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Requesting Help to Develop Bespoke BAT
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Fight Prostate Cancer
11 months ago
Requesting Help to Develop Bespoke BAT Protocol
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Advanced Prostate Cancer
11 months ago
PSA Went Up After Start of ADT
I had my prostate removed in January. I started ADT about two weeks ago and just received my second session of radiation. Prior to starting ADT, my PSA was .37 and a month prior was .22. I had blood drawn right after my first session of radiation yesterday and got the result back today. My PSA has
I had my prostate removed in January. I started ADT about two weeks ago and just received my second session of radiation. Prior to starting ADT, my PSA was .37 and a month prior was .22. I had blood drawn right after my first session of radiation yesterday and got the result back today. My PSA has
toyman79912
in
Advanced Prostate Cancer
11 months ago
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Tests/Scans etc
Does anyone know if there are any blood tests that would indicate whether the cancer has spread and become neuroendocrine? My husband has monthly PSA and Chromogranin A blood tests . PSA remains undetectable but Chroma A is creeping up but still low. His oncologist is not keen on extra scanning but without
Does anyone know if there are any blood tests that would indicate whether the cancer has spread and become neuroendocrine? My husband has monthly PSA and Chromogranin A blood tests . PSA remains undetectable but Chroma A is creeping up but still low. His oncologist is not keen on extra scanning but without
NickJoy
in
Advanced Prostate Cancer
11 months ago
5 year diagnosis anniversary!
I just passed my 5 years diagnosis anniversary, and I’m happy to report that my treatment has been durable and my PSA remains < 0.01. At diagnosis, I had a PSA of 211, an alk phos above 900, multiple Mets, a Gleason of 9 (5+4), and a wonky, non-hereditary PTEN gene. My treatment from day 1 has been
I just passed my 5 years diagnosis anniversary, and I’m happy to report that my treatment has been durable and my PSA remains < 0.01. At diagnosis, I had a PSA of 211, an alk phos above 900, multiple Mets, a Gleason of 9 (5+4), and a wonky, non-hereditary PTEN gene. My treatment from day 1 has been
catbus
in
Advanced Prostate Cancer
11 months ago
Advice Needed, Abiraterone Failing?
Hi to all, I was diagnosed with locally advanced prostate cancer back in 2018. I have had 40 sessions of radiotherapy and HT since then, I am currently taking Abiraterone with Steroids and I have a three-monthly De-Capetyl injection. My Gleason score is 7, (4+3). I recently had a Gallium PSMA PET scan
Hi to all, I was diagnosed with locally advanced prostate cancer back in 2018. I have had 40 sessions of radiotherapy and HT since then, I am currently taking Abiraterone with Steroids and I have a three-monthly De-Capetyl injection. My Gleason score is 7, (4+3). I recently had a Gallium PSMA PET scan
scranbag
in
Advanced Prostate Cancer
11 months ago
Pmr and raised psa
Does anyone know if pmr and predisinol raises your psa .husband was put on predisinol 6 months ago blood test for prostate psa was 5.1 and digital examination done all seemed ok and husband has no prostate problems.He had a flare up due to work load and went from 6 to 8.5 od predisinoland now 8 which
Does anyone know if pmr and predisinol raises your psa .husband was put on predisinol 6 months ago blood test for prostate psa was 5.1 and digital examination done all seemed ok and husband has no prostate problems.He had a flare up due to work load and went from 6 to 8.5 od predisinoland now 8 which
andfio
in
PMRGCAuk
11 months ago
Neuropathic Foot Pain
Hello Warriors: I've just finished my second pluvicto injection and everything seems to be going fine. PSA is going down and I do have mild bouts of diarrhea but that is totally manageable. My 20 year battle with this disease continues. I will never give up . I continue to have neuropathic foot
Hello Warriors: I've just finished my second pluvicto injection and everything seems to be going fine. PSA is going down and I do have mild bouts of diarrhea but that is totally manageable. My 20 year battle with this disease continues. I will never give up . I continue to have neuropathic foot
Hidden
in
Advanced Prostate Cancer
11 months ago
PSA Nadir After RT+ADT for Prostate Cancer Predicts Outcomes
monthshttps://www.renalandurologynews.com/home/news/urology/prostate-cancer/psa-nadir-after-rtadt-for-prostate-cancer-predicts-outcomes/?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter One could read this and construe that that 6 months of ADT would be as good as as 24-36 but of course
monthshttps://www.renalandurologynews.com/home/news/urology/prostate-cancer/psa-nadir-after-rtadt-for-prostate-cancer-predicts-outcomes/?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter One could read this and construe that that 6 months of ADT would be as good as as 24-36 but of course
Scout4answers
in
Advanced Prostate Cancer
11 months ago
Asking employer for accommodations - yes, no, maybe?
