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finally an appointment!
ok so after nearly 3 months I have an appointment with an endo in a few weeks. I wondered if anyone could help me on what I need to push for and ask? Symptoms are; anxiety and depression, Epigastric pain, nausea, severe fatigue (couldn’t get out of bed yesterday) dry skin and eyes, restlessness, feeling
ok so after nearly 3 months I have an appointment with an endo in a few weeks. I wondered if anyone could help me on what I need to push for and ask? Symptoms are; anxiety and depression, Epigastric pain, nausea, severe fatigue (couldn’t get out of bed yesterday) dry skin and eyes, restlessness, feeling
Lollipop93
in
Thyroid UK
3 months ago
Update on Head/neck pressure post from a few days ago
I have a previous post discussing this but as a quick recap - for some reason, after about 2.5 years of being on a steady dose, I suddenly felt unwell and v overmedicated on holiday about 8 weeks ago. I dropped my dose by 5, then another 5mcg and felt fine about from about two weeks afterwards until
I have a previous post discussing this but as a quick recap - for some reason, after about 2.5 years of being on a steady dose, I suddenly felt unwell and v overmedicated on holiday about 8 weeks ago. I dropped my dose by 5, then another 5mcg and felt fine about from about two weeks afterwards until
Murphysmum
in
Thyroid UK
6 months ago
Genetic Testing?
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
janebob99
in
Prostate Cancer Network
6 months ago
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Strange Results
Hi, I was diagnosed with PA in 2013/14 and was given injections for a while but that stopped a good few years ago. I had tests done via Endo a while back and they said my levels were fine despite no injections/supplements. I had tests done in May 2023 and the active b12 came back as high. It showed
Hi, I was diagnosed with PA in 2013/14 and was given injections for a while but that stopped a good few years ago. I had tests done via Endo a while back and they said my levels were fine despite no injections/supplements. I had tests done in May 2023 and the active b12 came back as high. It showed
DownAndDesperate
in
Pernicious Anaemia Society
3 months ago
Help Interpreting Results
Hi. Can I have advice on results? These are from a while back for anyone who has read my recent posts. I was on 1 tablet of T3 a day at this point. I previously had high thyroid antibodies but the LDN I take seems to have lowered them to be in range. I was wondering if the same has happened with pernicious
Hi. Can I have advice on results? These are from a while back for anyone who has read my recent posts. I was on 1 tablet of T3 a day at this point. I previously had high thyroid antibodies but the LDN I take seems to have lowered them to be in range. I was wondering if the same has happened with pernicious
DownAndDesperate
in
Thyroid UK
3 months ago
accidental overdose of thyroxine
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
Tjqui00
in
Thyroid UK
6 months ago
TSH and T4 raising on medications
Hi Initially, my TSH level was 8 mIU/L (normal range 0.4 to 4.0 mIU/L), with T3 and T4 within normal ranges. Upon starting a 0.25 euthyrox (T4) dosage, my TSH surged to 18, coinciding with the onset of mild discomfort in my rectal area, which I suspect may be hemorrhoids. Despite a dosage increase to
Hi Initially, my TSH level was 8 mIU/L (normal range 0.4 to 4.0 mIU/L), with T3 and T4 within normal ranges. Upon starting a 0.25 euthyrox (T4) dosage, my TSH surged to 18, coinciding with the onset of mild discomfort in my rectal area, which I suspect may be hemorrhoids. Despite a dosage increase to
Biotamo
in
Thyroid UK
3 months ago
Endocrinologist won't medicate me?
My results are:TSH 2.3 (0.3-5.0) down from 5.32 T3 4.2 (3.5-5.8) down from 5.6 T4 11.2 (7.00-20.0) up from 8.6 Could this be from taking a month of supplements (recommended here, so thank you) & I'm now doing ok because of that? I'm still symptomatic (less so) I don't know?? Ultrasound & blood
My results are:TSH 2.3 (0.3-5.0) down from 5.32 T3 4.2 (3.5-5.8) down from 5.6 T4 11.2 (7.00-20.0) up from 8.6 Could this be from taking a month of supplements (recommended here, so thank you) & I'm now doing ok because of that? I'm still symptomatic (less so) I don't know?? Ultrasound & blood
Elle137
in
Thyroid UK
2 months ago
recommend T3supplier online (private message only please)
I haven’t posted on here for quite some time now. For the last few years I have being buying my t3 over the counter either myself when on holiday or when friends or family are on holiday in Greece. I only have enough for a couple of months left so I need to buy online again but I don’t know who is
I haven’t posted on here for quite some time now. For the last few years I have being buying my t3 over the counter either myself when on holiday or when friends or family are on holiday in Greece. I only have enough for a couple of months left so I need to buy online again but I don’t know who is
Shazamm
in
Thyroid UK
6 months ago
Starting T3
Hi I had appointment with private GP and the plan is for me to start T3. I am currently taking 75/100 mg Levothyroxine alternate days. My latest results were TSH 1.28, T3 4, T4 20.4 I’m told my conversion rate is poor at 5.1. It’s suggested that I take 2.5 mcg 3 times a day to begin. If I feel ok after
Hi I had appointment with private GP and the plan is for me to start T3. I am currently taking 75/100 mg Levothyroxine alternate days. My latest results were TSH 1.28, T3 4, T4 20.4 I’m told my conversion rate is poor at 5.1. It’s suggested that I take 2.5 mcg 3 times a day to begin. If I feel ok after
Pebbles33
in
Thyroid UK
3 months ago
Pelvic pain/bladder
3 years ago I started feeling an uncomfortable pain in my bladder region. I wouldn't empty properly and they're be a burning before and after urination.Since then, I've had blood tests, prostate checks, urine tests and more recently an ultrasound scan. All have come back negative (and healthy). In my
3 years ago I started feeling an uncomfortable pain in my bladder region. I wouldn't empty properly and they're be a burning before and after urination.Since then, I've had blood tests, prostate checks, urine tests and more recently an ultrasound scan. All have come back negative (and healthy). In my
painsince2020
in
Pelvic Pain Support Network
3 months ago
T3/T4 combo maintaining in range TSH
I’m just wondering, does anybody do this either by design or by accident?
