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Face rash
Hi I’m on afatinib 50mg have been ok but Iv got a rash on my face nose is blocked and eyebrows all dried up I look like Iv be burned any ideas how to relieve would be appreciated
Hi I’m on afatinib 50mg have been ok but Iv got a rash on my face nose is blocked and eyebrows all dried up I look like Iv be burned any ideas how to relieve would be appreciated
Rusty821
in
The Roy Castle Lung Cancer Foundation
3 years ago
After 10 mnths on Afatinib my tumour regrew.My consultant described it as behaving atypically. Does this mean it has changed to small cell.
NSCLung cancer changing to small cell.
NSCLung cancer changing to small cell.
sally70
in
Lung Cancer Support
3 years ago
Skin rash
Hi I was diagnosed with stage 4 lung cancer in February and I am now taking afatinib and the tumour has shrunk thank goodness tho now after all this time my arms and stomach have broke out in the “rash” I was told to plaster myself in cetriban but was wondering does anybody have any tips
Hi I was diagnosed with stage 4 lung cancer in February and I am now taking afatinib and the tumour has shrunk thank goodness tho now after all this time my arms and stomach have broke out in the “rash” I was told to plaster myself in cetriban but was wondering does anybody have any tips
Rusty821
in
The Roy Castle Lung Cancer Foundation
4 years ago
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Trying to keep busy
I personally have problems getting motivated. I am watching too much rubbish on the tele, eating too many crisps and ice cream. I am about to run out of goodies. Hopefully my next Sainsburys delivery will have some of the treats I ask for. :) I am very lucky that I have a tiny patio and some pots so
I personally have problems getting motivated. I am watching too much rubbish on the tele, eating too many crisps and ice cream. I am about to run out of goodies. Hopefully my next Sainsburys delivery will have some of the treats I ask for. :) I am very lucky that I have a tiny patio and some pots so
nikkidolls
in
The Roy Castle Lung Cancer Foundation
4 years ago
Adenocarcinoma of Lung
Hi ! I’m new to this . My husband was diagnosed with metastatic adenocarcinoma of lung cancer (T4N3M1A) last month. He is on Afatinib the last two weeks but he is suffering from all three blowup of the side affects in the first week , mouth sore/ ulcers , , diarrhoea, face n chest rashes. Has been in
Hi ! I’m new to this . My husband was diagnosed with metastatic adenocarcinoma of lung cancer (T4N3M1A) last month. He is on Afatinib the last two weeks but he is suffering from all three blowup of the side affects in the first week , mouth sore/ ulcers , , diarrhoea, face n chest rashes. Has been in
Ace467
in
The Roy Castle Lung Cancer Foundation
4 years ago
CT Scan Results, New Medication :-(
This is going to be a long post, so apologies. First of all, I am so glad to have found this community. Your stories, experiences, outlook, perspectives, etc. are immeasurably valuable as we all try to navigate this condition and keep pressing on- together. This isn’t easy. This is real. This is
This is going to be a long post, so apologies. First of all, I am so glad to have found this community. Your stories, experiences, outlook, perspectives, etc. are immeasurably valuable as we all try to navigate this condition and keep pressing on- together. This isn’t easy. This is real. This is
NamasteLove
in
SHARE Metastatic Breast Cancer
4 years ago
Target Therapy for NSCLC stage 3 with EGFR mutation ?
My husband recently had results confirming the re-occurrence of his lung cancer. As a second line treatment he is being offered a target treatment. His oncologist is trying to get a new treatment funded for him called Dacomitinib. Is anyone using this new drug, and if so how is it going so far? We have
My husband recently had results confirming the re-occurrence of his lung cancer. As a second line treatment he is being offered a target treatment. His oncologist is trying to get a new treatment funded for him called Dacomitinib. Is anyone using this new drug, and if so how is it going so far? We have
e-priestman
in
The Roy Castle Lung Cancer Foundation
5 years ago
Been awhile!
Dasatinib
(Sprycel). I asked: had I only CLL would he have said I should take the Ibrutinib. He said: No. I'd have sent you home.
Dasatinib
(Sprycel). I asked: had I only CLL would he have said I should take the Ibrutinib. He said: No. I'd have sent you home.
tedrog
in
CLL Support
5 years ago
Afatinib
I’m just wondering if anyone can give some experienced advice. My mum has been taking Afatinib for her lung cancer on a 20mg dose. The tablet has been doing its job, however my mums eyes have been very sore, should already suffers with dry eyes. My question is how she should be handling rest periods
I’m just wondering if anyone can give some experienced advice. My mum has been taking Afatinib for her lung cancer on a 20mg dose. The tablet has been doing its job, however my mums eyes have been very sore, should already suffers with dry eyes. My question is how she should be handling rest periods
Bella426
in
The Roy Castle Lung Cancer Foundation
5 years ago
Afatanib side effects
Hi All My 71yo mother in law was recently diagnosed with adenocarcinoma stage 4. She was fit with very little symptoms. She has been taking Afatinib for 10 days now and is really struggling with side effects. She has diahorrea several times a day, acne rash on upper body particularly bad on her scalp
Hi All My 71yo mother in law was recently diagnosed with adenocarcinoma stage 4. She was fit with very little symptoms. She has been taking Afatinib for 10 days now and is really struggling with side effects. She has diahorrea several times a day, acne rash on upper body particularly bad on her scalp
MsLiz
in
The Roy Castle Lung Cancer Foundation
5 years ago
Can I stop medication?
If I were to start taking Ibrutinib, or
Dasatinib
, xxxtinib... say for 6 months, and I decided to stop (arbitrarily decided) ... would I have made myself worse... than had I waited, say, 6 months? no symptoms or very slight, WW 4.5 years. 64 yo.
