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Deep brain stimulation (DBS)
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Anyone know how long the waiting list is for DBS at the National Hospital for Neurology and Neurosurgery, Queen Square, London?
I was told that the only option for me was
DBS
as medication is not working. Next step is to meet with the
DBS
Team at Queen Square. I am now left in a situation where I am simply trying to manage this rather precarious situation I find myself in.
I was told that the only option for me was
DBS
as medication is not working. Next step is to meet with the
DBS
Team at Queen Square. I am now left in a situation where I am simply trying to manage this rather precarious situation I find myself in.
Yogibear
in
Cure Parkinson's
12 years ago
Is there a better solution than DBS?
wynn7
in
Cure Parkinson's
12 years ago
My husband is 3 weeks post DBS surgery!!! And doing GREAT!!! :-)
We have some questions for those that have had your
DBS
recently. We hope you can remember some of the unpleasant things to help us know if they are "normal". We, of course understand everyone is different and no two people are alike.
We have some questions for those that have had your
DBS
recently. We hope you can remember some of the unpleasant things to help us know if they are "normal". We, of course understand everyone is different and no two people are alike.
lmbanni
in
Cure Parkinson's
12 years ago
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Found this guys DBS journey
Check out this video on YouTube: http://www.youtube.com/watch?v=FFExLXXIoIk&feature=youtube_gdata_player Sent from my iPad
Check out this video on YouTube: http://www.youtube.com/watch?v=FFExLXXIoIk&feature=youtube_gdata_player Sent from my iPad
Hidden
in
Cure Parkinson's
12 years ago
For my friends in the US...Is anyone on Disability?
I will be going in for
DBS
on Nov15th
I will be going in for
DBS
on Nov15th
SuKas
in
Cure Parkinson's
12 years ago
New DBS Method .
Over the past decade,
DBS
using electrodes implanted in specific areas within the brain has become an accepted treatment for Parkinson's disease.
Over the past decade,
DBS
using electrodes implanted in specific areas within the brain has become an accepted treatment for Parkinson's disease.
Hidden
in
Cure Parkinson's
12 years ago
With new DBS patients, how often should you get 'programming' from your Dr?
hardtop03
in
Cure Parkinson's
12 years ago
Considering DBS. If you have had it, your input is greatly appreciated
My neurologist broached the subject of
DBS
surgery for the first time last visit. My wearing off periods are getting longer and I do get some pretty bad tremors during those times. I have a few friends who have had the surgery.
My neurologist broached the subject of
DBS
surgery for the first time last visit. My wearing off periods are getting longer and I do get some pretty bad tremors during those times. I have a few friends who have had the surgery.
wordworks2001
in
Cure Parkinson's
12 years ago
So finally....
the date for my
DBS
...November 15th....I never thought I would say this but I am looking forward to getting screwed and drilled:))
the date for my
DBS
...November 15th....I never thought I would say this but I am looking forward to getting screwed and drilled:))
SuKas
in
Cure Parkinson's
12 years ago
Another Week on the Road
I did meet John, a fellow PDer who had
DBS
this past summer. He looks good and feels good,a real testament to the procedure. I also did some research about medical cannabis and posted a question about it on this site. I watched a few You Tube videos about the subject.
I did meet John, a fellow PDer who had
DBS
this past summer. He looks good and feels good,a real testament to the procedure. I also did some research about medical cannabis and posted a question about it on this site. I watched a few You Tube videos about the subject.
wordworks2001
in
Cure Parkinson's
12 years ago
Does anyone have steppage gait?
Has
DBS
changed it?
Has
DBS
changed it?
etterus
in
Cure Parkinson's
12 years ago
Has DBS changed your anxiety/depression either way?
If so do you know if the placements were in the subthalamic nucleus or globus pallidus?
If so do you know if the placements were in the subthalamic nucleus or globus pallidus?
etterus
in
Cure Parkinson's
12 years ago
How does one find the best DBS programmers?
Programmers hold the key to successful
DBS
, yet so little known about who they are and where to find them. Does anyone have advice about a directory or "Angie's List" that includes
DBS
programmers? How about when one is traveling-- where are they?
Programmers hold the key to successful
DBS
, yet so little known about who they are and where to find them. Does anyone have advice about a directory or "Angie's List" that includes
DBS
programmers? How about when one is traveling-- where are they?
Jash
in
Cure Parkinson's
12 years ago
Post DBS - physical symptoms of Anxiety. Anyone? Anyone?
DBS
done in Feb 2012 - had numbness in toes soon after it was turned on. Have had the
DBS
steadily for 3 months now. Prescribing meds for anxiety? I never had these physical manifestations of anxiety before. Could lead/contact be the cause? Docs say no.
DBS
done in Feb 2012 - had numbness in toes soon after it was turned on. Have had the
DBS
steadily for 3 months now. Prescribing meds for anxiety? I never had these physical manifestations of anxiety before. Could lead/contact be the cause? Docs say no.
cepd
in
Cure Parkinson's
12 years ago
waiting......
Chilling while waiting for my drilling is killing my patience and fueling my anxiety:PP (yeah I know, punning at this time too...proves I am a nutso:PP))) (Still waiting for my appt with the
DBS
surgeon)
Chilling while waiting for my drilling is killing my patience and fueling my anxiety:PP (yeah I know, punning at this time too...proves I am a nutso:PP))) (Still waiting for my appt with the
DBS
surgeon)
SuKas
in
Cure Parkinson's
12 years ago
I've read on here about several people having real time MRI DBS Surgery,
but can find no info on it outside of trials being done. Anyone know anymore?
but can find no info on it outside of trials being done. Anyone know anymore?
wynn7
in
Cure Parkinson's
12 years ago
has any one else started expeincing siezures,a year or so after dbs surgery??
rhougham
in
Cure Parkinson's
12 years ago
So I had my DBS evaluations
I am sposed to wait for 2 weeks for my result but I think I am going to be okayed for the surgery...lets see...My journey towards
DBS
continues:)
I am sposed to wait for 2 weeks for my result but I think I am going to be okayed for the surgery...lets see...My journey towards
DBS
continues:)
SuKas
in
Cure Parkinson's
12 years ago
For those wondering what happens during DBS surgery, a great video to educate you.
http://www.youtube.com/watch?v=Flov7Q6pQNk&feature=youtube_gdata_player
http://www.youtube.com/watch?v=Flov7Q6pQNk&feature=youtube_gdata_player
WayneP
in
Cure Parkinson's
12 years ago
"New" Cuban stereotaxic surgery...what about it?
Does it involve destruction of brain tissue (like Pallidotomy and Thalamotomy, which I understand are considered inferior to
DBS
)? Doesn't it involve implantation of embryonic stem cells, and if so, isn't that still, ah, in the experimental stage? Is it tested properly?
Does it involve destruction of brain tissue (like Pallidotomy and Thalamotomy, which I understand are considered inferior to
DBS
)? Doesn't it involve implantation of embryonic stem cells, and if so, isn't that still, ah, in the experimental stage? Is it tested properly?
Parkinson_Schmarkinson
in
Cure Parkinson's
12 years ago
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