Search
Search
About
Log in
Join
Experiences with
Dyskinesia
Posts
Communities
906 public posts
Filter results
Check out this article
Restoring ciliary function to differentiated primary ciliary
dyskinesia
cells with a lentiviral vector http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4124007/
Restoring ciliary function to differentiated primary ciliary
dyskinesia
cells with a lentiviral vector http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4124007/
fcfilice
in
PCD Family Support Group (UK)
8 years ago
URIDINE: Why LD/CD Users Should Consider It
*ATTENTION should be paid to Carbidopa/Benserazide and their irreversible, potentially lethal bond with pyridoxal 5'-phosphate. Note the following excerpt from a Oct,2014 PubMed abstract regarding (PLP) the active form of vitamin B6: "Both drugs irreversibly bind to and permanently deactivate pyridoxal
*ATTENTION should be paid to Carbidopa/Benserazide and their irreversible, potentially lethal bond with pyridoxal 5'-phosphate. Note the following excerpt from a Oct,2014 PubMed abstract regarding (PLP) the active form of vitamin B6: "Both drugs irreversibly bind to and permanently deactivate pyridoxal
whack-a-mole
in
Cure Parkinson's
8 years ago
PositiveSam
Hi all, ive been diagnosed about 3 years now. I'm taking azilect 1 mg tablets and mirapexin 0.52 mg. finding sleeping can be biggest issue. Especially if I'm late taking medicin. I play tennis every day even twice. I try to carry on as normal.
Hi all, ive been diagnosed about 3 years now. I'm taking azilect 1 mg tablets and mirapexin 0.52 mg. finding sleeping can be biggest issue. Especially if I'm late taking medicin. I play tennis every day even twice. I try to carry on as normal.
Angelo65
in
Cure Parkinson's
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Parkinson's and Exercise question
Advice from the experts. I have a question regarding exercise and parkinson’s. I read everywhere how good exercise is for people with parkinson’s. Every time I start exercising for a few days, my symptoms get worse and it appears to me anyway that the disease appears to progress. I will get new symptoms
Advice from the experts. I have a question regarding exercise and parkinson’s. I read everywhere how good exercise is for people with parkinson’s. Every time I start exercising for a few days, my symptoms get worse and it appears to me anyway that the disease appears to progress. I will get new symptoms
talan001
in
Cure Parkinson's
8 years ago
Nose bleeds
Has anyone had nosebleeds with Parkinsons? I bleed very little but I am not sure if it is related to the disease or its medications I am currently taking Sinemet, Amantadine and siliguine (probably spelled it wrong ) thank you!
Has anyone had nosebleeds with Parkinsons? I bleed very little but I am not sure if it is related to the disease or its medications I am currently taking Sinemet, Amantadine and siliguine (probably spelled it wrong ) thank you!
Hoffman123
in
Cure Parkinson's
8 years ago
Moved to the UK, any PCD specialists?
Hello guys, Let me start by introducing myself. I'm a 23 year old Canadian with Kartagener's. I'm a Radiographer, currently working in Newcastle. I was diagnosed at the age of 3-4 and been fine ever since. Im pretty active and I've been doing chest physio and nebulizers my whole life. (I no longer do
Hello guys, Let me start by introducing myself. I'm a 23 year old Canadian with Kartagener's. I'm a Radiographer, currently working in Newcastle. I was diagnosed at the age of 3-4 and been fine ever since. Im pretty active and I've been doing chest physio and nebulizers my whole life. (I no longer do
JDFarina
in
PCD Family Support Group (UK)
8 years ago
“emergency room” PT 2 - amantadine, benadryl and tremor dominant prognosis
I have just returned from second visit to my neuro in three weeks. I want to update my fellow parkies and especially those that have been following my adventure. After three years no drugs, I recently experienced trial run (about 1 month) let’s say of first sinemet and then, after stopping sinemet
I have just returned from second visit to my neuro in three weeks. I want to update my fellow parkies and especially those that have been following my adventure. After three years no drugs, I recently experienced trial run (about 1 month) let’s say of first sinemet and then, after stopping sinemet
Hidden
in
Cure Parkinson's
8 years ago
medication and herbal remedies?
Hey guys, sorry for this post, its most likely been done before loads of times just wanted to check if my dad is on the right meds, or if there is anything he could be taking to help at the moment he takes; stalevo 200/50/200 amantadine 100mg rotigotine patches 8mg and has anyone tried any herbal
Hey guys, sorry for this post, its most likely been done before loads of times just wanted to check if my dad is on the right meds, or if there is anything he could be taking to help at the moment he takes; stalevo 200/50/200 amantadine 100mg rotigotine patches 8mg and has anyone tried any herbal
Mustafa128h
in
PSP Association
8 years ago
Seminars on dyskinesia?
Has there been any feedback on recent seminars on
dyskinesia
? I understand there was to be a Michael J. Fox sponsored webinar in January and also a conference in South Africa.
Has there been any feedback on recent seminars on
dyskinesia
? I understand there was to be a Michael J. Fox sponsored webinar in January and also a conference in South Africa.
