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Reality check ... Kim, and the Terrible, Horrible, No Good, Very Bad Day ;-)
First, here's to you! Morning Mimosa ... this was a pic from yesterday morning before we left our lake house, and returned home -- we were celebrating Day 22 of self quarantine. Secondly, a good night sleep is something to be thankful for. My friend pictured (right), her name is Linda -- she stayed
First, here's to you! Morning Mimosa ... this was a pic from yesterday morning before we left our lake house, and returned home -- we were celebrating Day 22 of self quarantine. Secondly, a good night sleep is something to be thankful for. My friend pictured (right), her name is Linda -- she stayed
bazooka111
in
PSP Association
4 years ago
Medicine/Supplement Regime (Mucuna etc)
Also, be patient in introducing new supplements and in seeing results) CBD - half life is 1-2 days - acts like grapefruit juice: inhibits CYP3A4 that breaks levodopa down in the body, so less
dyskinesia
, but also, more levodopa gets to the brain - PD Therapeutic Dose: 75-300mg/day https://www.medicalnewstoday.com
Also, be patient in introducing new supplements and in seeing results) CBD - half life is 1-2 days - acts like grapefruit juice: inhibits CYP3A4 that breaks levodopa down in the body, so less
dyskinesia
, but also, more levodopa gets to the brain - PD Therapeutic Dose: 75-300mg/day https://www.medicalnewstoday.com
pdkid
in
Cure Parkinson's
4 years ago
What dose levodopa reduced your tremor?
How many 25-100mg carbidopa levodopa tablets, how many times a day, reduced tremor?
How many 25-100mg carbidopa levodopa tablets, how many times a day, reduced tremor?
Hidden
in
Cure Parkinson's
5 years ago
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Dyskinesia
My mornings are manageable but early and late evenings I experience terrible
dyskinesia
after which I feel totally drained. Has anyone found something that would benefit me please?
My mornings are manageable but early and late evenings I experience terrible
dyskinesia
after which I feel totally drained. Has anyone found something that would benefit me please?
jag73
in
Cure Parkinson's
5 years ago
Difficult to don a face mask
CL meds do nothing to help the symptoms, If anything it makes the tremor worse and gives me
dyskinesia
. I take Amantadine for the tremor, but that doesn’t seem to be that effective. I have taken Mannitol for five years, HDT 500 mg for three years and BioCult probiotic for three months.
CL meds do nothing to help the symptoms, If anything it makes the tremor worse and gives me
dyskinesia
. I take Amantadine for the tremor, but that doesn’t seem to be that effective. I have taken Mannitol for five years, HDT 500 mg for three years and BioCult probiotic for three months.
Shaky-hand
in
Cure Parkinson's
4 years ago
Acupuncture for appetite stimulation?
Has anyone tried acupuncture to stimulate appetite in a CBD?PSP/MSA patient who just isn't hungry anymore? My husband continues to lose weight and has no hunger; it's as though the brain cells that signal hunger have stopped working. Recently talked with someone who had been a caregiver to a man with
Has anyone tried acupuncture to stimulate appetite in a CBD?PSP/MSA patient who just isn't hungry anymore? My husband continues to lose weight and has no hunger; it's as though the brain cells that signal hunger have stopped working. Recently talked with someone who had been a caregiver to a man with
Marilyn_cbd12
in
PSP Association
5 years ago
Tardive dyskinesia
Has anyone had experience with symptoms of Tardive
Dyskinesia
during treatment with b12 injections?
Has anyone had experience with symptoms of Tardive
Dyskinesia
during treatment with b12 injections?
BethCam
in
Pernicious Anaemia Society
5 years ago
Frequency difference between tremors and dyskinesia
I don't have direct experience with
dyskinesia
, but its periodic motion appears to have a longer period (slower frequency). It isn't easy to find videos that actually show
dyskinesia
, but Michael J. Fox's
dyskinesia
is about 1 Hz and isn't always periodic.
I don't have direct experience with
dyskinesia
, but its periodic motion appears to have a longer period (slower frequency). It isn't easy to find videos that actually show
dyskinesia
, but Michael J. Fox's
dyskinesia
is about 1 Hz and isn't always periodic.
pvw2
in
Cure Parkinson's
5 years ago
Instant Dyskinesia??
I am on Rytary and I find that a few minutes after I have swallowed my pills, I experience
dyskinesia
. My doctor is puzzled and can’t explain it. Has anyone else seen this reaction?
I am on Rytary and I find that a few minutes after I have swallowed my pills, I experience
dyskinesia
. My doctor is puzzled and can’t explain it. Has anyone else seen this reaction?
pdpatient
in
Cure Parkinson's
5 years ago
Update, five weeks after receiving focused ultrasound treatment in a blinded controlled study
A friend who is a massage therapist told me last week that there has been a significant decrease in my
dyskinesia
, so my whole body is more relaxed than it was. The focus of the study I'm in is upon
dyskinesia
, so from that perspective, the treatment appears to have been successful.
A friend who is a massage therapist told me last week that there has been a significant decrease in my
dyskinesia
, so my whole body is more relaxed than it was. The focus of the study I'm in is upon
dyskinesia
, so from that perspective, the treatment appears to have been successful.
