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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Questions for consultant?
Started
FCR
Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression but was told healthy bone marrow was compensating.
Started
FCR
Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression but was told healthy bone marrow was compensating.
AntonMB
in
CLL Support
6 years ago
Hello my name is Donna. 56 yrs old, CLL diagnosis 2002, started FCR in Jan.
I was looking online for info on neurological side effects of
FCR
because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect?
I was looking online for info on neurological side effects of
FCR
because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect?
Hidden
in
CLL Support
6 years ago
Second day of first FCR
So second dose of
FCR
with the long dose of Rituximab. Got a bit hot and tired at the end, but no nausea or other nastiness and felt fine since. Even managed a quorn shepherds pie after, though it’s lying like a stone on my tummy now!
So second dose of
FCR
with the long dose of Rituximab. Got a bit hot and tired at the end, but no nausea or other nastiness and felt fine since. Even managed a quorn shepherds pie after, though it’s lying like a stone on my tummy now!
Mandy56
in
CLL Support
6 years ago
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Starting FCR on Monday
After lots of ups and downs, I am on the FLAIR trial and starting
FCR
on Monday. I’ve tapped into a wealth of advice here, but would welcome any pearls of wisdom anyone can offer. I do have a question though - does the treatment get worse the longer into it you go?
After lots of ups and downs, I am on the FLAIR trial and starting
FCR
on Monday. I’ve tapped into a wealth of advice here, but would welcome any pearls of wisdom anyone can offer. I do have a question though - does the treatment get worse the longer into it you go?
Mandy56
in
CLL Support
6 years ago
What should I ask?
I have list of questions if they recommend
FCR
chemo and list if it's ibrutinib ( both were mentioned at last months consultation) or trial. Would appreciate any input. Maybe you will have something I didn't think of. Also when treatment was time for you to start, were you ever given a choice?
I have list of questions if they recommend
FCR
chemo and list if it's ibrutinib ( both were mentioned at last months consultation) or trial. Would appreciate any input. Maybe you will have something I didn't think of. Also when treatment was time for you to start, were you ever given a choice?
GMa27
in
CLL Support
6 years ago
What is the best first-line treatment combination for CLL?
In summary we know that
FCR
is a very good treatment for some.
In summary we know that
FCR
is a very good treatment for some.
AdrianUK
in
CLL Support
6 years ago
Zarzio shots causing severe horrendous pain- any proven help for muscle and bone issues?
The
FCR
didn’t work on me and nodes are rapidly growing back fiercely . Having 4th biopsy tomorrow to check genetics and mutations and see second line of treatment options . I hate this disease !
The
FCR
didn’t work on me and nodes are rapidly growing back fiercely . Having 4th biopsy tomorrow to check genetics and mutations and see second line of treatment options . I hate this disease !
Luckyliss
in
CLL Support
6 years ago
Night sweats are back
Finished 6 rounds of
FCR
last May. Follow-ups have been good and I feel good but over the past couple of weeks the night sweats have returned. Contacting my Onc. today but how worried should I be?
Finished 6 rounds of
FCR
last May. Follow-ups have been good and I feel good but over the past couple of weeks the night sweats have returned. Contacting my Onc. today but how worried should I be?
cwturley
in
CLL Support
6 years ago
My Sinemet CR plus IR protocol
I take one 50/200 CR plus one half of 25/100 IR every 4 hours. Also, amantadine, 100 mg twice per day. Also, 10 mg methylphenidate once per day. The CR + IR at 2,6,10 am and 2,6,10 pm. I am still in a rehab facility wherein pd meds and meals -served times are almost always in conflict. 7.45 am and 11.45
I take one 50/200 CR plus one half of 25/100 IR every 4 hours. Also, amantadine, 100 mg twice per day. Also, 10 mg methylphenidate once per day. The CR + IR at 2,6,10 am and 2,6,10 pm. I am still in a rehab facility wherein pd meds and meals -served times are almost always in conflict. 7.45 am and 11.45
aspergerian
in
Cure Parkinson's
6 years ago
Chemo
I’m getting
FCR
. Oral and injected courses. CT scan coming too. My question is. For those of you who dine this treatment what where the side effects? Did you manage to work during the treatment?
I’m getting
FCR
. Oral and injected courses. CT scan coming too. My question is. For those of you who dine this treatment what where the side effects? Did you manage to work during the treatment?
Flabal
in
CLL Support
6 years ago
CLL and sinusitis
I have since had
FCR
and feel great. Over the last 12 months, my platelet count has dropped and I have had 2 bouts of sinusitis. Does anyone else have experience of this? Anyone got any advice or do I keep battling on?!