Joanne_Joyce
in
Cure Parkinson's
8 years ago
DBS
I had DBS this fall 9/2015 I had real positive 'improvement before it was turned on in Oct. I had less shaking, could roll over in bed had great stamina. Dr. turned it on and turned way up it contorted my face now I have trouble speaking clearly but have cut my sinemet in half. I have more shaking
I had DBS this fall 9/2015 I had real positive 'improvement before it was turned on in Oct. I had less shaking, could roll over in bed had great stamina. Dr. turned it on and turned way up it contorted my face now I have trouble speaking clearly but have cut my sinemet in half. I have more shaking
adkseaman
in
Cure Parkinson's
8 years ago
Help pain for 3 years
I'm 69 been diagnosed 8 years I'm on 4 250/25 a day and 4 comtan a day The problem is I have excruciating in spasms after taking the medication which can last up to 2 hours I was told by a gp they are off periods The pain is so bad I'm off endone and I take panadol osteo The more stressed the worse
I'm 69 been diagnosed 8 years I'm on 4 250/25 a day and 4 comtan a day The problem is I have excruciating in spasms after taking the medication which can last up to 2 hours I was told by a gp they are off periods The pain is so bad I'm off endone and I take panadol osteo The more stressed the worse
Shol
in
Cure Parkinson's
8 years ago
carbidopa levodopa vs. coconut oil
I started taking carbidopa levodopa one week ago. My first medicine. Tremors did not stop all week. Yesterday I consumed two tblsp coconut oil once at lunch time and again at dinner time. By evening my tremors stopped and stayed stopped through the night. Was it the CO or the C/L? Was it a placebo effect
I started taking carbidopa levodopa one week ago. My first medicine. Tremors did not stop all week. Yesterday I consumed two tblsp coconut oil once at lunch time and again at dinner time. By evening my tremors stopped and stayed stopped through the night. Was it the CO or the C/L? Was it a placebo effect
Hidden
in
Cure Parkinson's
8 years ago
Dyskinesia Webinar
Our January webinar will focus on
dyskinesia
, involuntary movements that arise with levodopa use as Parkinson's progresses. Our panelists will discuss the current management of
dyskinesia
and new therapies in development.
Our January webinar will focus on
dyskinesia
, involuntary movements that arise with levodopa use as Parkinson's progresses. Our panelists will discuss the current management of
dyskinesia
and new therapies in development.
Hidden
in
Cure Parkinson's
8 years ago
Hope for preventing dyskinesia
New Strategy Reduces Side Effects in Parkinson’s Treatment December 10, 2015 Uncontrolled movements dramatically reduced with novel drug lead CHICAGO — In an international study, Northwestern Medicine scientists and colleagues have identified a novel strategy for reducing the side effects of uncontrolled
New Strategy Reduces Side Effects in Parkinson’s Treatment December 10, 2015 Uncontrolled movements dramatically reduced with novel drug lead CHICAGO — In an international study, Northwestern Medicine scientists and colleagues have identified a novel strategy for reducing the side effects of uncontrolled
Joanne_Joyce
in
Cure Parkinson's
8 years ago
Levodopa Equivalent Dose App
Many of us take a complicated mixture of different types of Parkinson's drugs, with different doses, at different times. The concept of LED (levodopa equivalent dose) gives a rough way to compare two medication regimes. For instance, 8mg of ropinirole has, very roughly, about the same effect as 160mg
Many of us take a complicated mixture of different types of Parkinson's drugs, with different doses, at different times. The concept of LED (levodopa equivalent dose) gives a rough way to compare two medication regimes. For instance, 8mg of ropinirole has, very roughly, about the same effect as 160mg
johntPM
in
Cure Parkinson's
8 years ago
Genetic research into rare lung conditions
The research is looking at some of the less common lung conditions (they’re looking for people with non-CF bronchiectasis, interstitial lung disease, vascular lung disease and primary ciliary
dyskinesia
in particular). Also there are centres taking part all over the country.
The research is looking at some of the less common lung conditions (they’re looking for people with non-CF bronchiectasis, interstitial lung disease, vascular lung disease and primary ciliary
dyskinesia
in particular). Also there are centres taking part all over the country.
BethanyBateman
in
Lung Conditions Community Forum
8 years ago
Rytary
I have been very fortunate in that I do not have
dyskinesia
symptoms unless I over-med. My symptoms are mostly freezing issues.
I have been very fortunate in that I do not have
dyskinesia
symptoms unless I over-med. My symptoms are mostly freezing issues.
annmariebaird
in
Cure Parkinson's
9 years ago
Combatting dyskinesias
There was a period of about two weeks when I decided to bike in the evenings instead of the mornings and during that period I wondered why my
dyskinesia
was so bad during the day. But when I resumed my exercise in the mornings I was almost
dyskinesia
free again during the day.
There was a period of about two weeks when I decided to bike in the evenings instead of the mornings and during that period I wondered why my
dyskinesia
was so bad during the day. But when I resumed my exercise in the mornings I was almost
dyskinesia
free again during the day.
Joanne_Joyce
in
Cure Parkinson's
9 years ago
Spinal stonesis
I was diagnosed with Parkinson's about 17 months ago. My main problem is my balance. I do have tremors occasionally. I recently went to a new neurologist and he told me my balance issue is caused by spinal stenosis . Has anyone' in this group been diagnosed with that also.? I take Mirapex, Sinemet and
I was diagnosed with Parkinson's about 17 months ago. My main problem is my balance. I do have tremors occasionally. I recently went to a new neurologist and he told me my balance issue is caused by spinal stenosis . Has anyone' in this group been diagnosed with that also.? I take Mirapex, Sinemet and
tobykeith
in
Cure Parkinson's
9 years ago
Dyskinesia Trial
My sister and I were today invited to participate in a month long medication trial for
Dyskinesia
, I don't qualify as I don't 'squirm' :) So Jenny will have to go alone. She has participated in two trials, and says they are like rest holidays with benefits! I'll share any info I get on this!
My sister and I were today invited to participate in a month long medication trial for
Dyskinesia
, I don't qualify as I don't 'squirm' :) So Jenny will have to go alone. She has participated in two trials, and says they are like rest holidays with benefits! I'll share any info I get on this!
Blue-jeans
in
Cure Parkinson's
9 years ago
1
...
37
38
39
...
46
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
800 results
PSP Association
29 results
PCD Family Support Group (UK)
13 results
View top 10 communities
Sort by
Most Relevant
Newest