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Experiences with
Androgen deprivation therapy (ADT)
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Benylin
I have an annoying cough, is it ok to take Benylin, Mucus cough Max. Honey and lemon with guaifenesin?I was just about to take 2 spoonfuls and stopped myself just in time incase it interfered with my RLS. Thanking you
I have an annoying cough, is it ok to take Benylin, Mucus cough Max. Honey and lemon with guaifenesin?I was just about to take 2 spoonfuls and stopped myself just in time incase it interfered with my RLS. Thanking you
antelope99
in
Restless Legs Syndrome
6 months ago
A Little Christmas Wish
I’ve posted many times in the last ten years since our 29 year old son sustained a severe brain injury in a car crash. At this time in 2013 he was still in intensive care and, although out of his induced coma, he was showing very few signs of movement. For months we had no idea what kind of future he
I’ve posted many times in the last ten years since our 29 year old son sustained a severe brain injury in a car crash. At this time in 2013 he was still in intensive care and, although out of his induced coma, he was showing very few signs of movement. For months we had no idea what kind of future he
Elkay_1954
in
Headway
6 months ago
Salvage Options after Relapse
More radiation (and likely
ADT
) has its own issues. I understand I’m out of great choice but wondering if folks have salvage experiences to share? At only 56 looking for something that will get me pretty far down the road. thanks much.
More radiation (and likely
ADT
) has its own issues. I understand I’m out of great choice but wondering if folks have salvage experiences to share? At only 56 looking for something that will get me pretty far down the road. thanks much.
Xcrunner1988
in
Prostate Cancer Network
1 year ago
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Subgroup Analysis from Arasens - darolutamide / triplet therapy
Presented at Uro conference this week: https://www.urotoday.com/conference-highlights/asco-gu-2023/asco-gu-2023-prostate-cancer/142449-asco-gu-2023-efficacy-and-safety-of-darolutamide-in-combination-with-
adt
-and-docetaxel-by-disease-volume-and-disease-risk-in-the-phase-3-arasens-study.html?
Presented at Uro conference this week: https://www.urotoday.com/conference-highlights/asco-gu-2023/asco-gu-2023-prostate-cancer/142449-asco-gu-2023-efficacy-and-safety-of-darolutamide-in-combination-with-
adt
-and-docetaxel-by-disease-volume-and-disease-risk-in-the-phase-3-arasens-study.html?
Heykm01
in
Advanced Prostate Cancer
1 year ago
Ouch! Santa only left me lumps of coal. Still digesting my latest DX and any input would be welcome.
The symptoms fit at least 20 other diseases and the SE of my
ADT
. Probably it is undercounted since it get mixed in with other comorbidites. About a 35% chance that it will turn into Acute Myeloid Leukemia. Some thought that radiation may cause it.
The symptoms fit at least 20 other diseases and the SE of my
ADT
. Probably it is undercounted since it get mixed in with other comorbidites. About a 35% chance that it will turn into Acute Myeloid Leukemia. Some thought that radiation may cause it.
SpencerBoy11
in
Advanced Prostate Cancer
1 year ago
Strength Training Problem; Advice?
My only therapy for mPC DX 4 years ago has been
ADT
(Lupron & abiraterone). So far so good in that my PSA remains < 0.1 and occasional imaging indicates that my upper spine met isn’t growing. I’ve learned to live with all the usual SEs. Immediately after DX, I stepped up my exercising at the gym.
My only therapy for mPC DX 4 years ago has been
ADT
(Lupron & abiraterone). So far so good in that my PSA remains < 0.1 and occasional imaging indicates that my upper spine met isn’t growing. I’ve learned to live with all the usual SEs. Immediately after DX, I stepped up my exercising at the gym.
Gearhead
in
Advanced Prostate Cancer
1 year ago
question about hypothermia?
I feel ok , more or less , nothing different - additional than my usual daily parade of extreme
adt
issues.
I feel ok , more or less , nothing different - additional than my usual daily parade of extreme
adt
issues.
Kaliber
in
Advanced Prostate Cancer
1 year ago
on going struggles
Approaching 5yrs post tbi someone ruined my life for no reason in a cowardly sneak attack and my subsequent collision with concrete steps. I got no criminal compensation cause ambulance paramedics were told by people that knew the attacker and covered up by saying I fell down steps drunk. I was not of
Approaching 5yrs post tbi someone ruined my life for no reason in a cowardly sneak attack and my subsequent collision with concrete steps. I got no criminal compensation cause ambulance paramedics were told by people that knew the attacker and covered up by saying I fell down steps drunk. I was not of
Jpdee75
in
Headway
6 months ago
Stability of NDT at 5C - stored in the fridge
Hello lovely people I am an idiot! It’s official. I’ve been storing my NDT in the fridge instead of at room temperature. Efra (the manufacturer) have said they have no data to confirm if it’s still effective, so said I should stop taking it. That’s £300 worth of NDT, which I just cannot afford to throw
Hello lovely people I am an idiot! It’s official. I’ve been storing my NDT in the fridge instead of at room temperature. Efra (the manufacturer) have said they have no data to confirm if it’s still effective, so said I should stop taking it. That’s £300 worth of NDT, which I just cannot afford to throw
PixieElv
in
Thyroid UK
8 months ago
Adt and heart arrythmia
This is my husbands second time taking
adt
in 5 years since a ct scan shows 2 pelvic lymph nodes. we cannot recall this side effect first time around, although it is classed as a side effect.
