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Dyskinesia
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How much simemet are you taking once you have been diagonsed 5-6years and the honeymoon period is over
I have a question for patients who have had pd for about 5-6 years and are on Sinemet only. How much are you on and do you have a lot of offs and if so how long do they last and what do you do till you take your next dose and it kicks in.. I’m taking every two hours and even with that I am having of
I have a question for patients who have had pd for about 5-6 years and are on Sinemet only. How much are you on and do you have a lot of offs and if so how long do they last and what do you do till you take your next dose and it kicks in.. I’m taking every two hours and even with that I am having of
Connie18
in
Cure Parkinson's
5 years ago
Change to Carbidopa Levodopa CR, dykinesia, neck dystonia
Dyskinesia
wears me out and my neck hurts. It is still better than being off with symptoms of bradykinesia. My neurologist told me today to try reducing the one 25/100 C-L to half a pill. I'll still need coping mechanisms to slow the to and fro.
Dyskinesia
wears me out and my neck hurts. It is still better than being off with symptoms of bradykinesia. My neurologist told me today to try reducing the one 25/100 C-L to half a pill. I'll still need coping mechanisms to slow the to and fro.
KemptonD
in
Cure Parkinson's
5 years ago
Thiamine therapy for yopd
He was on sinemet plus 125 4 times a day but suffering through
dyskinesia
which is sometimes more and sometimes manageable.. Recently we have replaced 3 doses of sinement with mucuna pruriens powder.
He was on sinemet plus 125 4 times a day but suffering through
dyskinesia
which is sometimes more and sometimes manageable.. Recently we have replaced 3 doses of sinement with mucuna pruriens powder.
Sanay
in
Cure Parkinson's
5 years ago
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Has anyone been able to reduce their C/L dose once they started on High Dose Therapy B-1? If so, how and why did you decide to reduce C/L?
However, I am noticing a big increase in
dyskinesia
, but less off times. I am wondering if C/L needs to be reduced as she is getting close to the right B1 dose. Has anyone been able to reduce their C/L dose once they started on High Dose Therapy B-1?
However, I am noticing a big increase in
dyskinesia
, but less off times. I am wondering if C/L needs to be reduced as she is getting close to the right B1 dose. Has anyone been able to reduce their C/L dose once they started on High Dose Therapy B-1?
TSonmez
in
Cure Parkinson's
5 years ago
IS DYSKINESIA PART OF PD?
My MD seem unhappy with me and told me that
dyskinesia
is part of PD,that once you have PD,you cannot avoid having
dyskinesia
. So has any pwp on this forum who has PD for 2 & 1/2 years been able to avoid any form of dykinesia? I have also read online that some pwp,using C/L does not get
dyskinesia
.
My MD seem unhappy with me and told me that
dyskinesia
is part of PD,that once you have PD,you cannot avoid having
dyskinesia
. So has any pwp on this forum who has PD for 2 & 1/2 years been able to avoid any form of dykinesia? I have also read online that some pwp,using C/L does not get
dyskinesia
.
OREOLU
in
Cure Parkinson's
5 years ago
I have a bad habit of over dosing when I'm in an off time.
I take a total of 8 stalevo 200mgs and 7 Sinemet EQ 100mgs during the day. My off periods are extremely terrible and at times I'll crush 1 or 2 EQ's and take with ginger ale. One time I had taken a Stalevo at 6pm , 2 EQ's at 6:45, 1 EQ at 7:00 and one at 7:15. I took my Stalevo again at 8:30 then of
I take a total of 8 stalevo 200mgs and 7 Sinemet EQ 100mgs during the day. My off periods are extremely terrible and at times I'll crush 1 or 2 EQ's and take with ginger ale. One time I had taken a Stalevo at 6pm , 2 EQ's at 6:45, 1 EQ at 7:00 and one at 7:15. I took my Stalevo again at 8:30 then of
dfasci
in
Cure Parkinson's
5 years ago
Male Fertility in PCD
Thanks http://pcdsupport.org.uk/new-ucl-study-into-primary-ciliary-
dyskinesia
-sperm-analysis-and-fertility-assessment-participants-required/
Thanks http://pcdsupport.org.uk/new-ucl-study-into-primary-ciliary-
dyskinesia
-sperm-analysis-and-fertility-assessment-participants-required/
fionac66
in
PCD Family Support Group (UK)
5 years ago
On/Off period caused by Sinemet. Anyone taking dopamine agonist and/or MAO inhibitors experience on/offs?