Quick background:BCRed about 2.5 years after adjuvant RT to prostatic bed after RARP. Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with PSA at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall
Quick background:BCRed about 2.5 years after adjuvant RT to prostatic bed after RARP. Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with PSA at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall
farmanerd
in
Advanced Prostate Cancer
11 months ago
Pluvicto and tongue and taste issues
Previously posted the below message. Just had third Pluvicto infusion (6/9) and tongue and taste issue has gotten worse. Tried all suggestions from Oral Medicine at Dana and suggestions on HealthUnlocked. Has anyone experienced this issue and if so, any further suggestions. Your input always appreciated
Previously posted the below message. Just had third Pluvicto infusion (6/9) and tongue and taste issue has gotten worse. Tried all suggestions from Oral Medicine at Dana and suggestions on HealthUnlocked. Has anyone experienced this issue and if so, any further suggestions. Your input always appreciated
TTJJ1
in
Advanced Prostate Cancer
11 months ago
Imraldi started Jan 23
Was diagnosed with PSA in Sept 21(previously just arthritis) have been on Sulfasalazine since December 20, Methotrexate tablets from Sept 21 which were changed to metoject in April 22 because of side effects and not really helping! Metoject sent my LFTs sky rocketing to 152 them 196 and they wanted me
Was diagnosed with PSA in Sept 21(previously just arthritis) have been on Sulfasalazine since December 20, Methotrexate tablets from Sept 21 which were changed to metoject in April 22 because of side effects and not really helping! Metoject sent my LFTs sky rocketing to 152 them 196 and they wanted me
Kaylee62
in
Beyond Psoriasis
11 months ago
QoL Book Recommendation?
I'm 75 and four years ago, upon my Dx, my oncologist reluctantly guessed I had 3-4 years. Thankfully, I've reacted great to Erleada and Lupron, with few side effects. My PSA gradually dropped from 67 to undetectable and has held there steady for three years. Obviously, I've been grateful, but stupidly
I'm 75 and four years ago, upon my Dx, my oncologist reluctantly guessed I had 3-4 years. Thankfully, I've reacted great to Erleada and Lupron, with few side effects. My PSA gradually dropped from 67 to undetectable and has held there steady for three years. Obviously, I've been grateful, but stupidly
NorYug
in
Advanced Prostate Cancer
11 months ago
Advice on bloodwork after radiation treatment?
