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Hello everyone...
It was in August 2022 that my primary care became alarmed after my PSA returned, and it was 77 plus, that I likewise became alarmed by the fact that I must deal with prostate cancer. As a result, I tried hormone therapy for six months and thought about killing myself if I did not die first from the
It was in August 2022 that my primary care became alarmed after my PSA returned, and it was 77 plus, that I likewise became alarmed by the fact that I must deal with prostate cancer. As a result, I tried hormone therapy for six months and thought about killing myself if I did not die first from the
PC-In-NC
in
Prostate Cancer Network
11 months ago
Diagnostic VS Symtomatic PSA Results
Sometimes my PSA results are labeled “Symptomatic” and sometimes “Diagnostic” are the results comparable?
Sometimes my PSA results are labeled “Symptomatic” and sometimes “Diagnostic” are the results comparable?
6357axbz
in
Advanced Prostate Cancer
11 months ago
PSMA PET Scan Question
I heard on a PCa support group call, from a retired MD, that if your PSA is below 0.1 a PSMA PET scan isn’t useful because it requires a certain level of the PSA to find metastases. Does anyone know if that’s true or is it more of a wives tale or just anecdotal? Thanks!
I heard on a PCa support group call, from a retired MD, that if your PSA is below 0.1 a PSMA PET scan isn’t useful because it requires a certain level of the PSA to find metastases. Does anyone know if that’s true or is it more of a wives tale or just anecdotal? Thanks!
Peeffervescence
in
Advanced Prostate Cancer
11 months ago
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3 years Post-VRMAT-RT & ADT
After 3 years my PSA went from
20.3 μg/L
down to
0.02 μg/L
and Testosterone from
438.04ng/dL
down to
60.57 ng/dL
🙈🙉🙊. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently I fell and broke
After 3 years my PSA went from
20.3 μg/L
down to
0.02 μg/L
and Testosterone from
438.04ng/dL
down to
60.57 ng/dL
🙈🙉🙊. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently I fell and broke
doc1947g
in
Prostate Cancer Network
11 months ago
hip or hernia pain
hello. I have a diagnosis of psa and am prescribed Taltz. I have had right side groin pain for 18 months. Extensive testing has shown mild degenerative changes in my hip joint and an osteophyte. Ortho consultant doesn’t believe this is the source of the pain. An indirect inguinal hernia has been found
hello. I have a diagnosis of psa and am prescribed Taltz. I have had right side groin pain for 18 months. Extensive testing has shown mild degenerative changes in my hip joint and an osteophyte. Ortho consultant doesn’t believe this is the source of the pain. An indirect inguinal hernia has been found
Vespa10
in
Arthritis Action
11 months ago
mCRPC. Total PSA is up from 1.2 to 2.1 in 2 months, but free PSA went to 14% from 5%. Can this be hyperplasia, or in ADT any PSA up is PCa?
mCRPC. Total PSA is up from 1.2 to 2.1 in 2 months, but free PSA went to 14% from 5%. Can this be hyperplasia, or in ADT any PSA up is PCa regardless of free to total PSA ratio ?
mCRPC. Total PSA is up from 1.2 to 2.1 in 2 months, but free PSA went to 14% from 5%. Can this be hyperplasia, or in ADT any PSA up is PCa regardless of free to total PSA ratio ?
Manilo
in
Advanced Prostate Cancer
11 months ago
Another positive lymph node
Hi all, Quick recap: My dad was diagnosed in 2002 at age 52 with 3+4 pca. Surgical removal at Mayo. 2003 (one year to the date of surgery) PSA was detectable and he had radiation at Mayo. Fast forward 2015, psa detectable again, put on Lupron. C-11 choline scans every 3 months, appt. with Dr. Kwon
Hi all, Quick recap: My dad was diagnosed in 2002 at age 52 with 3+4 pca. Surgical removal at Mayo. 2003 (one year to the date of surgery) PSA was detectable and he had radiation at Mayo. Fast forward 2015, psa detectable again, put on Lupron. C-11 choline scans every 3 months, appt. with Dr. Kwon
Abcsoup73
in
Advanced Prostate Cancer
11 months ago
T level test
Having my first PSA test since IMRT in a few weeks. (last ADT/Lupron was early February. 90 day. Salvage IMRT Radiation ended Early January. Is there a reason my doc didn't order T level test to coincide with the PSA? Seems like you would track increases or Nadirs etc, having them tested the same time
Having my first PSA test since IMRT in a few weeks. (last ADT/Lupron was early February. 90 day. Salvage IMRT Radiation ended Early January. Is there a reason my doc didn't order T level test to coincide with the PSA? Seems like you would track increases or Nadirs etc, having them tested the same time
runtrails
in
Advanced Prostate Cancer
11 months ago
Four Years Results
Hello Everyone, I am reading this forum every day and getting very valuable information. Thank you so much. My hats off to all of you for sharing your experience and knowledge over here and providing much-needed knowledge and compassion to each other. My Case: First diagnosed @ age 71 with PCA in
Hello Everyone, I am reading this forum every day and getting very valuable information. Thank you so much. My hats off to all of you for sharing your experience and knowledge over here and providing much-needed knowledge and compassion to each other. My Case: First diagnosed @ age 71 with PCA in
Pheart2
in
Advanced Prostate Cancer
11 months ago
Are there options past Pluvicto?