I found in the web an interesting info about a disclaimer contained in the package insert of Sinemet distributed in Australia. It warns as a “side effect the on/off periods may occur to some people after one year use where people may lose their ability to move from minutes to hours then can move again
I found in the web an interesting info about a disclaimer contained in the package insert of Sinemet distributed in Australia. It warns as a “side effect the on/off periods may occur to some people after one year use where people may lose their ability to move from minutes to hours then can move again
marnegro
in
Cure Parkinson's
5 years ago
Want to support and be supported
I have schizoaffective disorder and tardive
dyskinesia
. I'm going through a better phase than the usual, so I want to put my 'feeling well' energy into being an encouragement and support to others.
I have schizoaffective disorder and tardive
dyskinesia
. I'm going through a better phase than the usual, so I want to put my 'feeling well' energy into being an encouragement and support to others.
1947treble
in
Anxiety and Depression Support
5 years ago
Long time no write
Diagnosed 2005. On Madopar since then Symmetrical and Zadago added Exenatide Injections on and off weekly for last 2 years and again (off). Monitor my own daily usage of Madopar Yesterday began the daily routine at 6.00am of Madopar 125 X 1. As I had special arrangements for the day decided to keep
Diagnosed 2005. On Madopar since then Symmetrical and Zadago added Exenatide Injections on and off weekly for last 2 years and again (off). Monitor my own daily usage of Madopar Yesterday began the daily routine at 6.00am of Madopar 125 X 1. As I had special arrangements for the day decided to keep
Bridielena
in
Cure Parkinson's
5 years ago
Unexpectedly down
My Tardive
Dyskinesia
symptoms are worse than normal which is getting me really frustrated. My plan with this site (while I was doing well) was to be a positive support person for others, but now I need to post so all of this is not stuck or taking over my head all day.
My Tardive
Dyskinesia
symptoms are worse than normal which is getting me really frustrated. My plan with this site (while I was doing well) was to be a positive support person for others, but now I need to post so all of this is not stuck or taking over my head all day.
1947treble
in
Anxiety and Depression Support
5 years ago
Optimizing levodopa
Hi Parkie. You should try a more natural source of levodopa: mucuna pruriens is a seed that comes as powder or in capsules. I take 6 g 3 times a day, mixed in with apple or orange juice (no dairy product s). At first it helps to take -1 capsule of green tea extract in the AM. You can also take
Hi Parkie. You should try a more natural source of levodopa: mucuna pruriens is a seed that comes as powder or in capsules. I take 6 g 3 times a day, mixed in with apple or orange juice (no dairy product s). At first it helps to take -1 capsule of green tea extract in the AM. You can also take
Earthman
in
Cure Parkinson's
5 years ago
Webinar - Dyskinesia 2nd October
The Journal of Parkinson’s Disease, The Cure Parkinson’s Trust and Parkinson’s Movement is delighted to invite you to join us for our next Webinar on 2nd October 2019 (5.30 pm GMT / 12.30 pm EST). This webinar will discuss recent publications around the theme of Dyskinesias in Parkinson’s. The eminent
The Journal of Parkinson’s Disease, The Cure Parkinson’s Trust and Parkinson’s Movement is delighted to invite you to join us for our next Webinar on 2nd October 2019 (5.30 pm GMT / 12.30 pm EST). This webinar will discuss recent publications around the theme of Dyskinesias in Parkinson’s. The eminent
CPT_Helen
Administrator
in
Cure Parkinson's
5 years ago
Falling
I told him the Rytary was killing me the
dyskinesia
And the cramps in my right hand and fore arm and told him the pain was so bad I wanted some one just shoot me. I told him that Rytary screw me up.Taking that crap thery had me taking when I first started 4 145mg @ 6 and 9 and 12:00 pm and 3 And 6.