Pitchfixer
in
Cure Parkinson's
5 years ago
Biliary Dyskinesia
Hello, I have recently been diagnosed with biliary
dyskinesia
and am due to have my gallbladder removed after 4 years of pain, nausea and generally feeling unwell and dizzy. Is there anyone with any experience of this and if so did gallbladder removal help
Hello, I have recently been diagnosed with biliary
dyskinesia
and am due to have my gallbladder removed after 4 years of pain, nausea and generally feeling unwell and dizzy. Is there anyone with any experience of this and if so did gallbladder removal help
jackgary70
in
British Liver Trust
5 years ago
Thiamine
Definitely helps my
dyskinesia
when I forgot to take b1 yesterday, I had slight
dyskinesia
, otherwise none. I take 500 mg morning and 500 mg evening. If I go higher it seems to upset my stomach.
Definitely helps my
dyskinesia
when I forgot to take b1 yesterday, I had slight
dyskinesia
, otherwise none. I take 500 mg morning and 500 mg evening. If I go higher it seems to upset my stomach.
akgirlsrock
in
Cure Parkinson's
5 years ago
I was reading a post on silica in horsetail, and also on glucosamine and chondroitin a while back and I can’t find them
Could anyone please help? Thanks
Could anyone please help? Thanks
LAJ12345
in
Cure Parkinson's
5 years ago
B1 trial
All was good for 10 days but again his
dyskinesia
increased and we had to stop it immediately and the
dyskinesia
subsided after 4-5 days. So now it was clear that it was due to B1. Are these signs of overdosing? Is 1g too much for him? He has improved off times at 1g but increased
dyskinesia
.
All was good for 10 days but again his
dyskinesia
increased and we had to stop it immediately and the
dyskinesia
subsided after 4-5 days. So now it was clear that it was due to B1. Are these signs of overdosing? Is 1g too much for him? He has improved off times at 1g but increased
dyskinesia
.
Sanay
in
Cure Parkinson's
5 years ago
Tardive Dyskinesia
Has anyone experienced Tardive
Dyskinesia
from Seroquel? I have been chewing not grinding my teeth for about four months now it is really starting to drive me crazy! I read online that this can happen after being on atypical antipsychotics for awhile.
Has anyone experienced Tardive
Dyskinesia
from Seroquel? I have been chewing not grinding my teeth for about four months now it is really starting to drive me crazy! I read online that this can happen after being on atypical antipsychotics for awhile.
Minnie1971
in
Anxiety and Depression Support
5 years ago
Suggestions on this mucuna dosage calculation
I was recently diagnosed with PD. The neurologist suggested I start with 1/2 tablet of 25/100 MG carbidopa levodopa. I prefer to try mucuna first. I bought this: https://www.amazon.com/dp/B0191ITEN0 It comes with a scoop. The description says one scoop is 3000 mg. The website also says the powder is
I was recently diagnosed with PD. The neurologist suggested I start with 1/2 tablet of 25/100 MG carbidopa levodopa. I prefer to try mucuna first. I bought this: https://www.amazon.com/dp/B0191ITEN0 It comes with a scoop. The description says one scoop is 3000 mg. The website also says the powder is
Vt11
in
Cure Parkinson's
5 years ago
Levodopa dyskinesia miscellany.
Levodopa
dyskinesia
miscellany. https://www.ncbi.nlm.nih.gov/pubmed?linkname=pubmed_pubmed_reviews&from_uid=26209473
Levodopa
dyskinesia
miscellany. https://www.ncbi.nlm.nih.gov/pubmed?linkname=pubmed_pubmed_reviews&from_uid=26209473
aspergerian
in
Cure Parkinson's
5 years ago
Rytari transitioning
And 2) if i taoe toomuch Rytary i get extreme
dyskinesia
. Anyone else ever experienced this?
And 2) if i taoe toomuch Rytary i get extreme
dyskinesia
. Anyone else ever experienced this?
SCT25
in
Cure Parkinson's
5 years ago
Priorities in Parkinson's disease research
Priorities in Parkinson's disease research https://www.nature.com/articles/nrd3430 Quote: Key Points Despite recent advances in the treatment of Parkinson's disease (PD),
dyskinesia
and motor fluctuations still make a substantial contribution to the reduced quality of life of patients with advanced-stage
Priorities in Parkinson's disease research https://www.nature.com/articles/nrd3430 Quote: Key Points Despite recent advances in the treatment of Parkinson's disease (PD),
dyskinesia
and motor fluctuations still make a substantial contribution to the reduced quality of life of patients with advanced-stage
pvw2
in
Cure Parkinson's
5 years ago
Medications improving my cardio?
I take ropinirole and amantadine. I've had PD for nearly two years. I was on Sinemet but discontinued it because of severe tiredness. The neuro switched me to the two drugs mentioned above. I've mentioned the HIIT that I do on a treadmill. I've done it for over two years. In the past it was close
I take ropinirole and amantadine. I've had PD for nearly two years. I was on Sinemet but discontinued it because of severe tiredness. The neuro switched me to the two drugs mentioned above. I've mentioned the HIIT that I do on a treadmill. I've done it for over two years. In the past it was close
kaypeeoh
in
Cure Parkinson's
5 years ago
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