Hi! First, thanks to all of you for sharing and caring for each other in this forum. It means so much, to so many of us! I am on this forum on behalf of my father. He was diagnosed last year, and over the last 15 months he has endured ADT, Zytiga, Docetaxel (6 cycles), Cabazitaxel (four cycles before
Hi! First, thanks to all of you for sharing and caring for each other in this forum. It means so much, to so many of us! I am on this forum on behalf of my father. He was diagnosed last year, and over the last 15 months he has endured ADT, Zytiga, Docetaxel (6 cycles), Cabazitaxel (four cycles before
Marit85
in
Advanced Prostate Cancer
11 months ago
Low psa, but have pca
Is there anyone else out there who had a normal PSA,but has prostate cancer. After MRI showing a lesion and in biopsy they see two spots of Gleason 6 cancer, one in each side of prostate. Even though it's a Gleason 6, urologist at top teaching hospital in Philadelphia says I need a radical prostatectomy
Is there anyone else out there who had a normal PSA,but has prostate cancer. After MRI showing a lesion and in biopsy they see two spots of Gleason 6 cancer, one in each side of prostate. Even though it's a Gleason 6, urologist at top teaching hospital in Philadelphia says I need a radical prostatectomy
bubularich
in
Prostate Cancer Network
11 months ago
ADT Hot Flashes
I've been on ADT since Feb, 2023 maintaining everything ok, play Water Polo 4x a week for 2 hours - master water polo team and lift weights - but in the last few weeks the hot flashes are crazy strong. One minute I'm doing great and then 30 seconds later sweating bullets. I work from home thank god,
I've been on ADT since Feb, 2023 maintaining everything ok, play Water Polo 4x a week for 2 hours - master water polo team and lift weights - but in the last few weeks the hot flashes are crazy strong. One minute I'm doing great and then 30 seconds later sweating bullets. I work from home thank god,
plato123
in
Advanced Prostate Cancer
11 months ago
Minimum PSA for GA-68 PSMA Scan
My PSA rose, but only a very minimal amount. I have been on Eligard and abiraterone for five years and my PSA has always been <.05 ng/ml and my last test came back .05 ng/ml with all PSA tests performed at the same lab. My new oncologist wants me to have a GA-68 PSMA scan which seems premature on
My PSA rose, but only a very minimal amount. I have been on Eligard and abiraterone for five years and my PSA has always been <.05 ng/ml and my last test came back .05 ng/ml with all PSA tests performed at the same lab. My new oncologist wants me to have a GA-68 PSMA scan which seems premature on
dmt1121
in
Advanced Prostate Cancer
11 months ago
Help! Need feedback on Pluvicto recommendation
Quick recap - asymptomatic hubby was diagnosed with StageIVb last summer. No mutations but was already in soft tissue of brain, lungs and bones. Stereotactic radiation last July took care of two brain tumors. He has responded extremely well to triple therapy (Lupron, Zytiga, and Docetaxal). It took
Quick recap - asymptomatic hubby was diagnosed with StageIVb last summer. No mutations but was already in soft tissue of brain, lungs and bones. Stereotactic radiation last July took care of two brain tumors. He has responded extremely well to triple therapy (Lupron, Zytiga, and Docetaxal). It took
Sewinggam
in
Advanced Prostate Cancer
11 months ago
Where to go after Lutetium 177?
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Biobro
in
Advanced Prostate Cancer
11 months ago
Biotin
Hello: I understand, have read, you should stop taking any supplemental Biotin anywhere from 2-4 days before a PSA test as it may skew/change the results; my question is, outside changing PSA test results, does Biotin do anything to the PCa you already have, good, or bad; is it safe to supplement Biotin
Hello: I understand, have read, you should stop taking any supplemental Biotin anywhere from 2-4 days before a PSA test as it may skew/change the results; my question is, outside changing PSA test results, does Biotin do anything to the PCa you already have, good, or bad; is it safe to supplement Biotin
900312611
in
Advanced Prostate Cancer
11 months ago
psa increase/ stable scans
My dad had pSMA scan three months ago and Ct this week things are stable but psa continues to go up not significantly but still Increase- does still Have prostate and bone Mets that are there but stable as of now? Has this happened with anyone else?
My dad had pSMA scan three months ago and Ct this week things are stable but psa continues to go up not significantly but still Increase- does still Have prostate and bone Mets that are there but stable as of now? Has this happened with anyone else?
Chris52981
in
Advanced Prostate Cancer
11 months ago
Running out of road....
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
CrocodileShoes
in
Advanced Prostate Cancer
11 months ago
Latest PSA - drop baby drop💙
https://youtu.be/yKd-xMb_Kow A continued decline post IMRTs, 28th done two months ago. Yea, yea, I know that I'm not supposed to check it this soon. But, over 8 yrs post #stageIVpca Dx (39 chemos) has gotten me obsessed with #s 🤣 Rock on, Laugh on, Live on, QoL on 💙 Randy
https://youtu.be/yKd-xMb_Kow A continued decline post IMRTs, 28th done two months ago. Yea, yea, I know that I'm not supposed to check it this soon. But, over 8 yrs post #stageIVpca Dx (39 chemos) has gotten me obsessed with #s 🤣 Rock on, Laugh on, Live on, QoL on 💙 Randy
dockam
in
Advanced Prostate Cancer
11 months ago
Hurdle
Finished 6 pluvicto in May. PSA started at 15 ended at 35. Bone scans at end say many Mets to bone. I particularly felt very winded towards end of pluvicto treatments. I was walking 3-5 miles until April then achiness in femur, and loss off breath. MO had me scheduled to start xofigo 3 weeks ago but
Finished 6 pluvicto in May. PSA started at 15 ended at 35. Bone scans at end say many Mets to bone. I particularly felt very winded towards end of pluvicto treatments. I was walking 3-5 miles until April then achiness in femur, and loss off breath. MO had me scheduled to start xofigo 3 weeks ago but
RunThru
in
Advanced Prostate Cancer
11 months ago
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