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Experiences with
Botulinum toxin type B
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Communities
21 public communities
Group B Strep Support
746 members
This is a community dedicated to helping those affected by group B Strep (GBS). GBS is a common bacterium that lives in 20-30% of adults, usually with no symptoms or side-effects. Most commonly found in the intestines, it can also live in the vagina of adult women. It is a ‘commensal’ – an organism that lives on another without causing harm. GBS can cause infection, most often in newborn babies. It more rarely causes infection in adults (typically women during pregnancy or after birth, the elderly and those with serious underlying medical conditions causing impaired immune system). Although relatively uncommon, GBS is the most common cause of infection in newborn babies and of meningitis in babies under age 3 months. On average in the UK, one baby a day develops GBS infection - one baby a week dies and one survivor a fortnight has long-term disability.
CLL Support
22,532 members
Chronic Lymphocytic Leukaemia Support https://www.cllsupport.org.uk is a patient-led charity founded in the UK in 2004. We support patients with Chronic Lymphocytic Leukaemia (CLL) and Small Lymphocytic Lymphoma (SLL) and their families/carers. CLL Support encourages education whilst working for access to treatments that will improve CLL outcomes. We provide information about developments in CLL/SLL treatment and research along with opportunities for awareness raising and mutual support, including the opportunity to meet at UK conferences several times each year. CLL Support at HealthUnlocked brings together a supportive international online community to allow those living with CLL/SLL and their family/carers to share their experiences. The group is supported by Admins, Volunteers and international information, resources and perspectives. Please take the time to read our [b]Community Guidelines[/b] where you’ll also find privacy and online safety tips and community contact information: https://healthunlocked.com/cllsupport/posts/148645878/hu-cll-support-community-guidelines-along-with-further-recommendations-to-keep-you-and-our-community-safe When you post, choose carefully whether you want your post to be read only by our community or searchable and readable by anyone on the internet (which is how you probably found us). See the previous link for more details. Next, our [b]welcome post[/b] is a good place to start: https://healthunlocked.com/cllsupport/posts/141151813/newly-diagnosed-with-cll-or-just-found-us-this-post-is-for-you Our other [b]Pinned Posts[/b] answer Frequently Asked Questions: https://healthunlocked.com/cllsupport/posts#pinned Finally, [b]please update your profile[/b], including where you live, to help us better help you: https://healthunlocked.com/profile/edit Thank you
Bone Health and Osteoporosis UK
5,591 members
This community is a welcoming and safe space for you to share your experiences, and we hope you’ll connect and find support with other people in a similar situation. Find our community guidelines here: https://healthunlocked.com/bonehealth/posts/150617024/b-community-guidelines-for-bone-health-and-osteoporosis-uk-b [b]Royal Osteoporosis Society[/b] We’re the Royal Osteoporosis Society – the UK’s largest national charity dedicated to improving bone health and beating osteoporosis. And we’re here for everyone living with osteoporosis or supporting someone. We equip people with practical information and support to take action on their bone health. • Visit our website https://theros.org.uk/, we have lots of fact sheets and booklets available to download and print, covering everything from general bone health, diagnosing osteoporosis and fragility fractures, osteoporosis drug treatments and living with spinal fractures. • What is Osteoporosis? Find our more through our information film https://youtu.be/DNExgVo8zsc?si=ArZ--vxYx6I_IclG • Join our membership - By becoming a Member of the ROS you can access exclusive benefits including your free book: All About Osteoporosis, Osteoporosis News magazines, a monthly member e-newsletter and so much more! The Royal Osteoporosis Society is a UK based organisation, and all of the content, information and support available here is based on UK treatments and care. If you’re from another country you may wish to look at these organisations: https://www.osteoporosis.foundation/our-network/the-committees#committee-of-national-societies [b]Connect with us! [/b] Join our mailing list - https://theros.org.uk/ros-news-sign-up/ You tube - https://www.youtube.com/c/osteoporosissociety Facebook -https://www.facebook.com/RoyalOsteoSoc Instagram - https://www.instagram.com/royalosteosoc/ X - https://twitter.com/royalosteosoc
OPA Caregivers
25 members
[b]For more than three decades, the OPA has fought against oesophageal and gastric cancers, raising awareness, supporting patients, caregivers and their families. Whether you are in the early stages or further along in your journey, the OPA is dedicated to offering support and guidance.[/b] OPA Carer's forum is an online community where you can talk to other carers who understand what you are going through. You can support and encourage each other through everything caring has to throw at you.
dRTA (distal Renal Tubular Acidosis)
446 members
dRTA (distal Renal Tubular Acidosis) is a rare type of kidney disease that can have a have major impact on a person’s health throughout their life. National Kidney Foundation has created this community to provide a source of support and general information and to help raise awareness and understanding about dRTA for patients and their families. Fueled by passion and urgency, NKF is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
FieryBones - RA Community
675 members
Rheumatoid Arthritis, or RA, is a type of auto-immune disease where the body's immune system starts attacking its own tissues and joints. It can happen at any age and is one of the most common form of arthritis. Some of the common symptoms are painful and swollen joints, fatigue and weakness. For people living with RA, it is a daily struggle to balance their personal and professional lives with the unpredictability of this painful disease. FieryBones has been created to connect all the RA warriors and caregivers throughout the world on a single platform. Nothing makes us feel better than reading inspirational blogs of how our RA peers are coping with this illness and sharing our story with the community that truly understands!
