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ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
7 months ago
Kidney transplant 23 years my gfr now is 13 percent but I want no dialysis.
Hi everyone I hope everyone is doing well . I writing to you guys for some advice on what should I do. Anyhow, my kidney transplant is 23 years old it's been a nice ride so thankful , but in this pass 2 years it has lost fuction due because of the years. I have a donor already my husband but we are waiting
Hi everyone I hope everyone is doing well . I writing to you guys for some advice on what should I do. Anyhow, my kidney transplant is 23 years old it's been a nice ride so thankful , but in this pass 2 years it has lost fuction due because of the years. I have a donor already my husband but we are waiting
jennifer24
in
Kidney Transplant
2 months ago
Tuckute
I am a 73 year old single man, living alone. Been seriously depressed for 18 months. Had 3 hospitalizations, tried several meds, all ineffective. Have started ECT, with 3 sessions (last on June 3, 2024) and resuming tomorrow. No effective results yet.
I am a 73 year old single man, living alone. Been seriously depressed for 18 months. Had 3 hospitalizations, tried several meds, all ineffective. Have started ECT, with 3 sessions (last on June 3, 2024) and resuming tomorrow. No effective results yet.
Tuckute
in
Anxiety and Depression Support
2 months ago
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Just need some encouraging words
I am 67 years old and have had chronic, disabling depression and anxiety for at least forty years. I have been on about every antidepressant known as well as two courses of ECT, all of which have done nothing. Had some much psychotherapy that I am running out of counselors. Am currently on my fourth
I am 67 years old and have had chronic, disabling depression and anxiety for at least forty years. I have been on about every antidepressant known as well as two courses of ECT, all of which have done nothing. Had some much psychotherapy that I am running out of counselors. Am currently on my fourth
doctorpws1
in
Anxiety and Depression Support
2 months ago
Another update
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
Gandalf2
in
Encephalitis International
7 months ago
Abiraterone + Olaparib: ASCO GU 2024 Highlights: BRCAAway Trial
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
Maxone73
in
Advanced Prostate Cancer
7 months ago
pleurisy
I was diagnosed with lung infection a month ago. Two courses of antibiotics. Doctor said it’s cleared.,only to become so I’ll ten days ago ,deep cough stabbing pain in my side ribs and chest. Now I have pleurisy. On fourth course antibiotics. Had X-ray ,waiting result . prior to that 11 weeks ago I
I was diagnosed with lung infection a month ago. Two courses of antibiotics. Doctor said it’s cleared.,only to become so I’ll ten days ago ,deep cough stabbing pain in my side ribs and chest. Now I have pleurisy. On fourth course antibiotics. Had X-ray ,waiting result . prior to that 11 weeks ago I
Mia1000
in
Asthma Community Forum
2 months ago
Restless Leg Syndrome, neuromodulation..
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
House2
in
Restless Legs Syndrome
9 months ago
T3-4-Hypo trial - Netherlands
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
helvella
Thyroid UK
in
Thyroid UK
7 months ago
Gene therapy
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
Farooqji
in
Cure Parkinson's
7 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
7 months ago
9yr old son has 2-4 hr stretches defiant behaviors and name calling etc.
My 9yr old son has diagnosis of ADHD & Anxiety. He takes 36mg Concerta/36mg Methyphenidate XR 1x daily in am. He about 8 months ago he suddenly started to say very negative things about himslef-Im stupid, nobody loves me, you hate me, your mean, I should just kill myself, ect. At first it was just
My 9yr old son has diagnosis of ADHD & Anxiety. He takes 36mg Concerta/36mg Methyphenidate XR 1x daily in am. He about 8 months ago he suddenly started to say very negative things about himslef-Im stupid, nobody loves me, you hate me, your mean, I should just kill myself, ect. At first it was just
SupportMyKid
in
CHADD's ADHD Parents Together
3 months ago
testing protocol on T4 and T3
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Topes009
in
Thyroid UK
7 months ago
Itchy flaky triangle like skin red itchy rash that moves around my body which started on my lower left leg.
Hi everyone I had this dry itchy red spot on the inside my lower left leg.just above my ankle Was driving me mad scratched it in my sleep. Next morning it covered the intyer inside of my lower left leg. I thought myself crap what's going on?? A few days went by it was getting worse. I had an hand raised
Hi everyone I had this dry itchy red spot on the inside my lower left leg.just above my ankle Was driving me mad scratched it in my sleep. Next morning it covered the intyer inside of my lower left leg. I thought myself crap what's going on?? A few days went by it was getting worse. I had an hand raised
3stricks
in
MY SKIN
3 months ago
Input on Timing of Initial ADT after RP/SRT Failed
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
dans_journey
in
Advanced Prostate Cancer
4 months ago
Proton Beam Therapy
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
woppaginny
in
Advanced Prostate Cancer
7 months ago
Oxygen Therapy
Hi Everyone, A relative, who has MS, has suggested that I try oxygen therapy. It seems to really help them but I wondered if anyone here has had any experience of this and provide a suitable comment. Many thanks!
Hi Everyone, A relative, who has MS, has suggested that I try oxygen therapy. It seems to really help them but I wondered if anyone here has had any experience of this and provide a suitable comment. Many thanks!
RLSofManyYears
in
Restless Legs Syndrome
7 months ago
I don't want to live anymore
I've been depressed most of my life. I grew up with 10 brothers and sisters, I got teased constantly because I wasn't as beautiful as my 5 sisters. I would come home from school and hide away in my little 3rd floor bedroom to avoid teasing. I was never close to my mom, in fact I never remember having
I've been depressed most of my life. I grew up with 10 brothers and sisters, I got teased constantly because I wasn't as beautiful as my 5 sisters. I would come home from school and hide away in my little 3rd floor bedroom to avoid teasing. I was never close to my mom, in fact I never remember having
Mynameisreen
in
Major Depressive Disorder (MDD) Support
3 months ago
North of England Endo
Good evening I’m looking for private message replies please on your recommended Endo’s in the North of England. Yorkshire and North East. Not many seem to be listed on Thyroid U.K. list. Someone open to combined therapy. Thank you! Look forward to hearing from you :)
Good evening I’m looking for private message replies please on your recommended Endo’s in the North of England. Yorkshire and North East. Not many seem to be listed on Thyroid U.K. list. Someone open to combined therapy. Thank you! Look forward to hearing from you :)
Bollieforme
in
Thyroid UK
7 months ago
Let's enjoy some predictions: cell and gene therapy in 2024
because sometimes we must also have some positive but realistic dreams.... https://www.massgeneralbrigham.org/en/about/newsroom/articles/2024-predictions-about-gene-and-cell-therapy
because sometimes we must also have some positive but realistic dreams.... https://www.massgeneralbrigham.org/en/about/newsroom/articles/2024-predictions-about-gene-and-cell-therapy
Maxone73
in
Advanced Prostate Cancer
7 months ago
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