Search
Search
About
Log in
Join
Experiences with
Anagrelide
Posts
Communities
228 public posts
Filter results
Update
I saw a consultant yesterday, different from last time, after being off
Anagrelide
for four weeks my platelets had jumped to nearly 800, however my anaemia was worse! I was taken off the
Anagrelide
to help get my blood count up but that didn’t work!
I saw a consultant yesterday, different from last time, after being off
Anagrelide
for four weeks my platelets had jumped to nearly 800, however my anaemia was worse! I was taken off the
Anagrelide
to help get my blood count up but that didn’t work!
lizzziep
in
MPN Voice
1 year ago
Combining Hydroxycarbamide and Anagrelide
I was wondering how common it is to be on both of these at the same time, as I have since last summer. I am on quite high doses of both (plus aspirin) and my platelets still hover around the 700 or 800 mark. The side effects from the medication always seem worse than any symptoms of ET (for which I am
I was wondering how common it is to be on both of these at the same time, as I have since last summer. I am on quite high doses of both (plus aspirin) and my platelets still hover around the 700 or 800 mark. The side effects from the medication always seem worse than any symptoms of ET (for which I am
ETket
in
MPN Voice
1 year ago
Anagrelide problems
Hello everyoneFor the last 6 weeks I've been taking
Anagrelide
for ET. Since I've started the
Anagrelide
my legs and ankles have swollen up. Has anybody else had thus experience with A? Is it a common side effect, and is it likely to get better or worse?
Hello everyoneFor the last 6 weeks I've been taking
Anagrelide
for ET. Since I've started the
Anagrelide
my legs and ankles have swollen up. Has anybody else had thus experience with A? Is it a common side effect, and is it likely to get better or worse?
Sivasi
in
MPN Voice
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Frequent traveler dealing with ET and concerns
I started with
Anagrelide
and found it did not work for me since I developed heart racing. Therefore, I was put onto Interferon. Though it worked, I found dealing with health insurance and taking the vaccines onto planes quite difficult since I am a frequent traveler.
I started with
Anagrelide
and found it did not work for me since I developed heart racing. Therefore, I was put onto Interferon. Though it worked, I found dealing with health insurance and taking the vaccines onto planes quite difficult since I am a frequent traveler.
marinescientist
in
MPN Voice
1 year ago
Response to sunscreen question.
After further discussion he said he was happy to prescribe it if that is what I wanted but felt that
Anagrelide
would be better as it is platelet specific (I have ET) and would not effect my hair.
After further discussion he said he was happy to prescribe it if that is what I wanted but felt that
Anagrelide
would be better as it is platelet specific (I have ET) and would not effect my hair.
Janis12
in
MPN Voice
1 year ago
Myelofibrosis
I've been taking
anagrelide
for about 2 years. At this point, I'm feeling very scared and confused.
I've been taking
anagrelide
for about 2 years. At this point, I'm feeling very scared and confused.
drucella01
in
MPN Voice
1 year ago
Anagrelide side effects
Hi everyoneI've been taking
Anagrelide
for 6 weeks now and I'm putting on a lot of weight suddenly, especially in my face. Plus a thumping heart sometimes. Does anyone know if these side effects lessen with time?
Hi everyoneI've been taking
Anagrelide
for 6 weeks now and I'm putting on a lot of weight suddenly, especially in my face. Plus a thumping heart sometimes. Does anyone know if these side effects lessen with time?
Sivasi
in
MPN Voice
1 year ago
Rux Experience at 5 weeks
I have already tried
Anagrelide
, Peg then HU. Only Peg has been intolerable.
I have already tried
Anagrelide
, Peg then HU. Only Peg has been intolerable.
George1976
in
MPN Voice
1 year ago
Question for the group
I was diagnosed in 2005 with PV jak 2 positive, since then neither my local hospital hematology or guy's hematology have been able to control my counts , going from high with platelets 4,000 ,WBC 33 ,neutrophils 29,then to lows of neutropenia, my medication was hydroxycarbamide and
anagrelide
, also
I was diagnosed in 2005 with PV jak 2 positive, since then neither my local hospital hematology or guy's hematology have been able to control my counts , going from high with platelets 4,000 ,WBC 33 ,neutrophils 29,then to lows of neutropenia, my medication was hydroxycarbamide and
anagrelide
, also
Regge
in
MPN Voice
1 year ago
Erythromelalgia?
I came off
Anagrelide
just after this started as I’m starting new treatment shortly, probably peg interferon.
I came off
Anagrelide
just after this started as I’m starting new treatment shortly, probably peg interferon.
lizzziep
in
MPN Voice
1 year ago
Haematology Appointment Update
Meanwhile I have to come off the
Anagrelide
for 4 weeks to see what difference this makes to my blood counts.
