Search
Search
About
Log in
Join
Experiences with
Aicardi-goutieres syndrome (AGS)
Posts
Communities
3,278 public posts
Filter results
DEXTROMETHOROHAN and RLS
I am possibly going to be taking Avuelity for MDD . I was doing some research on it because of the RLS. There was one article of a woman with RLS who was given Dextromethirphan for a cough and got significant reduction in her symptoms, to the point she stopped Gaba and kept going with the dextromethorphan
I am possibly going to be taking Avuelity for MDD . I was doing some research on it because of the RLS. There was one article of a woman with RLS who was given Dextromethirphan for a cough and got significant reduction in her symptoms, to the point she stopped Gaba and kept going with the dextromethorphan
teakabeagle
in
Restless Legs Syndrome
2 months ago
Is Tramadol effective right away?
After seeing a new neurologist late in April, I started on clonazepam at bedtime. After a week of not having any results other than being way groggier than ever during my walking sessions through the night, I was told to double the dose...still no lessening of my RLS symptoms. Yesterday I was switched
After seeing a new neurologist late in April, I started on clonazepam at bedtime. After a week of not having any results other than being way groggier than ever during my walking sessions through the night, I was told to double the dose...still no lessening of my RLS symptoms. Yesterday I was switched
Marzipana
in
Restless Legs Syndrome
2 months ago
restless leg syndrome
I have read up on this and found a article recommending to take one turmeric and one Tylenol no other type of pain reliever must be Tylenol. When I am getting restless leg syndrome at night I take one of each and I was in total shock because within 15 minutes my legs were calm. I could not believe it
I have read up on this and found a article recommending to take one turmeric and one Tylenol no other type of pain reliever must be Tylenol. When I am getting restless leg syndrome at night I take one of each and I was in total shock because within 15 minutes my legs were calm. I could not believe it
Friend_rsl
in
Restless Legs Syndrome
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
questions about gabapentin
I have severe rls. I have gone through augmentation and had impulse control issues. I went through DAWS when I weaned off pramipraxole. I have been off of DAs for 5 years. I tried to go drug free when I got off but I was going crazy. I found a dr that prescribed methadone. That helped but it really
I have severe rls. I have gone through augmentation and had impulse control issues. I went through DAWS when I weaned off pramipraxole. I have been off of DAs for 5 years. I tried to go drug free when I got off but I was going crazy. I found a dr that prescribed methadone. That helped but it really
senders
in
Restless Legs Syndrome
2 months ago
Living Hell
I first experienced RLS about 1982. I had no idea what was wrong with me so I just put it down to some sort of allergy. As the attacks were quite intermittent, I didn't seek any help at the time. After about a year though. The frequency and severity of the attacks increased manyfold and was now causing
I first experienced RLS about 1982. I had no idea what was wrong with me so I just put it down to some sort of allergy. As the attacks were quite intermittent, I didn't seek any help at the time. After about a year though. The frequency and severity of the attacks increased manyfold and was now causing
SteveSpectra
in
Restless Legs Syndrome
2 months ago
coffeecup
I have tried everything ! After years on Pramipexol I augmented but was persuaded by a neurologist (against my better judgement) to try Ropinerol - guess what - augmentation. After weaning off it I was so looking forward to relief from Pregabalin - no relief just horrendous brain fog. Gabapentin - no
I have tried everything ! After years on Pramipexol I augmented but was persuaded by a neurologist (against my better judgement) to try Ropinerol - guess what - augmentation. After weaning off it I was so looking forward to relief from Pregabalin - no relief just horrendous brain fog. Gabapentin - no
Coffeecup
in
Restless Legs Syndrome
2 months ago
here’s what I use
Neupro patch 24 h 6mg, Tramadol 50 mg at night, Gabapentin 100 mg, Tylenol 500 mg, temazepam 30mg at bedtime, Iron 325 mg 3 x’s a week. Magnesium 500 mg at night. Works pretty good though I’m augmenting. I
Neupro patch 24 h 6mg, Tramadol 50 mg at night, Gabapentin 100 mg, Tylenol 500 mg, temazepam 30mg at bedtime, Iron 325 mg 3 x’s a week. Magnesium 500 mg at night. Works pretty good though I’m augmenting. I
maribarosay
in
Restless Legs Syndrome
2 months ago
Changing opiods
I have severe restless legs and have suffered for many years Recently I came off pramipexole, after augmentation. I am now on Targin 40 mg daily, 15mg at 2pm and 25mg at 8pm. I still suffer from restless legs early in the morning, however it is far less intense. Having read many comments re the benefits
I have severe restless legs and have suffered for many years Recently I came off pramipexole, after augmentation. I am now on Targin 40 mg daily, 15mg at 2pm and 25mg at 8pm. I still suffer from restless legs early in the morning, however it is far less intense. Having read many comments re the benefits
Trish8433
in
Restless Legs Syndrome
2 months ago
2nd post update from neurology and quick Q. can you see your muscles moving?