I have since had
FCR
and feel great. Over the last 12 months, my platelet count has dropped and I have had 2 bouts of sinusitis. Does anyone else have experience of this? Anyone got any advice or do I keep battling on?!
hammyj
in
CLL Support
6 years ago
New here!
Hi all! Diagnosed in 2013, with FXTAS, that's fragile X tremor/ataxia syndrome. The characteristic features of FXTAS are intention tremor, which is trembling or shaking of a limb when trying to perform a voluntary movement such as reaching for an object,and problems with coordination and balance (
Hi all! Diagnosed in 2013, with FXTAS, that's fragile X tremor/ataxia syndrome. The characteristic features of FXTAS are intention tremor, which is trembling or shaking of a limb when trying to perform a voluntary movement such as reaching for an object,and problems with coordination and balance (
tellme
in
Cure Parkinson's
6 years ago
Still neutropenic 5 months post FCR :-(
Hi all I am wondering if anyone else who has been through the
FCR
regime has had issues with neutropenia for such a lengthy period of time, post chemo. It's really getting me down now.
Hi all I am wondering if anyone else who has been through the
FCR
regime has had issues with neutropenia for such a lengthy period of time, post chemo. It's really getting me down now.
Sucee
in
CLL Support
6 years ago
The unspeakable bowel issues after chemo..... Do you ever get back to normal? From Beth, Nic, Del, and sue... And Maria
Fcr
to be specific. So.. 1. Very loose..... 2. When you have to go, YOU HAVE TO GO! 3. YOU GO MORE... UP TO 5 TIMES A DAY! 4.COLOUR RANGE.. A BROAD SPECTRUM... AUTUMNAL COLOURS! 5. NO WEIGHT LOSS DESPITE MORE COMING OUT OF BODY THAN PUTTING IN!
Fcr
to be specific. So.. 1. Very loose..... 2. When you have to go, YOU HAVE TO GO! 3. YOU GO MORE... UP TO 5 TIMES A DAY! 4.COLOUR RANGE.. A BROAD SPECTRUM... AUTUMNAL COLOURS! 5. NO WEIGHT LOSS DESPITE MORE COMING OUT OF BODY THAN PUTTING IN!
Bethan49
in
CLL Support
6 years ago
Treatment for unmutated ighv
My husband is preparing to begin
FCR
treatment. His WBC is 200k, all other numbers below normal. Anyone experienced this treatment who has the unmutated gene? Thank you!
My husband is preparing to begin
FCR
treatment. His WBC is 200k, all other numbers below normal. Anyone experienced this treatment who has the unmutated gene? Thank you!
Hidden
in
CLL America Support
6 years ago
Evidence used for my decision process with (IMO)
A few weeks later when I did my first
FCR
, my dropped 90% to near normal, about 9k. The director of oncology said he was impressed.
A few weeks later when I did my first
FCR
, my dropped 90% to near normal, about 9k. The director of oncology said he was impressed.
Robgump
in
CLL Support
6 years ago
Evidence used for my decision process with (IMO)
A few weeks later when I did my first
FCR
, my dropped 90% to near normal, about 9k. The director of oncology said he was impressed.
A few weeks later when I did my first
FCR
, my dropped 90% to near normal, about 9k. The director of oncology said he was impressed.
Robgump
in
CLL Support
6 years ago
Evidence used for my decision process with (IMO)
A few weeks later when I did my first
FCR
, my dropped 90% to near normal, about 9k. The director of oncology said he was impressed.
A few weeks later when I did my first
FCR
, my dropped 90% to near normal, about 9k. The director of oncology said he was impressed.
Robgump
in
CLL Support
6 years ago
48 months after last FCR Treatment!
For almost four years I finished my 6th cycle of
FCR
. Afterwards my blood showed MRD neg. my blood counts improved rapidly after treatment and all the years my counts were excellent. My condition and health feeling was great, sometimes better than before treatment.
For almost four years I finished my 6th cycle of
FCR
. Afterwards my blood showed MRD neg. my blood counts improved rapidly after treatment and all the years my counts were excellent. My condition and health feeling was great, sometimes better than before treatment.
seoul
in
CLL Support
6 years ago
Evidence used for my decision process with (IMO)
A few weeks later when I did my first
FCR
, my dropped 90% to near normal, about 9k. The director of oncology said he was impressed.
A few weeks later when I did my first
FCR
, my dropped 90% to near normal, about 9k. The director of oncology said he was impressed.
Robgump
in
CLL Support
6 years ago
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