SHARE Uterine Cancer Support
308 members
SHARE Uterine Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your experiences with uterine / endometrial cancer, also known as womb cancer in the UK. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. For more information about SHARE, please visit us at: sharecancersupport.org. Whether you're a long-term survivor looking to inspire others or are newly diagnosed, you are very welcome here. Many of our community members have questions about experience with specific uterine cancer treatments like Paclitaxel, Carboplatin, Cisplatin, etc. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. There is a lot of good information here from other patients, survivors, and caregivers on topics like stages and grades, histologic subtypes, radiation, genetics, and more. If you don't find what you're looking for, feel free to message an admin who will get back to you. This community is monitored Mon-Fri, 10:00 am - 6:00 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
Dystonia Society
600 members
We are an online community providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia. Join us to share your experiences, ask for advice and support each other! The Dystonia Society Helpline is available Tue - Fri, 10-4, on 020 7793 3650 or support@dystonia.org.uk
SHARE Metastatic Breast Cancer
6,607 members
SHARE Metastatic Breast Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your issues. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. Please visit our website to learn more: www.sharecancersupport.org. Many of our community members have questions about experience with specific metastatic breast cancer treatments like Ibrance, Herceptin, Verzenio, etc. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. Other topics in this community include mastectomy and double mastectomy surgeries, stages of metastatic breast cancer, metastatic breast cancer awareness, and more. As a community we have rules. Inappropriate, abusive or irrelevant posts, advertisements, and sexual photographs will removed, as will disrespectful or offensive comments on threads. Please respect the diversity of political, spiritual and nonspiritual beliefs of our users, and please note, we DO NOT permit messaging with a bias against any group of people. Any content on this site is NOT to be construed as medical advice! Members should always consult their doctors regarding a medical condition or treatment. Organizations must post events and services as individual users and avoid direct advertising. The views presented on this site do not represent the views of SHARE. This community is monitored Mon-Fri, 9:30 am - 5:30 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
SHARE Ovarian Cancer Support
2,763 members
SHARE Ovarian Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your issues. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. Please visit our website to learn more: www.sharecancersupport.org. Whether you're a long-term survivor looking to inspire others or are here to ask about CA-125 levels rising, you are very welcome here. Many of our community members have questions about experience with specific ovarian cancer treatments like rubraca, Lynparza, Zejula, etc, as well as broader questions including ovarian cancer signs symptoms, ovarian cysts, early signs of ovarian cancer, and more. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. You can also search for various histopathologies of ovarian cancer, like clear cell carcinoma or mucinous ovarian cancer. As a community we have rules. Inappropriate, abusive, or irrelevant posts, advertisements, and sexual photographs will removed, as will disrespectful or offensive comments on threads. Please respect the diversity of political, spiritual and nonspiritual beliefs of our users, and please note, we DO NOT permit messaging with a bias against any group of people. Any content on this site NOT to be construed as medical advice! Members should always consult their doctors regarding a medical condition or treatment. Organizations must post events and services as individual users and avoid direct advertising. The views presented on this site do not represent the views of SHARE. This community is monitored Mon-Fri, 9:30 am - 5:30 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
SHARE Breast Cancer Support
2,376 members
SHARE Breast Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your issues. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. Please visit our website to learn more: www.sharecancersupport.org. Many of our community members have questions about experience with specific breast cancer treatments like Tamoxifen, Xeloda, Letrozole, Fulvestrant, etc. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. There is a lot of good information here from other patients, survivors, and caregivers on topics like DCIS, mastectomy/double mastectomy surgery, inflammatory breast cancer, taxol, breast lumps, breast cancer stages, and more. If you don't find what you're looking for, feel free to message an admin who will get back to you. As a community we have rules. Inappropriate, abusive, or irrelevant posts, advertisements, and sexual photographs will be removed, as will disrespectful or offensive comments on threads. Please respect the diversity of political, spiritual and nonspiritual beliefs of our users, and please note, we DO NOT permit messaging with a bias against any group of people. Any content on this site is NOT to be construed as medical advice! Members should always consult their doctors regarding a medical condition or treatment. Organizations must post events and services as individual users and must avoid direct advertising. The views presented on this site do not represent the views of SHARE. This community is monitored Mon-Fri, 9:30 am - 5:30 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
Migraine Support
3,500 members
We are a peer support community for people living with migraines. Here we share our experiences, ask questions and support each other!
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