Experiences with

Cladribine

I'd appreciate hearing the views and feedback from others who've taken this Cladribine drug

You will have to provide your email. https://msselfie.co.uk/ Use the search bar to search for cladribine.

I have started Cladribine injection recently. I have change from Ocrelizumab.I would like to know the positive effect of cladribine on my mobility.

He is taking Mavenclad (Cladribine), 7 tablets in August, 7 more in September. He has a few days left to find insurance on healthcare.gov. He’s in Texas. I am helping him with some research. On the healthcare.gov site I can filter for policies which include his doctor and Mavenclad.

This study gives me pause because it states: “Moreover, we identified better outcomes in patients exposed to a lower number of previous DMTs, suggesting that cladribine might be more effective when placed as an early treatment along the treatment algorithm.” I’ll be talking to my neuro about this.

Looking back to April when I was in hospital for 2 separate weeks with sepsis, then had my subcutaneous cladribine treatment in May, now it feels like I'm a different person.

So here I am 3 weeks after my cladribine subcutaneous chemo finished. Am having weekly blood tests, had a phone chat with my haematologist this morning who is happy the way my platelets and neutrophiles are recovering - plats up to 138 and neuts 0.6, both doubled from a week ago.

My background is I was diagnosed with the hairies back in 2003 and treated with a cladribine drip, so I've had a good 17 year run before needing more chemo though in retrospect I probably should have had chemo 3 or 4 years ago. I'm now 72.

I am 49 years old and had Cladribine last January 2020. Whilst recovering at home and them shielding for almost 14 months, I have now returned back to work on a phased return.

I had chemotherapy(Cladribine) in January. Not due a blood test until October, recently started to feel breathless and fatigued. I suffer with insomnia.. Should I contact my consultant and ask for a blood test?

I had the test as I have RRMS and I was due to start second year of a drug called cladribine which is an immunosupressant. As it turns out second year has been cancelled anyway because of covid 19. I have never had any symptoms and chest x ray was clear. I am on day 3 of 112 of rifampicin.

So just did radiation..they are taking Cladribine, but isnt that for chemo patients? They say nurses come and pick them up for apt's. But on medical insurance. And to top it off they want to take a year off of treatment. None of this makes sense. Am I wrong??? Please leave some insight

I was treated with cladribine. I gained partial remission in December 2018. After a bone marrow biopsy in March 2019 my leukaemia is growing again and I need further treatment. I’m would like to talk to anyone who is having a similar journey Thank you in advance

I just wanted to share the latest news update that MSAA has posted on their website about the FDA approval of Mavenclad® (cladribine) tablets: https://mymsaa.org/mavenclad-approved-fda/ Thank you! Emily

I had treatment 5 years ago with Cladribine. I'm seeing GP on Wednesday following a blood test which said I was low in VIt B12 so just curious and want to go informed! Thank you

I just wanted to share the latest news update that MSAA posted on their website about the FDA application for cladribine tablets: https://mymsaa.org/news/fda-accepts-application-for-cladribine-tablets/ Thank you! Emily

It now looks very likely that I will have a course of cladribine chemo in the next month or so. My key blood counts have declined, and I have experienced a couple of infections recently - night sweats, weight loss, fatigue etc.

I was diagnosed with HCL a year ago yesterday (4/12/2015) and had cladribine January this year. Have felt like I was on a conveyor belt and told a number of times if I was to get Leaukemia this was the one to get .... Err no ! Any type is awful to have.

Fludarabine (FCR) (FR) Bendamustine (BR) probably Pentastatin (PCR.. used at the Mayo) Cladribine, not used much anymore If anyone can find changes to this recommendation from any authoratative primary source, like blood service etc. , then I would like to see them.

It should list all medications you're on, mention your immuno-compromised status, and if you’ve ever had treatment with one of the "purine analogue" medications (eg Fludarabine (part of FCR treatment), FCR, pentostatin, cladribine or bendamustine/rituxan,, it should explain that any blood transfusion