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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Exercising and walking when your muscles are stiff
Is high intensity exercises or long walks advisable if you have sore stiff muscles? I always thought being active as much as possible was suppose to be helpful for people with Parkinson's, but in my case it seems to make the stiffness worse the following day. Maybe it's because I'm doing some of the
Is high intensity exercises or long walks advisable if you have sore stiff muscles? I always thought being active as much as possible was suppose to be helpful for people with Parkinson's, but in my case it seems to make the stiffness worse the following day. Maybe it's because I'm doing some of the
Doohat
in
Cure Parkinson's
3 years ago
not sure
I all ,i started treatment august 2020
FCR
, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as time went on it got worse ,i was due to start my 4 cycle so i went to my doctors for a review before treatment i told him about the cough and
I all ,i started treatment august 2020
FCR
, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as time went on it got worse ,i was due to start my 4 cycle so i went to my doctors for a review before treatment i told him about the cough and
kel555
in
CLL Support
4 years ago
Health Canada approves Ibrutinib plus Rituximab for First Line Treatment of Patients with Chronic Lymphocytic Leukemia (CLL)
The risk of disease progression or death was reduced by 66 per cent in the IMBRUVICA® arm compared with
FCR
, with a median follow-up time of 37 months.
The risk of disease progression or death was reduced by 66 per cent in the IMBRUVICA® arm compared with
FCR
, with a median follow-up time of 37 months.
AussieNeil
Partner
in
CLL Support
4 years ago
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Wearing Off or Dyskinesia
Wearing Off or Dyskinesia Author: Jill Marjama-Lyons, MD and Mary J. Shoman ….possible changes to your medicines…discuss with your doctor. •Use Sinemet CR (controlled release) or Sinemet ER (extended release). •Add a dopamine agonist. •Add a COMT inhibitor to Sinemet (immediate release, CR form
Wearing Off or Dyskinesia Author: Jill Marjama-Lyons, MD and Mary J. Shoman ….possible changes to your medicines…discuss with your doctor. •Use Sinemet CR (controlled release) or Sinemet ER (extended release). •Add a dopamine agonist. •Add a COMT inhibitor to Sinemet (immediate release, CR form
Hidden
in
Cure Parkinson's
3 years ago
Relief Factor
Howdy y'all,,, Has anyone or is anyone taking Relief Factor for pain / aches associated with PD? I've contacted Relief Factor. Their response is below. I left a voice mail message, earlier.. My fundamental questions surround Parkinson's Disease.... 1. Any history with customers with PD? 2. Any history
Howdy y'all,,, Has anyone or is anyone taking Relief Factor for pain / aches associated with PD? I've contacted Relief Factor. Their response is below. I left a voice mail message, earlier.. My fundamental questions surround Parkinson's Disease.... 1. Any history with customers with PD? 2. Any history
TR8Man
in
Cure Parkinson's
3 years ago
Strange case of CLL remission
He was supposed to do the regular 6 session of
FCR
. He only did the FIRST chemo session, day 1 Rituximab, then half a dose of Fludarabine before a severe tumor lysis syndrome kicked in that almost costed him his life. He stopped the treatment and was on a partial remission for 8 years!
He was supposed to do the regular 6 session of
FCR
. He only did the FIRST chemo session, day 1 Rituximab, then half a dose of Fludarabine before a severe tumor lysis syndrome kicked in that almost costed him his life. He stopped the treatment and was on a partial remission for 8 years!
mkawass
in
CLL Support
4 years ago
How things have changed
Today we have the alternatives of
FCR
, monoclonal antibodies, -all the ...mab treatments - BTK inhibitors, Chlorambucil, Venetoclax and so on and most, if not all of us can look forward to much longer survival times and survival in good health.
Today we have the alternatives of
FCR
, monoclonal antibodies, -all the ...mab treatments - BTK inhibitors, Chlorambucil, Venetoclax and so on and most, if not all of us can look forward to much longer survival times and survival in good health.
SERVrider
in
CLL Support
4 years ago
unmutated
hi all is there any members who has had
fcr
who are unmutated had longer than 3 yrs remission just curious has one doctor says you can get remission up to 5 yrs plus and also which treatment would be best after
fcr
,,thank you ,,kel
hi all is there any members who has had
fcr
who are unmutated had longer than 3 yrs remission just curious has one doctor says you can get remission up to 5 yrs plus and also which treatment would be best after
fcr
,,thank you ,,kel
kel555
in
CLL Support
4 years ago
LATEST AND GREATEST LOXO-305 UPDATE
Male 71 years old, Diagnosed 2009, 6 months of
FCR
2010, 2015 Ibrutinib, 2018 Venclaxta, now LOXO-305. 11q del. C-481 mutation and I don't care to know what other blood abnormalities.
