Experiences with

Deflazacort

I saw a Spanish rheumatologist today and on the basis that I have been on steroids for four and a half years, currently at 13.5 mgs deflazacort (pred equivalent about 9 or 10 mgs), she suggested I take Methotraxate once a week 10 mgs injected, so that I can reduce the steroid dose. it seems like a big

The replacement for prednisone, deflazacort is not doing a good job, I lost 15lbs though for being off prednisone. But all in all some good news. For those in Florida, south of me, be safe.

I am also currently on 20mgs of deflazacort which is about15 msg of pred equivalent. Is it pmr playing up? is it piriformis? Is it myofascial.

I've gone up to 21mgs deflazacort which doesn't seem to do much. I'm left pretty much incapable of doing anything on my feet for more than half an hour. Its been over three weeks now and I seem to be getting worse. I am supposing this is down to the effects of the jab. Any ideas please?

I have been on 24 mgs deflazacort (and up to 40gs) for 3 months because of a flare. I am trying to reduce by 10 percent per fortnight but I don't seem to be making any headway: Lower back, groin, knee, shoulder pain and fatigue.

Searching the web tonight for prednisone information, I came across deflazacort for the first time. It seems to have better characteristics in terms of less bone loss and other side effects.

Hello everyone been diagnosed with PMR and started taking 12mg of Deflazacort for 4 days ..not noticed any change ..still lot of pain . Do you think I could take an extra tablet daily or do I wait it out a bit longer..many thanks Lulu

My body seems to be responding well to my medications (daily 3mg Zamen a deflazacort based steroid, Plaquinol 400mg and weekly 15mg of methotrexate). All good with reduced inflamation markers. Like I said, I am lucky. My job requires at least one trip per year to Africa, sometimes two.

About a month ago I went to a consult and the doctor recommend switching to Deflazacort, 15mg per day the first week and then 7.5mg.

When reached 56 K, the doctor decided to put me on corticosteroides, Calcort 30 mg (Deflazacort), for 10 days (30 mg daily), and wait 30 days for 2nd round. Can anybody give some advise on this matter. Is this treatment the right one?. My WBC are around 20 K.

Now down to 6mg of deflazacort a day I feel it is more under control although I still have pain and stiffness in my thighs pelvic area hips and shoulders. Some days are better than others.

I'm currently taking deflazacort daily with Metoject injection once a week and Folic acid 1 a week.I'm currently living in Valencia Spain so working with the Spanish health system is quite tricky. Anyway I have been on this combination for a year.

At the moment im on Deflazacort and it sent my moods haywire which isnt helping and I started my period today! I just feel so lost and scared and just want to scream and cry I dont want to live like this.