hi only my second post, had a very disappointing appt with a private neurologist over my RLS and muscle twitching. brief history mine started as muscle twitching out hip surgery with restless legs flaring up as a side dish it’s now widespread twitching and restless legs. He tried prescribing me duloxetine
hi only my second post, had a very disappointing appt with a private neurologist over my RLS and muscle twitching. brief history mine started as muscle twitching out hip surgery with restless legs flaring up as a side dish it’s now widespread twitching and restless legs. He tried prescribing me duloxetine
Zenawarrior73
in
Restless Legs Syndrome
2 months ago
Whirly Whirly bird.
You’ve heard about the whirly whirly bird that flies in ever decreasing circles until it finally flies up its own orifice. Well if not then you’ve probably heard about me HipHop1972, I am that whirly whirly bird. With my surgeries inability to treat my severe refractory RLS quite possibly due to the
You’ve heard about the whirly whirly bird that flies in ever decreasing circles until it finally flies up its own orifice. Well if not then you’ve probably heard about me HipHop1972, I am that whirly whirly bird. With my surgeries inability to treat my severe refractory RLS quite possibly due to the
HipHop1972
in
Restless Legs Syndrome
2 months ago
RLS and augmentation – the battle for sufficient treatment.
A HUGE thank you to everyone who has answered and advised me - both on inquiries regarding switch from pramipexole to pregabalin and experiences of treating RLS with morphine only. It has been a BIG help - thanks to you, my doctor has for the time being agreed to give me a small dose of morphine while
A HUGE thank you to everyone who has answered and advised me - both on inquiries regarding switch from pramipexole to pregabalin and experiences of treating RLS with morphine only. It has been a BIG help - thanks to you, my doctor has for the time being agreed to give me a small dose of morphine while
Gibbel
in
Restless Legs Syndrome
2 months ago
Ibuprofen gel/cream
Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck, though? Or would that find its way into blood or stomach? Paracetamol does very little. Dihydrocodeine is highly effective, but I limit that as it
Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck, though? Or would that find its way into blood or stomach? Paracetamol does very little. Dihydrocodeine is highly effective, but I limit that as it
random901
in
PMRGCAuk
2 months ago
Thinking of switching to Gabapentin or Pregabalin
I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of weird problems like confusion and cursing in a kind of semi-conscious daze. Which is best, Gabapentin or Pregabalin, and how much would I have to
I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of weird problems like confusion and cursing in a kind of semi-conscious daze. Which is best, Gabapentin or Pregabalin, and how much would I have to
Baldrick123
in
Restless Legs Syndrome
2 months ago
Buprenorphine update - one week in
Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had [u]zero[/u] RLS! My IRLSS has gone from the high 30s to 0. Absolutely no symptoms at all. I have spent my nights in bed like a normal person. The relief is unbelievable. On the first night I took one 0.2mg
Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had [u]zero[/u] RLS! My IRLSS has gone from the high 30s to 0. Absolutely no symptoms at all. I have spent my nights in bed like a normal person. The relief is unbelievable. On the first night I took one 0.2mg
Claire_lc
in
Restless Legs Syndrome
2 months ago
buprenorphine for sleep apnea patients
Does anyone know if you can use buprenorphine if you have sleep apnea and use a cpap? I was taking mirapax and oxycodone. Went off mirapax. Took my last mirapax on 5/2. Ever since then I have had rls almost all night after going to bed til morning. I am now taking 4 oxycodone ( 5 mg each) spread
