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4 public communities
JIA-at-NRAS
390 members
This community is for anyone affected by the condition, Juvenile Idiopathic Arthritis (JIA). It is run by the National Rheumatoid Arthritis Society (NRAS) and HealthUnlocked and exists to help you find support and information from other people living with or affected by JIA. This is an independent, patient led, forum so please take time to read our community guidelines which you can read under ‘Pinned Posts’. NRAS are a UK based charity providing support, information, and advocacy for people with juvenile idiopathic arthritis and rheumatoid arthritis, their families, friends, and carers. Our vision is for everyone with JIA (Juvenile Idiopathic Arthritis) and RA (Rheumatoid Arthritis) to be able to live their life to the full. We have a helpline which is open Mon-Fri, 9.30am - 4.30pm and is free for landlines: 0800 298 7650 or email helpline@nras.org.uk Free information booklets are available for download or to order as hardcopy from our online shop, visit www.jia.org.uk/shop to get your copies of JIA Explained, Managing JIA in schools, Medicines in Juvenile Idiopathic Arthritis.
Aspergillosis and Rare Fungal Infection Support
3,873 members
Serious fungal infections are very rare but also very under-diagnosed and that has several consequences. 1) There are many more cases than we currently know about 2) People who are diagnosed can be very isolated and benefit from community support This community is intended to address these issues by informing and educating people in the UK about serious fungal infections, what to look out for, how to get diagnosed and where the expert help is in the UK. We also feel that informing patients is a great way to support their medical teams. The National Aspergillosis Centre (www.nationalaspergillosiscentre.org.uk), currently based in Manchester is the main UK centre for the serious fungal infections caused by Aspergillus (see aspergillosis.org) and is where admin of this community is based, so we have all we need t to advise you on aspergillosis - maybe even get you a referral to this centre if warranted. This is also the site of the Mycology Reference Centre in Manchester (http://mrcm.org.uk/) which is a big skill base for the identification of all pathogenic fungi, consequently, we can support the diagnosis and treatment of other rare fungal diseases like cryptococcal meningitis, Candida bloodstream infection, Pneumocystis pneumonia and more. Note that we only support people who can use the UK NHS and only for questions and conversation about serious rare fungal infections and NOT the very common infections that you should be consulting your GP or pharmacist about - we cannot replace your relationship with your medical team but we may be able to help them help you. Any entries that seem to us to be better dealt with by your medical team first will be deleted. Any non-UK questions will also be deleted - sorry, but we are funded by the UK taxpayer and they have to come first!
CHADD's ADHD Parents Together
23,624 members
The ADHD Parents Together community is a place to discuss the impact of ADHD on both you and your child. Talking about the challenges you face as a parent of a child with ADHD can be hard, but sometimes, there’s nothing more helpful than talking with others who are in the same boat. Our community is one where we can all have the conversations we need to, sharing our experiences and supporting each other.
CHADD's Adult ADHD Support
24,291 members
CHADD's Adult ADHD Support community is a place to discuss the impact of ADHD on you or someone you care about. Talking about the challenges you face as an adult with ADHD can be hard, but sometimes, there’s nothing more helpful than talking with others who are in the same boat. Our community is one where we can all have the conversations we need to, sharing our experiences and supporting each other.