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Eligard and bicalutamide.
Started eligard and bicalutamide post RP in 2018. Followed advice of urologist until 2022. New urologist took me off both after PSA of 0.01. Unfortunately, l did not receive advice about secondary effects of the above drugs-osteoporosis etc. A DEXA scan in 2022 revealed high possibility of bone fractures
Started eligard and bicalutamide post RP in 2018. Followed advice of urologist until 2022. New urologist took me off both after PSA of 0.01. Unfortunately, l did not receive advice about secondary effects of the above drugs-osteoporosis etc. A DEXA scan in 2022 revealed high possibility of bone fractures
edgeh
in
Advanced Prostate Cancer
1 month ago
Degarelix worked for 6 months now on xtandi as well.
Degarelix worked for 6 months now on xtandi as well gleeson score 8 psa has fallen slightly from 323 to 280 how long should i expect xtandi to stop bone pain etc.
Degarelix worked for 6 months now on xtandi as well gleeson score 8 psa has fallen slightly from 323 to 280 how long should i expect xtandi to stop bone pain etc.
littlemount
in
Advanced Prostate Cancer
1 month ago
PSA rising after salvage treatment
Hi, It's been a while since I was on this forum, but I am in need of some advice. I had a radical prostatectomy in 2021 followed by salvage radio therapy. My psa levels have been rising slowly since then and I wondered if there was any advice as to what it might mean and if there is anything I should
Hi, It's been a while since I was on this forum, but I am in need of some advice. I had a radical prostatectomy in 2021 followed by salvage radio therapy. My psa levels have been rising slowly since then and I wondered if there was any advice as to what it might mean and if there is anything I should
MotoGuzziFan
in
Prostate Cancer Network
1 month ago
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I introduce myself to you
Hi all After reading the messages for a long time, I finally took the time to update my profile to describe my history of the disease. That's it Take care of yourself, I live in France, I was born in April 1963, I am married and I stopped my professional activity 10 months ago Diagnosed 09/2019,
Hi all After reading the messages for a long time, I finally took the time to update my profile to describe my history of the disease. That's it Take care of yourself, I live in France, I was born in April 1963, I am married and I stopped my professional activity 10 months ago Diagnosed 09/2019,
graal05
in
Advanced Prostate Cancer
1 month ago
PSA after chemo # 4
Hi My husbands last chemo was # 3 and PSA was 0.14, he just got the results from Chemo # 4 and it was at 0.12. This is the slowest decline if you look in the profile Iisted all his PSA results. Should we be worried that this last one barely moved ? Or is this slower decline good news? Thanks for any
Hi My husbands last chemo was # 3 and PSA was 0.14, he just got the results from Chemo # 4 and it was at 0.12. This is the slowest decline if you look in the profile Iisted all his PSA results. Should we be worried that this last one barely moved ? Or is this slower decline good news? Thanks for any
positive-thinking
in
Advanced Prostate Cancer
1 month ago
Any experience with Xtandi (enzolutamide).
The long story is in another post. Short story is the PC metastasized to the brain and they added Xtandi to the Lupron shots , as it's the only drug that will go to the brain. It seems to be working, Scans and PSA are where they should be and symptoms are more discouraging than debilitating. The
The long story is in another post. Short story is the PC metastasized to the brain and they added Xtandi to the Lupron shots , as it's the only drug that will go to the brain. It seems to be working, Scans and PSA are where they should be and symptoms are more discouraging than debilitating. The
bcskibdy
in
Prostate Cancer And Gay Men
1 month ago
Rising PCA - on ADT Holiday
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no “evidence of disease”. Continued to do bloodwork quarterly and PSA remained at 0. Until
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no “evidence of disease”. Continued to do bloodwork quarterly and PSA remained at 0. Until
Kkash
in
Advanced Prostate Cancer
1 month ago
Still Frustrated
My prostrate cancer struggle continues. As I’ve posted, it began 5 months ago with higher PSA numbers in an annual physical. I live in San Diego where there is world class medical facilities and I’ve seen the most highly recommended doctors. Yet now , I’m diagnosed with a very aggressive (Gleason 9)
My prostrate cancer struggle continues. As I’ve posted, it began 5 months ago with higher PSA numbers in an annual physical. I live in San Diego where there is world class medical facilities and I’ve seen the most highly recommended doctors. Yet now , I’m diagnosed with a very aggressive (Gleason 9)
Willie51
in
Prostate Cancer And Gay Men
2 months ago
Psa level
Just came off degarlix as psa level was rising, now on xtadi apalutamide how long does it take for psa level to fall and by how much?
Just came off degarlix as psa level was rising, now on xtadi apalutamide how long does it take for psa level to fall and by how much?
littlemount
in
Advanced Prostate Cancer
2 months ago
MRI from 3-30-2024.
