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Dyskinesia
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Change of Meds
Hi beautiful people! My mum is in the hospital. They think she has somatization issues and that she is making up her symptoms. They say she can move she just doesn't want to. I trust my mom and she said that when they changed her meds from carbadopa levodopa to Mirapex, it's like the stiffness increased
Hi beautiful people! My mum is in the hospital. They think she has somatization issues and that she is making up her symptoms. They say she can move she just doesn't want to. I trust my mom and she said that when they changed her meds from carbadopa levodopa to Mirapex, it's like the stiffness increased
ElizabethDavis50
in
Cure Parkinson's
7 years ago
Living with PCD
And 6 years ago I was diagnosed with Secondary Ciliary
Dyskinesia
. My whole childhood I couldn't do what other kids could. I was constantly sick, I switched inhalers, and started taking allergy medication at a young age.
And 6 years ago I was diagnosed with Secondary Ciliary
Dyskinesia
. My whole childhood I couldn't do what other kids could. I was constantly sick, I switched inhalers, and started taking allergy medication at a young age.
GwenVG
in
PCD Family Support Group (UK)
7 years ago
Protective qualities of Uridine
It combats
dyskinesia
in theory but I can't remember the practical aspects of the research i.e was it on rats? In Vivo? Etc. I take 250mg daily butt have read that it's power is amplified by taking under the tongue.
It combats
dyskinesia
in theory but I can't remember the practical aspects of the research i.e was it on rats? In Vivo? Etc. I take 250mg daily butt have read that it's power is amplified by taking under the tongue.
jeeves19
in
Cure Parkinson's
7 years ago
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Pantothenic acid deficiency may be the cause of Parkinsons
Nervous System - Psychomotor delay - Extrapyramidal syndrome - Involuntary movements - Gait abnormalities - Walking on toes - Corticospinal signs (87% of patients in 1 report) - Ataxia - Choreoathetosis - Dystonia - Motor 'tics' - Difficulty writing - Rigidity - Parkinsonism - Orofacial
dyskinesia
Nervous System - Psychomotor delay - Extrapyramidal syndrome - Involuntary movements - Gait abnormalities - Walking on toes - Corticospinal signs (87% of patients in 1 report) - Ataxia - Choreoathetosis - Dystonia - Motor 'tics' - Difficulty writing - Rigidity - Parkinsonism - Orofacial
dyskinesia
John112233
in
Cure Parkinson's
7 years ago
Timing of meds
Stupid question: are we supposed to wait until the
dyskinesia
passes before taking our next dose? or plunge ahead according to the clock?
Stupid question: are we supposed to wait until the
dyskinesia
passes before taking our next dose? or plunge ahead according to the clock?
Beckey
in
Cure Parkinson's
7 years ago
Holding Out
I held out for 6 years. My poor old school but good man neurologist thought I was taking them. I was in a quandry because I needed some meds in 2016 but needed the lower starting doses that he put me on years back in 2013 and an up to date review. Diagnosed in 2010 btw. So he retired suddenly. I went
I held out for 6 years. My poor old school but good man neurologist thought I was taking them. I was in a quandry because I needed some meds in 2016 but needed the lower starting doses that he put me on years back in 2013 and an up to date review. Diagnosed in 2010 btw. So he retired suddenly. I went
NvaGivUp
in
Cure Parkinson's
7 years ago
amantadine . coconut oil & parkinson?
hello.i diagnosed with parkinson from 6 years and now im suffering from tremor and slow movment im on mirapex and sinemet i heard that amantadine is good for sinemet induced
dyskinesia
wich appear up to 1 hour after taking my dose is there an intreactions between mirapex and amantadine .does amantadine
hello.i diagnosed with parkinson from 6 years and now im suffering from tremor and slow movment im on mirapex and sinemet i heard that amantadine is good for sinemet induced
dyskinesia
wich appear up to 1 hour after taking my dose is there an intreactions between mirapex and amantadine .does amantadine
jack-carpenter
in
Cure Parkinson's
7 years ago
FREE WEBINAR TONIGHT!
Participate in a live webinar As part of Primary Ciliary
Dyskinesia
Week at the ATS, and in conjunction with PAR partner, the PCD Foundation, the ATS will present a live webinar on Tues, Oct 10th @ 2:00 pm ET.
Participate in a live webinar As part of Primary Ciliary
Dyskinesia
Week at the ATS, and in conjunction with PAR partner, the PCD Foundation, the ATS will present a live webinar on Tues, Oct 10th @ 2:00 pm ET.
