Experiences with

Congenital heart disease

I am 21 weeks pregnant. My baby has been diagnosed with the following, Subaortic VSD, aorta committed to right ventricle, very hypoplastic pulmonary valve, right arch mirror image branching with duct from left subclavian artery and retrograde flow. He will require heart procedure at about two days old

Has anyone gone on to have their own family with congenital heart disease.

Has anyone have congenital heart disease that has been through Ross PEARS procedure I had it done 9 weeks and would like to know if you have recovered and what if any hiccups you had on the journey. Thank you

I suffer with congenital heart disease and many other health issues, Actually there is probably more wrong with my whole body rather than what does work properly 🙄 I have battled with Endometriosis for many years and has come to a point that it is really effecting my health and they have finally agreed

I have been prescribed sumatriptan 50mg again because of the constant migraines I'm getting there so horrible and last all day and some times 3 days 💔.Does anyone else with congenital heart disease and heart valve disease suffer from this ( possible chronic fatigue aswell, gp is trying to get me a referral

I am a very determined woman who just sees this congenital heart disease as part of my life and I have always looked well and got on with it all, hence why I was discharged within days from open heart surgery and travelled three hours home.

Any female’s who has congenital heart disease (born with a heart defeat) Do you experience irregular periods?

, or infection) Congenital heart disease (abnormality of the heart present since birth) Pneumonia Lung cancer Pulmonary embolism Overactive thyroid Obesity Sleep apnoea Dementia Many of us have written that digestive issues that produce trapped gas are clearly the most frequent trigger for our

January 8th I meet when a new doctor I've never seen before, adult congenital heart disease doctor. Thank you!

Just wondering if anyone else with congenital heart disease has experienced this with there results after surgery?

My 9 month daughter has been diagnosed with a congenital heart disease. We took her to A&E for a chest infection and breathing issue and got diagnosed with a heart murmur associated with Aortic stenosis( valve is unicuspid), Coarctation of arteries and a petant ductus.

Hi to you all I was born with a heart condition and I have always been happy and healthy keeping up with my sibling, cousins and friends throughout my life. I enjoy sport and keeping fit but not worried about being competitive. I have recently experienced symptoms and waiting for a heart replacement

I hope you don’t mind me asking, but I follow on here as I have Hashimotos for 12 plus years and been quite poorly this year so additional bloods finally run and just told I have MGUS - still to see consultant but just wondering if anyone else has Hashimotos and MGUS? I’m a bit in shock so trying to

I have had symptomatic paroxysmal afib for 12 years. The first five years were episodes free after the initial episode. I have been taken Multaq and Diltiazem that minimize episodes to tolerable levels. Now I am told that my Echo showed mild leaking aortic and tricuspid heart valves along with grade

A relative staying with me has to have mitral valve replacement and is currently in hospital waiting for surgery. Just curious what will be required of me to take care of him after surgery. Apparently he will have surgery and then go to ICU for a few days and then come back to my home. I am in my 80'

Hi Everyone, Been in sinus rhythm since Jan 22 from cardioversion due to PAFIB. However since July I have been experiencing ectopic beats. An ecg showed that I have PVC and LVH both usually innocent. But I am experiencing the extopic beats most of the day every day. I had a holter monitor last month

I recently had a phone call following up an echocardiogram which had revealed a small pericardial effusion. I assumed I was speaking to a minion of the cardiologist who had made me feel like a gross hypochondriac but when I received the follow up letter I found it was from an ‘Interventional Consultant

I’m just about 5 weeks post Aortic valve replacement and slowly getting more active . My paroxysmal AF increased substantially after surgery which was expected and Amiodarone was prescribed in hospital . I’ve gone from 3 times a day to once a day and in about a week will come off it for the two weeks

Back in 2008, I was diagnosed with AFIB and, after an echo, was also told that I had a bicuspid aortic valve. An ablation in 2018 lasted only 8 months and I was soon back in afib and back on rhythm and rate meds. Fast forward to this past March when I got Covid and my paroxysmal afib turned to persistent

Have been on Losartan 100mg for a long time and most mornings I seem to be often clearing my throat. I looked up on Google was this a symptom of the drug and read to my horror that Losartan had been recalled because of cancer scares! I haven't been told by the pharmacist of any such problem. I hope it