This is my husbands second time taking
adt
in 5 years since a ct scan shows 2 pelvic lymph nodes. we cannot recall this side effect first time around, although it is classed as a side effect.
Knittingque
in
Advanced Prostate Cancer
2 years ago
12 months hormone therapy done.
PSA has been <0.01 from when i first started
ADT
.
PSA has been <0.01 from when i first started
ADT
.
Runner1957
in
Prostate Cancer Network
2 years ago
intro / husband in critical care
Hi My husband has a road accident on 24/11 suffered an tbi and is currently in critical care. He has been off sedation since about the 27/11 but is still unconcious. He is responding to pain and has started to lift both arms when nurses fiddle with his tubes. He was off the ventilator all day yesterday
Hi My husband has a road accident on 24/11 suffered an tbi and is currently in critical care. He has been off sedation since about the 27/11 but is still unconcious. He is responding to pain and has started to lift both arms when nurses fiddle with his tubes. He was off the ventilator all day yesterday
Lunalg
in
ICUsteps
6 months ago
? Cover required for endometrial biopsy
I have been on prednisolone for over 2 years now and still on 10mg. I have a hysteroscopy and endometrial biopsy planned tomorrow and although this is only a minor procedure with no general anaesthetic or sedation, I’m just wondering whether I will need any extra steroid cover? Does anyone have any knowledge
I have been on prednisolone for over 2 years now and still on 10mg. I have a hysteroscopy and endometrial biopsy planned tomorrow and although this is only a minor procedure with no general anaesthetic or sedation, I’m just wondering whether I will need any extra steroid cover? Does anyone have any knowledge
PPop
in
PMRGCAuk
6 months ago
NDT Supplier - from America
dear everyone just wondered if we are allowed- if anyone could pm me a supplier for NDT. I am currently with an Endo who will prescribe T3 but is really not keen to give me NDT. I did have it many years ago from a UK private doctor but since he passed away I have not been able to get it. my apologies
dear everyone just wondered if we are allowed- if anyone could pm me a supplier for NDT. I am currently with an Endo who will prescribe T3 but is really not keen to give me NDT. I did have it many years ago from a UK private doctor but since he passed away I have not been able to get it. my apologies
Delilahmy
in
Thyroid UK
8 months ago
Three strikes and...
My MO has never been in favor of adding Zytiga as
ADT
+. I'm thinking he is going to wait for the PSA to go above .5 and when order another PSMA scan before starting Zytiga. I'm also thinking starting Zytiga now rather than later makes sense since the cancer is apparently no longer confined.
My MO has never been in favor of adding Zytiga as
ADT
+. I'm thinking he is going to wait for the PSA to go above .5 and when order another PSMA scan before starting Zytiga. I'm also thinking starting Zytiga now rather than later makes sense since the cancer is apparently no longer confined.
Jvaughan0
in
Advanced Prostate Cancer
1 year ago
please could I have feedback on my results?
I’ve been on NDT under a private consultant now since March and these are my latest results. I feel like my symptoms are mostly managed with the exception of sleep. Do you think I need a 1/4 grain increase or should I just leave be? My waking temperatures are still low although my general coldness has
I’ve been on NDT under a private consultant now since March and these are my latest results. I feel like my symptoms are mostly managed with the exception of sleep. Do you think I need a 1/4 grain increase or should I just leave be? My waking temperatures are still low although my general coldness has
Knackeredandcross
in
Thyroid UK
8 months ago
First ever PSMA scan shows two small bone lesions
At the time his MO was suggesting adding Zytiga per studies showing its effectiveness with
ADT
at diagnosis for localized high grade cancer (he is Gleason 9). MO also ordered PSMA scan which is now available locally as a baseline, this is his first. PSA is 0.03.
At the time his MO was suggesting adding Zytiga per studies showing its effectiveness with
ADT
at diagnosis for localized high grade cancer (he is Gleason 9). MO also ordered PSMA scan which is now available locally as a baseline, this is his first. PSA is 0.03.
mooman80
in
Advanced Prostate Cancer
1 year ago
NDT range
wanted to ask you … Iam on NDT currently and wanted to ask what are tsh , t4 and t3 ideal range please ? Where the numbers should be ?
wanted to ask you … Iam on NDT currently and wanted to ask what are tsh , t4 and t3 ideal range please ? Where the numbers should be ?
Ari3
in
Thyroid UK
8 months ago
useful web site for comparing different treatments with os
Next week I will start my 25 days of EBRT and continue on with two years of
ADT
. One thing that I have often searched for is life expectancy nomograms or calculators for my given disease and my selected treatment plan.
Next week I will start my 25 days of EBRT and continue on with two years of
ADT
. One thing that I have often searched for is life expectancy nomograms or calculators for my given disease and my selected treatment plan.
Jancapper
in
Advanced Prostate Cancer
2 years ago
what’s 1 grain of NDT in Levo please?
hello lovely people How much T4 and T3 are in 1 grain of NDT please? Thank you
hello lovely people How much T4 and T3 are in 1 grain of NDT please? Thank you
PixieElv
in
Thyroid UK
8 months ago
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