If I were to start taking Ibrutinib, or
Dasatinib
, xxxtinib... say for 6 months, and I decided to stop (arbitrarily decided) ... would I have made myself worse... than had I waited, say, 6 months? no symptoms or very slight, WW 4.5 years. 64 yo.
tedrog
in
CLL Support
6 years ago
News from the FDA: the indication for a drug targeting EGFR is expanded to uncommon mutations
The FDA has expanded the indication for afatinib (Gilotrif) to include the treatment of patients with metastatic non–small cell lung cancer (NSCLC) whose tumors have uncommon EGFR alterations in L861Q, G719X, and/or S768I. http://www.onclive.com/web-exclusives/fda-expands-afatinibs-approval-for-lung-cancer
The FDA has expanded the indication for afatinib (Gilotrif) to include the treatment of patients with metastatic non–small cell lung cancer (NSCLC) whose tumors have uncommon EGFR alterations in L861Q, G719X, and/or S768I. http://www.onclive.com/web-exclusives/fda-expands-afatinibs-approval-for-lung-cancer
MFH_Advocate
in
Lung Cancer Support
6 years ago
Growing fatigue and getting no answers
Hi am stage IV adenocarcinoma diagnosed August 2014, been on afatinib 20 mg all this time. Fortunately still here but the last 6 months have seen not a change in tumour size as per scans. However last 6 months has seen fatigue, mixing up words, needing to walk with stick, balance issues. According to
Hi am stage IV adenocarcinoma diagnosed August 2014, been on afatinib 20 mg all this time. Fortunately still here but the last 6 months have seen not a change in tumour size as per scans. However last 6 months has seen fatigue, mixing up words, needing to walk with stick, balance issues. According to
tdes69
in
The Roy Castle Lung Cancer Foundation
7 years ago
NSCLC EDFR Migration Stage 4 LC at 37.
Hi guys. I'm Adam, I was diagnosed last April at the age of 37 with Stage 4 Lung Cancer which had spread to my spine. It was caught on an X-ray of my throat completely unrelated to the cancer. As a lifetime non-smoker it was a complete shock (and still is). Turns out it was due to DNA mutation). Ive
Hi guys. I'm Adam, I was diagnosed last April at the age of 37 with Stage 4 Lung Cancer which had spread to my spine. It was caught on an X-ray of my throat completely unrelated to the cancer. As a lifetime non-smoker it was a complete shock (and still is). Turns out it was due to DNA mutation). Ive
AdamLaver
in
The Roy Castle Lung Cancer Foundation
7 years ago
Gilotrif/Afatinib
52 years old and have stage 4 lung cancer. I am EGFR positive and have been taking gilotrif/ Afatinib for almost 2 months now. I was wondering if there is anyone out there on this drug and is it working? I will have scans again on the 17th. Of this month. I try and stay positive.
52 years old and have stage 4 lung cancer. I am EGFR positive and have been taking gilotrif/ Afatinib for almost 2 months now. I was wondering if there is anyone out there on this drug and is it working? I will have scans again on the 17th. Of this month. I try and stay positive.
Deb1516
in
Lung Cancer Support
7 years ago
any supporters in Bristol
I was wondering whether there is any one using this site who are on the targeted therapy Afatinib (Giotrif) in the Bristol area- or are supporter or partner of any one on this drug or any other therapy for lung or other terminal cancer? it would be good to link up ? x
I was wondering whether there is any one using this site who are on the targeted therapy Afatinib (Giotrif) in the Bristol area- or are supporter or partner of any one on this drug or any other therapy for lung or other terminal cancer? it would be good to link up ? x
TraClo
in
Lung Cancer Support
7 years ago
any supporters in Bristol ?
I was wondering whether there is any one using this site who are on the targeted therapy Afatinib (Giotrif) in the Bristol area- or are supporter or partner of any one on this drug or any other therapy for lung or other terminal cancer? it would be good to link up ? x
I was wondering whether there is any one using this site who are on the targeted therapy Afatinib (Giotrif) in the Bristol area- or are supporter or partner of any one on this drug or any other therapy for lung or other terminal cancer? it would be good to link up ? x
TraClo
in
The Roy Castle Lung Cancer Foundation
7 years ago
any supporters in Bristol ?
TraClo Posted by TraClo 15 Nov 2016 3:11 PM I was wondering whether there is any one using this site who are on the targeted therapy Afatinib (Giotrif) in the Bristol area- or are supporter or partner of any one on this drug or any other therapy for lung or other terminal cancer? it
TraClo Posted by TraClo 15 Nov 2016 3:11 PM I was wondering whether there is any one using this site who are on the targeted therapy Afatinib (Giotrif) in the Bristol area- or are supporter or partner of any one on this drug or any other therapy for lung or other terminal cancer? it
TraClo
in
My Cancer Community
7 years ago
Afinitor, lapatinib
This was suggested! Anyone know about these drugs? Anyone done these drugs before? I feel like an experimental teenager! Oh how i wish i was! Haha!
This was suggested! Anyone know about these drugs? Anyone done these drugs before? I feel like an experimental teenager! Oh how i wish i was! Haha!
EvelynRuthless
in
My Ovacome
8 years ago
Breast cancer study finds 'astonishing' drug combination that gives results
Using Herceptin in combination with another drug before surgery shrinks and may even destroy tumours in women with an aggressive form of breast cancer in less than two weeks, an “astonishing” study suggests. The results of the Cancer Research UK-funded trial, presented at the 10th European Breast Cancer
Using Herceptin in combination with another drug before surgery shrinks and may even destroy tumours in women with an aggressive form of breast cancer in less than two weeks, an “astonishing” study suggests. The results of the Cancer Research UK-funded trial, presented at the 10th European Breast Cancer
pritompaul
in
Breast Cancer India
8 years ago
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