Hello all, I have been coming back to this forum since finding it a few weeks back, and am looking for some advice and thoughts on my father's case. He was diagnosed with prostate cancer (a very low PSA) back in 2016, underwent a radical prostatectomy that year, and then radiation a year or two later
Hello all, I have been coming back to this forum since finding it a few weeks back, and am looking for some advice and thoughts on my father's case. He was diagnosed with prostate cancer (a very low PSA) back in 2016, underwent a radical prostatectomy that year, and then radiation a year or two later
Hidden
in
Advanced Prostate Cancer
11 months ago
How long should PSA go down after SBRT
Before Treatment, 3+4 gleason, PSA 2.7 on Avodart. 9 months after ViewRay SBRT treatment, no ADT, PSA are the following: 8/9/2022 2.7 ng/ml Before Treatment 9/24/2022 Treatment finished 12/2/2022 .92 ng/ml 3/2/2023 .40 ng/ml 6/9/2023 .49 ng/ml How low should PSA go down before
Before Treatment, 3+4 gleason, PSA 2.7 on Avodart. 9 months after ViewRay SBRT treatment, no ADT, PSA are the following: 8/9/2022 2.7 ng/ml Before Treatment 9/24/2022 Treatment finished 12/2/2022 .92 ng/ml 3/2/2023 .40 ng/ml 6/9/2023 .49 ng/ml How low should PSA go down before
Yearofthecow
in
Prostate Cancer Network
11 months ago
Will greatly appreciate your perspectives
Hi, I've had a bizarre array of health issues over 18 mos., head to toe. All types of labs/imaging & doctors. No major urological issues were involved. PSA in 3/22 was 2.5 (2.6 in 2020). 11/22 I repeated many labs. PSA elevated to 5. Got MRI -- PiRads 4. Biopsy GL 4+3, PNI, lesion contained
Hi, I've had a bizarre array of health issues over 18 mos., head to toe. All types of labs/imaging & doctors. No major urological issues were involved. PSA in 3/22 was 2.5 (2.6 in 2020). 11/22 I repeated many labs. PSA elevated to 5. Got MRI -- PiRads 4. Biopsy GL 4+3, PNI, lesion contained
tmscat
in
Advanced Prostate Cancer
11 months ago
I need help please
Hi Feb 2023 my husband PSA was 7.4 considered non urgent by our GP Private MRI showed stage 5 prostrate cancer in situ of right hand side Biopsy showed a a Gleason score of 9 Bone scans clear CT scans clear No node involved Diagnosis TP3a Prostectomy nine weeks ago The results were not great
Hi Feb 2023 my husband PSA was 7.4 considered non urgent by our GP Private MRI showed stage 5 prostrate cancer in situ of right hand side Biopsy showed a a Gleason score of 9 Bone scans clear CT scans clear No node involved Diagnosis TP3a Prostectomy nine weeks ago The results were not great
Goggiealoud
in
Advanced Prostate Cancer
11 months ago
Stable PSA, deep fall testosterone lab results.
At this point I am only getting Lupron injections every four months. Zytiga and Prednisone stopped two months ago. PSA un changed at 1.06 for the last 4 months, testosterone down from 100 last month to 17 yesterday. Kindly asking, what will be the point of starting on Xtandi and get exposed to its nasty
At this point I am only getting Lupron injections every four months. Zytiga and Prednisone stopped two months ago. PSA un changed at 1.06 for the last 4 months, testosterone down from 100 last month to 17 yesterday. Kindly asking, what will be the point of starting on Xtandi and get exposed to its nasty
Blueribbon63
in
Advanced Prostate Cancer
11 months ago
It's still there; now what?
After a few undetectable PSA readings following a prostatectomy, 15 months of Eligard and salvage radiation, my latest reading is 0.03. The oncologist suggests waiting until the next PSA test in November to see the rate of change and once it hits a threshold, I will have another PSMA scan. Is there anything
After a few undetectable PSA readings following a prostatectomy, 15 months of Eligard and salvage radiation, my latest reading is 0.03. The oncologist suggests waiting until the next PSA test in November to see the rate of change and once it hits a threshold, I will have another PSMA scan. Is there anything
Cramlingtonboy
in
Advanced Prostate Cancer
11 months ago
BRCA2 and prostate cancer
My husband has the BRCA2 gene mutation. We’ve known this since 2015 and that he was at a higher risk for prostate cancer which he now has. Ten people from the two generations above him died from cancer including his mother. His PSA has been inching up over the years and is now at 22. He is 67 years old
My husband has the BRCA2 gene mutation. We’ve known this since 2015 and that he was at a higher risk for prostate cancer which he now has. Ten people from the two generations above him died from cancer including his mother. His PSA has been inching up over the years and is now at 22. He is 67 years old
ElaineLynette
in
Prostate Cancer Network
11 months ago
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