Experiences with

Down's syndrome

hello - not sure if this is quite the right forum but thought I would try…. I am 60 yrs old and have dry eye syndrome . I’ve had for a good number of years now. Recently my eyes have become the bain of my life despite all the usual strategies (heat mask , regular preservative-free drops, tea-tree eyelid

Found this video about a Doctor who tapered off of opioid and ended up with restless leg syndrome as a result. https://www.youtube.com/watch?v=l9_1maoFaJg She claims that a cream containing a mix of CBDA, CBD, Magnesium and other substances to enhance absorbability via the skin has been highly effective

I was taking Pramipexole for over 20 years with no warning of what it would do to my bank account with all the over spending I did. When I tried to come off it my Dr just took me straight off it much to my pain and suffering, needless to say I had to go back on it and am now trying to withdraw from it

Hi, I’m new to this Restless Legs Syndrome forum. I have been really struggling with restless legs really bad. I have always had an unpleasant crawling/tickling sensation in my legs. I am on Mirtazapine and it has made my restless legs worse. I now cannot sleep unless I have paracetamol every night

Hello....my GP doctors have been treating my RLS with ropinirole (augmentation), pramipexole (various addictions) and most recently gabapentin (ineffective) over the past 23 years. I have tried neurologists and vein drs but no one displays a strong desire to help me minimize or eliminate my RLS. Does

Hi there everyone I am now seeing dr Stephen Gibson pain specialist and Anesthesiologist. Dr prof yee referred me to him for low dose opioids. I started on 5mg Buprenorphine patch- zero relief. He has added 5 mg methadone - instant relief. Any thoughts as to why the mix and not just the methadone?

My husbands RLS has increased with age and his recent full knee replacement two years ago. We have been seeing an RLS/Sleep doctor from Johns Hopkins since last November and are on a slow journey to figure out which combinations of meds will help him. He was on 2 Horizant pills when we first saw him

Hi F58 UK Update on withdrawing from Ropinirole tablets. I have had RLS for over 10 yrs and tried Pramipexol, then changed to Ropinirole. After visiting consultant they recommended Gabapentin. After advice from this forum I am reducing my Ropinirole. My Ropinirole dose was 1.5mg 3 x day. Gabapentin

Hello, I have had RLS since my early 20's, (I'm 66). I am currently taking .5 Pramipexole and would like to begin weening off with the goal to stop taking it entirely. Has anyone been able to successfully return to Celexa after a break in taking it? I tried Wellbutrin and it did nothing for anxiety

I am seeing a new and young Family practitioner and after telling her my neurologist after having 2 MRIs cervical and spine she just wanted to up my gabapentin and was fine with me taking 4 mg of ropinirole 2 x a day...and then dismissed me as a patient after I said I have been on gabapentin for

Good morning I started Trazodone in April and unfortunately this too affects my restless legs . I’ve taken dopamine pills for years for my symptoms and feel this has contributed to me feeling depressed. I’ve been clear of these awful pills for a long time and now take Gabapentin . I’m considering

Staying protected from UV rays is high on many peoples list this week, with layering and staying in the shade so important. I’ve read that mineral based sun lotion is better than chemical as it creates a barrier on your skin that reflects UV light so t hey don't absorb into the skin. Mineral sunscreens

I have been on Ropinirole for 1 1/2 years. It was a miracle drug for me until about 3 months ago. My PCP said to double the dose. But that hasn’t been helping. I now get flairs during the day (never had them during the day before), It takes a long time to work (an hour or more) while it used to be 15

Thank you to all who have replied to my message but I have another question now. I have been given antiseptic washing lotion to use for the 5 days leading up to my operation next Friday. My skin is very fragile and dry and I have Cetraben emollient cream prescribed to put on it, especially after a

I have an appointment with Dr Robin Fackrell at the beginning of October. I am hoping that he will be able to assist with my restless legs, and with the peripheral neuropathy too. I am having problems with needing more ropinirol to keep the restlessness at a bay. I have had no success with Gabapentin

I’m up to 1800mg (6pm/8pm/10pm) of gabapentin now with one 30mg dihydrocodeine. Waking 3 times a night and now sometimes needing a second dihydrocodeine as the legs are bad. Wondering what are my best next steps. Im thinking Pregabalin. I know you get the equivalent dose but would you ask for the same

I have been on morphine successfully some years for severe RLS. However I'm beginning to think I need a change of meds. Opioid induced insomnia has gradually worsened so that I'm surviving on about 2 hours sleep now. I'm thinking of asking for either methadone or buprenorphine .I 've been thinking

I HAVE HAD RESTLESS LEGS SINCE I WAS 40 YEARS OLD & I AM NOW 88YEARS OLD. I HAD BEEN TAKING PRAMIPEXOLE 1.5 MG ALL THESE YEARS, BUT RECENTLY IT NO LONGER WAS HELPING ME. I WAS PUT ON ROPINIROLE 1MG BID WHICH DID NOT HELP & NOW I'M ON 2MG AM PM. I WAS HAVING SO MUCH BURNING IN BOTH MY LEGS & NUMBNESS

Hi everyone l have had severe restless legs most of my life even before they gave it this name l have been on many opioids which no-one should be prescribed has this particular medication doesn't help as with time this medications dosage as to be increased to a point where you cannot take anymore and

I have been on 2mg er ropinerole for 10+ years - up and down on doses; mixed with a variety of other low dose meds; became 'refractory' a while ago - my RLS is advanced and has been so for 15+ years. I retired 2 years ago and decided it is time to finally be liberated from the evil 'R". ... I have