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Actemra
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Dosing off prednisone.
I am on 5 mgs prednisone and on
actemra
. I am having trouble getting off 4 yrs prednisone. Working with endo but she is too main stream. Gaia has an Adrenal supplement and I figure there are many ways to help get my numbers better while trying to get off prednisone. I am in pain all the time.
I am on 5 mgs prednisone and on
actemra
. I am having trouble getting off 4 yrs prednisone. Working with endo but she is too main stream. Gaia has an Adrenal supplement and I figure there are many ways to help get my numbers better while trying to get off prednisone. I am in pain all the time.
Leeleep
in
PMRGCAuk
3 years ago
KEVZARA® (sarilumab)
My rheumy is switching me to that because
Actemra
1) doesn't interact well with my recently-diagnose diverticulitis and 2) has been approved for Covid (and is, thus, harder to get). It sounds like Kevzara is mostly for RA.
My rheumy is switching me to that because
Actemra
1) doesn't interact well with my recently-diagnose diverticulitis and 2) has been approved for Covid (and is, thus, harder to get). It sounds like Kevzara is mostly for RA.
winfong
in
PMRGCAuk
3 years ago
Acterma - Side Effects
I am taking
Actemra
after having been diagnosed with GCA several months ago. A week ago, I developed bags under my eyes and swelling on both my feet. Has anyone else experienced this? Is it a common side effect of the medication?
I am taking
Actemra
after having been diagnosed with GCA several months ago. A week ago, I developed bags under my eyes and swelling on both my feet. Has anyone else experienced this? Is it a common side effect of the medication?
Emira1
in
PMRGCAuk
3 years ago
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Terrible timing - 2 hour power cut this morning when I had 3 fruit cakes in the oven!
Fortunately, I took the paperwork (that comes with the Ro-
actemra
injection packs) and passed them on to the nurse as proof that I needed the non-live jab. (I wasn’t intending to marzipan/ ice the fruit cakes but the big dents in the middle sadly make it necessary! Hey ho) .
Fortunately, I took the paperwork (that comes with the Ro-
actemra
injection packs) and passed them on to the nurse as proof that I needed the non-live jab. (I wasn’t intending to marzipan/ ice the fruit cakes but the big dents in the middle sadly make it necessary! Hey ho) .
Suzita76
in
PMRGCAuk
3 years ago
An update …
I continued on and at the point of reducing to .5mgs, just after my first 4weekly
Actemra
, I started to feel the old signs. That was about two weeks ago. I pressed on with .5mgs, due for my second 4 weekly
Actemra
on Saturday, but decided to check my blood to see what was going on. Bingo!
I continued on and at the point of reducing to .5mgs, just after my first 4weekly
Actemra
, I started to feel the old signs. That was about two weeks ago. I pressed on with .5mgs, due for my second 4 weekly
Actemra
on Saturday, but decided to check my blood to see what was going on. Bingo!
LemonZest11
in
PMRGCAuk
3 years ago
Visit to rheumy today re: vision loss GCA
After 4-6 weeks, he probably will reintroduce
Actemra
and then hope to taper.
After 4-6 weeks, he probably will reintroduce
Actemra
and then hope to taper.
Grammy80
in
PMRGCAuk
3 years ago
Update on my GCA/Large vessel vasculitis journey: off pred and back to normal (with TCZ)
I am off prednisolone since mid of July (i.e., after 5 months) and continue with weekly
Actemra
injections. I have fortunately no side effects from
Actemra
(neither subjective nor indicated by blood parameters).
I am off prednisolone since mid of July (i.e., after 5 months) and continue with weekly
Actemra
injections. I have fortunately no side effects from
Actemra
(neither subjective nor indicated by blood parameters).
DeepThought2
in
PMRGCAuk
3 years ago
Change in medications
I also have been on Enbrel, Humira and recently started
Actemra
. In May I was in the hospital with a Pulmonary Embolism and a DVT on my right knee. I was supposed to have surgery on my right knee but it got postponed until 8/16.
I also have been on Enbrel, Humira and recently started
Actemra
. In May I was in the hospital with a Pulmonary Embolism and a DVT on my right knee. I was supposed to have surgery on my right knee but it got postponed until 8/16.
beasehorn
in
NRAS
3 years ago
I've been absent too long, beginning to feel human~LONG
I return next month, and we will continue to drop it but slower along with the
Actemra
. He wanted me to see the eye doctor and called him. He did another visual field and exam and was not comfortable saying the vision was stable.
I return next month, and we will continue to drop it but slower along with the
Actemra
. He wanted me to see the eye doctor and called him. He did another visual field and exam and was not comfortable saying the vision was stable.
Grammy80
in
PMRGCAuk
3 years ago
No Actemra
Just went to order monthly supply of tocilizumab/
Actemra
. For the first time ever I was told to call back next week to see if they have any. She said there is a shortage. Anyone else have this happen? I'm in midwest USA.
Just went to order monthly supply of tocilizumab/
Actemra
. For the first time ever I was told to call back next week to see if they have any. She said there is a shortage. Anyone else have this happen? I'm in midwest USA.
Spanky2019
in
PMRGCAuk
3 years ago
E- mail question.
Has anyone on
actemra
/ tocil. received an E-mail from Roche about an "adverse event" concerning this drug? I opened it and it requires permission from me to allow them to access my health professionals, and for me to answer questions.
