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Online/Meet ups for people with Hypertrophic Cardiomyopathy struggling with Mental Health?
Hi everyone, so my partner was diagnosed with HC when he was 14. Been in great shape and only having medication for his condition up until 2016/2017, then 41, he was advised to have an ICD. Since then he's had 3 occasions where the device has delivered shock therapy and unfortunately the last 2 occasions
Hi everyone, so my partner was diagnosed with HC when he was 14. Been in great shape and only having medication for his condition up until 2016/2017, then 41, he was advised to have an ICD. Since then he's had 3 occasions where the device has delivered shock therapy and unfortunately the last 2 occasions
Chunkiedog
in
British Heart Foundation
8 months ago
3 Abiraterone tabs in place of 4.
Warriors Some time back I posted that my MO had told me to take 3 Abiraterone tablets with 5 mg Prednisone daily instead of 4 to help with an out of control Blood Pressure problem. I was worried (as were some of the responses) that this could impact the ADT therapy. Recently had blood work done
Warriors Some time back I posted that my MO had told me to take 3 Abiraterone tablets with 5 mg Prednisone daily instead of 4 to help with an out of control Blood Pressure problem. I was worried (as were some of the responses) that this could impact the ADT therapy. Recently had blood work done
85236442968
in
Advanced Prostate Cancer
5 months ago
Radiation Starts, Bye Bye Urethra?
D-Day arrives August 6th for IG/IMRT. Two very kind and empathetic technicians attend to my placement on the treatment bed. Lasers aligned, they leave the room and this giant green machine (which I had not previously met) begins whirring and gyrating about my torso with beeps and clunks. I sense that
D-Day arrives August 6th for IG/IMRT. Two very kind and empathetic technicians attend to my placement on the treatment bed. Lasers aligned, they leave the room and this giant green machine (which I had not previously met) begins whirring and gyrating about my torso with beeps and clunks. I sense that
mababa
in
Advanced Prostate Cancer
2 months ago
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Testosterone Recovery: Orgovyx vs Lupron, Part-II
Here's another plot summarizing data from a 2020 paper in the New England Journal of Medicine by Neil Shore, et al. that shows Orgovyx has much faster "ON" and "OFF" changes in testosterone levels, compared to Lupron. This plot compares the percentage of men who recover their testosterone (defined
Here's another plot summarizing data from a 2020 paper in the New England Journal of Medicine by Neil Shore, et al. that shows Orgovyx has much faster "ON" and "OFF" changes in testosterone levels, compared to Lupron. This plot compares the percentage of men who recover their testosterone (defined
janebob99
in
Prostate Cancer Network
5 months ago
Results after T3/T4 trial...is this it?
Hello, Medicheck results after T3/T4 trial since 15/11/23, reduced levo then from 150 to 125, added 5mg T3 23/11/23, red levo to 100mg 06/12/23, added 55mg T3 12/12/23. 30/12/23 not feeling best GP closed added 12.5 levo myself as thought maybe under medicated. Medicheck 08/02/24. T4 16.7
Hello, Medicheck results after T3/T4 trial since 15/11/23, reduced levo then from 150 to 125, added 5mg T3 23/11/23, red levo to 100mg 06/12/23, added 55mg T3 12/12/23. 30/12/23 not feeling best GP closed added 12.5 levo myself as thought maybe under medicated. Medicheck 08/02/24. T4 16.7
Klawd
in
Thyroid UK
8 months ago
Radiation & Underactive Bladder
Does anyone on this forum have an Underactive Bladder and has also undergone prostate radiation treatments? I will be starting a series of 34 radiation treatments coupled with a 6-month hormone therapy (orgovyx) program. Less than 6 years ago I chose RP over radiation as primary treatment for my PCa
Does anyone on this forum have an Underactive Bladder and has also undergone prostate radiation treatments? I will be starting a series of 34 radiation treatments coupled with a 6-month hormone therapy (orgovyx) program. Less than 6 years ago I chose RP over radiation as primary treatment for my PCa
brilliant17
in
Advanced Prostate Cancer
5 months ago
Scary PSA results
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
7OaksTom
in
Advanced Prostate Cancer
4 months ago
Does NSAIDS reduce ADT effectiveness?
