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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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FCR Cycle 4 (For CLL) - Itchy Rash
I have just finished cycle 4 of my 6 cycle
FCR
treatment after being on 8-9 years W&W. I am on the FLAIR trial, but got randomly sorted into the current treatment.
I have just finished cycle 4 of my 6 cycle
FCR
treatment after being on 8-9 years W&W. I am on the FLAIR trial, but got randomly sorted into the current treatment.
Rich316
in
CLL Support
7 years ago
IVIG Infusions
Hi, I am four years post
FCR
and have been suffering with lingering coughs following winter colds. At the end of last year i developed pneumonia following a cold in November.
Hi, I am four years post
FCR
and have been suffering with lingering coughs following winter colds. At the end of last year i developed pneumonia following a cold in November.
Colnegirl
in
CLL Support
7 years ago
Fitness during and after FCR treatment
I now find myself, next week, requiring a 6 x 1month treatment with
FCR
. Can anyone help me please with future expectations regarding fitness? I don't know how the drugs will effect me during treatment or the future! Kind regards, Robbie
I now find myself, next week, requiring a 6 x 1month treatment with
FCR
. Can anyone help me please with future expectations regarding fitness? I don't know how the drugs will effect me during treatment or the future! Kind regards, Robbie
rsw147
in
CLL Support
7 years ago
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11q hope
11q (16%) unmutated young and fit started
FCR
11q (16%) unmutated young and fit started
FCR
Hidden
in
CLL Support
7 years ago
Post-inactivity muscle pain when walking.
I had chemo (
FCR
) in 2015 and tomorrow my chest infection will be 1 year old - I've baked it a Birthday cake (any excuse).
I had chemo (
FCR
) in 2015 and tomorrow my chest infection will be 1 year old - I've baked it a Birthday cake (any excuse).
snowdroprose
in
CLL Support
7 years ago
11q CLL FCR hope
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5111525/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5111525/
Hidden
in
CLL Support
7 years ago
Atrial fibrillation on Imbruvica
Had three rounds of
FCR
, remission, on Imbruvica since. doing OK.
Had three rounds of
FCR
, remission, on Imbruvica since. doing OK.
Lenny123
in
CLL Support
7 years ago
After Ibrutinib failure, lymphocytes up again. Maybe another trial with Idealisib
(insurance would also be an issue) SO I guess I would have to accept
FCR
instead..... I know there are other new treatments, Venetoclax and Acalabrutinib for example, but not available on NHS. Any thoughts, dear CLL chums? Merry Xmas and bon courage to all.
(insurance would also be an issue) SO I guess I would have to accept
FCR
instead..... I know there are other new treatments, Venetoclax and Acalabrutinib for example, but not available on NHS. Any thoughts, dear CLL chums? Merry Xmas and bon courage to all.
romarin
in
CLL Support
7 years ago
Daughter of Newly Diagnosed CLL Patient - 3 Weeks Until Chemotherapy - Any information greatly appreciated!
6) If he is non-mutated, should I be advocating strongly for treatment other than
FCR
(if that is what his doctor recommends) despite his age and generally good physical fitness?
6) If he is non-mutated, should I be advocating strongly for treatment other than
FCR
(if that is what his doctor recommends) despite his age and generally good physical fitness?
LaurenM427
in
CLL Support
7 years ago
FCR/UNmutated IGVH
Any unmutated IGVH fellow CLLers out there ever do
FCR
as frontline? I ask please for responses to this direct question...not commentary on the topic in general. Thanks!
Any unmutated IGVH fellow CLLers out there ever do
FCR
as frontline? I ask please for responses to this direct question...not commentary on the topic in general. Thanks!
YjbCLL
in
CLL Support
7 years ago
IBRUTINIB - for 21 months, now stopped
After
FCR
failure, I was put on Ibrutinib. This did its work and I was on the miracle drug for 21 months. Then suddenly my kidney function deteriorated dramatically and my blood calcium level became raised so my CLL consultant took me off Ibrutinib in June (bloods normal at that stage).
After
FCR
failure, I was put on Ibrutinib. This did its work and I was on the miracle drug for 21 months. Then suddenly my kidney function deteriorated dramatically and my blood calcium level became raised so my CLL consultant took me off Ibrutinib in June (bloods normal at that stage).