Has anyone on
actemra
/ tocil. received an E-mail from Roche about an "adverse event" concerning this drug? I opened it and it requires permission from me to allow them to access my health professionals, and for me to answer questions.
lindyloy
in
PMRGCAuk
3 years ago
Adult stills disease and covid virus.
Please i need help is it dangerous for someone with stills disease to get covid-19 even while taking
actemra
I'm so worried for my sister she stayed with my other sister who got infected . Is it serious please i need to know😭😭😭
Please i need help is it dangerous for someone with stills disease to get covid-19 even while taking
actemra
I'm so worried for my sister she stayed with my other sister who got infected . Is it serious please i need to know😭😭😭
Hope7777
in
NRAS
3 years ago
Actemra side effects
Can't find any evidence of this anywhere else, but every time I get an infusion, I just have to crawl in bed. I usually have my infusion on Fridays, so the weekend is pretty much shot. Usually feeling better by Monday morning, just in time for work. :^( Wondering if anyone else has experienced something
Can't find any evidence of this anywhere else, but every time I get an infusion, I just have to crawl in bed. I usually have my infusion on Fridays, so the weekend is pretty much shot. Usually feeling better by Monday morning, just in time for work. :^( Wondering if anyone else has experienced something
winfong
in
PMRGCAuk
3 years ago
Recently diagnosed with GCA. What the hell ! Update !
I am taking the
Actemra
and am down to 20 mg of prednisone a day. The headaches had continued and even seemed to get worse. The rheumatologist said my inflammation levels had returned to normal and he was unsure why my headaches have increased.
I am taking the
Actemra
and am down to 20 mg of prednisone a day. The headaches had continued and even seemed to get worse. The rheumatologist said my inflammation levels had returned to normal and he was unsure why my headaches have increased.
GlennStephen
in
PMRGCAuk
3 years ago
Actemra approved for Covid?
Just heard about this: Genentech’s
Actemra
Receives FDA Emergency Use Authorization for the Treatment of COVID-19 In Hospitalized Adults and Children https://www.businesswire.com/news/home/20210624006034/en/Genentech%E2%80%99s-
Actemra
-Receives-FDA-Emergency-Use-Authorization-for-the-Treatment-of-COVID
Just heard about this: Genentech’s
Actemra
Receives FDA Emergency Use Authorization for the Treatment of COVID-19 In Hospitalized Adults and Children https://www.businesswire.com/news/home/20210624006034/en/Genentech%E2%80%99s-
Actemra
-Receives-FDA-Emergency-Use-Authorization-for-the-Treatment-of-COVID
winfong
in
PMRGCAuk
3 years ago
An update....vision and flare~!
No
Actemra
now and I think it will be a while. I look like a leper; one area on my leg is weeping, although I don't see any torn tissue~~and one open sore I am working on. I have been diagnosed with lymphodema and have a therapy appointment set up for August 2.
No
Actemra
now and I think it will be a while. I look like a leper; one area on my leg is weeping, although I don't see any torn tissue~~and one open sore I am working on. I have been diagnosed with lymphodema and have a therapy appointment set up for August 2.
Grammy80
in
PMRGCAuk
3 years ago
Has anyone achieved a reduction in fatigue from PMR through the introduction of tocilizumab (Actemra) into their treatment regimen?
So I would be very much interested in hearing from anyone who has gotten relief from PMR fatigue through the use of tocilizumab (
Actemra
) or, perhaps less commonly, Kevzara (sarilumab).
So I would be very much interested in hearing from anyone who has gotten relief from PMR fatigue through the use of tocilizumab (
Actemra
) or, perhaps less commonly, Kevzara (sarilumab).
Ozark
in
PMRGCAuk
3 years ago
Actemra/tocilizumab
Hi, I’m looking for any of you who have experience with these infusions. I’ 14 months in and can’t seem to taper off Prednisone., also taking Methatroxate. My doc wants me to try these infusions. Does anyone have experience they would like to share?
Hi, I’m looking for any of you who have experience with these infusions. I’ 14 months in and can’t seem to taper off Prednisone., also taking Methatroxate. My doc wants me to try these infusions. Does anyone have experience they would like to share?
Suzorand
in
PMRGCAuk
3 years ago
Off Actemra & Fosomax on Antibiotics!...again🤷🏻♀️🤷🏻♂️
The infection was the trigger, which X'd out the
Actemra
, which meant more steroids which threw the seizure meds off....so we are holding steady. Hopefully, those meds will be corrected tomorrow or at least played with.
The infection was the trigger, which X'd out the
Actemra
, which meant more steroids which threw the seizure meds off....so we are holding steady. Hopefully, those meds will be corrected tomorrow or at least played with.
Grammy80
in
PMRGCAuk
3 years ago
Headache, some jaw pain.... Phooey!! # &#@%^
Wondering....the rheumy took me off
Actemra
because of the infection and I have remained at 14mg of Pred each morning. My instincts tell me I should increase it but wondered by how much and for how long? Could the lack of
Actemra
be making these other symptoms worse?
Wondering....the rheumy took me off
Actemra
because of the infection and I have remained at 14mg of Pred each morning. My instincts tell me I should increase it but wondered by how much and for how long? Could the lack of
Actemra
be making these other symptoms worse?
Grammy80
in
PMRGCAuk
3 years ago
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