Hello I have a question about taking NSAIDS while on ADT - up to now I have only used tylenol - I had read somewhere that NSAIDS subtract some effectiveness of the hormone therapy and I have avoided it - but with the amount of inflammation after 8 months, I would like to use some - primarily to let
Hello I have a question about taking NSAIDS while on ADT - up to now I have only used tylenol - I had read somewhere that NSAIDS subtract some effectiveness of the hormone therapy and I have avoided it - but with the amount of inflammation after 8 months, I would like to use some - primarily to let
jackwfrench
in
Advanced Prostate Cancer
5 months ago
Docetaxel Failing
Greetings from Inverness in the beautiful Highlands of Scotland! I would like to share my journey with you and hopefully get some advice on future treatments. In December 2022 following diagnoses of advanced prostate cancer with multiple bone metastasis I started zytiga + prednisone and 6 monthly triptorelin
Greetings from Inverness in the beautiful Highlands of Scotland! I would like to share my journey with you and hopefully get some advice on future treatments. In December 2022 following diagnoses of advanced prostate cancer with multiple bone metastasis I started zytiga + prednisone and 6 monthly triptorelin
Fisherman2
in
Advanced Prostate Cancer
6 months ago
BILLY NEEDS HELP
OK troops, after 26 years of surviving post prostectomy, with a Gleason 4/3, 4/4, some 41 rounds of intermittent hormone therapy using lupron, casadex, advodart, I had a break thru last November as my psa went back up mid on cycle. After having my radiation oncologist ignore the realities of this, I
OK troops, after 26 years of surviving post prostectomy, with a Gleason 4/3, 4/4, some 41 rounds of intermittent hormone therapy using lupron, casadex, advodart, I had a break thru last November as my psa went back up mid on cycle. After having my radiation oncologist ignore the realities of this, I
billyboy3
in
Advanced Prostate Cancer
6 months ago
Vitamin D again: High-dose vit D to attenuate bone loss in patients with prostate cancer on ADT, phase 2 RCT result
I take it for other reasons (and I am taking zometa) but this thing with vit D and bone loss is a never ending story…. https://pubmed.ncbi.nlm.nih.gov/38520382/
I take it for other reasons (and I am taking zometa) but this thing with vit D and bone loss is a never ending story…. https://pubmed.ncbi.nlm.nih.gov/38520382/
Maxone73
in
Advanced Prostate Cancer
6 months ago
Pancreas problems after RT for prostate
I was diagnosed with prostate cancer two years ago. Received radiotherapy and hormone therapy. My PSA levels have dropped and progress seems OK. I have also had M.E. and fibromyalgia for over 25 years and, as part of that, IBS. Since starting the hormone therapy and radiotherapy I became more and more
I was diagnosed with prostate cancer two years ago. Received radiotherapy and hormone therapy. My PSA levels have dropped and progress seems OK. I have also had M.E. and fibromyalgia for over 25 years and, as part of that, IBS. Since starting the hormone therapy and radiotherapy I became more and more
Nomojo56
in
Pelvic Radiation Disease Association
6 months ago
Wondering if anyone can relate to these symptoms
After an appointment with a dietician I was tested for suspected EPI and my level was very low - 53. I have been prescribed Creon 25000 and taking those for about 4 weeks.I have had M.E/CFS and fibromyalgia for over 25 years and two years ago was diagnosed with prostate cancer. I had radiotherapy and
After an appointment with a dietician I was tested for suspected EPI and my level was very low - 53. I have been prescribed Creon 25000 and taking those for about 4 weeks.I have had M.E/CFS and fibromyalgia for over 25 years and two years ago was diagnosed with prostate cancer. I had radiotherapy and
Nomojo56
in
Chronic Pancreatitis Support
6 months ago
DEXA sooner that 2 years?