Meanwhile I have to come off the
Anagrelide
for 4 weeks to see what difference this makes to my blood counts.
lizzziep
in
MPN Voice
1 year ago
Peg reduction
I started 90 units a week with 16 Hydroxicarbomide. ( I dropped the weekly 9
anagrelide
) It then went to weekly minus the Hydroxicarbomide. Every 10 days, every 14 days, 17, 21,25, now I’m on 28 days. Not sure how it will work.
I started 90 units a week with 16 Hydroxicarbomide. ( I dropped the weekly 9
anagrelide
) It then went to weekly minus the Hydroxicarbomide. Every 10 days, every 14 days, 17, 21,25, now I’m on 28 days. Not sure how it will work.
Wyebird
in
MPN Voice
5 months ago
Can stress or worries make a big difference in FBC numbers?
During the past year she has been on
anagrelide
3 a day, hydroxy 3 a week keeping her platelets at or around 250 white cells at or around 40 though over the past 8 months her Hgb keeps dropping to a point where she has iron infusions and or packed red cell transfusions.
During the past year she has been on
anagrelide
3 a day, hydroxy 3 a week keeping her platelets at or around 250 white cells at or around 40 though over the past 8 months her Hgb keeps dropping to a point where she has iron infusions and or packed red cell transfusions.
jointpain
in
MPN Voice
1 year ago
Hair Loss on Hydrea
I too loss lots of hair while taking Hydrea, then
Anagrelide
, and finally Jakafi. After starting to an MPN Specialist almost 2 yrs ago & switching to Pegasys, my hair is coming back in. My hair dresser is amazed at how much regrowth I’ve had.
I too loss lots of hair while taking Hydrea, then
Anagrelide
, and finally Jakafi. After starting to an MPN Specialist almost 2 yrs ago & switching to Pegasys, my hair is coming back in. My hair dresser is amazed at how much regrowth I’ve had.
Golfersmom
in
MPN Voice
1 year ago
Anagrelide SCP
I have been on Hydrea for 2 years and I have been feeling nauseous every day so I have started Ansgrelide SCP 0.5mg has anyone tried this this is my fist day hope all are well
I have been on Hydrea for 2 years and I have been feeling nauseous every day so I have started Ansgrelide SCP 0.5mg has anyone tried this this is my fist day hope all are well
Windy51
in
MPN Voice
1 year ago
ET JAK2 Now Starting Peg Via IV?
Switched to
Anagrelide
with less intense side effects on low dose but upon dose increase triggered serious heart and liver effects. Stopped
Anagrelide
in December, have been off of ET drug since then.
Switched to
Anagrelide
with less intense side effects on low dose but upon dose increase triggered serious heart and liver effects. Stopped
Anagrelide
in December, have been off of ET drug since then.
Mishie14
in
MPN Voice
1 year ago
Really??: Pruritus May Mark Severe Symptomology in Myeloproliferative Neoplasms"- From "Hematology Advisor"- Some surprising findings...
The most common treatments were hydroxyurea (35.1%), pegylated-interferon treatment (8.9%), and
anagrelide
(7.1%). Overall, 49.8% of patients reported pruritus.
The most common treatments were hydroxyurea (35.1%), pegylated-interferon treatment (8.9%), and
anagrelide
(7.1%). Overall, 49.8% of patients reported pruritus.
PhysAssist
in
MPN Voice
1 year ago
Hairloss
I've discussed with my consultant and I'm planning on changing medication to
Anagrelide
or Interferon, for this reason. Hope I'm making the right decision!
I've discussed with my consultant and I'm planning on changing medication to
Anagrelide
or Interferon, for this reason. Hope I'm making the right decision!
Sivasi
in
MPN Voice
1 year ago
Relief for Liver?
My Hemo doctor said it was now time to raise dose of
anagrelide
and get platelets down farther. After two weeks at 3 mg per day with 8 hours between each mg, my liver enzymes took off higher than ever before and she told me to stop the
anagrelide
and see liver specialist.
My Hemo doctor said it was now time to raise dose of
anagrelide
and get platelets down farther. After two weeks at 3 mg per day with 8 hours between each mg, my liver enzymes took off higher than ever before and she told me to stop the
anagrelide
and see liver specialist.
Mishie14
in
MPN Voice
1 year ago
BMB results
She also said it could be the
Anagrelide
that was causing the fibrosis and anaemia! I’ve still got a lot of pain from the bmb where they caught the nerves, very painful getting in and out of bed, and hard to get comfortable in bed. Better when I’m moving about.
She also said it could be the
Anagrelide
that was causing the fibrosis and anaemia! I’ve still got a lot of pain from the bmb where they caught the nerves, very painful getting in and out of bed, and hard to get comfortable in bed. Better when I’m moving about.
lizzziep
in
MPN Voice
1 year ago
1
2
3
4
...
12
Next page
10
Filter results
Clear filters
Posted in
All communities
MPN Voice
224 results
Fight MPN
2 results
AF Association
1 result
View top 10 communities
Sort by
Most Relevant
Newest