Search
Search
About
Log in
Join
Experiences with
Deep heat
Posts
Communities
6,206 public posts
Filter results
Painful sciatica
I don't take painkillers -- they hurt my stomach -- but in the evenings sit on a heating pad and have started using
Deep
Heat
. I had a pre-injection assessment yesterday and can only hope the appointment will come soon. Has anyone had these injections? Have they worked? Thanks very much.
I don't take painkillers -- they hurt my stomach -- but in the evenings sit on a heating pad and have started using
Deep
Heat
. I had a pre-injection assessment yesterday and can only hope the appointment will come soon. Has anyone had these injections? Have they worked? Thanks very much.
Harefieldfan
in
Arthritis Action
1 year ago
DBS operation
I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my MS/essential tremors. Would like to talk to someone who’s had the same operation. I need to know: About your experience during the operation, Post operation pain & discomfort The after care involved The after
I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my MS/essential tremors. Would like to talk to someone who’s had the same operation. I need to know: About your experience during the operation, Post operation pain & discomfort The after care involved The after
Potatoskins
in
My MSAA Community
4 days ago
Any info or experience with light headedness and circulation issues with PD?
My husband has PD, 9 years in, He had DBS surgery a year ago and that has been a miraculous positive change, however he has this symptom of getting really lightheaded when going from sitting to standing or any quick movements, ( he passed out a while ago and hit his head) or happens like playing pickleball
My husband has PD, 9 years in, He had DBS surgery a year ago and that has been a miraculous positive change, however he has this symptom of getting really lightheaded when going from sitting to standing or any quick movements, ( he passed out a while ago and hit his head) or happens like playing pickleball
whitdemo
in
Cure Parkinson's
7 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Next NoSilverBullet Zoom Webinar on 13 May: Live interview of Dr M Okun on "Practical strategies for living a happier life with Parkinson's"
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
Michel0220
in
Cure Parkinson's
10 days ago
Very interesting video on controversial issues regarding managing Parkinson’s at different stages (from 2 guys that seem smart).
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Bolt_Upright
in
Cure Parkinson's
15 days ago
apomorphine, anyone on this?
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Todd-pw
in
Cure Parkinson's
20 days ago
Meds not working well again
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
PDsux_10
in
Cure Parkinson's
22 days ago
deep brain stimulation
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
DonnaMc1968
in
Cure Parkinson's
26 days ago
Tremor Assessment
Has anyone had a tremor assessment prior to deep brain stimulation?
Has anyone had a tremor assessment prior to deep brain stimulation?
Ostap
in
Ataxia UK
1 month ago
DBS: Medtronic question re. voice
Hi everyone. As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my neuro but patched me up to fight another couple of rounds. When I was switched on, after a day or so I noticed that it was much harder to speak: volume and articulacy were much harder to produce
Hi everyone. As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my neuro but patched me up to fight another couple of rounds. When I was switched on, after a day or so I noticed that it was much harder to speak: volume and articulacy were much harder to produce
jeeves19
in
Cure Parkinson's
1 month ago
Insomnia
Hello, I was diagnosed PD when i was 37, now I'm 46 years old. 5 months ago i was DBS. After surgery, things did not go bad, but not as good I have expected. On March 7th i was reajusted the neurostimulator by my neourologist. On March 15th i started HDT Protocol, 50 mg sublingual on alternative days
Hello, I was diagnosed PD when i was 37, now I'm 46 years old. 5 months ago i was DBS. After surgery, things did not go bad, but not as good I have expected. On March 7th i was reajusted the neurostimulator by my neourologist. On March 15th i started HDT Protocol, 50 mg sublingual on alternative days
carlosgarcia2048
in
Cure Parkinson's
1 month ago
AbbVie’s Produodopa approved by SMC to treat Parkinson’s disease patients in Scotland
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
Farooqji
in
Cure Parkinson's
2 months ago
pain?
Anybody else have pain on waking, from hips and legs up to arms & shoulders--not explained by exercise or lack thereof? Can barely hobble about the house to get my meds and feed the cat. Sometimes it helps to tighten all the muscles to form an upright posture--but as soon as I loosen them to move, it
Anybody else have pain on waking, from hips and legs up to arms & shoulders--not explained by exercise or lack thereof? Can barely hobble about the house to get my meds and feed the cat. Sometimes it helps to tighten all the muscles to form an upright posture--but as soon as I loosen them to move, it
ottercat
in
Cure Parkinson's
2 months ago
The problematic 2nd dose of the day
Good evening. Wondering if anybody else experienced similar or if you’ve any idea why the following happens: my first CL of the day works reasonably well (although I only get two hours of relief from it). The second thought is really bad: after my first dose I go badly off (it’s been getting worse as
Good evening. Wondering if anybody else experienced similar or if you’ve any idea why the following happens: my first CL of the day works reasonably well (although I only get two hours of relief from it). The second thought is really bad: after my first dose I go badly off (it’s been getting worse as
jeeves19
in
Cure Parkinson's
2 months ago
DBS awake or under general anesthesia
I've been told that for my DBS operation I will be under general anesthesia. I'm just wondering what others have experienced. I like the idea of a good sleep and waking to find the operation over but I was under the impression that when done awake the patient can indicate when the probes are correctly
I've been told that for my DBS operation I will be under general anesthesia. I'm just wondering what others have experienced. I like the idea of a good sleep and waking to find the operation over but I was under the impression that when done awake the patient can indicate when the probes are correctly
gingerj
in
Cure Parkinson's
2 months ago
Collagen powder and increased stiffness?
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
1rocketman
in
Cure Parkinson's
3 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
3 months ago
DBS??
I’m seriously considering DBS. Would love some feedback from people who have had it done.
I’m seriously considering DBS. Would love some feedback from people who have had it done.
CostaVal
in
Cure Parkinson's
3 months ago
addicted to C/L?
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
limcheeese22
in
Cure Parkinson's
3 months ago
DBS. Did it improve your life as much as you hoped?
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
gingerj
in
Cure Parkinson's
3 months ago
1
2
3
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Atrial Fibrillation Support
1766 results
British Heart Foundation
936 results
Cure Parkinson's
776 results
View top 10 communities
Sort by
Most Relevant
Newest