Has anyone who took ADT for 18 months gotten a DEXA reimbursed or denied by Medicare if the repeat scan was sooner than 2 years? It seems that if easily falls under "medically necessary" because of the damage ADT can do to bone health, but I can't get a straight answer from Medicare. Thanks for any
Has anyone who took ADT for 18 months gotten a DEXA reimbursed or denied by Medicare if the repeat scan was sooner than 2 years? It seems that if easily falls under "medically necessary" because of the damage ADT can do to bone health, but I can't get a straight answer from Medicare. Thanks for any
RugbyVLS
in
Advanced Prostate Cancer
6 months ago
After ADT
Adrenal insufficiency after stopping ADT & steroids. My 72 year old husband had radical, robotic surgery 7 years ago. PSAs were 0 until 2 years ago, then barely detectable. Had the special PET scan, 3 spots lit up in lymph nodes, (in the area, none remote.) Had 6.5 weeks radiation therapy. Had 2 years
Adrenal insufficiency after stopping ADT & steroids. My 72 year old husband had radical, robotic surgery 7 years ago. PSAs were 0 until 2 years ago, then barely detectable. Had the special PET scan, 3 spots lit up in lymph nodes, (in the area, none remote.) Had 6.5 weeks radiation therapy. Had 2 years
Catmama5
in
Advanced Prostate Cancer
6 months ago
when is enough enough
as I read the post here I am struck by the bravery and never give up attitudes of the men who share their stories here. I have not faced hardly any of the difficulties I read about yet I have already made up my mind that I’m going to stop treatment and enjoy what time I have left . Am I just a wiener
as I read the post here I am struck by the bravery and never give up attitudes of the men who share their stories here. I have not faced hardly any of the difficulties I read about yet I have already made up my mind that I’m going to stop treatment and enjoy what time I have left . Am I just a wiener
Thesledge
in
Advanced Prostate Cancer
6 months ago
Please help us decide on next treatment
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Simonapo
in
Advanced Prostate Cancer
6 months ago
"FAN-( )UCKIG-TASTIC RESULTS"
A prostate cancer brother who ask me to return to HU (blame him ;), recently asked me about my T levels. Mid-day today I texted him the results which came in while on a coffee break following my morning of most excellent spring skiing. He texted back what I have used for the topic of this post. Yes
A prostate cancer brother who ask me to return to HU (blame him ;), recently asked me about my T levels. Mid-day today I texted him the results which came in while on a coffee break following my morning of most excellent spring skiing. He texted back what I have used for the topic of this post. Yes
NanoMRI
in
Advanced Prostate Cancer
6 months ago
Am I headed for Radiation
hello all. Wishing the best to everyone. Just a quick question that I think I know the answer to. After RP in June 2023 pathology was Gleason 4~3 with SVI, clear margins, lymph node dissection negative, prostate 30% involved. First PSA test all at quest was an ultra sensitive post prostatectomy test
hello all. Wishing the best to everyone. Just a quick question that I think I know the answer to. After RP in June 2023 pathology was Gleason 4~3 with SVI, clear margins, lymph node dissection negative, prostate 30% involved. First PSA test all at quest was an ultra sensitive post prostatectomy test
Elkguide
in
Advanced Prostate Cancer
2 months ago
HRT question
Hello, I've been on oestrogen and progesterone HRT since last summer and it's making me feel a great deal better generally. But I've found that during the two weeks of the cycle where I'm not on the progesterone, I get very anxious. Is there any way of taking the progesterone all month? I'm on two progesterone
Hello, I've been on oestrogen and progesterone HRT since last summer and it's making me feel a great deal better generally. But I've found that during the two weeks of the cycle where I'm not on the progesterone, I get very anxious. Is there any way of taking the progesterone all month? I'm on two progesterone
Amikatari
in
Menopause and Perimenopause Support
6 months ago
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