I’m just wondering, does anybody do this either by design or by accident?
Laundretta
in
Thyroid UK
3 months ago
Anyone experienced HbA1c increasing after starting T3, and increasing more when Levo reduced, does it settle , is it temporary
hoping to find out, if it will eventually right itself when thyroid issues are treated optimally. I think/hope it might but would be good if others have any experience references that could back up my intuition. I was px venlafaxine early 2019, had never had any blood glucose issues before that. Lipids
hoping to find out, if it will eventually right itself when thyroid issues are treated optimally. I think/hope it might but would be good if others have any experience references that could back up my intuition. I was px venlafaxine early 2019, had never had any blood glucose issues before that. Lipids
Polo22
in
Thyroid UK
4 months ago
BBC Article : Prescription drugs sold online without robust checks
Whenever I see this type of article - the BBC and others produce these things every couple of years, I think - I start worrying that I'm going to lose access to thyroid hormones on the web. I know this subject came up with the MHRA last year or the year before, but I don't have a link. Link : https:
Whenever I see this type of article - the BBC and others produce these things every couple of years, I think - I start worrying that I'm going to lose access to thyroid hormones on the web. I know this subject came up with the MHRA last year or the year before, but I don't have a link. Link : https:
humanbean
in
Thyroid UK
6 months ago
Overmedicated for Graves
Good morning , Please if you can could you help advise me how to ease some of my symptoms .I will be very grateful . On my last blood test my TSH increased from 0.32 to 3.47 and it is assumed by the Endo that I’m over medicated. I was for 10 weeks on 10 mg of Carbimazole and the dose was reduced from
Good morning , Please if you can could you help advise me how to ease some of my symptoms .I will be very grateful . On my last blood test my TSH increased from 0.32 to 3.47 and it is assumed by the Endo that I’m over medicated. I was for 10 weeks on 10 mg of Carbimazole and the dose was reduced from
Danathediva1
in
Thyroid UK
2 months ago
Does this sound like Hashimoto's please?
Hello, My thyroid has been under suspicion for many years but I cannot seem to get any answers. Postnatally, (four months after giving birth), some fifteen years ago, my TSH was tested and was 12.6. Nothing was done about this. ( I have only just seen this on my NHS app). Fast forward to eight years
Hello, My thyroid has been under suspicion for many years but I cannot seem to get any answers. Postnatally, (four months after giving birth), some fifteen years ago, my TSH was tested and was 12.6. Nothing was done about this. ( I have only just seen this on my NHS app). Fast forward to eight years
Gyrosgirl
in
Thyroid UK
3 months ago
checking out a T3 supply source
had a message about a thyroid supply company for T3 in America. Called [ redacted source ] is this a scam company or a proper legit company trying to check it out. Please private message me any thoughts. Thanks
had a message about a thyroid supply company for T3 in America. Called [ redacted source ] is this a scam company or a proper legit company trying to check it out. Please private message me any thoughts. Thanks
elwins
in
Thyroid UK
6 months ago
Update following meeting with MO
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
Benkaymel
in
Advanced Prostate Cancer
6 months ago
GP wants to put me on statins but reluctant to take due to underactive thyroid and liver issues
hi - I have an underactive thyroid / hashimotos. I’m on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so he’s agreed to keep it at 100mg only after a bit of arguing and having
hi - I have an underactive thyroid / hashimotos. I’m on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so he’s agreed to keep it at 100mg only after a bit of arguing and having
Fergus883782
in
Thyroid UK
2 months ago
Considerations when starting out with private endo
I’m thinking of going to a private Endo. Looking at the list, there’s none in my county. I can travel half hour to one that’s just private and he sounds good but that means if I do get T3 and it does work, I’ll be forever paying for it (I don’t know costs yet). There’s one that’s NHS and private
I’m thinking of going to a private Endo. Looking at the list, there’s none in my county. I can travel half hour to one that’s just private and he sounds good but that means if I do get T3 and it does work, I’ll be forever paying for it (I don’t know costs yet). There’s one that’s NHS and private
Loopnova
in
Thyroid UK
6 months ago
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