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Experiences with
Anagrelide
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Foot ulcers
I cannot begin to explain how debilitating and painful this ulcer was I'm now on
Anagrelide
. This is something I feel should of been picked up sooner as it was 8 weeks before anything was done. Perhaps a word of warning to anyone on Hydroxy.
I cannot begin to explain how debilitating and painful this ulcer was I'm now on
Anagrelide
. This is something I feel should of been picked up sooner as it was 8 weeks before anything was done. Perhaps a word of warning to anyone on Hydroxy.
Benjamin12
in
MPN Voice
5 years ago
ET since 2001, now anxious about changes in blood counts
I was diagnosed with ET in 2001 and, with a few ups and downs, it has mostly been stable on Hydroxycarbamide,
Anagrelide
and Aspirin until now. At my last appointment, my haemaglobin had dropped to 96, platelets 109 and WBC in the 20s (but have been stable around that for a year or so).
I was diagnosed with ET in 2001 and, with a few ups and downs, it has mostly been stable on Hydroxycarbamide,
Anagrelide
and Aspirin until now. At my last appointment, my haemaglobin had dropped to 96, platelets 109 and WBC in the 20s (but have been stable around that for a year or so).
Otterfield
in
MPN Voice
5 years ago
Blood Test Results
I have essential thrombocythaemia (ET) and take
Anagrelide
for it.
I have essential thrombocythaemia (ET) and take
Anagrelide
for it.
flfair
in
Thyroid UK
5 years ago
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PV (JAK2) and Thrombocythemia
Now my Dr. has me on
Anagrelide
for the High Platelets and continuing the phlebotomies. However, my Dr. says I probably will need to go back on the Hydroxyurea for the rest of my life. I am in my late 60's and worry about my how these drugs change your life.
Now my Dr. has me on
Anagrelide
for the High Platelets and continuing the phlebotomies. However, my Dr. says I probably will need to go back on the Hydroxyurea for the rest of my life. I am in my late 60's and worry about my how these drugs change your life.
Buggerbear
in
MPN Voice
5 years ago
Ibuprofen patches?
I do on rare occasions take a couple of ibuprofen, I've been prescribed co-codamol but hate the side effects, as if I don't have enough side effects with the
Anagrelide
and ET!!
I do on rare occasions take a couple of ibuprofen, I've been prescribed co-codamol but hate the side effects, as if I don't have enough side effects with the
Anagrelide
and ET!!
lizzziep
in
MPN Voice
5 years ago
How to cope with palpitations from Anagrelide.
What is the best way of coping with palpitations caused by
Anagrelide
?
What is the best way of coping with palpitations caused by
Anagrelide
?
Mufftreacs
in
MPN Voice
5 years ago
Update
It’s been 6 months trying
Anagrelide
with reducing Hydroxy. I’ve been ok but getting heart palpitation, the doctors have agreed to keep the tablets the same for 2 months. After 12 years they are starting to listen to me and what I want. I’m waiting for my ECG results to come back.
It’s been 6 months trying
Anagrelide
with reducing Hydroxy. I’ve been ok but getting heart palpitation, the doctors have agreed to keep the tablets the same for 2 months. After 12 years they are starting to listen to me and what I want. I’m waiting for my ECG results to come back.
wendycu
in
MPN Voice
5 years ago
Petechaie
I was diagnosed ET in 2016 although I do not carry the jak gene and doc tried
anagrelide
but it didn’t help my platelet numbers..I take a baby aspirin daily.. Just wondering what role the blood spots play if any for people with this disease..
I was diagnosed ET in 2016 although I do not carry the jak gene and doc tried
anagrelide
but it didn’t help my platelet numbers..I take a baby aspirin daily.. Just wondering what role the blood spots play if any for people with this disease..
Hayven
in
MPN Voice
5 years ago
Mouth Ulcers
Morning all, I have et jak2 + diagnosed 2011 age 57, I’m on aspirin, and
anagrelide
. I used to get regular reoccurring mouth ulcers but after cutting out sugar and wheat from my diet they completely abated. Now for some reason they are back with vengeance and I’m losing the will the live!
Morning all, I have et jak2 + diagnosed 2011 age 57, I’m on aspirin, and
anagrelide
. I used to get regular reoccurring mouth ulcers but after cutting out sugar and wheat from my diet they completely abated. Now for some reason they are back with vengeance and I’m losing the will the live!
SuekJ
in
MPN Voice
5 years ago
Anagrelide
My oncologist wants me to start anagrilide ASAP but I’m scared of the side effects I’m 35 with high platelets and doctors still haven’t diagnosed me or reason why I have it .
My oncologist wants me to start anagrilide ASAP but I’m scared of the side effects I’m 35 with high platelets and doctors still haven’t diagnosed me or reason why I have it .
faith949
in
MPN Voice
5 years ago
One year on. and still happy🌞
We hope that the next year will be pretty uneventful MF wise and the hydroxy and
Anagrelide
continue to perform well without side effects as they have done, and her Portal vein hypertension decreases.