N123
in
PCD Family Support Group (UK)
7 years ago
15 Years on Mirapex
I just found you yesterday. My name is Marcia, I am now 66, and I have had symptoms since 1997, but took until 2003 to get dx. It was a long, embarrassing process. Have taken Mirapex, then Mirapex ER the entire time. Also, Amantadine . I am an oddity. No one even notices. Few tremors. No shuffle
I just found you yesterday. My name is Marcia, I am now 66, and I have had symptoms since 1997, but took until 2003 to get dx. It was a long, embarrassing process. Have taken Mirapex, then Mirapex ER the entire time. Also, Amantadine . I am an oddity. No one even notices. Few tremors. No shuffle
Marcia1951
in
Cure Parkinson's
7 years ago
Nervous
Today has been odd to say the least. Typically I take 3-4 Ext Rls C/L, 2 Amantadine and maybe throw in 1 imm rls c/l... My last dose of any c/l was at 1:30 yesterday ( Thursday nov 2) ?!?!? By 3 pm after that dose , I was super on. My toes & left leg were screaming by 6:30pm Now here I am Friday nov
Today has been odd to say the least. Typically I take 3-4 Ext Rls C/L, 2 Amantadine and maybe throw in 1 imm rls c/l... My last dose of any c/l was at 1:30 yesterday ( Thursday nov 2) ?!?!? By 3 pm after that dose , I was super on. My toes & left leg were screaming by 6:30pm Now here I am Friday nov
Cbgs
in
Cure Parkinson's
7 years ago
From 2014 says the jury is not in
maybe somebody has something more recent or more authoritative? " ... although there has been ongoing debate regarding the effect of L-dopa on neurons in PD patients. Some believe that treatment of PD patients with L-dopa potentially promotes neurodegeneration owing to the production of free radicals
maybe somebody has something more recent or more authoritative? " ... although there has been ongoing debate regarding the effect of L-dopa on neurons in PD patients. Some believe that treatment of PD patients with L-dopa potentially promotes neurodegeneration owing to the production of free radicals
MBAnderson
in
Cure Parkinson's
7 years ago
Michael J Fox dyskinesia gone?
When I was at the supermarket in line I saw a magazine that claimed he was cured , inside it's not a cure but he is quoted as saying he "stumbled" upon a new combination of medications that greatly reduced his
dyskinesia
.
When I was at the supermarket in line I saw a magazine that claimed he was cured , inside it's not a cure but he is quoted as saying he "stumbled" upon a new combination of medications that greatly reduced his
dyskinesia
.
ConnieD
in
Cure Parkinson's
7 years ago
B1, Dose, Results
Here is a recent study that suggests low dose MP may be as good or better than prescription levadopa/benserazide which is typically prescribed for people with PD, but MP does not have the
dyskinesia
side effects that prescription levadopa/benserazide can have in some patients.
Here is a recent study that suggests low dose MP may be as good or better than prescription levadopa/benserazide which is typically prescribed for people with PD, but MP does not have the
dyskinesia
side effects that prescription levadopa/benserazide can have in some patients.
Hidden
in
Cure Parkinson's
7 years ago
Primary ciliary dyskinesia: mechanisms and management
A research paper outlining mechanism and management of PCD. http://bit.ly/2hNUkYX Happy readings x
A research paper outlining mechanism and management of PCD. http://bit.ly/2hNUkYX Happy readings x
N123
in
PCD Family Support Group (UK)
7 years ago
Better to Start Meds Earlier or Later
Is it most important to add a form of L Dopa to the brain in order to stop further neurodegeneration by dopamine's absence (which could mean taking Mucuna Pruriens or Sinemet) OR is it better to try not to take it too early to avoid the wear off and dyskinesias (with the Sinemet). Much Appreciation,
Is it most important to add a form of L Dopa to the brain in order to stop further neurodegeneration by dopamine's absence (which could mean taking Mucuna Pruriens or Sinemet) OR is it better to try not to take it too early to avoid the wear off and dyskinesias (with the Sinemet). Much Appreciation,
SKCW
in
Cure Parkinson's
7 years ago
Best time to take ...
Hi. I’m a Parkinson’s patient and have been Rx’ed Azilect 1mg and Mirapex ER 2.25 mg. The question is: What is the best time to take each, AM or PM? Thanks!
Hi. I’m a Parkinson’s patient and have been Rx’ed Azilect 1mg and Mirapex ER 2.25 mg. The question is: What is the best time to take each, AM or PM? Thanks!
JuanMa
in
Cure Parkinson's
7 years ago
One of the best articles I have seen on sinemet and its side effects. It covers it all and explains it. Also requip and mirapex
http://mentalhealthdaily.com/2016/02/11/sinemet-carbidopa-levodopa-side-effects-adverse-reactions-list/ At the end of the article there's a link for the same kind of information on requip and mirapex
http://mentalhealthdaily.com/2016/02/11/sinemet-carbidopa-levodopa-side-effects-adverse-reactions-list/ At the end of the article there's a link for the same kind of information on requip and mirapex
parkie13
in
Cure Parkinson's
7 years ago
Let me introduce myself.
I had never experienced freezing or
dyskinesia
up until the last 3 years. •I find myself having more frequent melt-downs lately, and episodes of overreacting. More mood swings, too. I’ve read that this isn’t uncommon as PD progresses.
I had never experienced freezing or
dyskinesia
up until the last 3 years. •I find myself having more frequent melt-downs lately, and episodes of overreacting. More mood swings, too. I’ve read that this isn’t uncommon as PD progresses.
BLinNJ
in
Cure Parkinson's
7 years ago
Primary ciliary dyskinesia: Myths and realities
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2606071/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2606071/
N123
in
PCD Family Support Group (UK)
7 years ago
can we provide Soda or soft drinks to Parkinson patients
My father is suffering from ParkinsonD from last 10 - 12 yrs , presently he is taken approx. 700mg of levodopa & carbidopa. some time he behave normal after taken a medicine and some time not. when I saw a report on soft drink, on that report, on that report say soda or cold drinks release a dopamine
My father is suffering from ParkinsonD from last 10 - 12 yrs , presently he is taken approx. 700mg of levodopa & carbidopa. some time he behave normal after taken a medicine and some time not. when I saw a report on soft drink, on that report, on that report say soda or cold drinks release a dopamine
rishiraj09
in
Cure Parkinson's
7 years ago
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