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PCD Family Support Group (UK)
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Primary ciliary dyskinesia: Myths and realities


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Thanks for sharing this - interesting paper. Although it was written in 2008 (can't believe I haven't seen before!) - things have definitely improved since then. Average age for diagnosis is now 4 years old in U.K. And much more collaborative work going on to know more about the condition and how to treat it.

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Great to hear that things have improved!