I told him the Rytary was killing me the
dyskinesia
And the cramps in my right hand and fore arm and told him the pain was so bad I wanted some one just shoot me. I told him that Rytary screw me up.Taking that crap thery had me taking when I first started 4 145mg @ 6 and 9 and 12:00 pm and 3 And 6.
Fishaholic
in
Cure Parkinson's
5 years ago
Back on cardopa/levadopa
I felt better on just 100% l-dopa white powder from macuna, except the 2 hours on and foot
Dyskinesia
was to unpredictable , and shaking was bearable.
I felt better on just 100% l-dopa white powder from macuna, except the 2 hours on and foot
Dyskinesia
was to unpredictable , and shaking was bearable.
akgirlsrock
in
Cure Parkinson's
5 years ago
Opicapone
He has had lunches which we don't normally do yet getting
dyskinesia
after he has eaten, the opposite has usually happened in the past. When he is walking I am having to drag him back.
He has had lunches which we don't normally do yet getting
dyskinesia
after he has eaten, the opposite has usually happened in the past. When he is walking I am having to drag him back.
JeanieBeanie
in
Cure Parkinson's
5 years ago
Serotonin solves decades-old mystery in Parkinson's disease. (DYSKINESIA)
More information: "Serotonergic Neurons Mediate
Dyskinesia
Side Effects in Parkinson’s Patients with Neural Transplants," by M. Politis et al. Science Translational Medicine.
More information: "Serotonergic Neurons Mediate
Dyskinesia
Side Effects in Parkinson’s Patients with Neural Transplants," by M. Politis et al. Science Translational Medicine.
akgirlsrock
in
Cure Parkinson's
5 years ago
Better L-Dopa delivery?
Hello all! I read this about the paradise brand capsules in terms of how to deliver that although bit better: “this product is very effective, but note what they don't tell you, is that in order for the brain to make it into the enzyme that utilizes L-dopa you require an activator like Green Tea or
Hello all! I read this about the paradise brand capsules in terms of how to deliver that although bit better: “this product is very effective, but note what they don't tell you, is that in order for the brain to make it into the enzyme that utilizes L-dopa you require an activator like Green Tea or
MissRita
in
Cure Parkinson's
5 years ago
Dyskinesia or Tremor??? I nod my head like saying “Yes” and side to side like saying “No”..............
It’s so embarrassing everyone looks at you like you’re on drugs or something, is there a medication for this if it turns out to be
dyskinesia
, I can no longer take this, I rather stay inside for the rest of my life than deal with this. I hope I get some responses thank you 🙏🏽
It’s so embarrassing everyone looks at you like you’re on drugs or something, is there a medication for this if it turns out to be
dyskinesia
, I can no longer take this, I rather stay inside for the rest of my life than deal with this. I hope I get some responses thank you 🙏🏽
Chicafromchitown
in
Cure Parkinson's
5 years ago
WHY IS CARBIDOPA USED IN COMBINATION WITH LEVODOPA IN DRUGS SUCH AS SINEMET?
This is a question that I have heard different answers for in different places on the web, but never was quite sure what the exact reason was, but I have noticed that there is a group who believes that Carbidopa itself can be a problem and would prefer alternatives to Carbidopa while some people use
This is a question that I have heard different answers for in different places on the web, but never was quite sure what the exact reason was, but I have noticed that there is a group who believes that Carbidopa itself can be a problem and would prefer alternatives to Carbidopa while some people use
chartist
in
Cure Parkinson's
5 years ago
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