnosed polymetastic but now after 5.5 years I am still on
Firmagon
injections only and my prostate developed a CRPC.
Seasid
in
Advanced Prostate Cancer
4 months ago
HELP! Firmagon reaction?
I only have two injections left and if it is a
Firmagon
issue, I'll want to change my ADT drug in 30 days. Please let me know your thoughts, I don't want to go back to the ER, they just aren't familiar with
Firmagon
. Hope this was clear, let me know if there are any questions. Thanks!
I only have two injections left and if it is a
Firmagon
issue, I'll want to change my ADT drug in 30 days. Please let me know your thoughts, I don't want to go back to the ER, they just aren't familiar with
Firmagon
. Hope this was clear, let me know if there are any questions. Thanks!
LongevityAT
in
Advanced Prostate Cancer
10 months ago
Xtandi and price tag
I started on
Firmagon
and my doctor ordered Xtandi. My question is …how can anyone afford Xtandi? My copay is 3300 dollars, more than my SS check. I’m checking with my MD to see if I can wait until Jan. ( to get better insurance) to begin Xtandi. Anyone have any input?
I started on
Firmagon
and my doctor ordered Xtandi. My question is …how can anyone afford Xtandi? My copay is 3300 dollars, more than my SS check. I’m checking with my MD to see if I can wait until Jan. ( to get better insurance) to begin Xtandi. Anyone have any input?
Pharm1125
in
Advanced Prostate Cancer
9 months ago
de novo metastatic prostate cancer
I’ve been on degarelix/
Firmagon
and Abiraterone for the past 3.5 months and it seems to be working well - just had my 3 month scans. And the terrible fatigue is under control. Anyone else on these two drugs? What’s your long term experience been? thanks Robert
I’ve been on degarelix/
Firmagon
and Abiraterone for the past 3.5 months and it seems to be working well - just had my 3 month scans. And the terrible fatigue is under control. Anyone else on these two drugs? What’s your long term experience been? thanks Robert
NewGame
in
Advanced Prostate Cancer
9 months ago
anyone suffering from frequent Nausea
. + on
firmagon
and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it.
. + on
firmagon
and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it.
Dannyboy48
in
Advanced Prostate Cancer
9 months ago
jaw discomfort
Started with
firmagon
every 28 days and exgiva. After about 2yrs got dead jaw syndrome and stopped exgiva. All healed up In about 9 months and never went back on exgiva . All is well 1.5 psa <3 testosterone.
Started with
firmagon
every 28 days and exgiva. After about 2yrs got dead jaw syndrome and stopped exgiva. All healed up In about 9 months and never went back on exgiva . All is well 1.5 psa <3 testosterone.
Dannyboy48
in
Advanced Prostate Cancer
8 months ago
Has Anyone had a CGA CHROMOGRANIN A, EIA Test ? It’s tumor marker test.
My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel,
Firmagon
, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis, since July 2022.
My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel,
Firmagon
, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis, since July 2022.
Shorehousejam
in
Advanced Prostate Cancer
8 months ago
Just had My Monthly Injection of Firmagon Monthly Labs PSA is Up <0.06 to 0.09
Even with bleeding from rectum the gastroenterologist and my Medical Oncologist feel it is from the sudden onset of diverticulitis based on multiple CT Scans Endoscopy & Colonoscopy scheduled I go for a Monthly Injection of
Firmagon
, daily Zytiga and Prednisone.
Even with bleeding from rectum the gastroenterologist and my Medical Oncologist feel it is from the sudden onset of diverticulitis based on multiple CT Scans Endoscopy & Colonoscopy scheduled I go for a Monthly Injection of
Firmagon
, daily Zytiga and Prednisone.
Shorehousejam
in
Advanced Prostate Cancer
7 months ago
Real Nervous about Genomic Resuits, What type of Physician do I go to in NY who Specializes in Mutations w/ Advanced Prostate Cancer?
In reference to the mutations and reading about Neuroendocrine cancer, since I have been on
Firmagon
and Zytiga with Prednisone since 07/2022 . I’m worried.
In reference to the mutations and reading about Neuroendocrine cancer, since I have been on
Firmagon
and Zytiga with Prednisone since 07/2022 . I’m worried.
Shorehousejam
in
Fight Prostate Cancer
7 months ago
I’m nervous about my Genomic Results plus anyone want to share their experience?
In reference to the mutations and reading about Neuroendocrine cancer, since I have been on
Firmagon
and Zytiga with Prednisone since 07/2022 . I’m worried.
In reference to the mutations and reading about Neuroendocrine cancer, since I have been on
Firmagon
and Zytiga with Prednisone since 07/2022 . I’m worried.
Shorehousejam
in
Advanced Prostate Cancer
7 months ago
Is Xtandi Failing?
Background: Diagnosis in Jan/2020, PSA 577, Gleason 9, mets to lymph nodes and bones Started
Firmagon
immediately as well as chemo, 6 cycles of Docetaxel. Followed this by radiation to the prostate.
Background: Diagnosis in Jan/2020, PSA 577, Gleason 9, mets to lymph nodes and bones Started
Firmagon
immediately as well as chemo, 6 cycles of Docetaxel. Followed this by radiation to the prostate.
GTTown
in
Advanced Prostate Cancer
9 months ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma 11 benign Low volume High grade Triplicate Therapy
Firmagon
large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma 11 benign Low volume High grade Triplicate Therapy
Firmagon
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Doctor says husband's situation is rare
They started him on
Firmagon
last week. Any others heard of situations like this?
They started him on
Firmagon
last week. Any others heard of situations like this?
Hidden
in
Advanced Prostate Cancer
7 months ago
Shingles vaccination and PCa progression?
Gleason score 9 (4+5) Radical Prostatectomy 2017 > BCR 2019 SRT 8 weeks +
Firmagon
6 injections (over 6 months). G 9 recurrence is inevitable (as we all know) so I am scared to take the Shingles vaccine. Any one above age 50 that the PCP recommend the 2 shots of this vaccine? Thank you Ralph
Gleason score 9 (4+5) Radical Prostatectomy 2017 > BCR 2019 SRT 8 weeks +
Firmagon
6 injections (over 6 months). G 9 recurrence is inevitable (as we all know) so I am scared to take the Shingles vaccine. Any one above age 50 that the PCP recommend the 2 shots of this vaccine? Thank you Ralph
Ralph1966
in
Advanced Prostate Cancer
10 months ago
1
2
3
4
...
35
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
642 results
Prostate Cancer Network
20 results
Prostate Cancer And Gay Men
15 results
View top 10 communities
Sort by
Most Relevant
Newest