Experiences with

Anaemia

ps, just reread some other posts and one SD linked to from Seaside Susie says: “More likely you were advised to have an iron panel to see if you have iron deficiency and a full blood count to see if you have anaemia.” So do I need a full blood count at the same time?

Although anaemia was commonly observed, with [177Lu]Lu-PSMA, severe toxicities were infrequent. Improved QoL was observed following [177Lu]Lu-PSMA therapy, whereas it remained stable following the second cycle of [225Ac]Ac-PSMA treatment.

PAS (Pernicious Anaemia Society) https://pernicious-anaemia-society.org/ Does anyone know what PAS is doing as can't find anything on PAS website?

After a tough year with hospital admissions due to gallstones & sepsis ( recurrent,) & 5stone weight loss, l ve been taken off hydroxy due to anaemia, & needing too many blood transfusions. Have been put on Anagrelide & 1 epotein injection per week to try & prevent further transfusions.

Hey guys, quick question, I have pernicious anemia/ gastritis and recently no matter what I eat or drink even it's only a probiotic drink or an apple and water for that day my stomach bloats up so big and tight but when morning comes, I go to the restroom and my stomach goes back down until I drink

We have secured three places for Brighton Marathon Sunday 7th April 2024 in the name of The Pernicious Anaemia Society. We are looking for runners who want to help us raise awareness and raise money for the Pernicious Anaemia Society.

I have had 2 loading doses of B12. Before the 3rd set of loading doses began, the nurses queried the reason for such frequency...This started the drs querying it despite agreeing another 2 nd and 3rd course of B12 due to neurological symptoms. It appears my improvement in symptoms was not quite enough

So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,

Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered

Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because

I have always believed that inflammation was part of my RLS. I believe this because my RLS responds well to ibuprofen. A recent blog was using this study http://www.smj.org.sg/sites/default/files/SMJ-57-514.pdf The study is from 2016. The study proposes to use the neutrophil-to-lymphocyte ratio

How do you know if your intrinsic factor antibody blood test is good or bad?

So i am fully aware that those of us with PA don't absorb b12 through our diets, and that we ideally require treatment through IM injections. But i have also seen articles that suggest that it is at least 'possible' to get 'some' b12 from oral supplements. What do we think about this? I have copied in

Hi, I’ve just had some private test results following a low ferritin result from the GP: TIBC - 64umol/L - 45-81 Transferrin saturation - 18.3% - 25-45 Ferritin - 49ug/L - 44-150 Iron - 11.7umol/L - 10-30 Unsaturated iron binding capacity- 52.3umol/L Vitamin D - 43.6umol/L - normal 50-75, optimal

My daughter has asked her GP for B12 injections (I won't always be around to do them) she has been called in for a blood test, however stating NICE guidelines didn't help. She has previously been misdiagnosed with MS and even her neurologist wrote in a letter last summer that nothing abnormal was found

I’m diagnosed with pernicious anaemia… so it’s literally keeping me alive. I can’t trust them to correct anything. When they pulled my B12 off me my liver was starting to fail.

My main symptom is utter exhaustion and although I now have iron deficiency anaemia which has been worsening over the last year, they still feel like my symptoms can't be the anaemia and must be from over-medicating my thyroid.

Hi all, wondered if anyone could offer some advice, i started B12 injections a couple weeks ago i only did a few days as i started to get symptoms of severe neuropathy n breathing & this cold sensation all over my body, ended up in A&E 🙄 I didnt know if it was because of injections or an advancement

Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections

I’m posting this in hopes it may help other MPN sufferers. In early December, 2023, I saw my longstanding oncologist of 20 years. My labs showed 7.2 hemoglobin I was weak and tired. He sent me to a hematologist at Emory Hospital in Atlanta. The new doctor tested me for my EPO level. Mine barely registered