Male 71 years old, Diagnosed 2009, 6 months of
FCR
2010, 2015 Ibrutinib, 2018 Venclaxta, now LOXO-305. 11q del. C-481 mutation and I don't care to know what other blood abnormalities.
steve5441
in
CLL Support
3 years ago
covid vaccine
hi all its been a while since last post iam on my 5
fcr
this Tuesday and i can tell you this as been the hardest task i have ever done the constant worry of covid 19 as my blood counts drop after every cycle, round 3 put me in hospital with sepsis which i recovered i had a bad cough for 2 weeks before
hi all its been a while since last post iam on my 5
fcr
this Tuesday and i can tell you this as been the hardest task i have ever done the constant worry of covid 19 as my blood counts drop after every cycle, round 3 put me in hospital with sepsis which i recovered i had a bad cough for 2 weeks before
kel555
in
CLL Support
4 years ago
Scottish Medicines Agency has decided in favour of Venetoclax plus Obintuzumab for some patients.
We have argued forcefully against the health inequalities that are becoming ever more apparent for
FCR
suitable patients but this will be a long battle we fear. Jackie
We have argued forcefully against the health inequalities that are becoming ever more apparent for
FCR
suitable patients but this will be a long battle we fear. Jackie
Jm954
Administrator
in
CLL Support
4 years ago
NHS and CLL coverage: seeking advice
My husband had
FCR
for CLL a year ago and is doing well. Grateful for your advice.
My husband had
FCR
for CLL a year ago and is doing well. Grateful for your advice.
gingerlovesal
in
CLL Support
4 years ago
Introduction
Hello, my wife was diagnosed with Stage 5 CLL in early November and commenced chemotheraphy with
FCR
on 16th November. She will be undergoing 6 cycles of chemo over 6 months. I joined this community as it seems to have excellent resources and a very supportive community.
Hello, my wife was diagnosed with Stage 5 CLL in early November and commenced chemotheraphy with
FCR
on 16th November. She will be undergoing 6 cycles of chemo over 6 months. I joined this community as it seems to have excellent resources and a very supportive community.
Tehtarek
in
CLL Support
4 years ago
Treatment of Reynauds
The only relief I had 18 months ago was when I was receiving
FCR
for my CLL and miraculously my hands were fine. Any one else have Reynauds? Any recommendations? X
The only relief I had 18 months ago was when I was receiving
FCR
for my CLL and miraculously my hands were fine. Any one else have Reynauds? Any recommendations? X
Floxxy
in
CLL Support
4 years ago
Anxiety & Dyskinesia
My wife was first diagnosed about 10 years ago and has been taking Sinemet for about 5 years which has kept her Bradykesia in check and allowed her to live a reasonably normal life. Of late though she has started to experience random short attacks of involuntary and uncontrollable movements of her body
My wife was first diagnosed about 10 years ago and has been taking Sinemet for about 5 years which has kept her Bradykesia in check and allowed her to live a reasonably normal life. Of late though she has started to experience random short attacks of involuntary and uncontrollable movements of her body
thfc1961
in
Cure Parkinson's
3 years ago
Revisiting Ibrutinib , but then no Venetoclax?
I went through
FCR
in 2014 and am now relapsing, so gearing up for the next round ...
I went through
FCR
in 2014 and am now relapsing, so gearing up for the next round ...
Me2AsWell
in
CLL Support
4 years ago
Sinemet CR at bed time
I take Sinemet int release 12.5/50 every 2 hours during the day. I have trouble waking with restless leg and anxiety about 1:00 am. Have taken 25/100 Sinemet at bedtime and make it to 3:00am. What has been the experience of taking a Sinemet CR at bedtime to extend the sleep time ? Thanks for your
I take Sinemet int release 12.5/50 every 2 hours during the day. I have trouble waking with restless leg and anxiety about 1:00 am. Have taken 25/100 Sinemet at bedtime and make it to 3:00am. What has been the experience of taking a Sinemet CR at bedtime to extend the sleep time ? Thanks for your
SGlass
in
Cure Parkinson's
4 years ago
Antibodies test CLL
I was diagnosed in 2013 and had 6 rounds of
FCR
. Would appreciate any advice please. Stay safe.
I was diagnosed in 2013 and had 6 rounds of
FCR
. Would appreciate any advice please. Stay safe.
Ellebele
in
CLL Support
4 years ago
Immediate-Release Versus Controlled-Released Carbidopa-Levodopa
The question of immediate release versus controlled-release carbidopa levodopa is a frequent topic here, so it is high time to have a post specifically addressing this issue. Chart source: https://www.ingentaconnect.com/contentone/ben/ccp/2007/00000002/00000003/art00006?crawler=true With reference
The question of immediate release versus controlled-release carbidopa levodopa is a frequent topic here, so it is high time to have a post specifically addressing this issue. Chart source: https://www.ingentaconnect.com/contentone/ben/ccp/2007/00000002/00000003/art00006?crawler=true With reference
park_bear
in
Cure Parkinson's
4 years ago
NICE approves venetoclax with obinutuzumab for patients with untreated CLL
This recommendation also gives access to CLL patients who would otherwise be suitable for the
FCR
or bendamustine and rituximab (BR). Access for this group is being funded through the Cancer Drugs Fund (CDF).
This recommendation also gives access to CLL patients who would otherwise be suitable for the
FCR
or bendamustine and rituximab (BR). Access for this group is being funded through the Cancer Drugs Fund (CDF).
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
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