Does anyone know if you can use buprenorphine if you have sleep apnea and use a cpap? I was taking mirapax and oxycodone. Went off mirapax. Took my last mirapax on 5/2. Ever since then I have had rls almost all night after going to bed til morning. I am now taking 4 oxycodone ( 5 mg each) spread
lorri214
in
Restless Legs Syndrome
2 months ago
medication rotation
My RLS doctor, who I have found to be most knowledgeable about RLS put me on Buprenorphine,( .5 mg is my lowest effective dose). I was on Pramipexole without significant augmentation, but discontinued gradually after starting the Bup. After a year of Bup only, after the dopamine receptors have “reset
My RLS doctor, who I have found to be most knowledgeable about RLS put me on Buprenorphine,( .5 mg is my lowest effective dose). I was on Pramipexole without significant augmentation, but discontinued gradually after starting the Bup. After a year of Bup only, after the dopamine receptors have “reset
teakabeagle
in
Restless Legs Syndrome
2 months ago
methadone ? Tolerance
hi, I am wondering if I am developing a tolerance to methadone, and, if so, where too from here? Sorry about the long post but I think if anyone is able to help me, they will need details. Aafter augmenting repeatedly on dopamine agonists I finally withdrew from them cold turkey on on 2 Dec 23, not
hi, I am wondering if I am developing a tolerance to methadone, and, if so, where too from here? Sorry about the long post but I think if anyone is able to help me, they will need details. Aafter augmenting repeatedly on dopamine agonists I finally withdrew from them cold turkey on on 2 Dec 23, not
Mongolia2020
in
Restless Legs Syndrome
2 months ago
Addicted or not addicted
Last night I e xperceived very painful calf muscles and restless leg syndrome . I thought I hade taken my normal prescription of 3 x 50mg of Tramadol! & you can imagine the thought processes regarding augmentation!!When morning arrived my wife asked what was the one Tramadol capsule doing in my pill
Last night I e xperceived very painful calf muscles and restless leg syndrome . I thought I hade taken my normal prescription of 3 x 50mg of Tramadol! & you can imagine the thought processes regarding augmentation!!When morning arrived my wife asked what was the one Tramadol capsule doing in my pill
m1946
in
Restless Legs Syndrome
2 months ago
Gabapentin side effects
I have been taking medication for my RLS for 11 years now. Initially pramipexol for 8 years then Ropinirole for two years and I’ve just started Gabapentin on top of the Ropinirole. I’ve been increasing the Gabapentin to 600mg a day, 100mg in the morning, 200mg afternoon and 300mg at night. I feel
I have been taking medication for my RLS for 11 years now. Initially pramipexol for 8 years then Ropinirole for two years and I’ve just started Gabapentin on top of the Ropinirole. I’ve been increasing the Gabapentin to 600mg a day, 100mg in the morning, 200mg afternoon and 300mg at night. I feel
Louless9
in
Restless Legs Syndrome
2 months ago
Magnesium, how much and tablet/spray
My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other avenues. I have eliminated caffeine and alcohol and have regular exercise but it doesn't seem to help. I recently tried the Therapulse but at times
My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other avenues. I have eliminated caffeine and alcohol and have regular exercise but it doesn't seem to help. I recently tried the Therapulse but at times
ChilliChocolateLover
in
Restless Legs Syndrome
2 months ago
1
...
4
5
6
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1432 results
Fertility Network UK
359 results
PMRGCAuk
133 results
View top 10 communities
Sort by
Most Relevant
Newest