We hope that the next year will be pretty uneventful MF wise and the hydroxy and
Anagrelide
continue to perform well without side effects as they have done, and her Portal vein hypertension decreases.
jointpain
in
MPN Voice
5 years ago
Anagrelide and heart issues
Oh, and I was also taken off
Anagrelide
! My issues started when one of the doctors increased my
Anagrelide
dose from four 0.5mg tablets a day to eight 0.5mg tablets a day (this wasn’t done gradually, I just went from four tablets one day to eight the next).
Oh, and I was also taken off
Anagrelide
! My issues started when one of the doctors increased my
Anagrelide
dose from four 0.5mg tablets a day to eight 0.5mg tablets a day (this wasn’t done gradually, I just went from four tablets one day to eight the next).
Hidden
in
MPN Voice
5 years ago
Anagrelide and heart issues
Three or four months into taking
Anagrelide
I developed heart failure symptoms. Has anyone else experienced or heard of this and should the symptoms be reversible?
Three or four months into taking
Anagrelide
I developed heart failure symptoms. Has anyone else experienced or heard of this and should the symptoms be reversible?
Hidden
in
MPN Voice
5 years ago
Iron infusion with MF and on Anagrelide and Hydroxy.
Hi all. My lovely wife, has been suffering with an upper GI bleed these past few days. Her normal haematologist is away. We contacted the hospital and the haematologist there arranged a FBC today. This afternoon called to say she would arrange an Iron infusion for Friday, and I was to tee it up with
Hi all. My lovely wife, has been suffering with an upper GI bleed these past few days. Her normal haematologist is away. We contacted the hospital and the haematologist there arranged a FBC today. This afternoon called to say she would arrange an Iron infusion for Friday, and I was to tee it up with
jointpain
in
MPN Voice
5 years ago
Hydroxyurea break
Switched to
Anagrelide
but having nasty side effects. Just wondering if anyone has had HU stop working and gone back on it after six months or a year break and had it be effective again. I asked my doctor but he didn’t know if that was a possibility. Wishing all of you the best. Doglover
Switched to
Anagrelide
but having nasty side effects. Just wondering if anyone has had HU stop working and gone back on it after six months or a year break and had it be effective again. I asked my doctor but he didn’t know if that was a possibility. Wishing all of you the best. Doglover
Ladygolf
in
MPN Voice
5 years ago
Cough medicine
Does anyone taken cough medicines on hydroxy,
Anagrelide
and aspirin. I am on all 3 meds and my cough is now getting on my nerves. Thank you.
Does anyone taken cough medicines on hydroxy,
Anagrelide
and aspirin. I am on all 3 meds and my cough is now getting on my nerves. Thank you.
wendycu
in
MPN Voice
5 years ago
ET and treatmeant choices
I now have to chose between Interferon Alpha (recommended), Hydroxcarbamide,
Anagrelide
but have no idea which to chose. My thoughts are to go with Interferon but have no real idea which to chose. Anyone have any thoughts or experiences that might help? Thanks Ben
I now have to chose between Interferon Alpha (recommended), Hydroxcarbamide,
Anagrelide
but have no idea which to chose. My thoughts are to go with Interferon but have no real idea which to chose. Anyone have any thoughts or experiences that might help? Thanks Ben
Crofty7
in
MPN Voice
5 years ago
Hereditary??
I have had bone marrow aspirations etc done recently and no jak2 mutations or anything else found.....I take
anagrelide
daily to manage platelet count but most of the info I get is from the internet....any help would be greatly received.... Thanks all
I have had bone marrow aspirations etc done recently and no jak2 mutations or anything else found.....I take
anagrelide
daily to manage platelet count but most of the info I get is from the internet....any help would be greatly received.... Thanks all
GK40
in
MPN Voice
5 years ago
Enlarged liver
I'm 28, have been diagnosed with ET 3 years ago and have been under treatment with Thromboreductin (
Anagrelide
) for a few months. I got an ultrasound the other day and found that I have a slightly enlarged liver, don't know what to make of it, I did not find this in the list of side effects.
I'm 28, have been diagnosed with ET 3 years ago and have been under treatment with Thromboreductin (
Anagrelide
) for a few months. I got an ultrasound the other day and found that I have a slightly enlarged liver, don't know what to make of it, I did not find this in the list of side effects.
Virghil
in
MPN Voice
5 years ago
Treatment not working
because it is very weird and I don't know why my body is suddenly ressisting the treatments. also, I switched to
anagrelide
0.5 two tablets per day two days ago. I don't know about this drug but let's hope for the best Hope you all have a good day :) Thank you
because it is very weird and I don't know why my body is suddenly ressisting the treatments. also, I switched to
anagrelide
0.5 two tablets per day two days ago. I don't know about this drug but let's hope for the best Hope you all have a good day :) Thank you
Wadz
in
MPN Voice
5 years ago
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