I have been on active surveillance since 2016. Recently had a jump in PSA from 6.5 to 8.29. Had an MRI on Saturday and here are the results. Any thoughts or input are greatly appreciated. Impressions --No significant interval change in appearance of the prostate, with stable size and imaging appearance
I have been on active surveillance since 2016. Recently had a jump in PSA from 6.5 to 8.29. Had an MRI on Saturday and here are the results. Any thoughts or input are greatly appreciated. Impressions --No significant interval change in appearance of the prostate, with stable size and imaging appearance
Odnad
in
Prostate Cancer Network
2 months ago
Does Gleason score still apply after RP
Hi all. I have never been able to get this question answered. My Gleason was 3+3 before having my prostate removed. It was confirmed 3+3 after surgery. One open margin of less than 1mm. No sign of spreading anywhere locally or distant. My psa was in the .02-.03 range bouncing up and down for 8 years
Hi all. I have never been able to get this question answered. My Gleason was 3+3 before having my prostate removed. It was confirmed 3+3 after surgery. One open margin of less than 1mm. No sign of spreading anywhere locally or distant. My psa was in the .02-.03 range bouncing up and down for 8 years
LockItUp
in
Prostate Cancer Network
2 months ago
NCT04662580 - All about ARX517 as Monotherapy
Hello, Tomorrow I am going to participate in ARX517 as Monotherapy. Here is the clinical trial: https://www.clinicaltrials.gov/study/NCT04662580. Share your questions / positive comments. I will update here Special request to
Tall_Allen
- Please tell : what should I ask ? [
Hello, Tomorrow I am going to participate in ARX517 as Monotherapy. Here is the clinical trial: https://www.clinicaltrials.gov/study/NCT04662580. Share your questions / positive comments. I will update here Special request to
Tall_Allen
- Please tell : what should I ask ? [
God_Loves_Me
in
Advanced Prostate Cancer
2 months ago
stage 4 Mets in all his skeleton
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
Lakehouse32
in
Advanced Prostate Cancer
2 months ago
Bone pain, what next?
For over 2 years my scans show no radiographic progression despite a rising PSA, now at 43. However I am now experiencing periodic bone pain in the left hip area, mainly when I climb stairs. Tolerable but a worrying development. Even with lack of visible progression I think we need to change something
For over 2 years my scans show no radiographic progression despite a rising PSA, now at 43. However I am now experiencing periodic bone pain in the left hip area, mainly when I climb stairs. Tolerable but a worrying development. Even with lack of visible progression I think we need to change something
Ian99
in
Advanced Prostate Cancer
2 months ago
Prostrate Removed, PSA increasing
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
BlessedParchy
in
Advanced Prostate Cancer
2 months ago
HDR boost Brachytherapy + IMRT
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Cenerus
in
Advanced Prostate Cancer
2 months ago
after EBRT …monitoring?
I’m up to fraction 20, today, 8 to go. (YAY!) I’m sure my RO will fill me in in upcoming appointments, but was wondering what I could expect in terms of monitoring results of my treatments afterwards. I’d imagine routine blood panels, monitoring PSA, but should I expect another PSMA PET scan at some
I’m up to fraction 20, today, 8 to go. (YAY!) I’m sure my RO will fill me in in upcoming appointments, but was wondering what I could expect in terms of monitoring results of my treatments afterwards. I’d imagine routine blood panels, monitoring PSA, but should I expect another PSMA PET scan at some
Jpburns
in
Advanced Prostate Cancer
2 months ago
Erectile Leaking
I'm 2 months post robotic-prostatectomy. All went very well regarding surgery as is, my continued recovery. The one thing which I can't understand or work out is masturbation incontinence. 90% now I'm dry, just wearing a small dry pad. Doing my Kegel exercises every day, 3 times a day. On trying a
I'm 2 months post robotic-prostatectomy. All went very well regarding surgery as is, my continued recovery. The one thing which I can't understand or work out is masturbation incontinence. 90% now I'm dry, just wearing a small dry pad. Doing my Kegel exercises every day, 3 times a day. On trying a
Wakeyguy63
in
Prostate Cancer And Gay Men
2 months ago
Three month post SBRT PSA
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8 Testosterone is 14.25 ng/dL Just had the blood draw 2 hours ago and results were pushed to my portal. Meet with my RO in 10 days.....I am THRILLED with the results!
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8 Testosterone is 14.25 ng/dL Just had the blood draw 2 hours ago and results were pushed to my portal. Meet with my RO in 10 days.....I am THRILLED with the results!
ToolBeltZia
in
Prostate Cancer Network
2 months ago
PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
2 months ago
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