Haileybury
in
CLL Support
7 years ago
How remission is decided...
I saw my consultant last week, 2 weeks after completing 6 rounds of
FCR
. He is delighted with the scan results post round 4 and has said they are as near to normal as they could be. He is repeating the ct scan in Feb after I have recovered from the chrmo in order to have a new baseline.
I saw my consultant last week, 2 weeks after completing 6 rounds of
FCR
. He is delighted with the scan results post round 4 and has said they are as near to normal as they could be. He is repeating the ct scan in Feb after I have recovered from the chrmo in order to have a new baseline.
Bethan49
in
CLL Support
7 years ago
MRD Negative in the Bone Marrow - clinical trial update
Had
FCR
in 2013 and relapsed fairly quickly and started this trial in Oct 2015. I blogged, which I must update - it's www.abtandme.com. Best wishes to all Deb
Had
FCR
in 2013 and relapsed fairly quickly and started this trial in Oct 2015. I blogged, which I must update - it's www.abtandme.com. Best wishes to all Deb
Debinoz
in
CLL Support
7 years ago
Molecular remission after 6 rounds of FCR
Glad to report that after finishing 6 rounds of F C R and waiting 6 weeks to have bone marrow tested and CT scans done, I have been told I am in molecular remission for my CLL.. Happy days are here again. Keep a positive attitude and G d willing I live many more years
Glad to report that after finishing 6 rounds of F C R and waiting 6 weeks to have bone marrow tested and CT scans done, I have been told I am in molecular remission for my CLL.. Happy days are here again. Keep a positive attitude and G d willing I live many more years
ucallihaul
in
CLL Support
7 years ago
Low phosphate levels
just completed round 1 of
FCR
,and so far so good!! The only worry is low phosphate levels? Anyone else had this and any problems associated with this , as far as I understand it could be kidney related?
just completed round 1 of
FCR
,and so far so good!! The only worry is low phosphate levels? Anyone else had this and any problems associated with this , as far as I understand it could be kidney related?
Megellen
in
CLL Support
7 years ago
Painful scalp during chemo
I have now had 4 cycles of
FCR
and although my hair is thinning a lot (fortunately I had very thick hair to start with) , I haven't actually lost it. However, I have very painful patches on my scalp & wondered if anyone has any remedies for this.
I have now had 4 cycles of
FCR
and although my hair is thinning a lot (fortunately I had very thick hair to start with) , I haven't actually lost it. However, I have very painful patches on my scalp & wondered if anyone has any remedies for this.
Grannajan
in
CLL Support
7 years ago
Disappointing day...
As you may know, my husband went through 6 treatments
FCR
ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year.
As you may know, my husband went through 6 treatments
FCR
ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year.
jules_c
in
CLL Support
7 years ago
I rang that bell loud and clear ... Then breathed. FCR over!
A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of
Fcr
. The chair was comfortable and the nurse warm and reassuring...I was on an unatural high! Very excitable !
A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of
Fcr
. The chair was comfortable and the nurse warm and reassuring...I was on an unatural high! Very excitable !
Bethan49
in
CLL Support
7 years ago
Carry on CLLERS go dating...With Bethan and Nic!
13.I don't like it up the bmb 14.Nice canula you've got 15.You're so vein 16.I don't half
FCR
17.Not tonight darling, I've chemo mingus HAPPY CHRISTMAS EVERYONE! KEEP THEM COMING!
13.I don't like it up the bmb 14.Nice canula you've got 15.You're so vein 16.I don't half
FCR
17.Not tonight darling, I've chemo mingus HAPPY CHRISTMAS EVERYONE! KEEP THEM COMING!
Bethan49
in
CLL Support
7 years ago
FCR and nausea
Hello fellow CLLERS, I have just finished round 2 of
FCR
. First round I had horrendous nausea so bad I couldn't sleep for days. This round they gave me Emend but the unfortunate side effect was severe constipation.
Hello fellow CLLERS, I have just finished round 2 of
FCR
. First round I had horrendous nausea so bad I couldn't sleep for days. This round they gave me Emend but the unfortunate side effect was severe constipation.
Kenn123
in
CLL Support
7 years ago
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